Disclosure of a stigmatized identity: A qualitative study of the reasons why people choose to tell or not tell others about their traumatic brain injury

References

• Clair JA, Beatty JE, Maclean TL. Out of sight but not out of mind: Managing invisible social identities in the workplace. Academy of Management Review 2005;30:78–95
   Web of Science ®Google Scholar
• Kelly AE, McKillop KJ. Consequences of revealing personal secrets. Psychological Bulletin 1996;120:450–465
   Web of Science ®Google Scholar
• Pachankis JE. The psychological implications of concealing a stigma: A cognitive-affective-behavioral model. Psychological Bulletin 2007;133:328–345
   PubMed Web of Science ®Google Scholar
• Ragins BR. Disclosure disconnects: Antecedents and consequences of disclosing invisible stigmas across life domains. Academy of Management Review 2008;33:194–215
   Web of Science ®Google Scholar
• Herek GM. Hate crimes and stigma-related experiences among sexual minority adults in the United States: Prevalence estimates from a national probability sample. Journal of Interpersonal Violence 2009;24:54–74
   PubMed Web of Science ®Google Scholar
• Kalichman SC, DiMarco M, Austin J, Luke W, DiFonzo K. Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women. Journal of Behavioural Medicine 2003;26:315–331
   PubMed Web of Science ®Google Scholar
• Beals KP, Peplau LA, Gable SL. Stigma management and well-being: The role of perceived social support, emotional processing and suppression. Personality and Social Psychology Bulletin 2009;35:867–879
   PubMed Web of Science ®Google Scholar
• Jetten J, Haslam C, Haslam SA, Dingle G, Jones JM. How groups affect our health and well-being: The path from theory to policy. Social Issues and Policy Review 2014;8:103–130
   Web of Science ®Google Scholar
• Haslam SA, O'Brien A, Jetten J, Vormedal K, Penna S. Taking the strain: Social identity, social support, and the experience of stress. The British Journal of Social Psychology 2005;44:355–370
   PubMed Web of Science ®Google Scholar
• Kawamura KY, Frost RO. Self-concealment as a mediator in the relationship between perfectionism and psychological distress. Cognitive Therapy and Research 2004;28:183–191
   Web of Science ®Google Scholar
• Larson DG, Chastain RL. Self-concealment: Conceptualization, measurement, and health implications. Journal of Social and Clinical Psychology 1990;9:439–455
   Web of Science ®Google Scholar
• Afifi WA, Caughlin JP. A close look at revealing secrets and some consequences that follow. Communication Research 2006;33:467–488
   Web of Science ®Google Scholar
• Chaudoir SR, Fisher JD. The disclosure processes model: Understanding disclosure decision making and postdisclosure outcomes among people living with a concealable stigmatized identity. Psychological Bulletin 2010;136:236–256
   PubMed Web of Science ®Google Scholar
• Greenberg MA, Stone AA. Emotional disclosure about traumas and its relation to health: Effects of previous disclosure and trauma severity. Journal of Personality and Social Psychology 1992;63:75–84
   PubMed Web of Science ®Google Scholar
• Corrigan PW, Matthews AK. Stigma and disclosure: Implications for coming out of the closet. Journal of Mental Health 2003;12:235–248
   Google Scholar
• Remennick L. Childless in the land of imperative motherhood: Stigma and coping among infertile Israeli women. Sex Roles 2000;43:821–841
   Web of Science ®Google Scholar
• Collins NL, Miller LC. Self-disclosure and liking: A meta-analytic review. Psychological Bulletin 1994;116:457–475
   PubMed Web of Science ®Google Scholar
• Morry MM. Allocentrism and friendship satisfaction: The mediating roles of disclosure and closeness. Canadian Journal of Behavioural Science 2005;37:211–222
   Web of Science ®Google Scholar
• Oswald DL, Clark EM. How do friendship maintenance behaviors and problem-solving styles function at the individual and dyadic levels? Personal Relationships 2006;13:333–348
   Web of Science ®Google Scholar
• Derlega VJ, Winstead BA, Greene K. Self-disclosure and starting a close relationship. In: Sprecher S, Wenzel A, Harvey J, editors. Handbook of relationship initiation. New York: Psychology Press; 2008. pp 153–174
   Google Scholar
• Sprecher S, Hendrick SS. Self-disclosure in intimate relationships: Associations with individual and relationship characteristics over time. Journal of Social and Clinical Psychology 2004;23:857–877
   Web of Science ®Google Scholar
• Omarzu J. A disclosure decision model: Determining how and when individuals will self-disclose. Personality and Social Psychology Review 2000;4:174–185
   Web of Science ®Google Scholar
• Derlega VJ, Winstead BA, Greene K, Serovich J, Elwood WN. Reasons for HIV disclosure/nondisclosure in close relationships: Testing a model of HIV-disclosure decision making. Journal of Social and Clinical Psychology 2004;23:747–767
   Web of Science ®Google Scholar
• Derlega VJ, Winstead BA, Folk-Barron L. Reasons for and against disclosing HIV-seropositive test results to an intimate partner: a functional perspective. In: Petronio S, editor. Balancing the secrets of private disclosure. Mahwah, NJ: Erlbaum; 2000. pp 53–69
   Google Scholar
• Cain R. Stigma management and gay identity development. Social Work 1991;36:67–73
