Measuring medicine-related experiences from the patient perspective: a systematic review

References

• Royal Pharmaceutical Society [homepage on the Internet]Medicines optimisation: helping patients to make the most of medicines. Good practice guidance for healthcare professionals in England2013 Available from: http://www.rpharms.com/promoting-pharmacy-pdfs/helping-patients-make-the-most-of-their-medicines.pdfAccessed August 26, 2015
   Google Scholar
• GuthrieBMakubateBHernandez-SantiagoVDreischulteTThe rising tide of polypharmacy and drug-drug interactions: population database analysis 1995–2010BMC Med201513111025563062
   PubMed Web of Science ®Google Scholar
• GallacherKMayCRMontoriVMMairFSUnderstanding patients’ experiences of treatment burden in chronic heart failure using normalization process theoryAnn Fam Med20119323524321555751
   PubMed Web of Science ®Google Scholar
• EtonDRidgewayJEggintonJFinalizing a measurement framework for the burden of treatment in complex patients with chronic conditionsPatient Relat Outcome Meas2015611712625848328
   PubMedGoogle Scholar
• EtonDTElraiyahTAYostKJA systematic review of patient-reported measures of burden of treatment in three chronic diseasesPatient Relat Outcome Meas2013472023833553
   PubMedGoogle Scholar
• SavAKingMAWhittyJABurden of treatment for chronic illness: a concept analysis and review of the literatureHealth Expect201518331232423363080
   PubMed Web of Science ®Google Scholar
• SchafheutleEIPatients’ views on the UK policy of prescription charges—insights from qualitative interviewsRes Social Adm Pharm20084434335419064241
   PubMed Web of Science ®Google Scholar
• BurcuMAlexanderGCNgXHarringtonDConstruct validity and factor structure of survey-based assessment of cost-related medication burdenMed Care201553219920625517070
   PubMed Web of Science ®Google Scholar
• WhittyJASavAKellyFChronic conditions, financial burden and pharmaceutical pricing: insights from Australian consumersAust Health Rev201438558959525099307
   PubMed Web of Science ®Google Scholar
• MurawskiMMBentleyJPPharmaceutical therapy-related quality of life: conceptual developmentJ Soc Adm Pharm2001181214
   Google Scholar
• BarnettNLObohLWhen less is more: the challenge of polypharmacyEur J Hosp Pharm Sci Pract20142116364
   Google Scholar
• PoundPBrittenNMorganMResisting medicines: a synthesis of qualitative studies of medicine takingSoc Sci Med200561113315515847968
   PubMed Web of Science ®Google Scholar
• MayCMontoriVMMairFSWe need minimally disruptive medicineBMJ2009339b280319671932
   PubMed Web of Science ®Google Scholar
• KrskaJMorecroftCWPooleHRowePHIssues potentially affecting quality of life arising from long-term medicines use: a qualitative studyInt J Clin Pharm20133561161116923990332
   PubMed Web of Science ®Google Scholar
• SavAKendallEMcMillanSS‘You say treatment, I say hard work’: treatment burden among people with chronic illness and their carers in AustraliaHealth Soc Care Community201321666567423701664
   PubMed Web of Science ®Google Scholar
• BrittenNMedicines and Society: Patients, Professionals and the Dominance of Pharmaceuticals1st edHampshirePalgrave Macmillan2008
   Google Scholar
• MoenJBohmATilleniusTAntonovKNilssonJLRingL“I don’t know how many of these [medicines] are necessary..” - a focus group study among elderly users of multiple medicinesPatient Educ Couns200974213514118845412
   PubMed Web of Science ®Google Scholar
• IngersollKSCohenJThe impact of medication regimen factors on adherence to chronic treatment: a review of literatureJ Behav Med200831321322418202907
   PubMed Web of Science ®Google Scholar
• DevlinNApplebyJGetting the Most out of PROMs: Putting Health Outcomes at the Heart of NHS Decision-Making1st edLondonThe King’s Fund2010
   Google Scholar
• SchoenCOsbornRDotyMMBishopMPeughJMurukutlaNToward higher-performance health systems: adults’ health care experiences in seven countries, 2007Health Aff (Millwood)2007266w717w73417978360
   PubMed Web of Science ®Google Scholar
