Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion

References

• Department of HealthThe NHS Outcomes Framework 2014/15LondonDepartment of Health2013
   Google Scholar
• Department of HealthThe Adult Social Care Outcomes Framework 2014/15LondonDepartment of Health2013
   Google Scholar
• Department of HealthSupporting People with Long Term Conditions: An NHS and Social Care Model to Support Local Innovation and IntegrationLondonDepartment of Health2005
   Google Scholar
• StarfieldBChallenges to primary care from co- and multi-morbidityPrim Health Care Res Dev20111211221426609
   PubMedGoogle Scholar
• TownsendAHuntKWykeSManaging multiple morbidity in mid-life: a qualitative study of attitudes to drug useBMJ2003327741983714551097
   PubMed Web of Science ®Google Scholar
• NoëlPHParchmanMLWilliamsJWJrThe challenges of multimorbidity from the patient perspectiveJ Gen Intern Med200722Suppl 341942418026811
   PubMed Web of Science ®Google Scholar
• NoëlPHFruehBCLarmeACPughJACollaborative care needs and preferences of primary care patients with multimorbidityHealth Expect200581546315713171
   PubMed Web of Science ®Google Scholar
• EuroQol GroupEuroQol: a new facility for the measurement of health-related quality of lifeHealth Policy199016319920810109801
   PubMed Web of Science ®Google Scholar
• Mujica-MotaRERobertsMAbelGCommon patterns of morbidity and multi-morbidity and their impact on health-related quality of life: evidence from a national surveyQual Life Res201524490991825344816
   PubMed Web of Science ®Google Scholar
• HunterCFitzpatrickRJenkinsonCPerspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative studyBMJ Open201555e006986
   Web of Science ®Google Scholar
• PetersMPotterCKellyLThe Long-Term Conditions Questionnaire (LTCQ): conceptual framework and item developmentPatient Relat Outcome Meas2016307109125
   Google Scholar
• KerrCNixonAWildDAssessing and demonstrating data saturation in qualitative inquiry supporting patient-reported outcomes researchExpert Rev Pharmacoecon Outcomes Res201010326928120545592
   PubMed Web of Science ®Google Scholar
• US Food Drug AdministrationGuidance for Industry – Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling ClaimsRockville (MD)FDA2009
   Google Scholar
• BowlingAMeasuring Health: A Review of Quality of Life Measurement Scales3rd edMaidenheadOpen University Press2005
   Google Scholar
• BrédartAMarrelAAbetz-WebbLLaschKAcquadroCInterviewing to develop patient-reported outcome (PRO) measures for clinical research: eliciting patients’ experienceHealth Qual Life Outcomes2014121524499454
   PubMed Web of Science ®Google Scholar
• NeumannMSchefferCCysarzDThermometer of warmth in the patient-provider relationship (Warmometer): theory-based development of a patient self-report measure and initial validation using cognitive interview methodologyPatient Educ Couns201182336136921315537
   PubMed Web of Science ®Google Scholar
• European Medicines AgencyReflection paper on the regulatory guidance for the use of health-related quality of life (HRQL) measures in the evaluation of medicinal productsThe Evaluation of Medicinal ProductsLondonEMA2004
   Google Scholar
• KroenkeKMonahanPOKeanJPragmatic characteristics of patient-reported outcome measures are important for use in clinical practiceJ Clin Epidemiol20156891085109225962972
   PubMed Web of Science ®Google Scholar
• WillisGAnalysis of the Cognitive Interview in Questionnaire DesignOxfordOxford University Press2015
   Google Scholar
• JenkinsonCMcGeeHPatient assessed outcomes: measuring health status and quality of lifeJenkinsonCAssessment and Evaluation of Health and Medical Care: A Methods TextOxfordOpen University Press1997
   Google Scholar
• MurrayCJVosTLozanoRDisability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990–2010: a systematic analysis for the Global Burden of Disease Study 2010Lancet201238098592197222323245608
   PubMed Web of Science ®Google Scholar
• BarnettKMercerSWNorburyMWattGWykeSGuthrieBEpidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional studyLancet20123809836374322579043
   PubMed Web of Science ®Google Scholar
• NHS DigitalQuality and Outcomes Framework2016 Available from: http://content.digital.nhs.uk/qofAccessed August 18, 2016
   Google Scholar
• BeattyPCWillisGBResearch synthesis: the practice of cognitive interviewingPublic Opin Q2007712287311
   Web of Science ®Google Scholar
• McCollEDeveloping questionnairesFayersPHaysRAssessing Quality of Life in Clinical Trials2nd edOxfordOxford Medical Publications2005
   Google Scholar
• BoeijeHWillisGThe cognitive interviewing reporting framework (CIRF)Methodology2013938795
   Web of Science ®Google Scholar
• WillisGBCognitive Interviewing: A “How To” GuideResearch Triangle Park (NC)Research Triangle Institute1999
   Google Scholar
• WillisGBCognitive Interviewing: A Tool for Improving Questionnaire DesignLondonSage Publications2005
   Google Scholar
• WillisGBCognitive interviewing in practice: think-aloud, verbal probing, and other techniquesCognitive InterviewingThousand Oaks, USASage Publications2005
   Google Scholar
• StreinerDNormanGHealth Measurement Scales: A Practical Guide to Their Development and Use4th edOxfordOxford University Press2008
   Google Scholar
• BrodMTeslerLChristensenTQualitative research and content validity: developing best practices based on science and experienceQual Life Res20091891263127819784865
   PubMed Web of Science ®Google Scholar
• WattTRasmussenAKGroenvoldMImproving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewingQual Life Res20081771009101718584308
   PubMed Web of Science ®Google Scholar
• KleinmanLMannixSArnoldLMAssessment of sleep in patients with fibromyalgia: qualitative development of the fibromyalgia sleep diaryHealth Qual Life Outcomes20141211125017455
   PubMed Web of Science ®Google Scholar