Childhood cancer survivor cohorts in Europe

References

• D’Angio GJ. Pediatric cancer in perspective: Cure is not enough. Cancer 1975;35(3 Suppl):866–70.
   PubMed Web of Science ®Google Scholar
• Gatta G, Zigon G, Capocaccia R, Coebergh JW, Desandes E, Kaatsch P et al. Survival of European children and young adults with cancer diagnosed 1995–2002. Eur J Cancer 2009;45:992–1005.
   PubMed Web of Science ®Google Scholar
• Hewitt M, Weiner SL, Simone JV, editors. Childhood cancer survivorship: Improving care and quality of life. Washington, DC: National Academy of Sciences; 2003.
   Google Scholar
• Robison LL, Hudson MM. Survivors of childhood and adolescent cancer: Life-long risks and responsibilities. Nat Rev Cancer 2014;14:61–70.
   PubMed Web of Science ®Google Scholar
• Haupt R, Spinetta JJ, Ban I, Barr RD, Beck JD, Byrne J, et al. Long term survivors of childhood cancer: Cure and care. The Erice statement. Eur J Cancer 2007;43: 1778–80.
   PubMed Web of Science ®Google Scholar
• Stovall M, Weathers R, Kasper C, Smith SA, Travis L, Ron E, et al. Dose reconstruction for therapeutic and diagnostic radiation exposures: Use in epidemiological studies. Radiat Res 2006;166:141–57.
   PubMed Web of Science ®Google Scholar
• Hawkins MM, Lancashire ER, Winter DL, Frobisher C, Reulen RC, Taylor AJ, et al. The British Childhood Cancer Survivor Study: Objectives, methods, population structure, response rates and initial descriptive information. Pediatr Blood Cancer 2008;50:1018–25.
   PubMed Web of Science ®Google Scholar
• Overbeek A, van den Berg MH, Kremer LC, van den Heuvel-Eibrink MM, Tissing WJ, Loonen JJ, et al. A nationwide study on reproductive function, ovarian reserve, and risk of premature menopause in female survivors of childhood cancer: Design and methodological challenges. BMC Cancer 2012;12:363.
   PubMed Web of Science ®Google Scholar
• Kuehni CE, Rueegg CS, Michel G, Rebholz CE, Strippoli MP, Niggli FK, et al. Cohort profile: The Swiss childhood cancer survivor study. Int J Epidemiol 2012; 41:1553–64.
   PubMed Web of Science ®Google Scholar
• Robison LL, Mertens AC, Boice JD, Breslow NE, Donaldson SS, Green DM, et al. Study design and cohort characteristics of the Childhood Cancer Survivor Study: A multi-institutional collaborative project. Med Pediatr Oncol 2002;38:229–39.
   PubMedGoogle Scholar
• Alziar I, Bonniaud G, Couanet D, Ruaud JB, Vicente C, Giordana G, et al. Individual radiation therapy patient whole-body phantoms for peripheral dose evaluations: Method and specific software. Phys Med Biol 2009;54:N375–83.
   Web of Science ®Google Scholar
• Benadjaoud MA, Bezin J, Veres A, Lefkopoulos D, Chavaudra J, Bridier A, et al. A multi-plane source model for out-of-field head scatter dose calculations in external beam photon therapy. Phys Med Biol 2012;57:7725–39.
   PubMed Web of Science ®Google Scholar
• Italian cancer figures, report 2012: Cancer in children and adolescents. Epidemiol Prev 2013;37(1 Suppl 1):1–225.
   Google Scholar
• Brown MC, Levitt GA, Frey E, Bardi E, Haupt R, Hjorth L, et al. The views of European clinicians on guidelines for long-term follow-up of childhood cancer survivors. Pediatr Blood Cancer Epub 2014 Nov 8.
   Web of Science ®Google Scholar
• Scottish Intercollegiate Guidelines Network. Long term follow up of survivors of childhood cancer. A national clinical guideline. Edinburgh, Scotland: Healthcare Improvement, Scotland; 2004.
