Family carers/next-of-kin perceptions of home-care technology: a review

References

• United Nations. World Population to 2300. New York: UN; 2004.
   Google Scholar
• Lanzieri G. Long-term population projections at national level. Available from: http://epp.eurostat.ec.europa.eu/cache/ITY_OFFPUB/KS-NK-06-003/EN/KS-NK-06-003-EN.PDF. Accessed November 27, 2013.
   Google Scholar
• United Nations. World Population Ageing 2007. New York: UN; 2007.
   Google Scholar
• Marschollek M, Wolf KH, Bott OJ, Howe J, Haux R. Predictions for Epidemiologic indicators of age-related diseases and implications for the development of health-enabling technologies. Commun Comput Inf Sci. 2008;11:253–260.
   Google Scholar
• Mathers CD, Loncar D. Projections of global mortality and burden of disease from 2002 to 2030. PLoS Med. 2006;3:e442.
   PubMed Web of Science ®Google Scholar
• Koch S, Marschollek, Wolf KH, Plischke, Haux R. On health-enabling and ambient-assistive technologies. What has been achieved and where do we have to go? Methods Inf Med. 2009;48:29–37.
   PubMed Web of Science ®Google Scholar
• Moore KL, Boscardin WJ, Steinman MA, Schwartz JB. Age and sex variation in prevalence of chronic medical conditions in older residents of US nursing homes. J Am Geriatr Soc. 2012;60:756–784.
   Web of Science ®Google Scholar
• Caplan GA, Coconis J, Board N, Sayers A, Woods J. Does home treatment affect delirium? A randomised controlled trial of rehabilitation of elderly and care at home or usual treatment (the REACH-OUT trial). Age Ageing. 2006;35:53–60.
   PubMed Web of Science ®Google Scholar
• Boult C, Green AF, Boult LB, Pacala JT, Snyder C, Leff B. Successful models of comprehensive care of older adults with chronic conditions. Evidence for the Institute of Medicines “Retooling for an Aging America” report. J Am Ger Soc. 2009;57:2328–2337.
   PubMed Web of Science ®Google Scholar
• Yuginovich T, Pearce S. Experiences of consumers over 65, their carers and health professionals in the community in relation to their use of assistive technology: a comprehensive systematic review. 2011. Available from: http://www.joannabriggslibrary.org/jbilibrary/index.php/jbisrir/article/view/415. Accessed November 27, 2013.
   Google Scholar
• Chan M, Campo E, Estève D, Fourniols JY. Smart homes – current features and future perspectives. Maturitas. 2009;64:90–97.
   PubMed Web of Science ®Google Scholar
• Andrade MV, Maia AC, Cardoso CS, Alkmim MB, Ribeiro AL. Cost-benefit of the telecardiology service in the state of Minas Gerais: Minas Telecardio Project. Arq Bras Cardiol. 2011;97:307–316.
   Web of Science ®Google Scholar
• Alaszewski A, Cappello R. Piloting Telecare in Kent County Council: The Key Lessons. Canterbury (UK): University of Kent; 2006.
   Google Scholar
• Leff B. Defining and disseminating the hospital-at-home model. CMAJ. 2009;180:156–157.
   PubMed Web of Science ®Google Scholar
• Shepperd S, Harwood D, Jenkinson C, Gray A, Vessey M, Morgan P. Randomised controlled trial comparing hospital at home care with inpatient hospital care. I: three month follow up of health outcomes. BMJ. 1998;316:1786–1791.
   PubMed Web of Science ®Google Scholar
• Darkins A, Ryan P, Kobb R, et al. Care Coordination/Home Telehealth: the systematic implementation of health informatics, home telehealth, and disease management to support the care of veteran patients with chronic conditions. Telemed J E Health. 2008;14:1118–1126.
   PubMed Web of Science ®Google Scholar
• Cartwright C, Wade R, Shaw K. The impact of telehealth and telecare on clients of the transition care program (TCP). 2011. Available from: http://www.bcs.org.au/site/DefaultSite/filesystem/documents/About%20BCS/Resources/TRP%20-%20The%20Impact%20of%20Telehealth%20and%20Telecare%20on%20Clients%20of%20the%20Transition%20Care%20Program%20Report%20-%20May%202011.pdf. Accessed November 27, 2013.
   Google Scholar
• Agree EM, Freedman VA. A quality-of-life scale for assistive technology: results of a pilot study of aging and technology. Phys Ther. 2011;91:1780–1788.
