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Cancer survivorship

Teenagers want to be told when a parent's death is near: A nationwide study of cancer-bereaved youths’ opinions and experiences

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Pages 944-950 | Received 13 Aug 2014, Accepted 15 Oct 2014, Published online: 03 Dec 2014

References

  • Rostila M, Saarela JM. Time does not heal all wounds: Mortality following the death of a parent. J Marriage Fam 2011;73:236–49.
  • Luecken LJ. Long-term consequences of parental death in childhood: Psychological and physiological manifestations. In: Stroebe MS, Schut H, Stroebe W, eds. Handbook of bereavement research and practice: Advances in theory and intervention, 1st ed. Washington DC: American Psychological Association; 2008. p. 397–416.
  • Bylund Grenklo T, Kreicbergs U, Valdimarsdottir UA, Nyberg T, Steineck G, Furst CJ. Self-injury in youths who lost a parent to cancer: Nationwide study of the impact of family-related and health-care-related factors. Psychooncology 2014;23:989–97.
  • Grenklo TB, Kreicbergs UC, Valdimarsdottir UA, Nyberg T, Steineck G, Furst CJ. Communication and trust in the care provided to a dying parent: A nationwide study of cancer-bereaved youths. J Clin Oncol 2013;31:2886–94.
  • Ellis J, Dowrick C, Lloyd-Williams M. The long-term impact of early parental death: Lessons from a narrative study. J R Soc Med 2013;106:57–67.
  • Kreicbergs U, Valdimarsdottir U, Onelov E, Henter JI, Steineck G. Talking about death with children who have severe malignant disease. N Engl J Med 2004;351: 1175–86.
  • Hauksdottir A, Steineck G, Furst CJ, Valdimarsdottir U. Long-term harm of low preparedness for a wife's death from cancer – a population-based study of widowers 4–5 years after the loss. Am J Epidemiol 2010;172:389–96.
  • Fallowfield LJ, Jenkins VA, Beveridge HA. Truth may hurt but deceit hurts more: Communication in palliative care. Palliat Med 2002;16:297–303.
  • Barnes J, Kroll L, Burke O, Lee J, Jones A, Stein A. Qualitative interview study of communication between parents and children about maternal breast cancer. Br Med J 2000;321:479–82.
  • Helseth S, Ulfsaet N. Parenting experiences during cancer. J Adv Nurs 2005;52:38–46.
  • Dehlin L, Reg LM. Adolescents’ experiences of a parent's serious illness and death. Palliat Support Care 2009;7: 13–25.
  • Kristjanson LJ, Aoun S. Palliative care for families: Remembering the hidden patients. Can J Psychiatry 2004;49:359–65.
  • Patterson P, Rangganadhan A. Losing a parent to cancer: A preliminary investigation into the needs of adolescents and young adults. Palliat Support Care 2010;8:255–65.
  • Omerov P, Steineck G, Runeson B, Christensson A, Kreicbergs U, Pettersen R, et al. Preparatory studies to a population-based survey of suicide-bereaved parents in Sweden. Crisis 2013;34:200–10.
  • Lannen P, Wolfe J, Mack J, Onelov E, Nyberg U, Kreicbergs U. Absorbing information about a child's incurable cancer. Oncology 2010;78:259–66.
  • Harris ES. Adolescent bereavement following the death of a parent: An exploratory study. Child Psychiatry Hum Dev 1991;21:267–81.
  • Folkman S, Lazarus RS, Gruen RJ, DeLongis A. Appraisal, coping, health status, and psychological symptoms. J Pers Soc Psychol 1986;50:571–9.
  • Kopchak Sheehan D, Burke Draucker C, Christ GH, Murray Mayo M, Heim K, Parish S. Telling adolescents a parent is dying. J Palliat Med 2014;17:512–20.
  • MacPherson C. Telling children their ill parent is dying: A study of the factors influencing the well parent. Mortality 2005;10:113–26.
  • Nilsson ME, Maciejewski PK, Zhang B, Wright AA, Trice ED, Muriel AC, et al. Mental health, treatment preferences, advance care planning, location, and quality of death in advanced cancer patients with dependent children. Cancer 2009;115:399–409.
  • Heiney SP, Bryant LH, Walker S, Parrish RS, Provenzano FJ, Kelly KE. Impact of parental anxiety on child emotional adjustment when a parent has cancer. Oncol Nurs Forum 1997;24:655–61.
  • Zhang AY, Siminoff LA. Silence and cancer: Why do families and patients fail to communicate? Health Commun 2003;15:415–29.
  • Higginson IJ, Costantini M. Communication in end- of-life cancer care: A comparison of team assessments in three European countries. J Clin Oncol 2002;20: 3674–82.
  • Kennedy VL, Lloyd-Williams M. Information and communication when a parent has advanced cancer. J Affect Disord 2009;114:149–55.
  • Semple CJ, McCance T. Parents’ experience of cancer who have young children: A literature review. Cancer Nurs 2010;33:110–8.
  • Stinesen-Kollberg K, Thorsteinsdottir T, Wilderang U, Steineck G. Worry about one's own children, psychological well-being, and interest in psychosocial intervention. Psychooncology 2013;22:2117–23.

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