2,413
Views
53
CrossRef citations to date
0
Altmetric
Research Article

Parental Beliefs About Cause and Course of their Child's Autism and Outcomes of their Beliefs: A Review of the Literature

, MS, OTR & , PhD, RN
Pages 149-163 | Received 19 Jan 2010, Accepted 26 Apr 2010, Published online: 22 Jul 2010

REFERENCES

  • American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text rev.). Washington, DC: Author.
  • Avdi, E., Griffin, C., & Brough, S. (2000). Parents' constructions of the ‘problem’ during assessment and diagnosis of their child for an autistic spectrum disorder. Journal of Health Psychology, 5, 241–254.
  • Britton, C.V., American Academy of Pediatrics Committee on Pediatrics Workforce (2004). Ensuring culturally effective pediatric care: Implications for education and health policy. Pediatrics, 114, 1677–1685.
  • Bronfenbrenner, U., & Morris, P.A. (1998). The ecology of developmental process. In R.M. Lerner ( Ed.), Handbook of child psychology: Volume 1. Theoretical models of human development (5th ed, pp. 993–1028). New York: Wiley and Sons.
  • Dale, E., Jahoda, A., & Knott, F. (2006). Mothers' attributions following their child's diagnosis of autistic spectrum disorder: Exploring links with maternal levels of stress, depression, and expectations about their child's future. Autism, 10, 463–479.
  • Daley, T. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science Medicine, 58, 1323–1335.
  • Danseco, E.R. (1997). Parental beliefs on childhood disability: Insights on culture, child development and intervention. International Journal of Disability, Development, & Education, 44, 41–52.
  • Davidovitch, M., Glick, L., Holtzman, Tirosh, E., & Safir, M.P. (2000). Developmental regression in autism: Maternal perception. Journal of Autism and Developmental Disorders, 30, 113–119.
  • Dyches, T.T., Wilder, L.K., Sudweeks, R.R., Obiakor, F.E., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34, 211–222.
  • Elder, J.H. (2001). A follow-up study of beliefs held by parents of children with pervasive developmental delay. Journal of Child and Adolescent Psychiatric Nursing, 14, 55–60.
  • Galanti, G. (2008). Caring for patients from different cultures (4th ed.) Philadelphia: University of Pennsylvania Press.
  • Goin-Kochel, R.P., & Myers, B.J. (2005). Congenital versus regressive onset of autism spectrum disorders: Parents' beliefs about causes. Focus on Autism and Other Developmental Disabilities, 20, 169–179.
  • Gray, E.G. (1995). Lay conceptions of autism. Medical anthropology, 16, 99–118.
  • Flores, G., Baucher, H., & Feinstein, A.R. (1999). The impact of ethnicity, family income,, and parental education on children's health and use of health services. American Journal of Public Health, 89, 1066–1071.
  • Harrington, J.W., Patrick, P.A., Edwards, K.S., & Brand, D.A. (2006). Parental beliefs about autism: Implications for the treating physician. Autism, 10, 452–462.
  • Harrington, J.W., Rosen, L., & Garnecho, A. (2006). Parental perceptions and use of complementary and alternative medicine practices for children with autistic spectrum disorders in private practice. Developmental and Behavioral Pediatrics, 27, s156–s161.
  • Howlin, P., & Moore, A. (1997). Diagnosis in autism: A survey of over 1200 patients in the UK. Autism, 1, 135–162.
  • Inglese, M.D., & Elder, J.H. (2009). Caring for children with autism spectrum disorder, part I: Prevalence, etiology, and core features. Journal of Pediatric Nursing, 24, 41–48.
  • Kleinman, A. (1980). Patients and healers in the context of culture. Berkley, CA: University of California Press.
  • Kleinman, A., Eisenberg, L., & Good, B. (1978). Culture, illness, and care: Clinical lessons from anthropological and cross-cultural research. Annals of Internal Medicine, 88, 251–258.
