Mothers' Everyday Experiences of Having an Adult Child Who Suffers from Long-Term Mental Illness

REFERENCES

• Aschbrenner, K. A., Greenberg, J. S., & Seltzer, M. M. (2009). Parenting an adult child with bipolar disorder in later life. Journal of Nervous and Mental Disease, 197(5), 298–304.
   PubMedGoogle Scholar
• Boss, P. (2002). Ambiguous loss in families of the missing. Lancet, 360, 39–40.
   PubMed Web of Science ®Google Scholar
• Bowman, T. (1997). Psychology. Facing loss of dreams: A special kind of grief. International Journal of Palliative Nursing, 3(2), 76–80.
   PubMedGoogle Scholar
• Copeland, D. A., & Heilemann, M. V. (2008). Getting “to the point”: The experience of mothers getting assistance for their adult children who are violent and mentally ill. Nursing Research, 57(3), 136–143.
   PubMed Web of Science ®Google Scholar
• Doornbos, M. M. (2002). Family caregivers and the mental health care system: Reality and dreams. Archives of Psychiatric Nursing, 16(1), 39–46.
   PubMed Web of Science ®Google Scholar
• Eakes, G. G. (1995). Chronic sorrow: The lived experience of parents of chronically mentally ill individuals. Archives of Psychiatric Nursing, 9(2), 77–84.
   PubMed Web of Science ®Google Scholar
• Foldemo, A., Gullberg, M., Ek, A. C., & Bogren, L. (2005). Quality of life and burden in parents of outpatients with schizophrenia. Social Psychiatric and Psychiatric Epidemiology, 40(2), 133–138.
   PubMed Web of Science ®Google Scholar
• Försäkringskassan. (2010). Tillfällig föräldrapenning [Swedish]. Retrieved from http://www.forsakringskassan.se/privatpers/foralder/barnet_sjukt/ tillfallig_foraldrapenning.
   Google Scholar
• Godress, J., Ozgul, S., Owen, C., & Foley-Evans, L. (2005). Grief experiences of parents whose children suffer from mental illness. Australian and New Zealand Journal of Psychiatry, 39(1–2), 88–94.
   PubMed Web of Science ®Google Scholar
• Goodman, H. (2004). Elderly parents of adults with severe mental illness: Group work interventions. Journal of Gerontological Social Work, 44(1–2), 173–188.
   Google Scholar
• Grandón, P., Jenaro, C., & Lemos, S. (2008). Primary caregivers of schizophrenia outpatients: Burden and predictor variables. Psychiatry Research, 158(3), 335–343.
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112.
   PubMed Web of Science ®Google Scholar
• Greenberg, J., Seltzer, M., & Judge, K. (2000). Another side of the family's experience: Learning and growing through the process of coping with mental illness. Journal of National Alliance on Mental Illness, 11(2), 8–10.
   Google Scholar
• Guba, E. G. (1981). Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Communication and Technology Journal, 29, 75–91.
   Web of Science ®Google Scholar
• Ha, J. H., Hong, J., Seltzer, M. M., & Greenberg, J. S. (2008). Age and gender differences in the well-being of midlife and aging parents with children with mental health or developmental problems: Report of a national study. Journal of Health and Social Behavior, 49(3), 301–316.
   PubMed Web of Science ®Google Scholar
• Hanzawa, S., Tanaka, G., Inadomi, H., Urata, M., & Ohta, Y. (2008). Burden and coping strategies in mothers of patients with schizophrenia in Japan. Psychiatry and Clinical Neurosciences, 62(3), 256–263.
   PubMedGoogle Scholar
• Holm, U. (1993). Modrande & praxis. En feministfilosofisk undersökning (Swe)[Mothering & practice. A feminist philosophical survey]. Doctoral dissertation. Göteborg: Diadalos.
   Google Scholar
• Howard, P. (1994). Lifelong maternal caregiving for children with schizophrenia. Archives of Psychiatric Nursing, 8(2), 107–114.
