References
- Birgens H, Ljung R. The thalassaemia syndromes. Scand J Clin Lab Invest. 2007;67(1):11–25
- Clarke SA, Skinner R, Guest J, et al. Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK. Child Care Health Dev. 2009;36(1):118–122
- Alswaidi FM, O’Brien SJ. Premarital screening programmes for haemoglobinopathies, HIV and hepatitis viruses: Review and factors affecting their success. J Med Screen. 2009;16(1):22–28
- Theodoridou S, Alemayehou M, Prappas N, et al. Carrier screening and prenatal diagnosis of hemoglobinopathies. A study of indigenous and immigrant couples in northern Greece, over the last 5 years. Hemoglobin. 2008;32(5):434–439
- Samavat A, Modell B. Iranian national thalassaemia screening programme. Br Med J. 2004;329(7475):1134–1137
- Karimi M, Jamalian N, Yarmohammadi H, et al. Premarital screening for β-thalassaemia in Southern Iran: Options for improving the programme. J Med Screen. 2007;14(2):62–66
- Tamhankar PM, Agarwal S, Arya V, et al. Prevention of homozygous β thalassemia by premarital screening and prenatal diagnosis in India. Prenat Diagn. 2009;29(1):83–88
- Tarazi I, Al Najjar E, Lulu N, Sirdah M. Obligatory premarital tests for β-thalassaemia in the Gaza Strip: Evaluation and recommendations. Int J Lab Hematol. 2007;29(2):111–118
- Indaratna K. Screening for thalassemia: An economics viewpoint. Southeast Asian J Trop Med Public Health. 1997;28(Suppl 3):75–81
- Tadmouri GO, Nair P, Obeid T, et al. Consanguinity and reproductive health among Arabs. Reprod Health. 2009;6:17. doi: 10.1186/1742-4755-6-17
- Hamamy HA, Al-Allawi NA. Epidemiological profile of common haemoglobinopathies in Arab countries. J Community Genet. 2013;4(2):147–167
- Kiswani B. Non-communicable Diseases Directorate, Ministry of Health, Jordan. Interviewed on February, 16, 2015 (available at http://www.dcd.gov.jo/EIndex.asp?id=900)
- Etchegary H, Green J, Dicks E, et al. Consulting the community: Public expectations and attitudes about genetics research. Eur J Hum Genet. 2013;21(12):1338–1343
- Schermerhorn JR, Hunt JG, Osborn RN. Managing Organizational Behavior, 5th ed. Chichester, West Sussex, UK: John Wiley & Sons, 1994
- Al-Aama JY. Attitudes towards mandatory national premarital screening for hereditary hemolytic disorders. Health Policy. 2010;97(1):32–37
- Al Sulaiman A, Suliman A, Al Mishari M, et al. Knowledge and attitude toward the hemoglobinopathies premarital screening program in Saudi Arabia: Population-based survey. Hemoglobin. 2008;32(6):531–538
- Al-Aama JY, Al-Nabulsi BK, Alyousef MA, et al. Knowledge regarding the national premarital screening program among university students in western Saudi Arabia. Saudi Med J. 2008;29(11):1649–1653
- Gharaibeh H, Mater FK. Young Syrian adults’ knowledge, perceptions and attitudes to premarital testing. Int Nurs Rev. 2009;56(4):450–455
- Jallinoja P, Aro AR. Does knowledge make a difference? The association between knowledge about genes and attitudes toward gene tests. J Health Commun. 2000;5(1):29–39
- Metcalfe SA, Aitken M, Gaff CL. The importance of program evaluation: How can it be applied to diverse genetics education settings? J Genet Couns. 2008;17(2):170–179
- Mirza A, Ghani A, Pal A, et al. Thalassemia and premarital screening: Potential for implementation of a screening program among young people in Pakistan. Hemoglobin. 2013;37(2):160–170
- Ganczak M, Barss P, Alfaresi F, et al. Break the silence: HIV/AIDS knowledge, attitudes, and educational needs among Arab university students in United Arab Emirates. J Adolesc Health. 2007;40(6):572.e1–8. Epub 2007 Mar 26
- Al-Farsi OA, Al-Farsi YM, Gupta I, et al. A study on knowledge, attitude, and practice towards premarital carrier screening among adults attending primary healthcare centers in a region in Oman. BMC Public Health. 2014;14:380
- Cousens NE, Gaff CL, Metcalfe SA, Delatycki MB. Carrier screening for β-thalassaemia: A review of international practice. Eur J Hum Genet. 2010;18(10):1077–1083
- Armeli C, Robbins SJ, Eunpu D. Comparing knowledge of β-thalassemia in samples of Italians, Italian-Americans, and non-Italian-Americans. J Genet Couns. 2005;14(5):365–376