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Research Article

Feasibility of a Computerized Method to Measure Quality of “Everyday” Life in Children with Neuromuscular Disorders

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Pages 43-53 | Published online: 22 Feb 2010

REFERENCES

  • Barge-Schaapveld, D., Nicolson, N., Delespaul, P., & de Vries, M. W. (2006). Assessing daily quality of life with the experience sampling method. In H. Katschnig, H. Freeman, & N. Sartorius ( Eds.), Quality of Life in Mental Disorders ( pp. 91–102). West Sussex, UK: John Wiley & Sons.
  • Barrett, L. F., & Barrett, D. J. (2001). An introduction to computerized experience sampling in psychology. Social Science Computer Review, 19, 175–185.
  • Barrett, L. F., & Barrett, D. J. (2005). ESP, the experience sampling program (version 4). Boston, MA: GNU Public License.
  • Bolger, N., Davis, A., & Rafaeli, E. (2003). Diary methods: Capturing life as it is lived. Annual Review of Psychology, 54, 579–616.
  • Chan, P. S., Krupa, T., Lawson, J. S., & Eastabrook, S. (2005). An outcome in need of clarity: Building a predictive model of subjective quality of life for persons with severe mental illness living in the community. The American Journal of Occupational Therapy, 59, 181–190.
  • Christensen, T. C., Barrett, L. F., Bliss-Moreau, E., Lebo, K., & Kaschub, C. (2003). A practical guide to experience-sampling procedures. Journal of Happiness Studies, 4, 53–78.
  • Csikszentmihalyi, M., & Hunter, J. (2003). Happiness in everyday life: The uses of experience sampling. Journal of Happiness Studies, 4, 185–199.
  • Csikszentmihalyi, M., & Larson, R. (1984). Being Adolescent: Conflict and Growth in the Teenage Years. New York: Basic Books.
  • Csikszentmihalyi, M., & Larson, R. W. (1987). Validity and reliability of the experience sampling method. Journal of Nervous and Mental Disorders, 175, 526–536.
  • Drotar, D. (1998). Measuring Health-Related Quality of Life in Children and Adolescents: Implications for Research and Practice. Mahwah, NJ: Lawrence Erlbaum Associates.
  • Eiser, C., & Morse, R. (2001). The measurement of quality of life in children: Past and future perspectives. Journal of Developmental and Behavioral Pediatrics, 22, 248–256.
  • Farnworth, L. (2000). Time use and leisure occupations of young offenders. The American Journal of Occupational Therapy, 54, 315–325.
  • Farnworth, L., Mostert, E., Harrison, S., & Worrell, D. (1996). The experience sampling method: Its potential use in occupational therapy research. Occupational Therapy International, 3, 1–17.
  • Grootenhuis, M. A., de Boone, J., & van der Kooi, A. (2007). Living with muscular dystrophy: Health-related quality of life consequences for children and adults. Health and Quality of Life Outcomes, 5, 31–39.
  • Hektner, J. M. & Csikszentmihalyi, M. (2002). The experience sampling method: Measuring the context and content of lives. In R. B. Bechtel & A. Churchman( Eds.), Handbook of Environmental Psychology ( pp. 233–242. New York: Wiley.
  • Hektner, J. M., Schmidt, J. A., & Csikszentmihalyi, M. (2007). Experience sampling method: Measuring the quality of everyday life. California: SAGE Publications Inc.
  • Henker, B., Whalen, C. K., Jamner, L. D., & Delfino, R. J. (2002). Anxiety, affect, and activity in teenagers: Monitoring daily life with electronic diaries. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 660–670.
  • Hirtz, D., Iannaccone, S., Heemskerk, J., Gwinn-Hardy, K., Moxley, R., & Rowland, L. P. (2005). Challenges and opportunities in clinical trials for spinal muscular atrophy. Neurology, 65, 1352–1357.
  • Kimhy, D., Delespaul, P., Corcoran, C., Ahn, H., Yale, S., & Malaspina, D. (2006). Computerized experience sampling method (ESMc): Assessing feasibility and validity among individuals with schizophrenia. Journal of Psychiatric Research, 40, 221–230.
  • King, G., Cathers, T., Miller Polgar, J., MacKinnon, A., & Havens, L. (2000). Success in life for older adolescents with cerebral palsy. Qualitative Health Research, 10, 734–749.
  • Kubey, R., & Csikszentmihalyi, M. (1990). Television and the quality of life: How viewing shapes everyday experience. Hillsdale, NJ: Lawrence Erlbaum Associates.
  • Larson, R. (1989). Beeping children and adolescents: A method for studying time use and daily experience. Journal of Youth and Adolescence, 18, 511–530.
  • Larson, R., & Delespaul, P. (1992). Analyzing experience sampling data: A guide book for the perplexed. In M. W. deVries( Ed.), The Experience of Psychopathology: Investigating Mental Disorders in Their Natural Settings ( pp. 58–78. Cambridge: Cambridge University Press.
  • Liddle, J., & McKenna, K. (2000). Quality of life: An overview of the issues for use in occupational therapy outcome measurement. Australian Occupational Therapy Journal, 47, 77–85.
  • McDonald, C. M. (2002). Physical activity, health impairments, and disability in neuromuscular disease. American Journal of Physical Medicine & Rehabilitation, 81, S108–S120.
  • Moneta, G., Schneider, B., & Csikszentmihalyi, M. (2001). A longitudinal study of self-concept and experiential components of self-worth and affect across adolescence. Applied Developmental Science, 5, 125–142.
  • Mulligan, C. B., Schneider, B., & Wolfe, R. (2000). Time use and population representation in the Sloan study of adolescents. Cambridge, MA: National Bureau of Economic Research.
  • Palermo, T. M., Valenzuela, D., & Stork, P. P. (2004). A randomized trial of electronic versus paper pain diaries in children: Impact on compliance, accuracy, and acceptability. Pain, 107, 213–219.
  • Pieters, G., Vansteelandt, K., Claes, L., Probst, M., Van Mechelen, I., & Vandereycken, W. (2006). The usefulness of experience sampling in understanding the urge to move in anorexia nervosa. Acta Neuropsychiatrica, 18, 30–37.
  • Portney, L. G., & Watkins, M. P. (2000). Foundations of clinical research: Applications to practice (2nd ed.). New Jersey: Prentice-Hall.
  • Rah, M., Mitchell, G., & Zadnik, K. (2004). Use of the experience sampling method to measure nearwork. Optometry and Vision Science, 81, 82–87.
  • Rah, M., Walline, J. J., Mitchell, G. L., & Zadnik, K. (2006). Comparison of the experience sampling method and questionnaires to assess visual activities in pre-teen and adolescent children. Ophthalmic & Physiological Optics, 26, 483–489.
  • Rosenbaum, P. (2008). Children's quality of life: Separating the person from the disorder. Archives of Disease in Childhood, 93, 100–101.
  • Scollon, C. N., Kim-Prieto, C., & Diener, E. (2003). Experience sampling: Promises and pitfalls, strengths and weaknesses. Journal of Happiness Studies, 4, 5–34.
  • Whalen, C. K., Jamner, L. D., Henker, B., Delfino, R. J., & Lozano, J. M. (2002). The ADHD spectrum and everyday life: Experience sampling of adolescent moods, activities, smoking, and drinking. Child Development, 73, 209–227.
  • WHOQOL GROUP. (1995). The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization. Social Science and Medicine, 41, 1403–1409.

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