Pain Assessment in Impaired Cognition: Observer Agreement in a Long-Term Care Setting in Patients with Dementia

References

• Corbett A , HuseboB , MalcangioMet.al Assessment and treatment of pain in people with dementia. Nat. Rev. Neurol.8(5), 264–274 (2012).
   PubMed Web of Science ®Google Scholar
• Achterberg WP , PieperMJ , van Dalen-KokAHet.al Pain management in patients with dementia. Clin. Interv. Aging8, 1471–1482 (2013).
   PubMed Web of Science ®Google Scholar
• van Dalen-Kok AH , PieperMJ , de WaalMW , LukasA , HuseboBS , AchterbergWP. Association between pain, neuropsychiatric symptoms, and physical function in dementia: a systematic review and meta-analysis. BMC Geriatr.15, 49 (2015).
   PubMed Web of Science ®Google Scholar
• Scherder EJ , SergeantJA , SwaabDF. Pain processing in dementia and its relation to neuropathology. Lancet Neurol.2, 677–686 (2003).
   PubMed Web of Science ®Google Scholar
• Shega JW , PaiceJA , RockwoodK , DaleW. Is the presence of mild to moderate cognitive impairment associated with self-report of non-cancer pain? A cross-sectional analysis of a large population-based study. J. Pain Symptom Manage.39, 734–742 (2010).
   PubMed Web of Science ®Google Scholar
• Lichtner V , DowdingD , EsterhuizenPet.al Pain assessment for people with dementia: a systematic review of systematic reviews of pain assessment tools. BMC Geriatr.14, 138 (2014).
   PubMed Web of Science ®Google Scholar
• Corbett A , AchterbergW , HuseboBet.al An international road map to improve pain assessment in people with impaired cognition: the development of the pain assessment in impaired cognition (PAIC) meta-tool. BMC Neurol.14, 229 (2014).
   PubMedGoogle Scholar
• Warden V , HurleyAC , VolicerL. Development and psychometric evaluation of the Pain Assessment in Advanced Dementia (PAINAD) scale. J. Am. Med. Dir. Assoc.4, 9–15 (2003).
   PubMedGoogle Scholar
• Fuchs-Lacelle S , HadjistavropoulosT. Development and preliminary validation of the pain assessment checklist for seniors with limited ability to communicate (PACSLAC). Pain Manag. Nurs.5, 37–49 (2004).
   PubMed Web of Science ®Google Scholar
• Husebo BS , OsteloR , StrandLI. The MOBID-2 pain scale: reliability and responsiveness to pain in patients with dementia. Eur. J. Pain18(10), 1419–1430 (2014).
   PubMed Web of Science ®Google Scholar
• AGS Panel on Persistent Pain in Older Persons . The management of persistent pain in older persons. J. Am. Geriatr. Soc.50(Suppl. 6), S205–S224 (2002).
   PubMedGoogle Scholar
• van Dalen-Kok AH , AchterbergWP , RijkmansWEet.al Pain assessment in impaired cognition (PAIC): content validity of the Dutch version of a new and universal tool to measure pain in dementia. Clin. Interv. Aging13, 25–34 (2018).
   PubMed Web of Science ®Google Scholar
• van der Steen JT , SampsonEL , Vanden Block Let.al Tools to assess pain or lack of comfort in dementia: a content analysis. J. Pain Symptom Manage.50, 659–675 (2015).
   PubMed Web of Science ®Google Scholar
• Lautenbacher S , SampsonEL , PahlS , KunzM. Which facial descriptors do care home nurses use to infer whether a person with dementia is in pain?Pain Med.18(11), 2105–2115 (2017).
   PubMed Web of Science ®Google Scholar
• Mokkink LB , TerweeCB , PatrickDLet.al The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J. Clin. Epidemiol.63(7), 737–745 (2010).
   PubMed Web of Science ®Google Scholar
• Ohrbach R , BjornerJ , JezewskiM , JohnMT , LobbezooF. Guidelines for establishing cultural equivalency of instruments. New York: University at Buffalo (2009).
