347
Views
16
CrossRef citations to date
0
Altmetric
Inflammatory Bowel Disease

Development, validation and clinical assessment of a short questionnaire to assess disease-related knowledge in inflammatory bowel disease patients

, , , , &
Pages 183-188 | Received 27 May 2012, Accepted 18 Oct 2012, Published online: 27 Nov 2012

References

  • Waters BM, Jensen L, Fedorak RN. Effects of formal education for patients with inflammatory bowel disease: a randomized controlled trial. Can J Gastroenterol 2005;19:235–44.
  • Moradkhani A, Kerwin L, Dudley-Brown S, Tabibian JH. Disease-specific knowledge, coping, and adherence in patients with inflammatory bowel disease. Dig Dis Sci 2011;56:2972–7.
  • Bernstein KI, Promislow S, Carr R, Rawsthorne P, Walker JR, Bernstein CN. Information needs and preferences of recently diagnosed patients with inflammatory bowel disease. Inflamm Bowel Dis 2011;17:590–8.
  • Casati J, Toner BB, De Rooy EC, Drossman DA, Maunder RG. Concerns of patients with inflammatory bowel disease: A review of emerging themes. Dig Dis Sci 2000;45:26–31.
  • Jones SC, Gallacher B, Lobo AJ, Axon AT. A patient knowledge questionnaire in inflammatory bowel disease. J Clin Gastroenterol 1993;17:21–4.
  • Eaden JA, Abrams K, Mayberry JF. The Crohn's and colitis knowledge score: a test for measuring patient knowledge in inflammatory bowel disease. Am J Gastroenterol 1999;94:3560–6.
  • Payne SL. The art of asking questions. Princeton, NJ: Princeton University Press; 1951.
  • Schaeffer NC, Presser S. The science of asking questions. Ann Rev Sociol 2003;29:65–88.
  • DeVellis RF. Scale development: theory and applications. 2. Thousand Oaks, CA: Sage Publications, Inc; 2003.
  • Wright JA, Wallston KA, Elasy TA, Ikizler TA, Cavanaugh KL. Development and results of a kidney disease knowledge survey given to patients with CKD. Am J Kidney Dis 2011;57:387–95.
  • Andrews JM, Holtmann G. IBD: stress causes flares of IBD–how much evidence is enough? Nat Rev Gastroenterol Hepatol 2011;8:13–14.
  • Bernstein CN, Singh S, Graff LA, Walker JR, Miller N, Cheang M. A prospective population-based study of triggers of symptomatic flares in IBD. Am J Gastroenterol 2010;105:1994–2002.
  • Mittermaier C, Dejaco C, Waldhoer T, Oefferlbauer-Ernst A, Miehsler W, Beier M, Impact of depressive mood on relapse in patients with inflammatory bowel disease: a prospective 18-month follow-up study. Psychosom Med 2004;66:79–84.
  • Levenstein S. Could stress play a role in IBD? Inflamm Bowel Dis 2008;14:S206–7.
  • Brédart A, Razavi D, Robertson C, Brignone S, Fonzo D, Petit JY, Timing of patient satisfaction assessment: effect on questionnaire acceptability, completeness of data, reliability and variability of scores. Patient Educ Couns 2002;46:131–6.
  • Hjortswang H, Järnerot G, Curman B, Sandberg-Gertzén H, Tysk C, Blomberg B, The short health scale: a valid measure of subjective health in ulcerative colitis. Scand J Gastroenterol 2006;41:1196–203.
  • McDermott E, Keegan D, Byrne K, Doherty GA, Mulcahy HE. The short health scale: a valid and reliable measure of health related quality of life in English speaking inflammatory bowel disease patients. J Crohns Colitis 2012; [Epub ahead of print].
  • Wright JA, Wallston KA, Elasy TA, Ikizler TA, Cavanaugh KL. Development and results of a kidney disease knowledge survey given to patients with CKD. Am J Kidney Dis 2011;57:387–95.
  • Hill J, Bird HA, Hopkins R, Lawton C, Wright V. The development and use of patient knowledge questionnaire in rheumatoid arthritis. Br J Rheumatol 1991;30:45–9.
  • Bregenzer N, Lange A, Fürst A, Gross V, Schölmerich J, Andus T. Patient education in inflammatory bowel disease does not influence patients knowledge and long-term psychosocial well-being. Z Gastroenterol 2005;43:367–71.
  • Verma S, Tsai HH, Giaffer MH. Does better disease-related education improve quality of life? A survey of IBD patients. Dig Dis Sci 2001;46:865–9.
  • Burisch J, Cukovic-Cavka S, Kaimakliotis I, Shonová O, Andersen V, Dahlerup JF, Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe An EpiCom study. J Crohns Colitis 2011;5:342–9.
  • Bokemeyer B, Hardt J, Hüppe D, Prenzler A, Conrad S, Düffelmeyer M, Clinical status, psychosocial impairments, medical treatment and health care costs for patients with inflammatory bowel disease (IBD) in Germany: an online IBD registry. J Crohns Colitis 2012; [Epub ahead of print].

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.