Understanding patient preferences and willingness to pay for hemophilia therapies

References

• Centers for Disease Control and PreventionHemophilia data and statistics in the United States Available from: http://www.cdc.gov/ncbddd/hemophilia/data.htmlAccessed September 14, 2014
   Google Scholar
• CallaghanMKaufmanRCellular processing of factor VIII and factor IXLeeCABerntorpEEHootsKWTextbook of Hemophilia2nd edCambridge, UKWiley-Blackwell20101323
   Google Scholar
• CoppolaADi CapuaMDi MinnoMNTreatment of hemophilia: a review of current advances and ongoing issuesJ Blood Med2010118319522282697
   PubMedGoogle Scholar
• Manco-JohnsonMJAbshireTCShapiroADProphylaxis versus episodic treatment to prevent joint disease in boys with severe hemophiliaN Engl J Med2007357653554417687129
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and PreventionReport on the universal data collection program2014 Available from: http://www.cdc.gov/ncbddd/blooddisorders/udc/documents/report-udcprogram_january2005-december-2009_jan-2014.pdfAccessed September 14, 2014
   Google Scholar
• FranchiniMMannucciMPProphylaxis for adults with hemophilia: towards a personalised approach?Blood Transfus201210212312422337279
   PubMed Web of Science ®Google Scholar
• RichardsMAltisentCBatorovaAShould prophylaxis be used in adolescent and adult patients with severe hemophilia? An European survey of practice and outcome dataHaemophilia20071347347917880432
   PubMed Web of Science ®Google Scholar
• WalshCEValentinoLAFactor VIII prophylaxis for adult patients with severe hemophilia A: results of a US survey of attitudes and practicesHaemophilia2009151014102119493018
   PubMed Web of Science ®Google Scholar
• van DijkKFischerKvan der BomJGScheibelEIngerslevJvan den BergHMCan long-term prophylaxis for severe hemophilia be stopped in adulthood? Results from Denmark and the NetherlandsBr J Haematol200513010711215982352
   PubMed Web of Science ®Google Scholar
• ZappaSMcDanielMMarandolaJAllenGTreatment trends for haemophilia A and haemophilia B in the United States: results from the 2010 practice patterns surveyHemophilia201218e140e153
   PubMed Web of Science ®Google Scholar
• FischerKProphylaxis for adults with hemophilia: one size does not fit allBlood Transfus201210216917322575241
   PubMed Web of Science ®Google Scholar
• ValentinoLAControversies regarding the prophylactic management of adults with severe hemophilia AHaemophilia200915suppl 251820041959
   PubMed Web of Science ®Google Scholar
• MakrisMProphylaxis in hemophilia should be life-longBlood Transfus20121016516822337280
   PubMed Web of Science ®Google Scholar
• GlobeDRCurtisRGKoerperMAHUGSSteeringCommittee. Utilization of care in haemophilia: a resource-based method for cost analysis from the Haemophilia Utilization Group Study (HUGS)Haemophilia200410suppl 1637014987251
   PubMed Web of Science ®Google Scholar
• JohnsonKAZhouZYCosts of care in hemophilia and possible implications of health care reformHematology Am Soc Hematol Educ Program2011201141341822160067
   PubMed Web of Science ®Google Scholar
• http://c-path.org/wp-content/uploads/2013/09/PRO_Consortium_FDA_PDUFA_V_PatientFocusedDD.pdfAccessed July 5, 2015
   Google Scholar
• ReginsterJYRabendaVNeuprezAAdherence, patient preference and dosing frequency: understanding the relationshipBone2006384 suppl 1S2S616520104
   PubMed Web of Science ®Google Scholar
• HuynhTKOstergaardAEgsmoseCMadsenORPreferences of patients and health professionals for route and frequency of administration of biologic agents in the treatment of rheumatoid arthritisPatient Prefer Adherence20148939924470758
   PubMed Web of Science ®Google Scholar
• MakitaKOkanoHFuruyaTSurvey of the utility of once-monthly bisphosphonate treatment for improvement of medication adherence in osteoporosis patients in JapanJ Bone Miner Metab2015331556024442791
   PubMed Web of Science ®Google Scholar
• PoulosCHauberABGonzálezJMTurpcuAPatients’ willingness to trade off between the duration and frequency of rheumatoid arthritis treatmentsArthritis Care Res201466710081015
   Web of Science ®Google Scholar
• González-RojasNGiménezEFernándezMÁPreferences for oral anticoagulant treatment in the medium and long term prevention of stroke in non valvular atrial fibrillationRev Neurol2012551111922718404
   PubMed Web of Science ®Google Scholar
• RatcliffeJBuxtonMPatients’ preferences regarding the process and outcomes of life-saving technology. An application of conjoint analysis to liver transplantationInt J Technol Assess Health Care199915234035110507193
   PubMed Web of Science ®Google Scholar
• de Bekker-GrobEWEssink-BotMLMeerdingWJPolsHAKoesBWSteyerbergEWPatients’ preferences for osteoporosis drug treatment: a discrete choice experimentOsteoporos Int20081971029103718193329
   PubMed Web of Science ®Google Scholar
• ArdenNKHauberABMohamedAFHow do physicians weigh benefits and risks associated with treatments in patients with osteoarthritis in the United Kingdom?J Rheumatol20123951056106322422497
   PubMed Web of Science ®Google Scholar
• MohamedAFJohnsonFRHauberABLescrauwaetBMastersonAPhysicians’ stated trade-off preferences for chronic hepatitis B treatment outcomes in Germany, France, Spain, Turkey, and ItalyEur J Gastroenterol Hepatol201224441942622330238
   PubMed Web of Science ®Google Scholar
• BridgesJFMohamedAFFinnernHWWoehlAHauberABPatients’ preferences for treatment outcomes for advanced non-small cell lung cancer: a conjoint analysisLung Cancer201277122423122369719
   PubMed Web of Science ®Google Scholar
• LewisSMCullinaneFNBishopAJChittyLSMarteauTMHallidayJLA comparison of Australian and UK obstetricians’ and midwives’ preferences for screening tests for down syndromePrenat Diagn2006261606616378328
   PubMed Web of Science ®Google Scholar
• McTaggart-CowanHMShiPFitzgeraldJMAn evaluation of patients’ willingness to trade symptom-free days for asthma-related treatment risks: a discrete choice experimentJ Asthma200845863063818951253
   PubMed Web of Science ®Google Scholar
• JohnsonFRHauberABOzdemirSLyndLQuantifying women’s stated benefit – risk trade-off preferences for IBS treatment outcomesValue Health201013441842320230550
   PubMed Web of Science ®Google Scholar
• JohnsonFRLancsarEMarshallDConstructing experimental designs for discrete-choice experiments: report of the ISPOR Conjoint Analysis Experimental Design Good Research Practices Task ForceValue Health201316131323337210
   PubMed Web of Science ®Google Scholar
• LouviereJHensherDSwaitJStated Choice Methods Analysis and ApplicationsCambridge, UKCambridge University Press2000261265
   Google Scholar
• LancasterKJA new approach to demand theoryJ Polit Econ1966741132157
   Web of Science ®Google Scholar