   Google Scholar
• Kremer LC, Mulder RL, Oeffinger KC, Bhatia S, Landier W, Levitt G, et al. A worldwide collaboration to harmonize guidelines for the long-term follow-up of childhood and young adult cancer survivors: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Pediatr Blood Cancer 2013;60:543–9.
   PubMed Web of Science ®Google Scholar
• Armenian SH, Hudson MM, Mulder RL, et al. Recommendations for cardiomyopathy surveillance for survivors of childhood cancer: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Lancet Oncol Forthcoming 2014.
   Google Scholar
• Mulder RL, Kremer LC, Hudson MM, Bhatia S, Landier W, Levitt G, et al. Recommendations for breast cancer surveillance for female survivors of childhood, adolescent, and young adult cancer given chest radiation: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Lancet Oncol 2013;14:e621–9.
   Web of Science ®Google Scholar
• Essig S, Skinner R, von der Weid NX, Kuehni CE, Michel G. Follow-up programs for childhood cancer survivors in Europe: A questionnaire survey. PLoS One 2012;7:e53201.
   PubMed Web of Science ®Google Scholar
• Terenziani M, Spinelli M, Jankovic M, Bardi E, Hjorth L, Haupt R, et al. Practices of pediatric oncology and hematology providers regarding fertility issues: A European survey. Pediatr Blood Cancer 2014;61:2054–8.
   PubMed Web of Science ®Google Scholar
• de Fine Licht S, Winther JF, Gudmundsdottir T, Holmqvist AS, Bonnesen TG, Asdahl PH, et al. Hospital contacts for endocrine disorders in Adult Life after Childhood Cancer in Scandinavia (ALiCCS): A population-based cohort study. Lancet 2014;383:1981–9.
   PubMed Web of Science ®Google Scholar
• Holmqvist AS, Olsen JH, Andersen KK, de Fine Licht S, Hjorth L, Garwicz S, et al. Adult life after childhood cancer in Scandinavia: Diabetes mellitus following treatment for cancer in childhood. Eur J Cancer 2014;50:1169–75.
   PubMed Web of Science ®Google Scholar
• Rebholz CE, Reulen RC, Toogood AA, Frobisher C, Lancashire ER, Winter DL, et al. Health care use of long-term survivors of childhood cancer: The British Childhood Cancer Survivor Study. J Clin Oncol 2011;29:4181–8.
   PubMed Web of Science ®Google Scholar
• Reulen RC, Winter DL, Frobisher C, Lancashire ER, Stiller CA, Jenney ME, et al. Long-term cause-specific mortality among survivors of childhood cancer. JAMA 2010; 304:172–9.
   PubMed Web of Science ®Google Scholar
• Reulen RC, Frobisher C, Winter DL, Kelly J, Lancashire ER, Stiller CA, et al. Long-term risks of subsequent primary neoplasms among survivors of childhood cancer. JAMA 2011; 305:2311–9.
   PubMed Web of Science ®Google Scholar
• Overbeek A, van den Berg MH, Hukkelhoven CW, Kremer LC, van den Heuvel-Eibrink MM, Tissing WJ, et al. Validity of self-reported data on pregnancies for childhood cancer survivors: A comparison with data from a nationwide population-based registry. Hum Reprod 2013;28:819–27.
   PubMed Web of Science ®Google Scholar
• Sieswerda E, Postma A, van Dalen EC, van der Pal HJ, Tissing WJ, Rammeloo LA, et al. The Dutch Childhood Oncology Group guideline for follow-up of asymptomatic cardiac dysfunction in childhood cancer survivors. Ann Oncol 2012; 23:2191–8.
   PubMed Web of Science ®Google Scholar
• van den Berg M, van Dulmen-den BE, Overbeek A, Ronckers C, van DW, Kremer L, et al. Fertility studies in female childhood cancer survivors: Selecting appropriate comparison groups. Reprod Biomed Online 2014;29:352–61.
   PubMed Web of Science ®Google Scholar
• Michel G, Rebholz CE, von der Weid NX, Bergstraesser E, Kuehni CE. Psychological distress in adult survivors of childhood cancer: The Swiss Childhood Cancer Survivor study. J Clin Oncol 2010;28:1740–8.