   PubMed Web of Science ®Google Scholar
• Moffat J, Ely DS. The reported benefits of telehealth for rural Australians. Aust Health Rev. 2010;34:276–281.
   Web of Science ®Google Scholar
• Benschoter RA. V. Television. Multi-purpose television. Ann New York Acad Sci. 1967;142:471–478.
   Web of Science ®Google Scholar
• Paulus W, Hilbert J, Potratz W. ICT for housing. In: Cabrera M, Malanowski N, editors. Information and Communication Technologies for Active Ageing: Opportunities and Challenges for the European Union. Amsterdam: IOS; 2009.
   Google Scholar
• Consolvo S, Roessler P, Shelton BE, LaMarca A, Schilit B, Bly S. Technology for care networks of elders. IEEE Pervasive Comput. 2004;3:22–29.
   Web of Science ®Google Scholar
• Wade R, Shaw K, Cartwright C. Factors affecting provision of successful monitoring in home telehealth. Gerontology. 2012;58:371–377.
   Web of Science ®Google Scholar
• Field MJ, Grigsby J. Telemedicine and remote patient monitoring. JAMA. 2002;288:423–425.
   PubMed Web of Science ®Google Scholar
• Glueckauf RL, Ketterson TU. Telehealth interventions for individuals with chronic illness: research review and implications for practice. Prof Psychol Res Pr. 2004;35:615–627.
   Web of Science ®Google Scholar
• Glueckauf RL, Ketterson TU, Loomis JS, Dages P. Online support and education for dementia caregivers: overview, utilization, and initial program evaluation. Telemed J E Health. 2004;10:223–232.
   PubMed Web of Science ®Google Scholar
• Nickelson DW. Telehealth and the evolving health care system: strategic opportunities for professional psychology. Prof Psychol Res Pr. 1998;26:527–535.
   Google Scholar
• Lehmkuhl HD, Storch EA, Cammarata C, et al. Telehealth behavior therapy for the management of type 1 diabetes in adolescents. J Diabetes Sci Technol. 2010;4:199–208.
   Google Scholar
• Daly JM, Jogerst G, Park JY, Kang YD, Bae T. A nursing home telehealth system: keeping residents connected. J Gerontol Nurs. 2005;31:46–51.
   Google Scholar
• Yoshizawa M, Yambe T, Konno S, et al. A mobile communications system for home-visit medical services: the Electronic Doctor’s Bag. Conf Proc IEEE Eng Med Biol Soc. 2010;2010:5496–5499.
   Google Scholar
• Eysenbach G. What is e-health? J Med Internet Res. 2001;3:E20.
   PubMed Web of Science ®Google Scholar
• Burgiss S, Dimmock SL. Telehealth in home health care. In: Armstrong ML, Frueh S, editors. Telecommunications for Nurses: Providing Successful Distance Education and Telehealth. 2nd ed. New York: Springer; 2002.
   Google Scholar
• Van Halteren A, Konstantas D, Bults R. et al. MobiHealth: ambulant patient monitoring over next generation public wireless networks. Stud Health Technol Inform. 2004;106:107–122.
   Google Scholar
• Arcelus A, Jones MH, Goubran R, Knoefel R. Integration of smart home technologies in health monitoring systems for the elderly. Poster presented at: 21st International Conference on Advanced Networking and Applications Workshops/Symposia; May 21–23, 2007; Niagara Falls (ON).
   Google Scholar
• Åkesson K, Saveman BI, Nilsson G. Health care consumers’ experiences of information communication technology – a summary of literature. Int J Med Inform. 2007;76:633–645.
   PubMed Web of Science ®Google Scholar
• McGee-Lennon MR. Requirements engineering for home care technology. Proceedings of the SIGGHI Conference on human factors in computing systems. CHI Conf Proc. 2008:1439–1442.
   Google Scholar
• Clark J, McGee-Lennon MR. A stakeholder-centred exploration of the current barriers to the uptake of home care technology in the UK. J Assist Technol. 2011;5:12–25.
   Google Scholar
• Car J, Huckvale K, Hermens H. Telehealth for long-term conditions. BMJ. 2012;344:e4201.
   Google Scholar
• Guillén S, Arredondo MT, Traver V, et al. User satisfaction with home telecare based on broadband communication. J Telemed Telecare. 2002;8:81–90.
   PubMed Web of Science ®Google Scholar
• Roberts A, Godden DJ, Garrett L. Evaluation of the Use of TeleHealth in Argyll and Bute. Inverness: UHI Millennium Institute; 2010.
