How Patients with an Uncertain Diagnosis Experience Intolerance of Uncertainty: A Grounded Theory Study

References

• Sump CA, Marshall TL, Ipsaro AJ, et al. Uncertain diagnoses in a children’s hospital: patient characteristics and outcomes. Diagnosis. 2020.
   Web of Science ®Google Scholar
• Yan C, Lindgren H, Nieves JC. A dialogue-based approach for dealing with uncertain and conflicting information in medical diagnosis. Auton Agent Multi Agent Syst. 2018;32(6):861–885.
   Web of Science ®Google Scholar
• Counsell A, Furtado M, Iorio C, et al. Intolerance of uncertainty, social anxiety, and generalized anxiety: differences by diagnosis and symptoms. Psychiatry Res. 2017;252:63–69.
   PubMed Web of Science ®Google Scholar
• Wahlund T, Andersson E, Jolstedt M, et al. Intolerance of uncertainty-focused treatment for adolescents with excessive worry: a Pilot Feasibility Study. Cogn Behav Pract. 2020;27(2):215–230.
   Web of Science ®Google Scholar
• Bhise V, Rajan SS, Sittig DF, Morgan RO, Chaudhary P, Singh H. Defining and measuring diagnostic uncertainty in medicine: a systematic review. J Gen Intern Med. 2018;33(1):103–115.
   PubMed Web of Science ®Google Scholar
• Bhise V, Meyer AND, Menon S, et al. Patient perspectives on how physicians communicate diagnostic uncertainty: an experimental vignette study. Int J Qual Health Care. 2018;30(1):2–8.
   PubMed Web of Science ®Google Scholar
• Buhr K, Dugas MJ. The role of fear of anxiety and intolerance of uncertainty in worry: an experimental manipulation. Behav Res Ther. 2009;47(3):215–223.
   PubMed Web of Science ®Google Scholar
• Bhise V, Rajan SS, Sittig DF, et al. Defining and measuring diagnostic uncertainty in medicine: a systematic review. J Gen Intern Med. 2018;33(1):103–115.
   PubMed Web of Science ®Google Scholar
• Cowie J, Clementi MA, Alfano CA. Examination of the intolerance of uncertainty construct in youth with generalized anxiety disorder. J Clin Child Adolesc Psychol. 2018;47(6):1014–1022.
   PubMed Web of Science ®Google Scholar
• Laposa JM, Fracalanza K. Does intolerance of uncertainty mediate improvement in anger during group CBT for GAD? A preliminary investigation. Behav Cogn Psychother. 2019;47(5):585–593.
   PubMed Web of Science ®Google Scholar
• Kusec A, Tallon K, Koerner N. Intolerance of uncertainty, causal uncertainty, causal importance, self-concept clarity and their relations to generalized anxiety disorder. Cogn Behav Ther. 2016;45(4):307–323.
   PubMed Web of Science ®Google Scholar
• Jensen D, Cohen JN, Mennin DS, Fresco DM, Heimberg RG. Clarifying the unique associations among intolerance of uncertainty, anxiety, and depression. Cogn Behav Ther. 2016;45(6):431–444.
   PubMed Web of Science ®Google Scholar
• Gillett CB, Bilek EL, Hanna GL, Fitzgerald KD. Intolerance of uncertainty in youth with obsessive-compulsive disorder and generalized anxiety disorder: a transdiagnostic construct with implications for phenomenology and treatment. Clin Psychol Rev. 2018;60:100–108.
   PubMed Web of Science ®Google Scholar
• Kim MK, Lee KS, Kim B, Choi TK, Lee SH. Impact of mindfulness-based cognitive therapy on intolerance of uncertainty in patients with panic disorder. Psychiatry Investig. 2016;13(2):196–202.
   PubMed Web of Science ®Google Scholar
• Kurita K, Garon EB, Stanton AL, Meyerowitz BE. Uncertainty and psychological adjustment in patients with lung cancer. Psychooncology. 2013;22(6):1396–1401.
   PubMed Web of Science ®Google Scholar
• Donthula D, Kortlever JTP, Ring D, Donovan E, Reichel LM, Vagner GA. Does intolerance of uncertainty affect the magnitude of limitations or pain intensity? Clin Orthop Relat Res. 2020;478(2):381–388.
   PubMed Web of Science ®Google Scholar
• Eisenberg SA, Kurita K, Taylor-Ford M, Agus DB, Gross ME, Meyerowitz BE. Intolerance of uncertainty, cognitive complaints, and cancer-related distress in prostate cancer survivors. Psychooncology. 2015;24(2):228–235.
