Lack of Father Involvement in Research on Children with Autism Spectrum Disorder: Maternal Parenting Stress and Family Functioning

REFERENCES

• Agency for Healthcare Research and Quality. (2011). Research reviews: Comparative effectiveness of therapies for children with Autism Spectrum Disorders. U.S. Department of Health and Human Services, Agency for Healthcare Research and Quality. Retrieved from http://www.effectivehealthcare. ahrq.gov/ehc/products/106/651/Autism_Disorder_exec-summ.pdf
   Google Scholar
• Allik, H., Larsson, J.-O., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with Asperger Syndrome or high-functioning autism. Health & Quality of Life Outcomes, 4, 1.
   PubMed Web of Science ®Google Scholar
• American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text rev.). Washington, DC: Author.
   Google Scholar
• Autism and Developmental Disabilities Monitoring Network Surveillance Principal Investigators. (2012). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, 14 sites, United States, 2008. MMWR Surveillance Summary, 61(3), 1–19.
   Google Scholar
• Brobst, J., Clopton, J., & Hendrick, S. (2009). Parenting children with Autism Spectrum Disorders: The couple's relationship. Focus on Autism and Other Developmental Disabilities, 24(1), 38–49.
   Web of Science ®Google Scholar
• Cohen, S., Underwood, L., & Gottlieb, B. (Eds.) (2000). Social support measurement and intervention. Oxford, England: Oxford University Press.
   Google Scholar
• Daniels, A. M., Rosenberg, R. E., Anderson, C., Law, J. K., Marvin, A. R., & Law, P. (2011). Verification of parent report of child autism spectrum disorder diagnosis to a web-based autism registry. Journal of Autism and Developmental Disabilities, 42, 25–265.
   Google Scholar
• Easter Seals. (2009). Easter Seals Living with Autism study. Retrieved from http://www.easterseals.com/site/PageServer?pagename=ntlc8_living_with_ autism_study_home
   Google Scholar
• Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387.
   PubMed Web of Science ®Google Scholar
• Feetham, S., & Humenick, S. (1982). The Feetham Family Functioning Survey. In S. Humenick (Ed.), Analysis of current assessment strategies in the health care of young children and childbearing families (pp. 259–268). New York, NY: Appleton-Century Crofts.
   Google Scholar
• Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science & Medicine, 56(3), 631–642.
   PubMed Web of Science ®Google Scholar
• Hallmayer, J., Cleveland, S., Torres, A., Philips, J., Cohen, B., Torigoe, T., and Risch, N. (2011). Genetic heritability and shared environmental factors among twin pairs with autism. Archives of General Psychiatry. doi:10.1001/archgenpsychiatry.2011.76
   PubMed Web of Science ®Google Scholar
• Hastings, R., Kovshoff, H., Ward, N., Degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of preschool children with autism. Journal of Autism & Developmental Disorders, 35(5), 635–644.
   PubMed Web of Science ®Google Scholar
• Herring, S., Gray, J., Taffe, B., Sweeny, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882.
   PubMed Web of Science ®Google Scholar
• Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism Spectrum Disorder: Parenting stress, family functioning and health related quality of life. Family, Systems, & Health, 29(3), 232–252.
   PubMed Web of Science ®Google Scholar
• Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 883–893.
   PubMed Web of Science ®Google Scholar
• Knafl, K. A., & Deatrick, J. A. (2003). Further refinement of the family management style framework. Journal of Family Nursing, 9(3), 232–256.
   Google Scholar
• Lakey, B. (2010). Social support: Basic research and new strategies for intervention. In J. E. Maddux & J. P. Tangney (Eds.), Social psychological foundations of clinical psychology (pp. 177–194). New York, NY: Guilford.
   Google Scholar
• Lakey, B., & Cohen, S. (2000). Social support theory and measurement. In S. Cohen, L. Underwood, & B. Gottlieb (Eds.), Social support measurement and intervention (pp. 29–52). Oxford, England: Oxford University Press.
   Google Scholar
• Lakey, B., & Cronin A. (2008). Low social support and major depression: Research, theory and methodological issues. In K. S. Dobson & D. Dozois (Eds.), Risk factors for depression (pp. 385–408). San Diego, CA: Academic.
   Google Scholar
• Larson, E. (2010). Ever vigilant: Maternal support of participation in daily life for boys with autism. Physical Occupational Therapy in Pediatrics, 30(1), 16–27.
   PubMed Web of Science ®Google Scholar
• Lazarus, R. S. (1999). Stress and emotion: A new synthesis. New York, NY: Springer.
   Google Scholar
• Little, L. (2002). Differences in stress and coping for mothers and fathers of children with Asperger's syndrome and non-verbal learning disorders. Pediatric Nursing, 28, 565–570.
   PubMedGoogle Scholar
• Luong, J., Yoder, M., & Canham, D. (2009). Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles. The Journal of School Nursing, 25(3), 222–229.
   PubMed Web of Science ®Google Scholar
• Macfadyen, A., Swallow, V., Santacroce, S., & Lambert, H.(2011). Involving fathers in research. Journal for Specialists in Pediatric Nursing, 16(3), 216–219.
   PubMed Web of Science ®Google Scholar
• McCubbin, H., & Thompson, A. (Eds.). (1991). Family assessment inventories for research and practice (2nd ed.). Madison, WI: University of Wisconsin.
   Google Scholar
• McCubbin, H. I., Thompson, A., & McCubbin, M. A. (1996). Family assessment: Resiliency coping and adaptation—inventories for research and practice. Madison, WI: University of Wisconsin System.
   Google Scholar
• Phetrasuwan, S., & Miles, M. (2009). Parenting stress in mothers of children with autism spectrum disorders. Journal of Pediatric Nursing, 14(3), 157–165.
   Google Scholar
• Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451.
   PubMed Web of Science ®Google Scholar
• Renty, J., & Roeyers, H. (2006). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385.
   PubMed Web of Science ®Google Scholar
• Roberts, C., & Feetham, S. (1982). Assessing family functioning across three areas of relationships. Nursing Research, 31(4), 231–235.
   PubMed Web of Science ®Google Scholar
• Rutter, M. (2005). Incidence of autism spectrum disorders: Changes over time and their meaning. Acta Paediatric, 94(2), 2–15.
   PubMedGoogle Scholar
• Siman-Tov, A., & Kaniel, S. (2011). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, 41(7), 879–890. doi:10.1007/s10803–010–1112-x
   PubMed Web of Science ®Google Scholar
• Smith, L. E., Hong, J., Seltzer, M. M., Greenberg, J. S., Almeida, D. M., & Bishop, S. L. (2010). Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(2), 167–178.
   PubMed Web of Science ®Google Scholar
• Tobing, L., & Glenwick, D. (2006). Predictors and moderators of psychological distress in mothers of children with pervasive developmental disorders. Journal of Family Social Work, 10(4), 1–22.
   Google Scholar