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Gastrointestinal Cancer

Patients with genetic cancer undergoing surveillance at a specialized clinic rate the quality of their care better than patients at non-specialized clinics

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Pages 1226-1233 | Received 26 Apr 2012, Accepted 15 Jun 2012, Published online: 25 Jul 2012

References

  • Vasen HF, Möslein G, Alonso A, Aretz S, Bernstein I, Bertario L, Guidelines for the clinical management of familial adenomatous polyposis (FAP). Gut 2008;57:704–13.
  • Björk J, Åkerbrant H, Iselius L, Alm T, Hultcrantz R. Epidemiology of familial adenomatous polyposis in Sweden: changes over time and differences in phenotype between males and females. Scand J Gastroenterol 1999;34:1230–5.
  • Björk J, Akerbrant H, Iselius L, Svenberg T, Oresland T, Påhlman L, Outcome of primary and secondary ileal pouch-anal anastomosis and ileorectal anastomosis in patients with familial adenomatous polyposis. Dis Colon Rectum 2001;44:984–92.
  • Björk J, Akerbrant H, Iselius L, Bergman A, Engwall Y, Wahlström J, Periampullary adenomas and adenocarcinomas in familial adenomatous polyposis: cumulative risks and APC gene mutations. Gastroenterology 2001;121:1127–35.
  • Bengoa RKR, Key P, Leatherman S, Massoud R, Saturno P. Quality of care: a process for making strategic choices in health systems. 2006;1-50. 2011. Available at http//www.who.int.
  • Donabedian A. Evaluating the quality of medical care (Reprinted from The Milbank Memorial Fund Quarterly, vol 44, pg 166-203, 1966). Milbank Q 2005;83:691–729.
  • Wilde B, Starrin B, Larsson G, Larsson M. Quality of Care from the patient perspective. A Grounded Theory Study. Sand J Caring Sci 1993;7:113–20.
  • Törnvall E, Wilhelmsson S. Quality of nursing care from the perspective of patients with leg ulcers. J Wound Care 2010;19:388–95.
  • Wilde-Larsson B, Larsson G, Wickman Chantereau M, Stael von Holstein K. International comparisons of patients' views on quality of care. Int J Health Care 2005;18:62–73.
  • Muntlin AM, Gunningberg LA, Carlsson MA. Different patient groups request different emergency care - a survey in a Swedish emergency department. Int Emerg Nurs 2008;16:223–32.
  • Wilde-Larsson B, Larsson G. Patients' views on quality of care: do they merely reflect their sense of coherence? J Adv Nurs 1999;30:33–9.
  • Wilde B, Larsson G, Larsson M, Starrin B. Quality of Care from the elderly persons perspective- subjective importance and perceived reality. Aging Clin Exp Res 1995;7:140–9.
  • Meredith LS, Orlando M, Humphrey N, Camp P, Sherbourne CD. Are better ratings of the patient-provider relationship associated with higher quality care for depression? Med Care 2000;39:349–60.
  • Orlando M, Meredith LS. Understanding the causal relationship between patient-reported interpersonal and technical quality of care for depression. Med Care 2002;40:696–704.
  • Thorne S. Patient-provider communication in chronic illness. A health promotion window of opportunity. Fam Community Health 2006;29:4S–11S.
  • The Swedish Polyposis Registry. 2011. Available at http//www.karolinska.se/polyposregistret. Uppdated 8 09 2010.
  • Fritzell K, Persson C, Björk J, Hultcrantz R, Wettergren L. Patients' views of surgery and surveillance for familial adenomatous polyposis. Cancer Nurs 2010;33:E1–7.
  • Larsson G, Larsson BW, Munck IME. Refinement of the questionnaire 'quality of care from the patient's perspective' using structural equation modelling. Scand J Caring Sci 1998;12:111–18.
  • Wilde Larsson B, Larsson G, Larsson M, Starrin B. KUPP - Kvalitet Ur Patientens Perspektiv. Stockholm: Vårdförbundet; 2001.
  • Nathorst-Böös J, Munck IM, Eckerlund I, Ekfeldt-Sandberg C. An evaluation of the QSP and the QPP: two methods for measuring patient satisfaction. Int J Qual Health Care 2001;13:257–64.
  • Fayers PM, Machin D. Quality of life. The assessment, analysis and interpretation of patient-reported outcomes. 2nd ed. Chichester; Hoboken, JN: J. Wiley; 2007.
  • Agreus L, Svardsudd K, Nyren O, Tibblin G. Reproducibility and validity of a postal questionnaire. The abdominal symptom study. Health Care (Don Mills) 1993;11:252–62.
  • Fritzell K, Eriksson LE, Björk J, Hultcrantz H, Wettergen L. Self-reported abdominal symptoms in relation to health status in adult patients with familial adenomatous polyposis. Dis Colon Rectum 2011;54:863–9.
  • Sewitch MJ, Abrahamowicz M, Barkun A, Bitton A, Wild GE, Cohen A, Patient nonadherence to medication in inflammatory bowel disease. Am J Gastroenterol 2003;98:1535–44.
  • Douma KF, Aaronson NK, Vasen HF, Gerritsma MA, Gundy CM, Janssen EP, Psychological distress and use of psychosocial support in familial adenomatous polyposis. Psychooncology 2010;19:289–98.
  • Thorne S. The science of meaning in chronic illness. Int J Nurs Stud 1999;36:397–404.
  • Thorne S, Pateson B, Rusell C. The structure of everyday self-care decision making in chronic illness. Qual Health Res 2003;13:1337–52.
  • Kane SV, Brixner D, Rubin DT, Sewitch J. The challenge of compliance and persistence: focus on ulcerative colitis. J Manag Care Pharm 2008;14(Suppl S-a):S2–S12.

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