Caregivers’ Experiences Derived from Everyday Occupations

References

• Atler K. (2012). The development and initial validation of the daily experiences of pleasure, productivity and restoration profile (Unpublished doctoral dissertation).
   Google Scholar
• Atler K. (2014). The daily experiences of pleasure, productivity and restoration profile: a measure of subjective experiences. In Pierce D. ed., Occupational science for occupational therapy. Thorofare, NJ: SLACK Incorporated, 187–199.
   Google Scholar
• Atler K. (2015). User-perceived utility of the daily experiences of pleasure, productivity, and restoration profile. Canadian Journal of Occupational Therapy. doi: 10.1177/0008417415571731
   PubMed Web of Science ®Google Scholar
• Bolger N, Davis A, Rafaeli E. (2003). Diary methods: Capturing life as it is lived. The Annual Review of Psychology 54:579–616. doi: 10.1146/annurev.psych.54.101601.145030
   PubMed Web of Science ®Google Scholar
• Burton L, Newsom J, Schulz R, Hirsch C, German P. (1997). Preventive health behaviors among spousal caregivers. Preventive Medicine 26:162–169.
   PubMed Web of Science ®Google Scholar
• Cao V, Chung C, Ferreira A, Nelken J, Brooks D, Cott C. (2010). Changes in activities of wives caring for their husbands following stroke. Physiotherapy Canada 62:35–43.
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. (2013). The state of aging and health in America 2013. Atlanta, GA: Centers for Disease Control and Prevention, US Dept of Health and Human Services.
   Google Scholar
• Chappell N, Reid R, Dow E. (2001). Respite reconsidered: A typology of meanings based on the caregiver's point of view. Journal of Aging Studies 15:201–216.
   Web of Science ®Google Scholar
• Clyburn LD, Stones MJ, Hadjistavropoulos T, Tuokko H. (2000). Predicting caregiver burden and depression in Alzheimer's disease. Journals of Gerontology Series B: Social Sciences 55(1):S2–S13.
   PubMed Web of Science ®Google Scholar
• Diener E, Wirtz D, Tov W, Kim-Prieto C, Choi D, Oishi S, Biswas-Diener R. (2010). New well-being measures: Short scales to assess flourishing and positive and negative feelings. Social Indicators Research 97(2):143–156.
   Web of Science ®Google Scholar
• DiZazzo-Miller R, Samuel PS, Barnas JM, Walker KM. (2014). Addressing everyday challenges: Feasibility of a family caregiver training program for people with dementia. The American Journal of Occupational Therapy 68(2):212–220.
   PubMed Web of Science ®Google Scholar
• Doble S, Santha J. (2008). Occupational well-being: Rethinking occupational therapy outcomes. Canadian Journal of Occupational Therapy 75(3):184–190.
   PubMedGoogle Scholar
• Erlandsson L, Eklund M, Persson D. (2011). Occupational value and relationships to meaning and health: Elaborations of the ValMO-model. Scandinavian Journal of Occupational Therapy 18:72–80.
   PubMed Web of Science ®Google Scholar
• Gitlin LN, Winter L, Burke J, Chernett N, Dennis MP, Hauck WW. (2008). Tailored activities to manage neuropsychiatric behaviors in persons with dementia and reduced caregiver burden: A randomized pilot study. American Journal of Geriatric Psychiatry 16(3):229–239.
   PubMed Web of Science ®Google Scholar
• Graff MJL, Vernooij-Dassen MJM, Thijssen M, Dekker J, Hoefnagels WHL, OldeRikkert MGM. (2007). Effects of community occupational therapy on quality of life, mood, and health status in dementia patients and their caregivers: A randomized controlled trial. Journal of Gerontology: Medical Sciences 62A(9):1002–1009.
   Google Scholar
• Gray K, Horowitz BP, O’Sullivan A, Behar SK, Abreu BC. (2007). Occupational therapy's role in the occupation of caregiving. OT Practice 12(15):CE-1-CE-8.
   Google Scholar
• Hammell K. (2009). Self-care, productivity, and leisure, or dimensions of occupational experience? Rethinking occupational “categories”. Canadian Journal of Occupational Therapy 76(2):107–114. doi: 10.1177/000841740907600208
   PubMed Web of Science ®Google Scholar
• Hasselkus B. (1989). The meaning of daily activity in family caregiving for the elderly. American Journal of Occupational Therapy 43(10):649–656.