   PubMed Web of Science ®Google Scholar
• Rebholz CE, Rueegg CS, Michel G, Ammann RA, von der Weid NX, Kuehni CE, et al. Clustering of health behaviours in adult survivors of childhood cancer and the general population. Br J Cancer 2012;107:234–42.
   PubMed Web of Science ®Google Scholar
• Wengenroth L, Rueegg CS, Michel G, Essig S, Ammann RA, Bergstraesser E, et al. Life partnerships in childhood cancer survivors, their siblings, and the general population. Pediatr Blood Cancer 2014;61:538–45.
   PubMed Web of Science ®Google Scholar
• de Vathaire F, El-Fayech C, Ben Ayed FF, Haddy N, Guibout C, Winter D, et al. Radiation dose to the pancreas and risk of diabetes mellitus in childhood cancer survivors: A retrospective cohort study. Lancet Oncol 2012;13: 1002–10.
   PubMed Web of Science ®Google Scholar
• Schwartz B, Benadjaoud MA, Clero E, Haddy N, El-Fayech C, Guibout C, et al. Risk of second bone sarcoma following childhood cancer: Role of radiation therapy treatment. Radiat Environ Biophys 2014;53:381–90.
   PubMed Web of Science ®Google Scholar
• Thomas-Teinturier C, El Fayech C, Oberlin O, Pacquement H, Haddy N, Labbe M, et al. Age at menopause and its influencing factors in a cohort of survivors of childhood cancer: Earlier but rarely premature. Hum Reprod 2013;28:488–95.
   PubMed Web of Science ®Google Scholar
• Tukenova M, Guibout C, Oberlin O, Doyon F, Mousannif A, Haddy N, et al. Role of cancer treatment in long-term overall and cardiovascular mortality after childhood cancer. J Clin Oncol 2010;28:1308–15.
   PubMed Web of Science ®Google Scholar
• Berbis J, Michel G, Baruchel A, Bertrand Y, Chastagner P, Demeocq F, et al. Cohort Profile: The French Childhood Cancer Survivor Study For Leukaemia (LEA Cohort). Int J Epidemiol Epub 2014 Mar 17.
   Google Scholar
• Berbis J, Oudin C, Alessandrini M, Vercasson C, Barlogis V, Chambost H, et al. Quality of life in minor siblings of childhood leukemia survivors, long-term after diagnosis: A LEA study (for Leucemies de l’Enfant et de l’Adolescent-childhood and adolescent leukemia). Psychooncology Epub 2014 Oct 28.
   Web of Science ®Google Scholar
• Le Meignen M, Auquier P, Barlogis V, Sirvent N, Contet A, Simeoni MC, et al. Bone mineral density in adult survivors of childhood acute leukemia: Impact of hematopoietic stem cell transplantation and other treatment modalities. Blood 2011;118:1481–9.
   PubMed Web of Science ®Google Scholar
• Oudin C, Simeoni MC, Sirvent N, Contet A, Begu-Le CA, Bordigoni P, et al. Prevalence and risk factors of the metabolic syndrome in adult survivors of childhood leukemia. Blood 2011;117:4442–8.
   PubMed Web of Science ®Google Scholar
• Ceschel S, Casotto V, Valsecchi MG, Tamaro P, Jankovic M, Hanau G, et al. Survival after relapse in children with solid tumors: A follow-up study from the Italian off-therapy registry. Pediatr Blood Cancer 2006;47:560–6.
   PubMed Web of Science ®Google Scholar
• Haupt R, Valsecchi MG, Silvestri D, De LP, Napoli S, Masera G, et al. Early and late deaths after elective end of therapies for childhood cancer in Italy. Int J Cancer 2000;86:393–8.
   PubMed Web of Science ®Google Scholar
• Pivetta E, Maule MM, Pisani P, Zugna D, Haupt R, Jankovic M, et al. Marriage and parenthood among childhood cancer survivors: A report from the Italian AIEOP Off-Therapy Registry. Haematologica 2011;96:744–51.
   PubMed Web of Science ®Google Scholar