961
Views
29
CrossRef citations to date
0
Altmetric
Research Article

‘It’s like a problem that doesn’t exist’: The emotional well-being of mothers caring for a child with brain injury

&
Pages 1063-1072 | Received 22 Jun 2012, Accepted 06 Apr 2013, Published online: 19 Jun 2013

References

  • World Health Organization. World report in child injury prevention. Geneva: World Health Organization; 2008. Available online at: http://whqlibdoc.who.int/publications/2008/9789241563574_eng.pdf, accessed 20 June 2012
  • Langlois JA, Rutland-Brown W, Thomas KE. Traumatic brain injury in the United States: Emergency department visits, hospitalisation and deaths. Atlanta, GA: Centers for Disease Control and Prevention, National Center for Injury Prevention and Control; 2006
  • Neurological Alliance. Neuro numbers, a brief review of the numbers of people living in the UK with a neurological condition. London: The Neurological Alliance; 2003
  • Rushworth N. Policy paper: Children, young people and acquired brain injury. Sydney: Brain Injury Australia; 2008
  • McKinlay A, Grace RC, Horwood LJ, Fergusson DM, Ridder EM, MacFarlane MR. Prevalence of traumatic brain injury among children, adolescents and young adults: Prospective evidence from a birth cohort. Brain Injury 2008;22:175–181
  • Barker-Collo S. Behavioural profiles and injury severity following childhood traumatic brain injury. Brain Impairment 2007;8:22–30
  • Geraldina P, Mariarosaria L, Annarita A, Susanna G, Michela S, Alessandro D, Sandra S, Enrico C. Neuropsychiatric sequelae in TBI: A comparison across different age groups. Brain Injury 2003;17:835–846
  • Hawley CA, Ward AB, Magnay AR, Long J. Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Injury 2003;17:1–23
  • McKinlay A, Dalrymple-Alford JC, Horwood LJ, Fergusson DM. Long term psychosocial outcomes after mild head injury in early childhood. Journal of Neurology, Neurosurgery and Psychiatry 2002;73:281–288
  • Whitnall L, McMillan TM, Murray GD, Teasdale GM. Disability in young people and adults after head injury: 5-7 year follow up of a prospective cohort study. Journal of Neurology, Neurosurgery and Psychiatry 2006;77:640–645
  • Minnes P, Woodford L, Carlson P, Johnston J, McColl MA. The needs of aging parents caring for an adult with acquired brain injury. Canadian Journal on Aging 2010;29:185–192
  • Armstrong K, Kerns KA. The assessment of parent needs following paediatric traumatic brain injury. Pediatric Rehabilitation 2002;5:149–160
  • Butera-Prinzi F, Charles N, Heine K, Rutherford B, Lattin D. Family-to-Family Link Up Program: A community-based initiative supporting families caring for someone with an acquired brain injury. NeuroRehabilitation 2010;27:31–47
  • Keith KH, Phillips L, Sample PL. Exploring the service needs and experiences of persons with TBI and their families: The South Carolina experience. Brain Injury 2004;18:1191–1208
  • Murray HM, Maslany GW, Jeffery B. Assessment of family needs following acquired brain injury in Saskatchewan. Brain Injury 2006;20:575–585
  • Pickelsimer EE, Selassie AW, Sample PL, Heinemann W, Gu AJK, Veldheer LC. Unmet service needs of persons with traumatic brain injury. Journal of Head Trauma Rehabilitation 2007;22:1–13
  • Aitken M, McCarthy M, Slomine B, Ding R, Durbin D, Jaffe K, Paidas C, Dorch A, Christensen J, MacKenzie E; the CHAT Study Group. Family burden after traumatic brain injury in children. Pediatrics 2009;123:199–206
  • Ergh TC, Rapport LJ, Coleman RD, Hanks RA. Predictors of caregiver and family functioning following traumatic brain injury: Social support moderates caregiver distress. Journal of Head Trauma Rehabilitation 2002;17:155–172
  • Gan C, Gargaro J, Brandys C, Gerber G, Boschen K. Family caregivers’ support needs after brain injury: A synthesis of perspectives from caregivers, programs and researchers. NeuroRehabilitation 2010;27:5–18
  • Rotondi AJ, Sinkule J, Balzer K, Harris J, Moldovan R. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary caregivers. Journal of Head Trauma Rehabilitation 2007;22:14–25
  • Charles N, Butera-Prinzi F, Perlesz A. Families living with an acquired brain injury: A multiple family group experience. NeuroRehabilitation 2007;22:61–76
