Quality of life and type 1 diabetes: a study assessing patients’ perceptions and self-management needs

References

• The Diabetes Control and Complications Trial Research GroupThe effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitusN Engl J Med1993329149779868366922
   PubMed Web of Science ®Google Scholar
• Carrillo DominguezAIncidence of type 1 diabetes mellitus in the Canary Islands (1995–1996). Epidemiologic Group of the Canary Society of Endocrinology and NutritionRev Clin Esp2000525726010901003
   PubMed Web of Science ®Google Scholar
• Belinchón Sz-SomozaBMHernández BayoJACabrera RodríguezRIncidence of childhood type 1 diabetes (0–14 yrs) in La Palma Island: 1993–2007Diabetologia200851S1158
   Google Scholar
• RodríguezCGarcía-NúñezMMarreroDFactores predisponentes y tratamiento de la cetoacidosis diabética en el área sur de Gran CanariaAv Diabetol200925supl 190
   Google Scholar
• AndersonRMDonnellyMBDedrickRFMeasuring the attitudes of patients towards diabetes and its treatmentPatient Educ Couns1990162312452290778
   PubMed Web of Science ®Google Scholar
• ColagiuriREigenmannCAA national consensus on outcomes and indicators for diabetes patient educationDiabet Med20092644244619388976
   PubMed Web of Science ®Google Scholar
• AaltoAMUutelaAAroARHealth related quality of life among insulin-dependent diabetics: disease-related and psychosocial correlatesPatient Educ Couns1997302152259104378
   PubMed Web of Science ®Google Scholar
• DelamaterAMJacobsonAMAndersonBPsychosocial therapies in diabetes: report of the Psychosocial Therapies Working GroupDiabetes Care2001241286129211423517
   PubMed Web of Science ®Google Scholar
• GlasgowREToobertDJGilletteCDPsychosocial barriers to diabetes self-management and quality of lifeDiabet Spectrum2001143341
   Google Scholar
• KanbaraSTaniguchiHSakaueMSocial support, self-efficacy and psychological stress responses among outpatients with diabetes in Yogyakarta, IndonesiaDiabet Res Clin Prac2008805662
   PubMed Web of Science ®Google Scholar
• SenécalCNouwenAWhiteDMotivation and dietary self-care in adults with diabetes: are self-efficacy and autonomous self-regulation complementary or competing constructs?Health Psychol20001945245711007153
   PubMed Web of Science ®Google Scholar
• HahlJHämäläinenHSintonenHSimellTArinenSSimellOHealth-related quality of life in type 1 diabetes without or with symptoms of long-term complicationsQual Life Res20021142743612113390
   PubMed Web of Science ®Google Scholar
• RubinRRPeyrotMQuality of life and diabetesDiabetes Metab Res Rev19991520521810441043
   PubMed Web of Science ®Google Scholar
• The Diabetes Control and Complications Trial Research GroupInfluence of intensive diabetes treatment on quality-of-life outcomes in the diabetes control and complications trialDiabetes Care1996191952038742561
   PubMed Web of Science ®Google Scholar
• HoeyHAanstootHJChiarelliFGood metabolic control is associated with better quality of life in 2,101 adolescents with type 1 diabetesDiabetes Care2001241923192811679458
   PubMed Web of Science ®Google Scholar
• WeingerKJacobsonAMPsychosocial and quality of life correlates of glycemic control during intensive treatment of type 1 diabetesPatient Educ Couns20014212313111118778
   PubMed Web of Science ®Google Scholar
• TanSMKShafieeZWuLLRizalAMReyJMFactors associated with control of type I diabetes in Malaysian adolescents and young adultsInt J Psychiatry Med20053512313616240970
   PubMed Web of Science ®Google Scholar
• WikbladKLeksellJWibellLHealth-related quality of life in relation to metabolic control and late complications in patients with insulin dependent diabetes mellitusQual Life Res199651231308901375
   PubMed Web of Science ®Google Scholar
• SparringVNyströmLWahlströmRJonssonPMOstmanJBurströmKDiabetes duration and health-related quality of life in individuals with onset of diabetes in the age group 15–34 years – a Swedish population-based study using EQ-5DBMC Public Health20131337723607813
   PubMed Web of Science ®Google Scholar
• SpeightJReaneyMDBarnardKDNot all roads lead to Rome-a review of quality of life measurement in adults with diabetesDiabet Med20092631532719388959
   PubMed Web of Science ®Google Scholar
• GibbonsEFitzpatrickRA Structured Review of Patient-Reported Outcome Measures (PROMs) for Diabetes Patient-Reported Outcome Measurement Group 2009OxfordDepartment of Public Health University of Oxford2009
   Google Scholar
• American Diabetes AssociationStandards of medical care in diabetes-2012Diabetes Care201235suppl 1S11S6322187469
   PubMed Web of Science ®Google Scholar
• MillánMMReviriegoJDel CampoJRevaluación de la versión española del cuestionario diabetes quality of life (EsDQOL) [Reappraisal of the Spanish version of the diabetes quality of life questionnaire]Endocrinología y Nutrición200249322324
   Google Scholar
• The DCCT Research GroupReliability and validity of a diabetes quality-of-life measure for the diabetes control and complications trial (DCCT). The DCCT Research GroupDiabetes Care199811725732
   Google Scholar