   PubMed Web of Science ®Google Scholar
• Hasselkus B. (2006). 2006 Eleanor Clarke Slagle Lecture—The world of everyday occupation: Real people, real lives. The American Journal of Occupational Therapy 60(6):627–640. doi: 10.5014/ajot.60.6.627
   PubMed Web of Science ®Google Scholar
• Hasselkus B, Murray B. (2007). Everyday occupation, well-being, and identity: The experience of caregivers in families with dementia. American Journal of Occupational Therapy 61(1):9–20.
   PubMed Web of Science ®Google Scholar
• Hellstrom I, Nolan M, Lundh U. (2005). ‘We do things together’: A case study of ‘couplehood’ in dementia. Dementia 4(1):7–22.
   Google Scholar
• Iida M, Shrout PE, Laurenceau J, Bolger N. (2012). Using diary methods in psychological research. In Cooper H. ed., APA handbook of research methods in psychology: Vol. 1. foundations, planning, measures, and psychometrics. Washington, D.C.: American Psychological Association, 277–305.
   Google Scholar
• Krueger RA, Casey MA. (2009). Focus groups: A practical guide for applied research, 4th edition. Thousand Oaks, CA: SAGE Publications, Inc.
   Google Scholar
• Law M, Cooper B, Strong S, Stewart D, Rigby P, Letts L. (1996). The person-environment-occupation model: A transactive approach to occupational performance. Canadian Journal of Occupational Therapy 63(1):9–23.
   Google Scholar
• Letts L, Edwards M, Berenyi J, Moros K, O’Neill C, O’Toole C, McGrath C. (2011). Using occupations to improve quality of life, health and wellness, and client and caregiver satisfaction for people with Alzheimer's disease and related dementias. American Journal of Occupational Therapy 65:497–504.
   PubMed Web of Science ®Google Scholar
• Loos C, Bowd A. (1997). Caregivers of persons with Alzheimer's disease: Some neglected implications of the experience of personal loss and grief. Death Studies 21:501–514.
   PubMed Web of Science ®Google Scholar
• Lu Y-F, Haase J. (2009). Experience and perspectives of caregivers of spouse with mild cognitive impairment. Current Alzheimer Research 6(4):384–391.
   PubMed Web of Science ®Google Scholar
• Lund D, Utz R, Caserta M, Wright S. (2009). Examining what caregivers do during respite time to make respite more effective. Journal of Applied Gerontology 28(1):109–131. doi: 10.1177/0733464808323448
   Web of Science ®Google Scholar
• Malterud K. (2001). Qualitative research: Standards, challenges, and guidelines. The Lancet 358(9280):483–488.
   PubMed Web of Science ®Google Scholar
• Matuska K, Christiansen C. (2008). A proposed model of lifestyle balance. Journal of Occupational Science 15(1):9–19. doi: 10.1080/14427591.2008.9686602
   Google Scholar
• McGrath W. (2000). Caregivers of persons with Alzheimer's disease: An exploratory study of occupational performance and respite. Physical and Occupational Therapy in Geriatrics 18(2):51–69.
   Google Scholar
• Merriam S. (2009). Qualitative research: A guide to design and implementation. San Francisco, CA: Jossey-Bass.
   Google Scholar
• Michelson W. (2005). Time use: Expanding the explanatory power of the social sciences. Boulder, CO: Paradigm Publishers.
   Google Scholar
• Michelson W, Tepperman L. (2003). Focus on home: What time-use data can tell about caregiving to adults. Journal of Social Issues 59(3):591–610.
   Web of Science ®Google Scholar
• Miles MB, Huberman AM, Saldaña J. (2014). Qualitative data analysis (Third ed.). Thousand Oaks, CA: SAGE Publications, Inc.
   Google Scholar
• National Alliance for Caregiving. (2015). Caregiving in the U.S.: Executive Summary (pp. 9-32) Available from http://www.caregiving.org/wp-content/uploads/2015/05/2015_CaregivingintheUS_Executive-Summary-June-4_WEB.pdf
   Google Scholar
• Pickens ND, Pizur-Barnekow, K. (2009). Co-occupation: Extending the dialogue. Journal of Occupational Science 16(3): 151–156.
   Google Scholar
• Pierce D. (2003). Occupation by design: Building therapeutic power. Philadelphia, PA: F.A. Davis Co.