  • Davis LC, Sander AM, Struchen MA, Sherer M, Nakase-Richardson R, Malec JF. Medical and psychosocial predictors of caregiver distress and perceived burden following traumatic brain injury. Journal of Head Trauma Rehabilitation 2009;24:145–154
  • Gan C, Campbell KA, Gemeinhardt M, McFaden GT. Predictors of family system functioning after brain injury. Brain Injury 2006;20:587–600
  • Kreutzer JS, Rapport LJ, Marwitz JH, Harrison-Felix C, Hart T, Glenn M, Hammond F. Caregivers' well-being after traumatic brain injury: A multicenter prospective investigation. Archives of Physical Medicine and Rehabilitation 2009;90:939–946
  • Riley GA. Stress and depression in family carers following traumatic brain injury: The influence of beliefs about difficult behaviours. Clinical Rehabilitation 2007;21:82–88
  • Pinquart M, Sorensen S. Gender differences in caregiver stressors, social resources and health: An updated meta-analysis. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences 2006;61:33–45
  • Kao HF, Stuifbergen AK. Love and load – the lived experience of the mother-child relationship among young adult traumatic brain-injured survivors. Journal of Neuroscience Nursing 2004;36:73–81
  • Roscigno CI, Swanson KM. Parents’ experiences following children’s moderate to severe traumatic brain injury: A clash of cultures. Qualitative Health Research 2011;21:1413–1426
  • Muldoon OT, McLaughlin K, Trew K. Adolescents’ perceptions of national identification and socialisation: A grounded analysis. British Journal of Developmental Psychology 2007;25:579–594
  • Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology 2006;3:77–101
  • Frith H, Gleeson K. Clothing and embodiment: Men managing body image and appearance. Psychology of Men and Masculinities 2004;5:40–48
  • Boschen K, Gargaro J, Gan C, Gerber G, Brandys C. Family interventions after acquired brain injury and other chronic conditions: A critical appraisal of the quality of the literature. NeuroRehabilitation 2007;22:19–41
  • Collings C. That’s not my child anymore! Parental grief after acquired brain injury (ABI): Incidence, nature and longevity. British Journal of Social Work 2008;38:1499–1517
  • Peake S, Manderson L, Potts H. Part and parcel of being a woman: Female urinary incontinence and constructions of control. Medical Anthropology Quarterly 1999;3:267–285
  • Scott S. The medicalization of shyness: From social misfits to social fitness. Sociology of Health and Illness 2006;28:133–153
  • DeMarle DJ, Le Roux P. The life cycle and disability: Experiences of discontinuity in child and family development. Journal of Loss and Trauma 2001;6:29–43
  • Rycroft P, Perlesz A. Speaking the unspeakable: Reclaiming grief and loss in family life. Australian and New Zealand Journal of Family Therapy 2001;22:57–65
  • Chan D. So why ask me? Are self report data really that bad? In: Lance CE, Vandenberg RJ, editors. Statistical and methodological myths and urban legends: Doctrine, verity and fable in the organizational and social sciences. New York, NY: Routledge; 2009. p 309–335
  • Bryman A. Social research methods. 3rd ed. Oxford: Oxford University Press; 2008
  • Jordan J, McKenna H, Keeney S, Cutcliffe J, Stevenson C, Slater P, McGowan I. Providing meaningful care: Learning from the experiences of suicidal young men. Qualitative Health Research 2012;22:1207–1219
  • Heisler M, Vijan S, Makki F, Piette JD. Diabetes control with reciprocal peer support versus nursing care management. Annals of Internal Medicine 2010;153:507–515
  • Hildingh C, Fridlund F. Participation in peer support groups after a cardiac event: A 12-month follow-up. Rehabilitation Nursing 2003;28:123–127
  • Hibbard MR, Cantor J, Charatz H, Rosenthal R, Ashman T, Gundersen N, Ireland-Knight L, Gordon W, Avner J, Gartner A. Peer support in the community: Initial findings of a mentoring program for individuals with traumatic brain injury and their families. Journal of Head Trauma Rehabilitation 2002;17:112–131
  • Huntley J, Perlesz A. Rurability: Community support for families managing acquired brain injury. Australian Journal of Rural Health 2008;16:319–320

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.