Aetiologies, comorbidities and causes of death in a population of 133 patients with polyhandicaps cared for at specialist rehabilitation centres

References

• Zucman E. Polyhandicaps et polyhandicapés. Paris: CTNERHI éditions; 1994
   Google Scholar
• Billette de Villemeur T, Brisse C, Afenjar A, Isapof A, Humbertclaude E, Mathieu S. Comment la loi Leonetti s’applique-t-elle à l’enfant polyhandicapé? Médecine Thérapeutique Pédiatrie 2012;15:43--37
   Google Scholar
• Motawaj M, Mathieu S, Brisse C, Ponsot G, Billette de Villemeur T. Le décès des patients polyhandicapés: l’expérience du service de pédiatrie spécialisée pour polyhandicapés de La Roche-Guyon. In: John Libbey Eurotext, editor. Journée parisiennes de pédiatrie 2010. Boulogne Billancourt: Nex&Com Medical Eventn; 2010. p 267–271
   Google Scholar
• Billette de Villemeur T, Mathieu S, Tallot M, Grimont E, Brisse C. Le parcours de santé de l’enfant polyhandicapé. Archives de pédiatrie 2012;19:105–108
   Google Scholar
• Rumeau-Rouquette C, du Mazaubrun C, Cans C, Grandjean H. Définition et prévalence des polyhandicaps à l’âge scolaire. Archives of Pediatrics 1998;5:739–744
   Google Scholar
• Goillot C, Mormiche P. Enquête handicap-incapacité-dépendance en institution depuis 1998 Insee résultats 2001 n° 755-756 disponible sur. Available online at: http://www.journal-officiel.gouv.fr/frameset.htm, accessed 1 September 2012
   Google Scholar
• Brouard C. Le handicap en chiffres. CTNERHI 2004 disponible sur. Available online at: http://www.ctnerhi.com.fr/ctnerhi/pagint/publications/biblio/detail_ouvrage.php cidouvrage=327, accessed 1 September 2012
   Google Scholar
• Juzeau D, Cachera I, Valle’e L. Enquête épidémiologique sur les enfants polyhandicapés du département du Nord. Archives of Pediatrics 1999;6:832–836
   Google Scholar
• Loi no 2005-370 du 22 avril 2005 relative aux droits des malades à la fin de vie. Journal officiel de la République Française disponible sur. Available online at: http://www.journal-officiel.gouv.fr/frameset.htm, accessed 1 September 2012
   Google Scholar
• Kennedy CH, Juarez AP, Becker A, Greenslade K, Harvey MT, Sullivan C, Tally B. Children with severe developmental disabilities and behavioural disorders have increased special healthcare needs. Developmental Medicine & Child Neurology 2007;49:926–930
   PubMed Web of Science ®Google Scholar
• Rodriguez D. Etiologies du Polyhandicap en 2005. In: CTNERHI, editors. Polyhandicap 2005. Paris: CTNERHI; 2005. p 30--36
   Google Scholar
• Hanaoka T, Mita K, Hiramoto A, Suzuki Y, Maruyama S, Nakadate T, Kishi R, Okada K, Egusa Y. Survival prognosis of Japanese severe motor an intellectual disabilities living in public and private institutions between 1961 and 2003. Journal of Epidemiology 2010;20:77–81
   Google Scholar
• Tadema AC, Vlaskamp C. The time and effort in taking care for children with profound intellectual and multiple disabilities: a study on care load and support. British Journal of Learning Disabilities 2010;38:41–48
   Web of Science ®Google Scholar
• Hogg J, Juhlberg K, Lambe L. Policy, service pathways and mortality: a 10-year longitudinal study of people with profound intellectual and multiple disabilities. Journal of Intellectual Disabilitiy Research 2007;51:366–376
   PubMedGoogle Scholar
• Hutton JL, Pharoah PO. Life expectancy in severe cerebral palsy. Archives of Disease in Childhood 2006;91:254–258
   PubMed Web of Science ®Google Scholar
• Hutton JL. Cerebral palsy life expectancy. Clinical Perinatology 2006;33:545–545
   PubMed Web of Science ®Google Scholar
• Strauss DJ, Shavelle RM, Anderson TW. Life expectancy of children with cerebral palsy. Pediatric Neurology 1998;18:143–149
   PubMed Web of Science ®Google Scholar
• Plioplys A. Survival rates of children with severe neurologic disabilities: A review. Seminars in Pediatric Neurology 2003;10:120–129
   Google Scholar
• Yoshikawa H, Yamazaki S, Abe T. Acute respiratory distress syndrome in children with severe motor and intellectual disabilities. Brain & Development 2005;27:395–399
   Google Scholar
• Ohtsuka E, Hayashi M, Hamano K, Kumada S, Uchiyama A, Kurata K, Osawa M. Pathological study of bronchospasm/tracheomalasia in patients with severe motor and intellectual disabilities. Brain & Development 2005;27:70–72
   Google Scholar
• Veugelers R, Benninga MA, Calis E, Willemsen SP, Enenhuis H, Tibbiel D, Penning C. Prevalence and clinical presentation of constipation in children with severe generalized cerebral palsy. Developmental Medicine & Child Neurology 2010;52:216–221
   PubMed Web of Science ®Google Scholar
• Idaira Y, Nomura Y, Tamaki Y, Katsumura S, Kodama S, Kurata K, Axada Y. Factors affecting the oral condition of patients with severe motor and intellectual disabilities. Oral Diseases 2008;14:435–439
   Google Scholar
• Calis AC, Veugelers R, Sheppard JJ, Tibboel D, Evenhuis H, Penning C. Dysphagia in children with severe generalized cerebral palsy and intellectual disability. Developmental Medicine & Child Neurology 2008;50:625–630
   PubMed Web of Science ®Google Scholar
• Kurihara M, Kumagai K, Noda Y, Watanabe M, Imai M. Prognosis in severe motor and intellectual disabilities syndrome complicated by epilepsy. Brain & Development 1998;20:519–523
   PubMed Web of Science ®Google Scholar
• Matsumoto A, Miyazaki S, Hayakawa C, Komori T, Nakamura M. Epilepsy in severe motor and intellectual disabilities syndrome (SMIDS)-A clinical and electroencephalographic study of epileptic syndromes. Epilepsy Research 2007;77:120–127
   Google Scholar
• Rousseau MC Blaya J, Catala A. spects organiques du vieillissement chez les patients polyhandicapés. La lettre de médecine physique et de réadaptation 2005;77:28–30
   Google Scholar
• Graham RJ. Acute respiratory distress syndrome in children with severe motor and intellectual disabilities. Brain & Development 2006;28:342
   Google Scholar
• Wilkinson D. Is it in the best interest of an intellectually disabled infant to die? Journal of Medical Ethics 2006;32:454–459
   PubMed Web of Science ®Google Scholar