Social Participation of Adolescents with Cerebral Palsy: Trade-offs and Choices

REFERENCES

• Carlson, D., & Mykelbust, J. (2002). Wheelchair use and social integration. Topics in Spinal Cord Injury Rehabilitation, 7(3), 28–46.
   Google Scholar
• Carter, M., McGee, R., Taylor, B., & Williams, S. (2007). Health outcomes in adolescence: Associations with family, friends and school engagement. Journal of Adolescence, 30(1), 51–62.
   PubMed Web of Science ®Google Scholar
• Castle, K., Imms, C., & Howie, L. (2007). Being in pain: A phenomenological study of young people with cerebral palsy. Developmental Medicine and Child Neurology, 49(6), 445–449.
   PubMedGoogle Scholar
• Constas, M. A. (1992). Qualitative analysis as a public event: The documentation of category development procedures. American Educational Research Journal, 29, 253–266.
   Web of Science ®Google Scholar
• Creswell, J. W. (1998). Qualitative inquiry and research design. Choosing among five traditions. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Dacey, J., & Margolis, D. (2006). Psychosocial development: Adolescence and sexuality. In K. M. Thies & J. F. Travers (Eds.), Handbook of human development for health care professionals (pp. 191–218). London, UK: Jones and Bartlett Publishers Inc.
   Google Scholar
• Darling, N. (2005). Participation in extracurricular activities and adolescent adjustment: Cross-sectional and longitudinal findings. Journal of Youth and Adolescence, 34(5), 493–505.
   Web of Science ®Google Scholar
• Delp, L., Brown, B., & Domenzain, A. (2005). Fostering youth leadership to address workplace and community environmental health issues: A university-school- community partnership. Health Promotion Practice, 6(3), 270–85.
   PubMedGoogle Scholar
• Donkervoort, M., Roebroeck, M., Wiegerink, D., van der Heijden-Maessen, H., & Stam, H. (2007). Determinants of functioning of adolescents and young adults with cerebral palsy. Disability and Rehabilitation, 29(6), 453–63.
   PubMed Web of Science ®Google Scholar
• Dwyer, J. J., Allison, K. R., Goldenberg, E. R., Fein, A. J., Yoshida, K. K., Boutilier, M. A. (2006). Adolescent girls’ perceived barriers to participation in physical activity. Adolescence (San Diego): An International Quarterly Devoted to the Physiological, Psychological, Psychiatric, Sociological, and Educational Aspects of the Second Decade of Human Life, 41(161), 15–75.
   Google Scholar
• Everett-Jones, S., & Lollar, D. J. (2008). Relationship between physical disabilities or long-term health problems and health risk behaviours or conditions among US high school students. Journal of School Health, 78(5), 252–257.
   PubMedGoogle Scholar
• Fredericks, J. A., & Eccles, J. S. (2006). Is extracurricular participation associated with beneficial outcomes? Concurrent and longitudinal relations. Developmental Psychology, 42(4), 698–713.
   PubMed Web of Science ®Google Scholar
• Giarelli, E., Bernhardt, B. A., Mack, R., & Pyeritz, R. E. (2008). Adolescents’ transition to self-management of a chronic genetic disorder. Qualitative Health Research, 18(4), 441–457.
   PubMed Web of Science ®Google Scholar
• Hanna, S. E., Rosenbaum, P. L., Bartlett, D. J., Palisano, R. J., Walter, S. D., Avery, L., (2009). Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years. Developmental Medicine and Child Neurology, 51(4), 295–302.
   PubMed Web of Science ®Google Scholar
• Hutton, J. L., Cooke, T., & Pharoah, P. O. D. (1994). Life expectancy in children with cerebral palsy. British Medical Journal, 309, 431–435.
   PubMed Web of Science ®Google Scholar
• Imms, C., & Dodd, K. J. (2010). What is cerebral palsy? In K. J. Dodd, C. Imms, & N. F. Taylor (Eds.), Physiotherapy and occupational therapy for people with cerebral palsy (pp. 7–30). London: Mac Keith Press.
   Google Scholar
• Kail, R. V., Cavanaugh, J. C., & Ateah, C. A. (2006). Human development: A Life-span view. Toronto, ON: Thomson Nelson.
   Google Scholar
• King, G., McDougall, J., DeWit, D., Petrenchik, T., Hurley, P., & Law, M. (2009). Predictors of change over time in the activity participation of children and youth with physical disabilities. Children's Health Care, 38(4), 321–351.
   PubMed Web of Science ®Google Scholar
• Law, M., Petrenchik, T., King, G., & Hurley, P. (2007). Perceived environmental barriers to recreational, community, and school participation for children and youth with physical disabilities. Archives of Physical Medicine & Rehabilitation, 88(12), 1636–1642.