   PubMedGoogle Scholar
• Jackson, D., & Mannix, J. (2004). Giving voice to the burden of blame: A feminist study of mothers’ experiences of mother blaming. International Journal of Nursing Practices, 10(4), 150–158.
   PubMedGoogle Scholar
• Lowyck, B., De Hert, M., Peeters, E., Wampers, M., Gilis, P., & Peuskens, J. (2004). A study of the family burden of 150 family members of schizophrenic patients. European Psychiatry, 19(7), 395–401.
   PubMed Web of Science ®Google Scholar
• Magana, S. M., Greenberg, J. S., & Seltzer, M. M. (2004). The health and well-being of black mothers who care for their adult children with schizophrenia. Psychiatric Services, 55(6), 711–713.
   PubMed Web of Science ®Google Scholar
• Milliken, P. J. (2001). Disenfranchised mothers: Caring for an adult child with schizophrenia. Health Care for Women International, 22, 149–166.
   PubMedGoogle Scholar
• Milliken, P. J., & Rodney, P. A. (2003). Parents as caregivers for children with schizophrenia: Moral dilemmas and moral agency. Issues in Mental Health Nursing, 24(8), 757–773.
   PubMedGoogle Scholar
• Mohr, W. K., & Regan-Kubinski, M. (2001). Living in the fallout: Parents’ experiences when their child becomes mentally ill. Archives of Psychiatric Nursing, 15(2), 69–77.
   PubMed Web of Science ®Google Scholar
• Östman, M., Wallsten, T., & Kjellin, L. (2005). Family burden and relatives’ participation in psychiatric care: Are the patient's diagnosis and the relation to the patient of importance? International Journal of Social Psychiatry, 51(4), 291–301.
   PubMed Web of Science ®Google Scholar
• Parker, M. (1996). Families caring for chronically ill children with tuberous sclerosis complex. Family & Community Health, 19(3), 73–84.
   Web of Science ®Google Scholar
• Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). London: Sage.
   Google Scholar
• Peilert, A. (2001). Being a parent of an adult son or daughter with severe mental illness receiving professional care: Parents’ narratives. Health and Social Care in the Community, 9(4), 194–204.
   PubMedGoogle Scholar
• Puotiniemi, T. A., & Kyngäs, H. A. (2004). The coping of an adolescent who has been in psychiatric inpatient care and her mother in everyday life. Joural of Psychiatric and Mental Health Nursing, 11, 675–682.
   PubMedGoogle Scholar
• Ryan, K. A. (1993). Mothers of adult children with schizophrenia: An ethnographic study. Schizophrenia Research, 11(1), 21–31.
   PubMedGoogle Scholar
• Schene, A., Tessler, R., & Gamache, G. (1994). Instruments measuring family or caregiver burden in severe mental illness. Social Psychiatry and Psychiatric Epidemiology, 29, 228–240.
   PubMed Web of Science ®Google Scholar
• Schwartz, C., & Gidron, R. (2002). Parents of mentally ill adult children living at home: Rewards of caregiving. Health and Social Work, 27(2), 145–154.
   PubMed Web of Science ®Google Scholar
• St-Onge, M., & Lavoie, F. (1997). The experience of caregiving among mothers of adults suffering from psychotic disorders: Factors associated with their psychological distress. American Journal of Community Psychology, 25(1), 73–94.
   PubMed Web of Science ®Google Scholar
• The Swedish Research Council. (2002). Vetenskapsradet. Forskningsetiska principer inom humanistisk—samhällsvetenskaplig forskning (Swe) [Principles of Research Ethics in the Humanities and Social Scientific Research]. Stockholm: The Swedish Research Council.
   Google Scholar
• Veltman, A. B., Cameron, J., I., & Stewart, D. E. (2002). The experience of providing care to relatives with chronic mental illness. The Journal of Nervous and Mental Disease, 190(2), 108–114.
   PubMed Web of Science ®Google Scholar