238
Views
0
CrossRef citations to date
0
Altmetric
ORIGINAL RESEARCH

Emotional Coping Strategies for Informal Caregivers of Hospitalized Patients: A Study of Distress and Overload

ORCID Icon, , , , ORCID Icon &
Pages 725-734 | Received 27 Oct 2023, Accepted 08 Feb 2024, Published online: 21 Feb 2024

References

  • Alam S, Hannon B, Zimmermann C. Palliative Care for Family Caregivers. J Clin Oncol. 2020;38(9):926–936. doi:10.1200/JCO.19.00018
  • Too W, Lelei F, Adam M, Halestrap P. Preparedness, resilience and unmet needs of informal caregivers of advanced cancer patients in a Regional Mission Hospital in Kenya: qualitative Study. BMC Palliat Care. 2023;22(1):16. doi:10.1186/s12904-022-01048-6
  • Hidalgo-Andrade P, Martínez-Rodríguez S. Development of a cognitive-existential intervention to decrease compassion fatigue in formal caregivers. Interdiscip Rev Psicol Cienc Afines. 2020;37(2):239–251. doi:10.16888/interd.2020.37.2.15
  • Amiresmaili M, Goudarzi R, Agoush L. Informal Caregivers and Care Burden in Iran: systematic Review and Meta-Analysis. Iran J Nurs Midwifery Res. 2023;28(6):649–658. doi:10.4103/ijnmr.ijnmr_343_21
  • Eterovic CA, Mendoza Parra SE, Sáez Carrillo KL. Habilidad de cuidado y nivel de sobrecarga en cuidadoras/es informales de personas dependientes. Enferm Glob. 2015;14(2):235. doi:10.6018/eglobal.14.2.198121
  • Sánchez Martínez RT, Molina Cardona EM, Gómez-Ortega OR. Intervenciones de enfermería para disminuir la sobrecarga en cuidadores: un estudio piloto. Rev Cuid. 2016;7(1):1171. doi:10.15649/cuidarte.v7i1.251
  • Schrank B, Ebert-Vogel A, Amering M, et al. Gender differences in caregiver burden and its determinants in family members of terminally ill cancer patients: caregiver burden in family members of terminally ill cancer patients. Psycho-oncology. 2016;25(7):808–814. doi:10.1002/pon.4005
  • Torres P, Parra S, Chiriboga M, Sáez K. Perfil biosociodemográfico del cuidador principal informal del adulto mayor en una región de Ecuador. Rev EUGENIO ESPEJO. 2022;17(1):63–77. doi:10.37135/ee.04.16.08
  • Cham CQ, Ibrahim N, Siau CS, et al. Caregiver Burden among Caregivers of Patients with Mental Illness: a Systematic Review and Meta-Analysis. Healthc Basel Switz. 2022;10(12):2423. doi:10.3390/healthcare10122423
  • Spitzer N, Shafir T, Lerman Y, Werner P. The Relationship Between Caregiver Burden and Emotion Recognition Deficits in Persons With MCI and Early AD: the Mediating Role of Caregivers’ Subjective Evaluations. Alzheimer Dis Assoc Disord. 2019;33(3):266–271. doi:10.1097/WAD.0000000000000323
  • Ministerio de Inclusión Económica y Social.El MIES promueve la inclusión económica de las y los cuidadoras de las personas con discapacidad. Comunicados MIES; 2023. Available from: https://www.inclusion.gob.ec/el-mies-promueve-la-inclusion-economica-de-las-y-los-cuidadoras-de-las-personas-con-discapacidad/#:~:text=As%C3%AD%20mismo%2C%20el%20MIES%20brinda,econ%C3%B3mico%20de%20USD%20240%20mensuales. Accessed February 21, 2024.
  • Peng Y, Xu Y, Yue L, Chen F, Wang J, Sun G. Resilience in Informal Caregivers of Patients with Heart Failure in China: exploring Influencing Factors and Identifying the Paths. Psychol Res Behav Manag. 2023;16:1097–1107. doi:10.2147/PRBM.S405217
  • United Nations Economic Commission For Latin America And The Caribbean. Panorama Social de America Latina 2021. United Nations; 2023.
  • Hoffmann RL, Mitchell AM. Caregiver Burden: historical Development. Nurs Forum. 1998;33(4):5–12. doi:10.1111/j.1744-6198.1998.tb00223.x
  • Coumoundouros C, Farrand P, Hamilton A, Von Essen L, Sanderman R, Woodford J. Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey. BMC Nephrol. 2023;24(1):4. doi:10.1186/s12882-022-03052-7
  • Guo M, Kim S, Dong X. Sense of Filial Obligation and Caregiving Burdens Among Chinese Immigrants in the United States. J Am Geriatr Soc. 2019;67. doi:10.1111/jgs.15735
  • Lazarus RS, Folkman S. Stress, Appraisal, and Coping. Springer Pub. Co; 1984.