• Epidemiology of Diabetes Interventions and Complications (EDIC)Design, implementation, and preliminary results of a long-term follow-up of the Diabetes Control and Complications Trial cohortDiabetes Care1999229911110333910
   PubMed Web of Science ®Google Scholar
• Ramón GomisJLHerrera-PomboACalderónCRubio-TerrésPValidación del cuestionario Diabetes Treatment Satisfaction Questionnaire (DTSQ) en la población españolaPharmacoeconomics20063718
   Google Scholar
• PeyrotMBurnsKKDaviesMDiabetes attitudes wishes and needs 2 (DAWN2): a multinational, multi-stakeholder study of psychosocial issues in diabetes and person-centred diabetes careDiabetes Res Clin Pract201399217418423273515
   PubMed Web of Science ®Google Scholar
• MachadoAAnarteMTRuiz de AdanaMSPredictores de Calidad de Vida en Pacientes con Diabetes Mellitus Tipo 1Clínica Y Salud2010213547
   Google Scholar
• AshwellSGBradleyCStephensJWWitthausEHomePDTreatment satisfaction and quality of life with insulin glargine plus insulin lispro compared with NPH insulin plus unmodified human insulin in individuals with type 1 diabetesDiabetes Care20083161112111718339977
   PubMed Web of Science ®Google Scholar
• WitthausEStewartJBradleyCTreatment satisfaction and psychological well-being with insulin glargine compared with NPH in patients with Type 1 diabetesDiabet Med20011861962511553198
   PubMed Web of Science ®Google Scholar
• HuangESBrownSESEwigmanBGFoleyECMeltzerDOPatient perceptions of quality of life with diabetes-related complications and treatmentsDiabetes Care200730102478248317623824
   PubMed Web of Science ®Google Scholar
• JacobsonAMBraffettBHClearyPAGubitosi-KlugRALarkinMEThe long-term effects of type 1 diabetes treatment and complications on health-related quality of life: a 23-year follow-up of the diabetes control and complications/epidemiology of diabetes interventions and complications cohortDiabetes Care2013363131313823835693
   PubMed Web of Science ®Google Scholar
• WikbyAHörnquistJOStenströmUAnderssonPOBackground factors, long-term complications, quality of life and metabolic control in insulin dependent diabetesQual Life Res199322812868220362
   PubMed Web of Science ®Google Scholar
• Guttmann-BaumanIFlahertyBPStruggerMMcEvoyRCMetabolic control and quality-of-life self-assessment in adolescents with IDDMDiabetes Care1998219159189614607
   PubMed Web of Science ®Google Scholar
• AmblerGRFairchildJCraiMECameronFJContemporary Australian outcomes in childhood and adolescence type 1 diabetes: 10 years post the diabetes control and complications trialJ Paediatr Child Health20074340341017489833
   PubMed Web of Science ®Google Scholar
• IngersollGMarreroDGA modified quality of life measure for youths: psychometric propertiesDiabetes Educ1991171141181995281
   PubMedGoogle Scholar
• GreyMBolandEYuCSullivan-BolyaiSTamborlaneWVPersonal and family factors associated with quality of life in adolescents with diabetesDiabetes Care1998219099149614606
   PubMed Web of Science ®Google Scholar
• TrentoMPaneroFPortaMPiedmont Study Group for Diabetes EpidemiologyDiabetes-specific variables associated with quality of life changes in young diabetic people: the type 1 diabetes Registry of Turin (Italy)Nutr Metab Cardiovasc Dis2013231031103623466181
   PubMed Web of Science ®Google Scholar
• EiserCFlynnMGreenEQuality of life in young adults with type 1 diabetes in relation to demographic and disease variablesDiabet Med199293753781600711
   PubMed Web of Science ®Google Scholar
• SinghHBradleyCQuality of life in diabetesInt J Diabet Develop Countries200626710
   Google Scholar
• BradleyCMeasuring quality of life in diabetesDiabet Annu199610207224
   Google Scholar
• Study Group DAFNETraining in flexible, intensive insulin management to enable dietary freedom in people with type 1 diabetes: dose adjustment for normal eating (DAFNE) randomised controlled trialBr Med J2002325736774612364302
   PubMed Web of Science ®Google Scholar
• RapleyPAxonSBabelGDose adjustment for normal eating: longer term perspectives of adults with type 1 diabetesJ Diabet Mellitus201404179188
   Google Scholar
• WattsSO’HaraLTriggRLiving with type 1 diabetes: a by-person qualitative explorationPsychol Health201025449150620204938
   PubMed Web of Science ®Google Scholar
• Escudero-CarreteroMJPrieto-RodríguezMFernandez-FernandezIMarch-CerdaJCExpectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care processHealth Expect200710433734917986070
   PubMed Web of Science ®Google Scholar
• MillanMMdel CampoJMillanMDAntonSReviriegoJAnalysis of the experience of diabetes mellitus through case study: an approach to patient’s quality of lifeMed Clin (Barc)2002114suppl 3909210994570
   PubMedGoogle Scholar
• IslaPLiving with diabetes: quality of care and quality of lifePatient Prefer Adherence20115657221423590
   PubMed Web of Science ®Google Scholar
• SchäferIPawelsMKüverCStrategies for improving participation in diabetes education. A qualitative studyPLoS ONE201494e9503524733428
   PubMed Web of Science ®Google Scholar
• SánchezRMLópez PlasenciaYPreliminary evaluation of the ANAIS education programme for type 1 diabetes (T1D): a randomised controlled trialDiabetes201463suppl 1A17
   Google Scholar