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Original Article

Life situations and the care burden for stroke patients and their informal caregivers in a prospective cohort study

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Pages 290-298 | Received 15 Dec 2014, Accepted 28 Apr 2015, Published online: 14 Jun 2015

References

  • Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M, et al. Training carers of stroke patients: randomised controlled trial. BMJ. 2004;328:1099–101.
  • Jegermalm M, Jeppsson Grassman E. Patterns of informal help and caregiving in Sweden: A thirteen-year perspective. Social Policy Admin. 2009;43:681–701.
  • The Board of Directors of the National Stroke Register. Stroke och TIA. Rapport från Riks-stroke 2013 [Stroke and TIA. Report of the national stroke register for the year 2013]. Available from http://www.riksstroke.org/wp-content/uploads/2014/07/Strokerapport_AKUTTIA3man_LR.pdf [ Last accessed 2014.
  • Blake H, Lincoln NB, Clarke DD. Caregiver strain in spouses of stroke patients. Clin Rehabil. 2003;17:312–17.
  • Low JT, Payne S, Roderick P. The impact of stroke on informal carers: a literature review. Soc Sci Med. 1999;49:711–25.
  • McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36:2181–6.
  • White CL, Mayo N, Hanley JA, Wood-Dauphinee S. Evolution of the caregiving experience in the initial 2 years following stroke. Res Nurs Health. 2003;26:177–89.
  • Carlsson GE, Forsberg-Warleby G, Moller A, Blomstrand C. Comparison of life satisfaction within couples one year after a partner’s stroke. J Rehabil Med. 2007;39:219–24.
  • Simon C, Kumar S, Kendrick T. Formal support of stroke survivors and their informal carers in the community: a cohort study. Health Soc Care Community. 2008;16:582–92.
  • Anderson CS, Linto J, Stewart-Wynne EG. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke. 1995;26:843–9.
  • Elmstahl S, Malmberg B, Annerstedt L. Caregiver’s burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch Phys Med Rehabil. 1996;77:177–82.
  • Tooth L, McKenna K, Barnett A, Prescott C, Murphy S. Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Inj. 2005;19:963–74.
  • Vincent C, Desrosiers J, Landreville P, Demers L. Burden of caregivers of people with stroke: evolution and predictors. Cerebrovasc Dis. 2009;27:456–64.
  • Lyons KS, Zarit SH, Sayer AG, Whitlatch CJ. Caregiving as a dyadic process: perspectives from caregiver and receiver. J Gerontol B Psychol Sci Soc Sci. 2002;57:195–204.
  • Rigby H, Gubitz G, Phillips S. A systematic review of caregiver burden following stroke. Int J Stroke. 2009;4:285–92.
  • Olai L, Omne-Ponten M, Borgquist L, Svardsudd K. Prognosis assessment in stroke patients at discharge from hospital. Age Ageing. 2007;36:184–9.
  • Olai L, Omne-Ponten M, Borgquist L, Svardsudd K. Survival, hazard function for a new event, and healthcare utilization among stroke patients >or=65 years. Stroke. 2009;40:3585–90.
  • Olai L, Borgquist L, Svardsudd K. Health problems in elderly patients during the first post-stroke year. Ups J Med Sci. 2012;117:318–27.
  • Asplund K, Bonita R, Kuulasmaa K, Rajakangas AM, Schaedlich H, Suzuki K, et al. Multinational comparisons of stroke epidemiology. Evaluation of case ascertainment in the WHO MONICA Stroke Study. World health organization monitoring trends and determinants in cardiovascular disease. Stroke. 1995;26:355–60.
  • World Health Organization. International Classification of Diseases (ICD). Tenth Revision ICD10. WHO, Geneva, 1992.
  • Katz S, Ford AB, Moskowitz RW, Jackson BA, Jaffe MW. Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. JAMA. 1963;185:914–19.
  • Folstein MF, Folstein SE, McHugh PR. ‘Mini-mental state’. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12:189–98.
  • Hunt SM, McEwen J, McKenna SP. Measuring health status: a new tool for clinicians and epidemiologists. J R Coll Gen Pract. 1985;35:185–8.
  • Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361–70.
  • Tibblin G, Tibblin B, Peciva S, Kullman S, Svärdsudd K. ‘The Göteborg quality of life instrument’--an assessment of well-being and symptoms among men born 1913 and 1923. Methods and validity. Scand J Prim Health Care Suppl. 1990;1:33–8.
  • Statistical Analysis System: SAS Institute Inc. SAS Campus Drive, Cary, NC 1995 [database on the internet]. Available from http://www.sas.com/technologies/analytics/statistics/stat/factsheet.pdf [ Last accessed 29 March 2015.
  • Wade DT, Legh-Smith J, Hewer RL. Effects of living with and looking after survivors of a stroke. Br Med J. 1986;293:418–20.
  • Dennis M, O’Rourke S, Lewis S, Sharpe M, Warlow C. A quantitative study of the emotional outcome of people caring for stroke survivors. Stroke. 1998;29:1867–72.
  • Carnwath TC, Johnson DA. Psychiatric morbidity among spouses of patients with stroke. Br Med J. 1987;294:409–11.
  • Kotila M, Numminen H, Waltimo O, Kaste M. Depression after stroke: results of the FINNSTROKE Study. Stroke. 1998;29:368–72.
  • Jönsson AC, Lindgren I, Hallström B, Norrving B, Lindgren A. Determinants of quality of life in stroke survivors and their informal caregivers. Stroke. 2005;36:803–8.
  • Gosman-Hedström G, Claesson L, Blomstrand C. Consequences of severity at stroke onset for health-related quality of life (HRQL) and informal care: a 1-year follow-up in elderly stroke survivors. Arch Gerontol Geriatr. 2008;47:79–91.
  • Forsberg-Wärleby G, Moller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil. 2004;18:430–7.
  • van Heugten C, Visser-Meily A, Post M, Lindeman E. Care for carers of stroke patients: evidence-based clinical practice guidelines. J Rehabil Med. 2006;38:153–8.
  • Bergstrom AL, Eriksson G, von Koch L, Tham K. Combined life satisfaction of persons with stroke and their caregivers: associations with caregiver burden and the impact of stroke. Health Qual Life Outcomes. 2011;9:1.