  • Levy, S.E., & Hyman, S.L. (2003). Use of complementary and alternative treatments for children with autistic spectrum disorders is increasing. Pediatric Annals, 32, 685–691.
  • Levy, S.E., Mandell, D., Merhar, S., Ittenbach, R.F., Pinto-Martin, J.A. (2003). Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder. Developmental and Behavioral Pediatrics, 24, 418–423.
  • Lingam, R., Simmons, A., Andrews, N., Miller, E., Stowe, J., & Taylor, B. (2003). Prevalence of autism and parentally reported triggers in a north east London population. Archives of Disease in Childhood, 88, 666–670.
  • Lui, G.Z. (2005). Developing cross-cultural competence from a Chinese perspective. In J.H. Stone, ( Ed.), Culture and disability: Providing culturally competent services (pp. 65–85). Thousand Oaks, CA: Sage Publications.
  • Mandell, D.S., Ittenbach, R.F., Levy, S., & Pinto-Martin, J.A. (2007). Disparities in diagnoses received prior to a diagnosis of autism spectrum disorder. Journal of Autism and Developmental Disorders, 37, 1795–1802.
  • Mandell, D.S., Listerud, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41,1447–1453.
  • Mandell, D.S., & Novak, M. (2005). The role of culture in families' treatment decisions for children with autism spectrum disorders. Mental Retardation and Developmental Disabilities Research Reviews, 11, 110–115.
  • Mercer, L., Creighton, S., Holden, J.J.A., & Lewis, M.E.S. (2006). Parental perspectives on the causes of an autism spectrum disorder in their children. Journal of Genetic Counseling, 15, 41–50.
  • Mickelson, K.D., Wroble, M., & Helgeson, V.S. (1999). “Why my child?”: Parental attributions for children's special needs. Journal of Applied Social Psychology, 29, 1263–1292.
  • Patcher, L.M. (1994). Culture and clinical care: Folk illness beliefs and behaviors and their implications for health care delivery. Journal of the American Medical Association, 271, 690–694.
  • Reiter, S., Mar'i, S., & Rosenberg, Y. (1986). Parental attitudes toward the developmentally disabled among Arab communities in Israel: A cross-cultural study. International Journal for Rehabilitation Research, 9, 355–362.
  • Ryan, A.S., & Smith, M.J. (1989). Parental reactions to developmental disabilities in Chinese American families. Child and Adolescent Social Work, 6, 283–299.
  • Selkirk, C.G., Veach, M.P., Lian, F., Schimmenti, L., & LeRoy, B.S. (2009). Parents' perceptions of autism spectrum disorder etiology and recurrence risk and effects of their perceptions on family planning: Recommendations for genetic counselors. Journal of Genetic Counseling, 18, 507–519.
  • Shaked, M. (2005). The social trajectory of illness: Autism in the ultraorthodox community in Israel. Social Science & Medicine, 61, 2190–2200.
  • Stahl, A. (1991). Beliefs of Jewish-Oriental mothers regarding children who are mentally retarded. Education and Training in Mental Retardation, 26, 361–369.
  • Wakefield, A.J., Murch, S.H., Anthony, A., Casson, D.M., Linnell, J., Malik, M., (1998). Ileal-lymphoid-nodular hyperplasia, non-specific colitis, and pervasive developmental disorder in children. Lancet, 351, 637–641.
  • Weiner, B. (1985). An attributional theory of achievement, motivation and emotion. Psychological Review, 92, 548–573.
  • Wong, M.G., & Heriot, S.A. (2007). Vicarious futurity in autism and childhood dementia. Journal of Autism and Developmental Disorders, 37, 1833–1841.
  • Yeh, M., Hough, R.L., McCabe, K., Lau, A., & Garland, A. (2004). Parental beliefs about the causes of child problems: Exploring racial/ethnic patterns. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 605–612.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.