   Google Scholar
• Quinn C, Clare L, Pearce A, Van Dijkhuizen M. (2008). The experience of providing care in the early stages of dementia: An interpretative phenomenological analysis. Aging and Mental Health 12(6):769–778.
   PubMed Web of Science ®Google Scholar
• Reinhard S. (2004). The work of caregiving: What do ADLs and IADLs tell us? In Levine C. ed., Family caregivers on the job: Moving beyond ADLs and IADLs. New York, NY: United Hospital Fund, 181–183.
   Google Scholar
• Reinhard S, Given B, Petlick NH, Bemis A. (2008). Supporting family caregivers in providing care. In Hughes RG ed., Patient safety and quality: An evidence-based handbook for nurses. Rockville, MD: Agency for Healthcare Research and Quality (US), Chapter 14, pp. 1–64.
   Google Scholar
• Reinhard S, Feinberg, L, Choula, R, Houser, A. (2015). Valuing the invaluable: 2015 update undeniable progress, but big gaps remain. Retrieved from http://www.aarp.org/content/dam/aarp/ppi/2015/valuing-the-invaluable-2015-update-new.pdf
   Google Scholar
• Reis HT. (2012). Why researchers should think ‘real-world’: A conceptual rationale. In Mehl MR, Conner TS eds., Handbook of research methods for studying daily life. New York, NY: The Guilford Press, 3–21.
   Google Scholar
• Rochette A, Korner-Bitensky N, Levasseur M. (2006). ‘Optimal’ participation: A reflective look. Disability and Rehabilitation 28(19): 1231–1235.
   Google Scholar
• Rosa E, Lussignoli G, Sabbatini F, Chiappa A, Di Cesare S, Lamanna L, Zanetti O. (2010). Needs of caregivers of the patients with dementia. Archives of Gerontology and Geriatrics 51(1):54–58.
   PubMed Web of Science ®Google Scholar
• Ryan R, Deci E. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist 55(1):68–78. doi:10.1037110003-066X.55.1.68
   PubMed Web of Science ®Google Scholar
• Savin-Baden M, Major CH. (2013). Qualitative research: The essential guide to theory and practice. New York, NY: Routledge.
   Google Scholar
• Schoenberg NE, Shenk D, Kart CS. (2007). Food for thought: Nourishing the publication of qualitative research. Journal of Applied Gerontology 26(1):4–16.
   Web of Science ®Google Scholar
• Schwarz N. (2012). Why researchers should think “real-time”: A cognitive rationale. In Mehl MR, Cooper TS eds., Handbook of research methods for studying daily life. New York, NY: The Guilford Press, 3–21.
   Google Scholar
• Son J, Erno A, DShea D, Femia E, Zarit S, Stephens M. (2007). The caregiver stress process and health outcomes. Jouranl of Aging & Health 19(6):871–887.
   PubMed Web of Science ®Google Scholar
• Teitelman J, Watts J. (2004). How family caregivers of persons with Alzheimer disease achieve mental breaks: Preliminary analysis from a qualitative study. Physical and Occupational Therapy in Geriatrics 23(1):9–24.
   Google Scholar
• Thinnes A, Padilla R. (2011). Effect of educational and supportive strategies on the ability of caregivers of people with dementia to maintain participation in that role. American Journal of Occupational Therapy 65:541–549.
   PubMed Web of Science ®Google Scholar
• Ujimoto K. (1998). Frequency, duration, and social context of activities in daily living: Time-budget methodology for caregiving research. Journal of Occupational Science 5(1):6–13.
   Google Scholar
• Vellone E, Piras G, Talucci C, Cohen MZ. (2007). Quality of life for caregivers of people with Alzheimer's disease. Journal of Advanced Nursing 61(2):222–231.
   Web of Science ®Google Scholar
• Warner G, Stadnyk R. (2014). What is the evidence and context for implementing family-centered care for older adults? Physical and Occupational Therapy in Geriatrics 32(3):255–270.
   Google Scholar
• Watts JH, Teitelman J. (2005). Achieving a restorative mental break for family caregivers of persons with Alzheimer's disease. Australian Occupational Therapy Journal 52(4):282–292.
   Google Scholar
• Wilcock A. (2006). An occupational perspective of health (2nd ed.). Thorofare, NJ: Slack Incorporated.
   Google Scholar