• NHS England [homepage on the Internet]Health and high quality care for all, now and for future generationsNHS England welcomes publishing of medicines optimisation [updated May 2, 2013]. Available from: http://www.england.nhs.uk/2013/05/02/med-opt/Accessed November 27, 2014
   Google Scholar
• SpeightJBarendseSMFDA guidance on patient reported outcomesBMJ2010340c292120566597
   PubMed Web of Science ®Google Scholar
• KaufmannCPTrempRHersbergerKELampertMLInappropriate prescribing: a systematic overview of published assessment toolsEur J Clin Pharmacol201370111124019054
   PubMed Web of Science ®Google Scholar
• JarernsiripornkulNKrskaJCappsPRichardsRLeeAPatient reporting of potential adverse drug reactions: a methodological studyBr J Clin Pharmacol200253331832511874396
   PubMed Web of Science ®Google Scholar
• GarfieldSCliffordSEliassonLBarberNWillsonASuitability of measures of self-reported medication adherence for routine clinical use: a systematic reviewBMC Med Res Methodol201111114922050830
   PubMed Web of Science ®Google Scholar
• BohlenKScovilleEShippeeNDMayCRMontoriVMOverwhelmed patients: a videographic analysis of how patients with type 2 diabetes and clinicians articulate and address treatment burden during clinical encountersDiabetes Care2012351474922100962
   PubMed Web of Science ®Google Scholar
• PatersonCBrittenNA narrative review shows the unvalidated use of self-report questionnaires for individual medication as outcome measuresJ Clin Epidemiol2005581096797316168341
   PubMed Web of Science ®Google Scholar
• FarrisKBPhillipsBBInstruments assessing capacity to manage medicationsAnn Pharmacother20084271026103618594054
   PubMed Web of Science ®Google Scholar
• ElliottRAMarriottJLStandardised assessment of patients’ capacity to manage medications: a systematic review of published instrumentsBMC Geriatr2009912719594913
   PubMedGoogle Scholar
• ZartmanALHilsabeckRCGuarnacciaCAHoutzAThe pillbox test: an ecological measure of executive functioning and estimate of medication management abilitiesArch Clin Neuropsychol201328430731923502807
   PubMed Web of Science ®Google Scholar
• WorthAHammersleyVSNurmatovUSheikhASystematic literature review and evaluation of patient reported outcome measures (PROMs) for asthma and related allergic diseasesPrim Care Respir J201221445545823000910
   PubMedGoogle Scholar
• GibbonsECasañas i ComabellaCFitzpatrickRA structured review of patient-reported outcome measures for patients with skin cancer, 2013Br J Dermatol201316861176118623488455
   PubMed Web of Science ®Google Scholar
• BatesADavisCTakwaleAKnepilGPatient-reported outcome measures in nonmelanoma skin cancer of the face: a systematic reviewBr J Dermatol201316861187119423387431
   PubMed Web of Science ®Google Scholar
• CampbellJLKiebertGMPartridgeMRDevelopment of the satisfaction with inhaled asthma treatment questionnaireEur Respir J200322112713412882462
   PubMed Web of Science ®Google Scholar
• RofailDGrayRGournayKThe development and internal consistency of the Satisfaction with Antipsychotic Medication scalePsychol Med20053571063107216045072
   PubMed Web of Science ®Google Scholar
• AndersonRTSkovlundSEMarreroDDevelopment and validation of the insulin treatment satisfaction questionnaireClin Ther200426456557815189754
   PubMed Web of Science ®Google Scholar
• BrodMHammerMChristensenTLessardSBushnellDUnderstanding and assessing the impact of treatment in diabetes: the Treatment-Related Impact Measures for Diabetes and Devices (TRIM-Diabetes and TRIM-Diabetes Device)Health Qual Life Outcomes200978319740444
   PubMed Web of Science ®Google Scholar
• AtkinsonMJKumarRCappelleriJCHassSLHierarchical construct validity of the treatment satisfaction questionnaire for medication (TSQM version II) among outpatient pharmacy consumersValue Health20058Suppl 1S9S2416336491
   PubMed Web of Science ®Google Scholar
• AtkinsonMJSinhaAHassSLValidation of a general measure of treatment satisfaction, the Treatment Satisfaction Questionnaire for Medication (TSQM), using a national panel study of chronic diseaseHealth Qual Life Outcomes2004211214987333