  • Amonoo HL, Johnson PC, Nelson AM, et al. Coping in caregivers of patients with hematologic malignancies undergoing hematopoietic stem cell transplantation. Blood Adv. 2023;7(7):1108–1116. doi:10.1182/bloodadvances.2022008281
  • Reyna-García PD, Caycho-Rodríguez T, Rojas-Jara C. Síndrome de sobrecarga y estrategias de afrontamiento en cuidadores principales de pacientes oncológicos pediátricos. Psicooncología. 2021;18(2):245–259. doi:10.5209/psic.77753
  • Sandín B, Chorot P. Cuestionario de afrontamiento del estrés (CAE): desarrollo y validación preliminar. Rev Psicopatología Psicol Clínica. 2003;8(1). doi:10.5944/rppc.vol.8.num.1.2003.3941
  • Fritz HL. Caregiving in quarantine: humor styles, reframing, and psychological well-being among parents of children with disabilities. J Soc Pers Relat. 2022;39(3):615–639. doi:10.1177/02654075211043515
  • Little LM, Kluemper D, Nelson DL, Ward A. More Than Happy to Help? Customer-Focused Emotion Management Strategies. Pers Psychol. 2013;66(1):261–286. doi:10.1111/peps.12010
  • Panayiotou G, Karekla M, Mete I. Dispositional coping in individuals with anxiety disorder symptomatology: avoidance predicts distress. J Context Behav Sci. 2014;3(4):314–321. doi:10.1016/j.jcbs.2014.07.001
  • del-Pino-Casado R, Frías-Osuna A, Palomino-Moral PA, Pancorbo-Hidalgo PL. Coping and subjective burden in caregivers of older relatives: a quantitative systematic review: coping and subjective burden in caregivers. J Adv Nurs. 2011;67(11):2311–2322. doi:10.1111/j.1365-2648.2011.05725.x
  • Tsiakiri A, Vlotinou P, Paschalidou A, et al. A Scoping Review on Coping Strategies and Quality of Life of Stroke Caregivers: often Underestimated Variables in Stroke Recovery Process? BioMed. 2023;3(3):349–368. doi:10.3390/biomed3030029
  • Matsushita M, Ishikawa T, Koyama A, et al. Is sense of coherence helpful in coping with caregiver burden for dementia? Psychogeriatrics. 2014;14(2):87–92. doi:10.1111/psyg.12050
  • Akpan-Idiok PA, Ehiemere IO, Asuquo EF, Chabo JAU, Osuchukwu EC. Assessment of burden and coping strategies among caregivers of cancer patients in sub-Saharan Africa. World J Clin Oncol. 2020;11(12):1045–1063. doi:10.5306/wjco.v11.i12.1045
  • Kazemi A, Azimian J, Mafi M, Allen KA, Motalebi SA. Caregiver burden and coping strategies in caregivers of older patients with stroke. BMC Psychol. 2021;9(1):51. doi:10.1186/s40359-021-00556-z
  • Sołtys A, Tyburski E. Predictors of mental health problems in formal and informal caregivers of patients with Alzheimer’s disease. BMC Psychiatry. 2020;20(1):435. doi:10.1186/s12888-020-02822-7
  • Killin A, Pain R. How WEIRD is Cognitive Archaeology? Engaging with the Challenge of Cultural Variation and Sample Diversity. Rev Philos Psychol. 2023;14(2):539–563. doi:10.1007/s13164-021-00611-z
  • Bully P, Artieta-Pinedo I, Paz-Pascual C, et al. Development and evaluation of the psychometric properties of a digital questionnaire for the evaluation of perinatal psychosocial needs. BMC Pregnancy Childbirth. 2023;23(1):736. doi:10.1186/s12884-023-06050-1
  • Haydon HM, Major T, Kelly JT, et al. Development and validation of the Digital Health Acceptability Questionnaire. J Telemed Telecare. 2023;29(10_suppl):8S–15S. doi:10.1177/1357633X231202279
  • Faul F, Erdfelder E, Buchner A, Lang AG. Statistical power analyses using G*Power 3.1: tests for correlation and regression analyses. Behav Res Methods. 2009;41(4):1149–1160. doi:10.3758/BRM.41.4.1149
  • Lovibond PF, Lovibond SH. The structure of negative emotional states: comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behav Res Ther. 1995;33(3):335–343. doi:10.1016/0005-7967(94)00075-U
  • Sanmartín R, Suria-Martínez R, de L -L-LM, Vicent M, Gonzálvez C, García-Fernández JM. Validation, factorial invariance, and latent mean differences across sex of the Depression, Anxiety, and Stress Scales (DASS-21) in Ecuadorian university sample. Prof Psychol Res Pract. 2022;53(4):398–406. doi:10.1037/pro0000442
  • Daza P, Novy DM, Stanley MA, Averill P. The Depression Anxiety Stress Scale-21: Spanish Translation and Validation with a Hispanic Sample. J Psychopathol Behav Assess. 2002;24(3):195–205. doi:10.1023/A:1016014818163
  • Moss KO, Kurzawa C, Daly B, Prince-Paul M. Identifying and Addressing Family Caregiver Anxiety. J Hosp Palliat Nurs. 2019;21(1):14–20. doi:10.1097/NJH.0000000000000489
  • Zarit SH, Zarit JM. The Memory and Behavior Problems Checklist and the Burden Interview. Gerontology Center, The Pennsylvania State University; 1990.