   PubMed Web of Science ®Google Scholar
• Creed DWE, Scully MA. Songs of ourselves: Employees' deployment of social identity in workplace encounters. Journal of Management Inquiry 2000;9:391–412
   Web of Science ®Google Scholar
• Leary MR, Kowalski RM. Impression management: A literature review and two-component model. Psychological Bulletin 1990;107:34–47
   Web of Science ®Google Scholar
• Derlega VJ, Grzelak J. Appropriateness of self-disclosure. In: Chelune GJ, editor. Self-disclosures: origins, patterns and implications of openness in interpersonal relationships. San Francisco, CA: Jossey–Bass; 1979. pp 151–176
   Google Scholar
• Moorhead C. Queering identities: The roles of integrity and belonging in becoming ourselves. International Journal of Sexuality and Gender Studies 1999;4:327–343
   Google Scholar
• Paterson B, Scott-Findlay S. Critical issues in interviewing people with traumatic brain injury. Qualitative Health Research 2002;12:399–409
   PubMed Web of Science ®Google Scholar
• Jones JJ, Jetten J, Haslam SA, Williams WH. Deciding to disclose: the importance of maintaining social relationships for well-being after acquired brain injury. In: Jetten J, Haslam C, Haslam SA, editors. The social cure: Identity, health and well-being. Hove, East Sussex: Psychology Press; 2012. pp 255–271
   Google Scholar
• Karlovits T, McColl MA. Coping with community reintegration after severe brain injury: A description of stresses and coping strategies. Brain Injury 1999;13:845–861
   PubMed Web of Science ®Google Scholar
• Shorland J, Douglas JM. Understanding the role of communication in maintaining and forming friendships following traumatic brain injury. Brain Injury 2010;24:569–580
   PubMed Web of Science ®Google Scholar
• Nochi M. Struggling with the labeled self: People with traumatic brain injuries in social settings. Qualitative Health Research 1998;8:665–681
   PubMed Web of Science ®Google Scholar
• Guilmette TJ, Paglia MF. The public’s misconceptions about traumatic brain injury: A follow up survey. Archives of Clinical Neuropsychology 2004;19:183–189
   PubMed Web of Science ®Google Scholar
• Swift TL, Wilson SL. Misconceptions about brain injury among the general public and non-expert health professionals: An exploratory study. Brain Injury 2001;15:149–165
   PubMed Web of Science ®Google Scholar
• McClure J. The role of causal attributions in public misconceptions about brain injury. Rehabilitation Psychology 2011;56:85–93
   PubMed Web of Science ®Google Scholar
• Crisp R. Personal responses to traumatic brain injury: A qualitative study. Disability, Handicap and Society 1993;8:393–404
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology 2006;3:77–101
   Google Scholar
• Simpson G, Mohr R, Redman A. Cultural variations in the understanding of traumatic brain injury and brain injury rehabilitation. Brain Injury 2000;14:125–140
   PubMed Web of Science ®Google Scholar
• Goldberg AE. Talking about family: Disclosure practices of adults raised by lesbian, gay, and bisexual parents. Journal of Family Issues 2007;28:100–131
   Web of Science ®Google Scholar
• Riley GA, Brennan AJ, Powell T. Threat appraisal and avoidance after traumatic brain injury: Why and how often are activities avoided?. Brain Injury 2004;18:871–888
   PubMed Web of Science ®Google Scholar
• Baldwin VN, Powell T, Lorenc L. Factors influencing the uptake of memory compensation: A qualitative analysis. Neuropsychological Rehabilitation 2011;21:484–501
   PubMed Web of Science ®Google Scholar
• Gray JA. The psychology of fear and stress. 2nd ed. Cambridge, UK: Cambridge University Press; 1987
   Google Scholar
• Gray JA. Neural systems, emotion, and personality. In: Madden J, editor. Neurobiology of learning, emotion, and affect. New York: Raven Press; 1991. pp 273–306
   Google Scholar
• Gable SL, Berkman ET. Making connections and avoiding loneliness: approach and avoidance social motives and goals. In: Elliot AJ, editor. Handbook of approach and avoidance motivation. New York: Psychology Press; 2008. pp 203–216
   Google Scholar
• Elliot AJ. Approach and avoidance motivation and achievement goals. Educational Psychologist 1999;34:169–189
   Web of Science ®Google Scholar
• Riley GA, Dennis RK, Powell T. Evaluation of coping resources and self-esteem as moderators of the relationship between threat appraisals and avoidance of activities after traumatic brain injury. Neuropsychological Rehabilitation 2010;20:869–882
   PubMed Web of Science ®Google Scholar
• Heimpel SA, Elliot AJ, Wood JV. Basic personality dispositions, self-esteem, and personal goals: An approach-avoidance analysis. Journal of Personality 2006;74:1293–1319
   PubMed Web of Science ®Google Scholar
• Wood JV, Giordano-Beech M, Taylor KL, Michela JL, Gaus V. Strategies of social comparison among people with low self-esteem: Self-protection and self-enhancement. Journal of Personality and Social Psychology 1994;67:713–731
   PubMed Web of Science ®Google Scholar
• Francis J, Johnston M, Robertson C, Glidewell L, Entwistle V, Eccles MP, Grimshaw JM. What is an adequate sample size? Operationalising data saturation for theory-based interview studies. Psychology and Health 2010;25:1229–1245
   PubMed Web of Science ®Google Scholar