   PubMedGoogle Scholar
• RuizMAPardoARejasJSotoJVillasanteFArangurenJLDevelopment and validation of the “Treatment Satisfaction with Medicines Questionnaire” (SATMED-Q)Value Health200811591392618494753
   PubMed Web of Science ®Google Scholar
• SakthongPSuksangaPSakulbumrungsilRWinit-WatjanaWDevelopment of patient-reported outcomes measure of pharmaceutical therapy for quality of life (PROMPT-QoL): a novel instrument for medication managementRes Social Adm Pharm201511331533825453539
   PubMed Web of Science ®Google Scholar
• HorneRWeinmanJHankinsMThe beliefs about medicines questionnaire: the development and evaluation of a new method for assessing the cognitive representation of medicationPsychol Health1999141124
   Web of Science ®Google Scholar
• WorthAHammersleyVKnibbRPatient-reported outcome measures for asthma: a systematic reviewNPJ Prim Care Respir Med2014241402024964767
   PubMed Web of Science ®Google Scholar
• TerweeCBBotSDMde BoerMRQuality criteria were proposed for measurement properties of health status questionnairesJ Clin Epidemiol2007601344217161752
   PubMed Web of Science ®Google Scholar
• US Department of Health and Human Services Food and Drug AdministrationGuidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims2009 Available from: www.fda.gov/downloads/Drugs/GuidanceComplianceRegulatoryInformation/Guidances/UCM193282.pdfAccessed October 30, 2015
   Google Scholar
• TrujolsJPortellaMJNot all PROMs reflect patients’ perspectivesBMJ2013346f155223512449
   PubMed Web of Science ®Google Scholar
• TrujolsJPortellaMJIraurgiICampinsMJSiñolNCobosJPdLPatient-reported outcome measures: are they patient-generated, patient-centred or patient-valued?J Ment Health201322655556223323928
   PubMed Web of Science ®Google Scholar
• StreinerDLNormanGRHealth Measurement Scales: A Practical Guide to Their Devlopment and Use4th edOxfordOxford University Press2008
   Google Scholar
• BowlingAMeasuring Health: A Review of Quality of Life Measurement Scales3rd edMaidenheadOpen University Press2005
   Google Scholar
• BharmalMPayneKAtkinsonMDesrosiersMMoriskyDGemmenEValidation of an abbreviated Treatment Satisfaction Questionnaire for Medication (TSQM-9) among patients on antihypertensive medicationsHealth Qual Life Outcomes200973619397800
   PubMed Web of Science ®Google Scholar
• QuinlanPMagidSKO’FlahertyDPeirceAStonePWPatient satisfaction with medication managementJ Nurs Care Qual2007221343917149083
   PubMed Web of Science ®Google Scholar
• BlalockSJPatelRADrug therapy concerns questionnaire: initial development and refinementJ Am Pharm Assoc (2003)2004452160169
   Web of Science ®Google Scholar
• OkereANRenierCMMorseJDevelopment and validation of a survey to assess patient-perceived medication knowledge and confidence in medication useJ Nurs Meas2014221113
   Google Scholar
• KrskaJMorecroftCWRowePHPooleHMeasuring the impact of long-term medicines use from the patient perspectiveInt J Clin Pharm201436467567824997013
   PubMed Web of Science ®Google Scholar
• TranVTMontoriVMEtonDTBaruchDFalissardBRavaudPDevelopment and description of measurement properties of an instrument to assess treatment burden among patients with multiple chronic conditionsBMC Med2012106822762722
   PubMed Web of Science ®Google Scholar
• ReeveEShakibSHendrixIRobertsMSWieseMDDevelopment and validation of the patients’ attitudes towards deprescribing (PATD) questionnaireInt J Clin Pharm2013351515623054137
   PubMed Web of Science ®Google Scholar
• HorneRFaasseKCooperVThe perceived sensitivity to medicines (PSM) scale: an evaluation of validity and reliabilityBr J Health Psychol2013181183022524270
   PubMed Web of Science ®Google Scholar
• HorneRHankinsMJenkinsRThe Satisfaction with Information about Medicines Scale (SIMS): a new measurement tool for audit and researchQual Health Care20011013514011533420
   PubMedGoogle Scholar
• JenkinsLBrittenNStevensonFBarberNBradleyCDeveloping and using quantitative instruments for measuring doctor–patient communication about drugsPatient Educ Couns200350327327812900099
