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Original

Quality of life and psychosocial adjustment to burn injury: Social functioning, body image, and health policy perspectives

, PhD, &
Pages 539-548 | Published online: 17 Nov 2009

References

  • Abdullah A, Blakeney P, Hunt R, Broemeling L, Phillips L, Herndon DN, et al. Visible scars and self-esteem in pediatric patients with burns. Journal of Burn Care & Rehabilitation 1994; 15(2)164–168
  • Acton A, Badger K, Fauerbach JA, Greenhalgh D, Kammerer-Quayle B, Pruzinsky T. A survivor-focused consensus conference: Establishing a psychosocial rehabilitation research agenda. Poster presentation to the American Burn Association Annual Meeting 2009, Galveston, TX, March 24–27, 2009
  • Acton A, Quayle BK, Fauerbach JA, Pruzinsky T (March, 2007) Building collaborative relationships among burn survivors and burn care teams. Presentation to the American Burn Association Annual Meeting, Chicago, IL, March 20–23, 2007
  • Anzarut A, Chen M, Shankowsky H, Tredget E. Quality-of-life and outcome predictors following massive burn injury. Plastic and Reconstructive Surgery 2004; 116(3)791–797
  • Balakrishnan C, Hashim M, Gao D. The effect of partial-thickness facial burns on social functioning. Journal of Burn Care & Rehabilitation 1999; 20(3)224–225
  • Bennett BK. Peer support in the burn center. Journal of Burn Care & Research 2007; 28(2)364
  • Bernstein NR. Objective bodily damage: Disfigurement and dignity. Body images; Development, deviance, and change, TF Cash, T Pruzinsky. Guilford, New York 1990
  • Bessell A, Moss TP. Evaluating the effectiveness of psychosocial interventions for individuals with visible differences: A systematic review of the empirical literature. Body Image 2007; 4(3)227–238
  • Blakeney P, Thomas C, Holzer C, Rose M, Berniger F, Meyer WJ. Preliminary results of a social skills training program for burned adolescents. Proceedings of the ABA 33rd Annual Meeting. Journal of Burn care & Research, Boston 2001; 22
  • Blakeney P, Thomas C, Holzer C, Rose M, Berniger F, Meyer WJ. Efficacy of a short-term, intensive social skills training program for burned adolescents. Journal of Burn Care & Rehabilitation 2005; 26(6)546–555
  • Blakeney P, Meyer W, Moore P, Broemeling L, Hunt R, Robson M, Herndon D. Social competence and behavioral problems of pediatric survivors of burns. Journal of Burn Care & Rehabilitation 1993; 14(1)65–72
  • Blakeney P, Meyer W, Robert R, Desai M, Wolf S, Herndon D. Long-term psychosocial adaptation of children who survive burns involving 80% or greater total body surface area. Journal of Trauma – Injury Infection & Critical Care 1998; 44(4)625–634
  • Blakeney PE, Rosenberg L, Rosenberg M, Faber AW. Psychosocial care of persons with severe burns. Burns 2008; 34: 433–330
  • Blakeney P, Moore P, Meyer W, Bishop B, Murphy L, Robson M, Herndon D, Doctor ME. Efficacy of school reentry programs. Journal of Burn Care & Rehabilitation 1995; 16(4)469–472
  • Blakeney P, Partridge J, Rumsey N. Community integration. Journal of Burn Care & Research 2007; 28(4)598–601
  • Browne G, Byrne C, Brown B, Pennock M, Streiner D, Roberts, et al. Psychosocial adjustment of burn survivors. Burns 1985; 12: 28–35
  • Cash TF. The Situational Inventory of Body-Image Dysphoria: Psychometric evidence and development of a short form. International Journal of Eating Disorders 2002; 32: 362–366
  • Cash TF. Body image and plastic surgery. Psychological aspects of reconstructive and cosmetic plastic surgery: Clinical, empirical and ethical perspectives, D Sarwer, T Pruzinsky, T Cash, RM Goldwyn, JA Persing, LA Whitaker. Lippincott, Williams and Wilkins, Philadelphia 2005
  • Cash TF. The Body Image Workbook: An 8-Step Program for Learning to Like Your Looks, 2nd edn. New Harbinger Publications, Oakland, CA 2008
  • Cash TF, Fleming EC. The impact of body-image experiences: Development of the Body Image Quality of Life Inventory. International Journal of Eating Disorders 2002; 31(4)455–460
  • Cash TF, Jakatdar TA, Williams EF. The Body Image Quality of Life Inventory: Further validation with college men and women. Body Image 2004a; 1(3)279–287
  • Cash, T. F., Maikkula, C.L., & Yamamiya, Y. (2004b). ‘Baring the body in the bedroom’: Body image, sexual self-schemas, and sexual functioning among college women and men. Electronic Journal of Human Sexuality, June 29. Available at http://www.ejhs.org/volume7/bodyimage.html (accessed 27 May 2009)
  • Cash TF, Melnyk SE, Hrabosky JI. The assessment of body image investment: An extensive revision of the Appearance Schemas Inventory. International Journal of Eating Disorders 2004c; 35(3)305–316
  • Cash TF, Strachan MD. Cognitive-behavioral approaches to changing body image. Body image: A handbook of theory, research and clinical practice, TF Cash, T Pruzinsky. Guilford, New York 2002
  • Centre for Appearance Research. Available at http://hls.uwe.ac.uk/research/car.aspx. (accessed 1 June 2009)
  • Changing Faces programme. Available at: http://www.changingfaces.org.uk/show/feature/Teachers’-publications-and-resources (accessed 27 May 2009)
