427
Views
23
CrossRef citations to date
0
Altmetric
Research Article

Coping and distress in caregivers of patients with disorders of consciousness

&
Pages 793-798 | Received 15 Aug 2012, Accepted 23 Feb 2013, Published online: 30 Apr 2013

References

  • Bernat JL. Chronic disorders of consciousness. Lancet 2006;367:1181–1192
  • American Academy of Neurology. Medical aspects of the persistent vegetative state (1). The Multi-Society Task Force on PVS. New England Journal of Medicine 1994;330:1499–1508
  • Jennett B, Plum F. Persistent vegetative state after brain damage: A syndrome in search of a name. Lancet 1972;1:734–747
  • Jennett B. The Vegetative State. Medical facts, ethical and legal dilemmas. New York: Cambridge University Press; 2002
  • Laureys S, Celesia GG, Cohadon F, Lavrijsen J, León-Carrión J, Sannita WG, Sazbon L, Schmutzhard E, von Wild KR, Zeman A, et al. European Task Force on Disorders of Consciousness. Unresponsive wakefulness syndrome: A new name for the vegetative state or apallic syndrome. BMC Medicine 2010;8:68 . http://www.biomedcentral.com/1741-7015/8/68 Doi: 10.1186/1741-7015-8-68
  • Giacino JT, Ashwal S, Childs N, Cranford R, Jennett B, Katz DI, Kelly JP, Rosenberg JH, Whyte J, Zafonte RD, et al. The minimally conscious state: Definition and diagnostic criteria. Neurology 2002;58:349–353
  • Giacino J. Diagnostic and prognostic guidelines for the vegetative and minimally conscious states. Neuropsychological Rehabilitation 2005;15:166–174
  • Report of the Quality Standards Subcommittee of the American Academy of Neurology: Practice parameters: Assessment and management of patients in the persistent vegetative state. Neurology 1995;45:1015–1018, 1995
  • Von Wild K, Laureys ST, Gerstenbrand F, Dolce G, Onose G. The Vegetative State – A Syndrome in search of name. Journal of Medicine & Life 2012;5:3–15
  • Lavrijsen JMC, van den Bosch JSG, Koopmans RTCM, van Weel S. Prevalence and characteristics of patients in a vegetative state in Dutch nursing homes. Journal of Neurology, Neurosurgery & Psychiatry 2005;76:1420–1424
  • Saoût V, Ombredane M-P, Mouillie J-M, Marteau C, Mathé J-F, Richard I. Patients in a permanent vegetative state or minimally conscious state in the Maine-et-Loire county of France: A cross-sectional, descriptive study. Annals of Physical and Rehabilitation Medicine 2010;53:96–104
  • Beghi E. The epidemiology of vegetative state. In: Gigli GL, Sgreccia E, editors. Atti del Congresso “Life Sustaining Treatments and Vegetative State: scientific advances and ethical dilemmas”, Roma 17-20 marzo 2004. Milan: Istituto per l'a- nalisi dello Stato Sociale
  • Donis J, Kräftner B. The prevalence of patients in a vegetative state and minimally conscious state in nursing homes in Austria. Brain Injury 2011;25:1101–1107
  • Stern JM, Sazbon L, Becker E, Costeff H. Severe behavioural disturbance in families of patients with prolonged coma. Brain Injury 1988;2:259–262
  • Chiambretto P, Moroni L, Guarnerio C, Bertolotti G, Prigerson HG. Prolonged grief and depression in caregivers of patients in vegetative state. Brain Injury 2010;24:581–588
  • Chiambretto P, Rossi Ferrario S, Zotti AM. Patients in a persistent vegetative state: Caregiver attitudes and reactions. Acta Neurologica Scandinavica 2001;104:364–368
  • Chiambretto P, Vanoli D. Le reazioni dei familiari allo Stato Vegetativo: Un follow up a cinque anni. Giornale Italiano di Medicina del Lavoro ed Ergonomia 2006;28(Suppl 1):15–21
  • Prigerson HG, Horowitz MJ, Jacobs SC, Parkes CM, Aslan M, Goodkin K, Raphael B, Marwit SJ, Wortman C, Neimeyer RA, et al. Prolonged grief disorder: Psychometric validation of criteria proposed for DSM-V and ICD-11. PLoS Medicine 2009;6:e1000121 . doi: 10.1371/journal.pmed.1000121. Epub 2009 Aug 4
  • Wartella JE, Auerbachb SM, Ward K-R. Emotional distress, coping and adjustment in family members of neuroscience intensive care unit patients. Journal of Psychosomatic Research 2009;66:503–509
  • Guarnerio C, Prunas A, Della Fontana I, Chiambretto P. Prevalence and comorbidity of prolonged grief disorder in a sample of caregivers of patients in a vegetative state. Psychiatric Quarterly 2012;83:65–73
  • Leonardi M, Giovannetti AM, Pagani M, Raggi A, Sattin D; On behalf of the National Consortium Functioning and Disability in Vegetative and in Minimal Conscious State Patients. Burden and needs of 487 caregivers of patients in vegetative state and in minimally conscious state: Results from a national study. Brain Injury 2012;26:1201–1210
  • Elvira de la Morena MJ, Cruzado JA, Caregivers of patients with disorders of consciousness: coping and prolonged grief. Acta Neurologica Scandinavica DOI: 10.1111/ane.12061
  • Beck AT, Steer RA. Beck Anxiety Inventory manual. San Antonio, TX: The Psychological Corporation; 1990
  • Sanz J, Navarro ME. Propiedades psicométricas de una versión española del Inventario de Ansiedad de Beck (BAI) en estudiantes universitarios. Ansiedad y Estrés 2003;9:59–84
  • Beck AT, Steer RA, Brown GK. BDI-II. Beck Depression Inventory. 2nd edition manual. San Antonio, TX: The Psychological Corporation; 1996
  • Sanz J, Navarro ME, Vázquez C. Adaptación española del Inventario para la Depresión de Beck-II (BDI-II): 1. Propiedades psicométricas en estudiantes universitarios. Análisis y Modificación de Conducta 2003;29:239–288
  • Kumar G, Steer RA, Teitelman KB, Villacis L. Effectiveness of Beck Depression Inventory-II subscales in screening for major depressive disorders in adolescent psychiatric inpatients. Assessment 2002;9:164–170
  • Carver CS. You want to measure coping but your protocol’s too long: Consider the Brief COPE. International Journal of Behavioral Medicine 1997;4:92–100
  • Crespo M, López J. El estrés en cuidadores de mayores dependientes. Cuidarse para cuidar. Madrid: Pirámide; 2007. 119–120
  • Echeburúa E, Corral P, Fernández-Montalvo J. Escala de Inadaptación: Propiedades psicométricas en contextos clínicos [The Inadaptation Scale: Psychometric features in a clinical setting]. Análisis y Modificación de Conducta 2000;26:325–340

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.