   Google Scholar
• Achterberg W , CaljouwM , HuseboBS. Towards academic nursing home medicine: a Dutch example for Norway?Omsorg32, 10–15 (2015).
   Google Scholar
• Reisberg B , FerrisSH , de LeonMJ , CrookT. The global deterioration scale for assessment of primary degenerative dementia. Am. J. Psychiatry139(9), 1136–1139 (1982).
   PubMed Web of Science ®Google Scholar
• de Vet HC , TerweeCB , MokkinkLB , KnolDL. Measurement in medicine: a practical guide.Cambridge University Press (2011).
   Google Scholar
• de Vet HC , TerweeCB , KnolDL , BouterLM. When to use agreement versus reliability measures. J. Clin. Epidemiol.59, 1033–1039 (2006).
   PubMed Web of Science ®Google Scholar
• de Vet HC , MokkinkLB , TerweeCB , HoekstraOS , KnolDL. Clinicians are right not to like Cohen’s κ. BMJ346, f2125 (2013).
   PubMedGoogle Scholar
• Achterberg WP , GambassiG , Finne-SoveriHet.al Pain in European long-term care facilities: cross-national study in Finland, Italy and The Netherlands. Pain148, 70–74 (2010).
   PubMed Web of Science ®Google Scholar
• Shah RC , BuchmanAS , BoylePAet.al Musculoskeletal pain is associated with incident mobility disability in community-dwelling elders. J. Gerontol. A Biol. Sci. Med. Sci.66(1), 82–88 (2011).
   PubMed Web of Science ®Google Scholar
• Van de Rijt LJ , WeijenbergRA , FeastARet.al Orofacial pain during rest and chewing in dementia patients admitted to acute hospital wards: validity testing of the orofacial pain scale for non-verbal individuals. J. Oral Facial Pain Headache33(3), 247–253 (2019).
   PubMed Web of Science ®Google Scholar
• Oosterman JM , van HartenB , WeinsteinHC , ScheltensP , ScherderEJ. Pain intensity and pain affect in relation to white matter changes. Pain125(1-2), 74–81 (2006).
   PubMed Web of Science ®Google Scholar
• Binnekade TT , Van KootenJ , LobbezooFet.al Pain experience in dementia subtypes: a systematic review. Curr. Alzheimer Res.14(5), 471–485 (2017).
   PubMed Web of Science ®Google Scholar
• Scherder EJ , PlooijB , AchterbergWPet.al Chronic pain in “probable” vascular dementia: preliminary findings. Pain Med.16(3), 442–450 (2015).
   PubMed Web of Science ®Google Scholar
• Husebo BS , StrandLI , Moe-NilssenR , HuseboSB , LjunggrenAE. Pain in older persons with severe dementia. Psychometric properties of the mobilization-observation-behaviour-intensity-dementia (MOBID-2) pain scale in a clinical setting. Scand. J. Caring Sci.24(2), 380–391 (2010).
   PubMed Web of Science ®Google Scholar
• Strand LI , GundrosenKF , LeinRKet.al Body movements as pain indicators in older people with cognitive impairment: a systematic review. Eur. J. Pain23(4), 669–685 (2019).
   PubMed Web of Science ®Google Scholar
• Oosterman JM , ZwakhalenS , SampsonEL , KunzM. The use of facial expressions for pain assessment purposes in dementia: a narrative review. Neurodegener. Dis. Manag.6(2), 119–131 (2016).
   PubMedGoogle Scholar
• Browne ME , HadjistavropoulosT , PrkachinK , AshrafA , TaatiB. Pain expressions in dementia: validity of observers’ pain judgments as a function of angle of observation. J. Nonverbal Behav.43(3), 309–327 (2019).
   PubMed Web of Science ®Google Scholar
• Corbett A , HuseboBS , AchterbergWP , AarslandD , ErdalA , FloE. The importance of pain management in older people with dementia. Br. Med. Bull.111(1), 139–148 (2014).
   PubMed Web of Science ®Google Scholar