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Original Article

Informal caregivers of patients with disorders of consciousness: Experience of ambiguous loss

, , , &
Pages 473-480 | Received 31 Mar 2014, Accepted 18 Nov 2014, Published online: 17 Dec 2014

References

  • Monti MM, Laureys S, Owen AM. The vegetative state. BMJ 2010;341:c3765. doi: 10.1136/bmj.c3765
  • Laureys S, Owen AM, Schiff ND. Brain function in coma, vegetative state, and related disorders. The Lancet 2004;3:537–546
  • The Multi-Society Task Force on PVS. Medical aspects of the persistent vegetative state (2). New England Journal of Medicine 1994;330:1572–1579
  • Leonardi M, Giovannetti AM, Pagani M, Raggi A, Sattin D. Burden and coping in 487 caregivers of patients in Vegetative State and in Minimally Conscious State: Results from a national study. Brain Injury 2012;26:1201–1210
  • Giovannetti AM, Leonardi M, Pagani M, Sattin D, Raggi A. Burden of caregivers of patients in Vegetative State and Minimally Conscious State. Acta Neurologica Scandinavica 2013;127:10–18
  • Pagani M, Giovannetti AM, Covelli V, Sattin D, Raggi A, Leonardi M. Physical and mental health, anxiety and depressive symptoms in caregivers of patients in vegetative state and minimally conscious state. Clin Psychol Psychother 2014;21:420--426. doi: 10.1002/cpp.1848. Epub 2013 May 27
  • Chiambretto P, Moroni L, Guarnerio C, Bertolotti G, Prigerson HG. Prolonged grief and depression in caregivers of patients in vegetative state. Brain Injury 2010;24:581–588
  • Elvira de la Morena MJ, Cruzado JA. Caregivers of patients with disorders of consciousness: Coping and prolonged grief. Acta Neurologica Scandinavica 2013;127:413–418
  • Gould D. Family caregivers and the health care system. In: Levine C, Murray T, editors. The cultures of caregiving: Conflict and common ground among families, health professionals, and policy makers. Baltimore, MD: The John Hopkins University Press; 2004. p 5–34
  • Stern JM, Sazbon L, Becker E, Costeff H. Severe behavioural disturbance in families of patients with prolonged coma. Brain Injury 1988;21:256–262
  • Hamama-Raz Y, Zabari Y, Buchbinder E. From hope to despair, and back: Being the wife of a patient in a persistent vegetative state. Qualitative Health Research 2013;23:231–240
  • Rando TA. Loss and anticipatory grief. Lexington, MA: Lexington Books; 1986
  • Rando TA. Clinical dimensions of anticipatory mourning: Theory and practice in working with the dying, their loved ones, and their caregivers. Champaign, IL: Research Press; 2000
  • Shuchter SR, Zisook S. Multidimensional approach to widowhood. Psychiatric Annals 1986;16:295–308
  • Rando TA. Grief, dying and death: Clinical interventions for the caregiver. Champaign, IL: Research Press; 1984
  • Chan D, Livingston G, Jones L, Sampson EL. Grief reactions in dementia carers: A systematic review. International Journal of Geriatric Psychiatry 2012;28:1–17
  • Boss P. The trauma and complicated grief of ambiguous loss. Pastoral Psychology 2010;59:137–145
  • Boss P. Ambiguous loss. In: Walsh F, McGoldrick M, editors. Living beyond loss. New York, NY: W.W. Norton & Company; 2004. p 237–246
  • Kean S. The experience of ambiguous loss in families of brain injured ICU patients. Nursing in critical care 2010;15:66–75
  • Dempsey M, Baago S. Latent grief – The unique and hidden grief in carers of loved ones with dementia. American Journal of Alzheimer’s Disease 1998;13:84–91
  • Charmaz K. Constructing Grounded Theory – A Practical Guide through Qualitative Analysis. London: SAGE Publications; 2006
  • Thornberg R, Charmaz K. Grounded theory. In: Lapan S, Quartaroli M, Riemer F, editors. Qualitative research: An introduction to methods and designs. San Francisco, CA: Jossey-Bass; 2011
  • Strauss AL, Corbin J. Basics of qualitative research: Grounded theory procedures and techniques. London: SAGE; 1990
  • Piiparinen R, Whitlatch CJ. Existential loss as a determinant to well-being in the dementia caregiving dyad: A conceptual model. Dementia 2011;10:185–201
  • Skaff MM, Pearlin LI. Caregiving: Role engulfment and the loss of self. Gerontologist 1992;32:656–664
  • Gottlieb BH, Gignac MAM. Content and domain specificity of coping among family members with dementia. Journal of Aging Studies 1996;10:137–155
  • Ingebretsen R, Solem PE. Spouses of persons with dementia: Attachment, loss, and coping. Norwegian Journal of Epidemiology 1998;8:149–156
  • Ingebretsen R, Solem PE. Caring for a dementing spouse. Attachment, loss, and relationship-focused coping. In: Miesen BML, Jones GMMA, editors. Caregiving in dementia. London: Routledge; 1997. p 191–209
  • Kubler-Ross E. On death and dying. New York, NY: Macmillan; 1969

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