   PubMed Web of Science ®Google Scholar
• San Martín C, Jacobs B, Vervliet B. Further characterization of relief dynamics in the conditioning and generalization of avoidance: effects of distress tolerance and intolerance of uncertainty. Behav Res Ther. 2020;124:103526.
   PubMed Web of Science ®Google Scholar
• Alschuler KN, Beier ML. Intolerance of uncertainty: shaping an agenda for research on coping with multiple sclerosis. Int J MS Care. 2015;17(4):153–158.
   PubMedGoogle Scholar
• Rasmussen NH, Smith SA, Maxson JA, et al. Association of HbA1c with emotion regulation, intolerance of uncertainty, and purpose in life in type 2 diabetes mellitus. Prim Care Diabetes. 2013;7(3):213–221.
   PubMed Web of Science ®Google Scholar
• Zhao X, Zhu Z, Yu M, et al. The experience of intolerance of uncertainty in patients with no clear diagnosis: a qualitative study. Chinese J Nursx. 2020;55(04):488–493.
   Google Scholar
• Blumer H. Symbolic Interactionism: Perspective and Method. University of California Press; 1986.
   Google Scholar
• Morse JM, Stern PN, Corbin J, et al. Developing Grounded Theory: The Second Generation. Walnut Creek, Calif: Routledge; 2009.
   Google Scholar
• Timonen V, Foley G, Conlon C. Challenges when using grounded theory: a pragmatic introduction to doing GT research. Int J Qualitative Methods. 2018;17(1):16094069–18758086.
   Web of Science ®Google Scholar
• Strauss AL, Corbin JM. Grounded theory in practice. Contemp Sociol. 1997;28(4):296.
   Web of Science ®Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
   PubMed Web of Science ®Google Scholar
• Yang Z. Psychometric properties of the Intolerance of Uncertainty Scale (IUS) in a Chinese-speaking population. Behav Cogn Psychother. 2013;41(4):500–504.
   PubMed Web of Science ®Google Scholar
• Carleton RN. Into the unknown: a review and synthesis of contemporary models involving uncertainty. J Anxiety Disord. 2016;39:30–43.
   PubMed Web of Science ®Google Scholar
• Hebert EA, Dugas MJ. Behavioral experiments for intolerance of uncertainty: challenging the unknown in the treatment of generalized anxiety disorder. Cogn Behav Pract. 2019;26(2):421–436.
   Web of Science ®Google Scholar
• Dar KA, Iqbal N, Mushtaq A. Intolerance of uncertainty, depression, and anxiety: examining the indirect and moderating effects of worry. Asian J Psychiatr. 2017;29:129–133.
   PubMed Web of Science ®Google Scholar
• Wright CJ, Clark GI, Rock AJ, et al. Intolerance of uncertainty mediates the relationship between adult attachment and worry. Pers Individ Dif. 2017;112:97–102.
   Web of Science ®Google Scholar
• Flores A, López FJ, Vervliet B, et al. Intolerance of uncertainty as a vulnerability factor for excessive and inflexible avoidance behavior. Behav Res Ther. 2018;104:34–43.
   PubMed Web of Science ®Google Scholar
• Neville A, Kopala-Sibley DC, Soltani S, et al. A longitudinal examination of the interpersonal fear avoidance model of pain: the role of intolerance of uncertainty. Pain. 2021;162(1):152–160.
   PubMed Web of Science ®Google Scholar
• Jensen D, Kind AJ, Morrison AS, et al. Intolerance of uncertainty and immediate decision-making in high-risk situations. J Exp Psychopathol. 2014;5(2):178–190.
   Web of Science ®Google Scholar
• Talkovsky AM, Norton PJ. Negative affect and intolerance of uncertainty as potential mediators of change in comorbid depression in transdiagnostic CBT for anxiety. J Affect Disord. 2018;236:259–265.
   PubMed Web of Science ®Google Scholar
• Torbit L, Laposa JM. Group CBT for GAD: the role of change in intolerance of uncertainty in treatment outcomes. Int J Cogn Ther. 2016;9(4):1–13.
   Web of Science ®Google Scholar
• Carleton RN, Duranceau S, Shulman EP, Zerff M, Gonzales J, Mishra S. Self-reported intolerance of uncertainty and behavioural decisions. J Behav Ther Exp Psychiatry. 2016;51:58–65.
   PubMed Web of Science ®Google Scholar
• Hunt C, Cooper SE, Hartnell MP, Lissek S. Anxiety sensitivity and intolerance of uncertainty facilitate associations between generalized Pavlovian fear and maladaptive avoidance decisions. J Abnorm Psychol. 2019;128(4):315–326. Available from: https://psycnet.apa.org/record/2019-11183-001
   PubMed Web of Science ®Google Scholar