The relevance of using the Childhood Health Assessment Questionnaire (CHAQ) in revised versions for the assessment of juvenile idiopathic arthritis

References

• Ruperto N, Ravelli A, Pistotio A, Malattia C, Cavuto S, Gado-West L, . Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries: review of the general methodology. Clin Exp Rheumatol 2001;19:1–9.
   Web of Science ®Google Scholar
• Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum 1994;39:1761–9.
   Google Scholar
• Brunner HI, Giannini EH. Health-related quality of life in children with rheumatic diseases. Curr Opin Rheumatol 2003;15:602–12.
   PubMed Web of Science ®Google Scholar
• Nielsen S, Ruperto N, Herlin T, Pedersen FK; Paediatric Rheumatology International Trials Organisation. The Danish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001;19:50–4.
   Web of Science ®Google Scholar
• Flatø B, Aasland A, Vandvik IH, Førre O. Outcome and predictive factors in children with chronic idiopathic musculoskeletal pain. Clin Exp Rheumatol 1997;15:569–77.
   PubMed Web of Science ®Google Scholar
• Huber AM, Bhandari M, Hicks JE, Lachenbruch PA, Perez MD, Zemel LS, . Validation of the Childhood Health Assessment Questionnaire in the juvenile idiopathic myopathies. Juvenile Dermatomyositis Disease Activity Collaborative Study Group. J Rheumatol 2001;28:1106–11.
   PubMed Web of Science ®Google Scholar
• Hyrich KL, Lal SD, Foster HE, Thornton J, Adib N, Baildam E, . Disease activity and disability in children with juvenile idiopathic arthritis one year following presentation to paediatric rheumatology. Results from the Childhood Arthritis Prospective Study. Rheumatology (Oxford) 2010;49: 116–22.
   Google Scholar
• Shenoi S, Wallace CA. Remission in juvenile idiopathic arthritis: current facts. Curr Rheumatol Rep 2010;12:80–6.
   PubMedGoogle Scholar
• Papsdorf V, Horneff G. Complete control of disease activity and remission induced by treatment with etanercept in juvenile idiopathic arthritis. Rheumatology 2011;50:214–21.
   PubMed Web of Science ®Google Scholar
• Brunner HI, Klein-Gitelman MS, Miller MJ, Barron A, Baldwin N, Trombley M, . Minimal clinically important differences of the Childhood Health Assessment Questionnaire. J Rheumatol 2005;32:150–61.
   PubMed Web of Science ®Google Scholar
• Lam C, Young N, Marwaha J, McLimont M, Feldman BM. Revised versions of the Childhood Health Assessment Questionnaire (CHAQ) are more sensitive and suffer less from a ceiling effect. Arthritis Rheum 2004;51:881–9.
   PubMed Web of Science ®Google Scholar
• Takken T, van den Eijkhof F, Hoijtink H, Helders PJM, van der Net JJ. Examining the psychometric characteristics of the Dutch Childhood Health Assessment Questionnaire: room for improvement? Rheumatol Int 2006;26:979–83.
   Google Scholar
• Saad-Magalhaes C, Pistorio A, Ravelli A, Filocamo G, Viola S, Brik R, . Does removal of aids/devices and help make a difference in the Childhood Health Assessment Questionnaire disability index? Ann Rheum Dis 2010;69:82–7.
   Google Scholar
• World Health Organization (WHO). [ICF: International Classification of Functioning, Disability, and Health]. Geneva: WHO, 2001], in Danish. Copenhagen: Munksgaard Danmark, 2003, 1st edn.
   Google Scholar
• Ouwerkerk JW, van Pelt PA, Takken T, Helders PJM, van der Net JJ. Evaluating score distributions in the revised Dutch version of the Childhood Health Assessment Questionnaire. Pediatr Rheumatol Online J 2008;6:14.
   PubMedGoogle Scholar
• Van Dijk M, Groen W, Moors S, Bekkering P, Hegeman A, Janssen A, . The Dutch translation of the revised Childhood Health Assessment Questionnaire: a preliminary study of score distribution. Clin Exp Rheumatol 2010;28:275–80.
   Google Scholar
• Groen WG, Unal E, Nørgaard M, Maillard S, Scott J, Berggren K, . Comparing different revisions of the Childhood Health Assessment Questionnaire to reduce the ceiling effect and improve score distribution: data from a multi-center European cohort study of children with JIA. Pediatr Rheumatol Online J 2010;8:16.
   PubMedGoogle Scholar
• Petty RE, Southwood TR, Manners P, Baum J, Glass DN, Goldenberg J, . International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton 2001. J Rheumatol 2004;31:390–2.
   PubMed Web of Science ®Google Scholar
• Consolaro A, Ruperto N, Bazso A, Postorio A, Magni-Manzoni S, Filocamo G, ; Paediatric Rheumatology International Trials Organisation. Development and validation of a composite activity score for juvenile idiopathic arthritis. Arthritis Rheum 2009;61:658–66.
   PubMed Web of Science ®Google Scholar
• Wallace CA, Ruperto N, Giannini EH; Childhood Arthritis and Rheumatology Research Alliance; Pediatric Rheumatology International Trials Organization; Pediatric Rheumatology Collaborative Study Group. Preliminary criteria for clinical remission for select categories of juvenile idiopathic arthritis. J Rheumatol 2004;31:2290–4.
   PubMed Web of Science ®Google Scholar
• Wallace CA, Giannini EH, Huang B, Itert L, Ruperto N. American College of Rheumatology provisional criteria for defining clinical inactive disease in select categories of juvenile idiopathic arthritis. Arthritis Care Res 2011;63:929–36.
   PubMed Web of Science ®Google Scholar
• Hicks CL, von Baever CL, Spafford PA, van Korlaar I, Goodenough B. The Faces Pain Scale – Revised: toward a common metric in pediatric pain measurement. Pain 2001;93:173–83.
   PubMed Web of Science ®Google Scholar
• Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, . Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 2007;60:34–42.
   PubMed Web of Science ®Google Scholar
• Rosenthal R, Rubin DB. r equivalent: a simple effect size indicator. Psychol Methods 2003;8:492–6.
   PubMed Web of Science ®Google Scholar
• Nordal EB, Zak M, Altto K, Berntson L, Fasth A, Herlin T, . Ongoing disease activity and changing categories in a long-term study of juvenile idiopathic arthritis. Arthritis Rheum 2011;63:2809–18.
   PubMed Web of Science ®Google Scholar
• Verrips GHW, Stuifbergen MC, den Ouden AL, Bonsel GJ, Gemke RJBJ, Paneth N, . Measuring health status using the Health Utilities Index: agreement between raters and between modalities of administration. J Clin Epidemiol 2001;54:475–81.
   PubMed Web of Science ®Google Scholar