  • Martín-Carrasco M, Otermin P, Pérez-Camo V, et al. EDUCA study: psychometric properties of the Spanish version of the Zarit Caregiver Burden Scale. Aging Mental Health. 2010;14(6):705–711. doi:10.1080/13607860903586094
  • JASP Team. JASP. 2023.
  • D’Alessandro M. Economía Feminista: Cómo Construir Una Sociedad Igualitaria (Sin Perder El Glamour). Sudamericana; 2016.
  • ONU Mujeres Ecuador. Estudio Violencia Política Contra Las Mujeres En El Ecuador; 2019. Available from: https://ecuador.un.org/sites/default/files/2020-02/violencia%20politica%20baja.pdf. Accessed February 21, 2024.
  • Martínez Guzmán JP. Can gender‐responsive budgeting change how governments budget?: lessons from the case of Ecuador. Public Adm. 2023. doi:10.1111/padm.12926
  • Sharma N, Chakrabarti S, Grover S. Gender differences in caregiving among family - caregivers of people with mental illnesses. World J Psychiatry. 2016;6(1):7. doi:10.5498/wjp.v6.i1.7
  • Pinquart M, Sorensen S. Gender Differences in Caregiver Stressors, Social Resources, and Health: an Updated Meta-Analysis. J Gerontol B Psychol Sci Soc Sci. 2006;61(1):P33–P45. doi:10.1093/geronb/61.1.P33
  • Calvete E, Franco MAR, Oñate L, Alonso MSI, Bermejo-Toro L. Trait Mindfulness, Rumination, and Well-being in Family Caregivers of People with Acquired Brain Injury. Clínica Salud. 2021;32(2):71–77. doi:10.5093/clysa2021a5
  • Rodas JA, Jara‐Rizzo MF, Greene CM, Moreta-Herrera R, Oleas D. Cognitive emotion regulation strategies and psychological distress during lockdown due to COVID −19. Int J Psychol. 2022;57(3):315–324. doi:10.1002/ijop.12818
  • Rodas JA, Jara-Rizzo M, Oleas D. Emotion regulation, psychological distress and demographic characteristics from an Ecuadorian sample: data from the lockdown due to COVID-19. Data Brief. 2021;37:107182. doi:10.1016/j.dib.2021.107182
  • Wen X, Liang Y, Ni J, Han X, Gu D. Impact of caregiver burden on caregiver mental health in patients with esophageal cancer: chain mediating effects of benefit finding and rumination, a cross-sectional study. J Gastrointest Oncol. 2022;13(5):2132–2143. doi:10.21037/jgo-22-884
  • Yığman F, Aykın Yığman Z, Ünlü Akyüz E. Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of children with cerebral palsy. Ir J Med Sci. 2020;189(4):1413–1419. doi:10.1007/s11845-020-02214-6
  • Harrison DS, Cole KD. Family Dynamics and Caregiver Burden in Home Health Care. Clin Geriatr Med. 1991;7(4):817–830. doi:10.1016/S0749-0690(18)30522-6
  • Tarrier N, Barrowclough C, Ward J, Donaldson C, Burns A, Gregg L. Expressed emotion and attributions in the carers of patients with Alzheimer’s disease: the effect on carer burden. J Abnorm Psychol. 2002;111(2):340–349. doi:10.1037/0021-843X.111.2.340
  • Möller-Leimkühler AM, Wiesheu A. Caregiver burden in chronic mental illness: the role of patient and caregiver characteristics. Eur Arch Psychiatry Clin Neurosci. 2012;262(2):157–166. doi:10.1007/s00406-011-0215-5