   PubMed Web of Science ®Google Scholar
• LinacreJMReliability and separation of measures Available from: http://www.winsteps.com/winman/reliability.htmAccessed October 25, 2015
   Google Scholar
• MoriskyDEAngAKrousel-WoodMWardHJPredictive validity of a medication adherence measure in an outpatient settingJ Clin Hypertens2008105348354
   PubMed Web of Science ®Google Scholar
• MoriskyDEGreenLWLevineDMConcurrent and predictive validity of a self-reported measure of medication adherenceMed Care198624167743945130
   PubMed Web of Science ®Google Scholar
• HorneRWeinmanJPatients’ beliefs about prescribed medicines and their role in adherence to treatment in chronic physical illnessJ Psychosom Res199947655556710661603
   PubMed Web of Science ®Google Scholar
• CarterSRBulanadiMGKatusiimeBChenTFCorlettSKrskaJComprehensibly measuring patients’ subjective thoughts, feelings and experiences of living with medicines: the Living With Medicines Questionnaire (LMQ)Int J Clin Pharm201537424425
   Web of Science ®Google Scholar
• SnyderMEPaterKSFrailCKHudmonKSDoebbelingBNSmithRBUtility of a brief screening tool for medication-related problemsRes Social Adm Pharm201511225326425443640
   PubMed Web of Science ®Google Scholar
• Dias-BarbosaCBalpMMKulichKGermainNRofailDA literature review to explore the link between treatment satisfaction and adherence, compliance, and persistencePatient Prefer Adherence20126394822272068
   PubMed Web of Science ®Google Scholar
• RidgewayJLEggintonJSTiedjeKFactors that lessen the burden of treatment in complex patients with chronic conditions: a qualitative studyPatient Prefer Adherence2014833935124672228
   PubMed Web of Science ®Google Scholar
• GallacherKMorrisonDJaniBUncovering treatment burden as a key concept for stroke care: a systematic review of qualitative researchPLoS Med2013106e100147323824703
   PubMed Web of Science ®Google Scholar
• BakerRDevelopment of a questionnaire to assess patients’ satisfaction with consultations in general practiceBr J Gen Pract1990403414874902282225
   PubMed Web of Science ®Google Scholar
• KinnersleyPStottNPetersTHarveyIHackettPA comparison of methods for measuring patient satisfaction with consultations in primary careFam Pract199613141518671103
   PubMed Web of Science ®Google Scholar
• RiddMJLewisGPetersTJSalisburyCPatient-doctor depth-of-relationship scale: development and validationAnn Fam Med20119653854522084265
   PubMed Web of Science ®Google Scholar
• GattiMEJacobsonKLGazmararianJASchmotzerBKripalaniSRelationships between beliefs about medications and adherenceAm J Health Syst Pharm200966765766419299373
   PubMed Web of Science ®Google Scholar
• ByerBMyersLPsychological correlates of adherence to medication in asthmaPsychol Health Med200054389393
   Google Scholar
• ScottIAGrayLCMartinJHPillansPIMitchellCADeciding when to stop: towards evidence-based deprescribing of drugs in older populationsEvid Based Med20131812112423136399
   PubMedGoogle Scholar
• ThompsonWFarrellBDeprescribing: what is it and what does the evidence tell us?Can J Hosp Pharm201366320120223814291
   PubMedGoogle Scholar
• TsengHMLeeCHChenYJHsuHHHuangLYHuangJLDeveloping a measure of medication-related quality of life for people with polypharmacyQual Life Res20162561295130226584811
   PubMed Web of Science ®Google Scholar
• KrskaJMorecroftCPooleHRowePA novel instrument to measure medicines-related quality of lifeInt J Clin Pharm201335488
   Web of Science ®Google Scholar
• MokkinkLBTerweeCBKnolDLThe COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its contentBMC Med Res Methodol20101012220298572
   PubMed Web of Science ®Google Scholar
• MokkinkLBTerweeCBPatrickDLThe COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi studyQual Life Res201019453954920169472
   PubMed Web of Science ®Google Scholar
• TerweeCBMokkinkLBKnolDLOsteloRWBouterLMde VetHCRating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklistQual Life Res201221465165721732199
   PubMed Web of Science ®Google Scholar