319
Views
3
CrossRef citations to date
0
Altmetric
Research Article

Exploring participant experiences of research after traumatic brain injury

, , , &
Pages 995-1002 | Received 17 Sep 2013, Accepted 26 Jan 2014, Published online: 21 Mar 2014

References

  • Paterson B, Scott-Findlay S. Critical issues in interviewing people with traumatic brain injury. Qualitative Health Research 2002;12:399–409
  • van der Naalt J, van Zomeren AH, Sluiter SW, Minderhoud JM. One year outcome in mild to moderate head injury: The predictive value of acute injury characteristics related to complaints and return to work. Journal of Neurology, Neurosurgery & Psychiatry 1999;66:207–213
  • Norrie J, Heitger M, Leathem J, Anderson T, Jones R, Flett R. Mild traumatic brain injury and fatigue: A prospective longitudinal study. Brain Injury 2010;24:1528–1538
  • Dikmen SS, Corrigan JD, Levin HS, Machamer J, Stiers W, Weisskopf MG. Cognitive outcome following traumatic brain injury. Journal of Head Trauma Rehabilitation 2009;24:430–438
  • Ulrich CM, Wallen GR, Feister A, Grady C. Respondent burden in clinical research: When are we asking too much of subjects? IRB: Ethics & Human Research 2005;27:17–20
  • Deprince AP, Chu A. Perceived benefits in trauma research: Examining methodological and individual difference factors in responses to research participation. Journal of Empirical Research on Human Research Ethics 2008;3:35–47
  • Dyregrov K. Bereaved parents’ experience of research participation. Social Science & Medicine 2004;58:391–400
  • Hynson JL, Aroni R, Bauld C, Sawyer SM. Research with bereaved parents: A question of how not why. Palliative Medicine 2006;20:805–811
  • Pessin H, Galietta M, Nelson CJ, Brescia R, Rosenfeld B, Breitbart W. Burden and benefit of psychosocial research at the end of life. Journal of Palliative Medicine 2008;11:627–632
  • Scott DA, Valery PC, Boyle FM, Bain CJ. Does research into sensitive areas do harm? Experiences of research participation after a child’s diagnosis with Ewing’s sarcoma. Medical Journal of Australia 2002;177:507–510
  • Taylor PJ, Awenat Y, Gooding P, Johnson J, Pratt D, Wood A, Tarrier N. The subjective experience of participation in schizophrenia research: A practical and ethical issue. Journal of Nervous & Mental Disease 2010;198:343–348
  • Armstrong V, Morris N. Boundary setting in breast cancer research: A study of the experience of women volunteer research subjects. Sociology of Health & Illness 2010;32:74–88
  • Hussain-Gambles M. South Asian patients’ views and experiences of clinical trial participation. Family Practice 2004;21:636–642
  • Kerrison S, Laws S, Cane M, Thompson A. The patient’s experience of being a human subject. Journal of the Royal Society of Medicine 2008;101:416–422
  • Madsen SM, Mirza MR, Holm S, Hilsted KL, Kampmann K, Riis P. Attitudes towards clinical research amongst participants and nonparticipants. Journal of Internal Medicine 2002;251:156–168
  • Morris N, Schneider M. Volunteer research subjects’ experience of participation in research on a novel diagnostic technology for breast cancer. Qualitative Health Research 2010;20:81–92
  • Kerrison S, Laws S, Cane M, Thompson A. The patient’s experience of being a human subject. Journal of the Royal Society of Medicine 2008;101:416–422
  • Sandelowski M. Whatever happened to qualitative description? Research in Nursing & Health 2000;23:334–340
  • Teasdale G, Jennett B. Assessment of coma and impaired consciousness. A practical scale. Lancet 1974;2:81–84
  • Ponsford J, Willmott C, Rothwell A, Kelly A-M, Nelms R, Ng KT. Use of the Westmead PTA scale to monitor recovery of memory after mild head injury.[erratum appears in Brain Injury 2004;18:1065]. Brain Injury 2004;18:603–614
  • Shores EA, Marosszeky JE, Sandanam J, Batchelor J. Preliminary validation of a scale for measuring the duration of post-traumatic amnesia. Medical Journal of Australia 1986;144:569–572
  • New Zealand Guidelines Group. Traumatic Brain Injury: Diagnosis: Acute management and rehabilitation. Wellington: New Zealand Guidelines Group; 2006
  • Cowger CD. Assessing client strengths: Clinical assessment for client empowerment. Soc Work 1994;39:262–268
  • Jack S. Guidelines to support nurse-researchers reflect on role conflict in qualitative interviewing. The Open Nursing Journal 2008;2:58–62
  • Schaefer GO, Ezekiel J, Emanuel EJ, Wertheimer A. The obligation to participate in biomedical research. Journal of the American Medical Association 2009;302:67–72
  • Trauth JM, Musa D, Siminoff L, Jewell IK, Ricci E. Public attitudes regarding willingness to participate in medical research studies. Journal of Health & Social Policy 2000;12:23–43
  • Areán PA, Alvidrez J, Nery R, Estes C, Linkins K. Recruitment and retention of older minorities in mental health services research. The Gerontologist 2003;43:36–44
  • Lennox N, Taylor M, Rey-Conde T, Bain C, Purdie DM, Boyle F. Beating the barriers: Recruitment of people with intellectual disability to participate in research. Journal of Intellectual Disability Research 2005;49:296–305

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.