   Google Scholar
• Jia H, Chuang HC, Wu SS, Wang X, Chumbler NR. Long-term effect of home telehealth services on preventable hospitalization use. J Rehabil Res Dev. 2009;46:557–566.
   PubMed Web of Science ®Google Scholar
• Horton K, Anderson J. Surrey Preventative Technologies Grant Project Evaluation. Kingston upon Thames (UK): Surrey County Council; 2007.
   Google Scholar
• Egger M, Smith GD, Altman DG, editors. Systematic Reviews in Health Care: Meta-analysis in Context. London: BMJ Group; 2001.
   Google Scholar
• Clarke M, Bratan T, Kulkarni S, Jones R. The impact of remote patient monitoring in managing silent myocardial infarction in a residential home setting. Anadolu Kardiyol Derg. 2007;7 Suppl 1:186–188.
   Google Scholar
• Clark M, Goodwin N. Sustaining innovation in telehealth and telecare. 2010. Available from: http://www.kingsfund.org.uk/sites/files/kf/Sustaining-innovation-telehealth-telecare-wsdan-mike-clark-nick-goodwin-october-2010.pdf. Accessed November 27, 2013.
   Google Scholar
• Cukor P, Baer L, Willis BS, et al. Use of videophones and low-cost standard telephone lines to provide a social presence in telepsychiatry. Telemed J. 1998;4:313–321.
   PubMedGoogle Scholar
• Allen R. Teams without walls. Clin Med. 2009;9:4–5.
   Web of Science ®Google Scholar
• Royal College of Physicians. Care Closer to Home: Narrative Report. London: RCP; 2012.
   Google Scholar
• Rialle V, Ollivet C, Guigui C, Hervé C. What do family caregivers of Alzheimer’s disease patients desire in smart home technologies? Contrasted results of a wide survey. Methods Inf Med. 2008;47:63–69.
   PubMed Web of Science ®Google Scholar
• Giger JT. Perspectives of Informal Caregivers on Using in-Home Technology to Monitor Activities of Persons with Serious Mental Illness [doctoral thesis]. (MO): University of Missouri; 2010.
   Google Scholar
• Zulman DM, Piette JD, Jenchura E, Asch SM, Rosland AM. Facilitating out-of-home caregiving through health information technology: survey of informal caregivers’ current practices, interests and perceived barriers. J Med Internet Res. 2013;15:e123.
   Web of Science ®Google Scholar
• Wallis J. Dorset Telecare Project: Review of Project Pilot. Final Report: 2008.
   Google Scholar
• Keeping-Burke L, Purden M, Frasure-Smith N, Cossette S, McCarthey F, Amsel R. Evaluation of the psychological effects of a telehealth program for caregivers of coronary artery bypass graft (CABG) surgery patients. Can J Cardiol. 2011;27:S346.
   Web of Science ®Google Scholar
• Lind L. Towards Effortless Use of Information Technology in Home Healthcare with a Networked Digital Pen [dissertation]. Linköping, Sweden: Linköping University; 2006.
   Google Scholar
• Soar J, Seo Y. Health and aged care enabled by information technology. Ann N Y Acad Sci. 2007;114:154–161.
   Google Scholar
• Magnusson L, Hanson E. Supporting frail older people and their family carers at home using information and communication technology: cost analysis. J Adv Nurs. 2005;51:645–657.
   PubMed Web of Science ®Google Scholar
• Bank AL, Argüelles S, Rubert M, Eusdorfer C, Czaja SJ. The value of telephone support groups among ethnically diverse caregivers of people with dementia. Gerontologist. 2006;46:134–138.
   PubMed Web of Science ®Google Scholar
• Topo P, Jylha M, Laine J. Can the telephone-using abilities of people with dementia be promoted? An evaluation of a simple-to-use telephone. Technol Dis. 2002;14:3–13.
   Google Scholar
• Topo P. Technology studies to meet the needs of people with dementia and their caregivers. J Appl Gerontol. 2009;28:15–37.
   Web of Science ®Google Scholar
• Marineau ML. Special populations: telehealth advanced practice nursing: the lived experiences of individuals with acute infections transitioning in the home. Nurs Forum. 2007;42:196–208.
   Google Scholar
• Wright LK, Bennet G, Gramling L. Telecommunication interventions for caregivers of elders with dementia. Adv Nurs Sci. 1998;20:76–88.