   PubMed Web of Science ®Google Scholar
• Livingston, M. H., & Rosenbaum, P. L. (2008). Adolescents with cerebral palsy: Stability in quality of life and health-related quality of life over one year. Developmental Medicine and Child Neurology, 50(9), 696–701.
   PubMed Web of Science ®Google Scholar
• Oliver, K., Collin, P., Burns, J., & Nicholas, J. (2006). Building resilience in young people through meaningful participation. Australian e-Journal for the Advancement of Mental Health, 5(1), 1–7.
   Google Scholar
• Palisano, R. J., Shimmell, L. J., Stewart D., Lawless, J. J., Rosenbaum, P. L., & Russell, D. J. (2009). Mobility Experiences of Adolescents with Cerebral Palsy. Physical & Occupational Therapy In Pediatrics, 29(2), 133–153.
   PubMed Web of Science ®Google Scholar
• Pendley, J., Kasmen, L., Miller, D., Donze, J., Swenson, C., & Reeves, G. (2002). Peer and family support in children and adolescents with type 1 diabetes. Journal of Pediatric Psychology, 27(5), 429–438.
   PubMed Web of Science ®Google Scholar
• QRS International Pty. Ltd. (2000). N-Vivo. Cambridge, MA: QRS International. Retrieved August 31, 2010, from http://www.qsrinternational.com/default.aspx
   Google Scholar
• Rosenbaum, P. L., Livingston, M. H., Palisano, R. J., Galuppi, B. E., & Russell, D. J. (2007). Quality of life and health-related quality of life of adolescents with cerebral palsy. Developmental Medicine and Child Neurology, 49(7), 516–21.
   PubMed Web of Science ®Google Scholar
• Rosenbaum, P. L., Paneth, N., Leviston, A., Goldstein, M., & Bax, M. (2007). A report: The definition and classification of cerebral palsy. April 2006. Developmental Medicine and Child Neurology Supplement, 49, 8–14.
   Google Scholar
• Sawin, K. J., Bellin, M. H., Roux, G., Buran, C. F., & Brei, T. J. (2009). The experience of self-management in adolescent women with spina bifida. Rehabilitation Nursing, 34(1), 26–38.
   PubMedGoogle Scholar
• Schindlmayr, T. (2007). Youth living with disabilities. Briefing note on youth 2: Youth at the United Nations. New York, NY: United Nations Program on Youth. Division for Social Policy and Development. Retrieved September 1, 2010, from http://www.un.org/esa/socdev/unyin/documents/briefingnotedisability.pdf
   Google Scholar
• Shikako-Thomas, K., Majnemer, A., Law, M., & Lach (2008). Determinants of participation in leisure activities in children and youth with cerebral palsy: Systematic review. Physical and Occupational Therapy in Pediatrics, 28, 155–169.
   PubMedGoogle Scholar
• Stanley, F. J., Blair, E., & Alberman, E. (2000). Cerebral palsies: Epidemiology and causal pathways. London: MacKeith Press.
   Google Scholar
• Stewart, D. (2009). Transition to adult services for youth with disabilities: Current evidence to guide future research. Developmental Medicine and Child Neurology, 51(Suppl. 4), 169–173.
   PubMedGoogle Scholar
• Verbrugge, L. M., & Yang, L. (2002). Aging with Disability and Disability with Aging. Journal of Disability Policy Studies, 12(4), 253–67.
   Google Scholar
• Wagner, M., Cadwallader, T. W., Garza, N., & Cameto, R. (2004). Social acivities of youth with disabilities. NLTS2 data brief volume3, issue 1. Minneapolis, MN: National Center of Secondary Education and Transition, Institute on Community Integration (UCEDD), University of Minnisota.
   Google Scholar
• Wang, G., Burns McGrath, B., & Watts, C. (2010). Health care transitions among youth with disabilities or special health care needs: An ecological approach. Journal of Pediatric Nursing, 25(6), 505–550
   PubMedGoogle Scholar
• World Health Organization (WHO). (2001). International classification of functioning, disability and health. Geneva: WHO.
   Google Scholar
• Yeo, M., & Sawyer, S. (2005). ABC of adolescence: Chronic illness and disability. Seventh in a series of 12 articles. British Medical Journal, 330(7493), 721–723.
   PubMedGoogle Scholar
• Young, N. L., Rochon, T. G., McCormick, A., Law, M., & Wedge, J. H. (2010). The health and quality of life outcomes among youth and young adults with cerebral palsy. Archives of Physical Medicine and Rehabilitation, 91, 143–148.
   PubMed Web of Science ®Google Scholar