   PubMed Web of Science ®Google Scholar
• Glueckauf RL, Noel LT. Telehealth and family caregiving: developments in research, education, policy, and practice. In: Toseland RW, Haigler DH, Monahan DJ, editors. Education and Support Programs for Caregivers. Heidelberg: Springer; 2011.
   Google Scholar
• Hanson J, Percival J, Aldred H, Brownsell S, Hawley M. Attitudes to telecare among older people, professional care workers and informal carers: a preventative strategy or crisis management? Univ Access Inf Soc. 2007;6:193–205.
   Google Scholar
• Winterton R, Warburton J. Models of care for socially older rural carers: barriers and implications. Rural Remote Health. 2011;11:1678.
   PubMed Web of Science ®Google Scholar
• Van Ast P, Larson A. Supporting rural carers through telehealth. Rural Remote Health. 2007;7:634.
   Google Scholar
• Marziali E, Garcia LJ. Dementia caregivers’ response to 2 Internet-based intervention programs. Am J Alzheimers Dis Other Demen. 2011;26:36–43.
   PubMed Web of Science ®Google Scholar
• Asteljoki S. Assessing Perspectives of Needs and Values for e-Service Development of Renal Patients and Their Next of Kin [doctoral thesis]. Kerava (Finland): Laurea University of Applied Sciences.
   Google Scholar
• Sävenstedt S, Sandman PO, Zingmark K. The duality in using information and communication technology in elder care. J Adv Nursing. 2006;56:17–25.
   PubMed Web of Science ®Google Scholar
• Lutz BJ, Young ME. Rethinking intervention strategies in stroke family caregiving. Rehabil Nurs. 2010;35:152–160.
   PubMed Web of Science ®Google Scholar
• Buckley KM, Tran BQ, Prandoni CM. Receptiveness, use and acceptance of telehealth by caregivers of stroke patients in the home. Online J Issues Nurs. 2004;9:9.
   PubMedGoogle Scholar
• Johnstone B, Kidd L, Wengstrom Y, Kearney N. An evaluation of the use of telehealth within palliative care settings across Scotland. Palliat Med. 2012;26:152–161.
   Web of Science ®Google Scholar
• Alwan M, Dalal S, Mack D, et al. Impact of monitoring technology in assisted living: outcome pilot. IEEE Trans Inf Technol Biomed. 2006;10:192–198.
   PubMedGoogle Scholar
• Lutz BJ, Chumbler NR, Lyles T, Hoffman N, Kobb R. Testing a home-telehealth programme for US veterans recovering from stroke and their family caregivers. Disabil Rehabil. 2009;5:402–409.
   Google Scholar
• Li KF. Smart home technology for telemedicine and emergency management. J Ambient Intell Human Comput. 2013;4:535–546.
   PubMed Web of Science ®Google Scholar
• Quint RD, Chesterman E, Crain LS, Winkleby M, Boyce T. Home care for ventilator-dependent children. Psychosocial impact on the family. Am J Dis Child. 1990;144:1238–1241.
   PubMedGoogle Scholar
• Lehoux P. Patients’ perspectives on high-tech home care: a qualitative enquiry into user-friendliness of four technologies. BMC Health Serv Res. 2004;4:28.
   PubMed Web of Science ®Google Scholar
• Istepanian R, Jovanov E, Zhang YT. Introduction to the special section on M-Health: beyond seamless mobility and global wireless health-care connectivity. IEEE Trans Inf Technol Biomed. 2004;8:405–414.
   PubMed Web of Science ®Google Scholar
• Rietdijk R, App B, Togher L, Power E. Supporting family members of people with traumatic brain injury using telehealth: a systematic review. J Rehabil Med. 2012;44:913–921.
   PubMed Web of Science ®Google Scholar
• Greenhalgh T, Proctor R, Wherton J, Sugarhood P, Shaw S. The organising vision for telehealth and telecare: discourse analysis. BMJ Open. 2012;2:e001574.
   PubMed Web of Science ®Google Scholar
• Hensel BK, Demiris G, Courtney KL. Defining obtrusiveness in home telehealth technologies: a conceptual framework. J Am Med Inform Assoc. 2006;13:428–431.
   PubMed Web of Science ®Google Scholar
• Sanders C, Rogers A, Bowen R, et al. Exploring barriers to participation and adoption of telehealth and telecare with the Whole System Demonstrator trial: a qualitative trial. BMC Health Serv Res. 2012;12:220.
   PubMed Web of Science ®Google Scholar
• Orwell G. Nineteen Eighty-Four. Penguin. 1979.
   Google Scholar