  • Clarke A. Managing the psychological aspects of altered appearance: The development of an information resource for people with disfiguring conditions. Patient Education & Counseling 2001; 43(3)305–309
  • Clarke A, Cooper C. Psychosocial rehabilitation after disfiguring injury or disease: Investigating the training needs of specialist nurses. Journal of Advanced Nursing 2001; 34(1)18–26
  • Davidson T, Bowden ML, Tholen D, James MH, Feller I. Social support and post-burn adjustment. Archives of Physical Medicine & Rehabilitation 1981; 62: 274–278
  • Esselman PC, Thombs BD, Magyar-Russell G, Fauerbach JA. Burn rehabilitation: State of the science. American Journal of Physical & Medical Rehabilitation 2006; 85(4)383–413
  • Fauerbach JA, Heinberg LJ, Lawrence JW, Bryant AG, Richter L, Spence RJ. Coping with body image changes following a disfiguring burn injury. Health Psychology 2002; 21(2)115–121
  • Fauerbach JA, Heinberg L, Lawrence JW, Munster AM, Palombo DA, Richter D, et al. Effects of early body image dissatisfaction on subsequent psychological and physical adjustment after disfiguring injury. Psychosomatic Medicine 2000; 62: 576–582
  • Fauerbach JA, Pruzinsky T, Saxe GN. Psychological health and function after burn injury: Setting research priorities. Journal of Burn Care & Rehabilitation 2007; 28(4)587–592
  • Holavanahalli RK, Kammerer-Quayle B, Gilyard C, Acton AR, Pruzinsky T. Behavioral and Enhancement Skills Tools (BEST) for burn survivors: Needs assessment and program evaluation, In preparation
  • Jenkinson, Moss, T.P., Byron-Daniel, J., Naqvi, H. (in preparation). The efficacy of psychosocial interventions for children and adolescents who are visibly different: A systematic review of the literature
  • Jesse PO, Strickland MP, Leeper JD, Wales P. Perception of body image in children with burns, five years after burn injury. Journal of Burn Care and Rehabilitation 1992; 13(1)33–38
  • Kapp-Simon K, McGuire D. Observed social interaction patterns in adolescents with and without craniofacial conditions. Cleft Palate-Craniofacial Journal 1997; 34: 380–384
  • Kammerer-Quayle B. Behavioral skills and image enhancement training for burn survivors: Essential interventions for improving quality of life and community integration. Aucher & Sood's burn surgery, reconstruction and rehabilitation, R Sood. Saunders, Philadelphia 2006
  • Kapp-Simon KA, Simon DJ, Kristovich S. Self-perception, social skills, adjustment and inhibition in young adolescents with craniofacial anomalies. Cleft Palate – Craniofacial Journal 1992; 29(4)352–356
  • Kent G. Understanding experiences of people with disfigurements: An integration of four models of social and psychological functioning. Psychology, Health, & Medicine 2000; 5(2)117–129
  • Landolt MA, Grubenmann S, Meuli M. Family impact greatest: Predictors of quality of life and psychological adjustment in pediatric burn survivors. Journal of Trauma – Injury, Infection, & Critical Care 2002; 53(6)1146–1151
  • Lawrence JW, Fauerbach JA, Thombs BD. A test of the moderating role of importance of appearance in the relationship between perceived scar severity and body-esteem among adult burn survivors. Body Image 2006a; 3(2)101–111
  • Lawrence JW, Fauerbach JA, Heinberg LJ, Doctor M. The reliability and validity of the Perceived Stigmatization Questionnaire (PSQ) and the Social Comfort Questionnaire (SCQ) in an adult burn survivor sample. Psychological Assessment 2006b; 18(1)106–111
  • Lawrence JW, Heinberg LJ, Roca R, Munster A, Spence R, Fauerbach JA. Development and validation of the Satisfaction with Appearance Scale for burn patients. Psychological Assessment 1998; 10(1)64–70
  • Lawrence JW, Fauerbach JA, Heinberg L, Doctor M. Visible verses hidden scars and their relations to body-esteem. Journal of Burn Care & Rehabilitation 2004; 25(1)25–32
  • Lawrence JW, Rosenberg LE, Fauerbach JA. Comparing the body esteem of pediatric survivors of burn injury with the body esteem of an age-matched comparison group without burns. Rehabilitation Psychology 2007; 52(4)370–379
  • McArthur L. Physical distinctiveness and self-attribution. Personality & Social Psychology Bulletin 1982; 8: 460–467
  • Meyer W, Blakeney P, LeDoux J, Herndon D. Diminished adaptive behaviors among pediatric survivors of burns. Journal of Burn Care Rehabilitation 1995; 16: 511–518
  • National Burn Care Group. Available at http://www.nbcg.nhs.uk (Accessed 5 May 2009)
  • NIDRR (no date) Brochure. National Institute for Disability Rehabilitation Research. Available at www.ed.gov/rschstat/research/pubs/index.html#nidrr_brochure (Accessed June 4, 2009)
  • Newell R, Marks I. Phobic nature of social difficulty in facially disfigured people. British Journal of Psychiatry 2000; 176: 177–181
  • Orr DA, Reznekoff M, Smith GM. Body image, self-esteem, and depression in burn-injured adolescents and young adults. Journal of Burn care and Rehabilitation 1989; 10(5)454–461
  • Partridge J. Changing faces: The challenge of facial disfigurement. Penguin, London 1990
  • Partridge J. Changing faces. The challenge of facial disfigurement. Changing Faces, London 1994
  • Phoenix Society for Burn Survivors. Be Your Best. Available at http://www.phoenix-society.org/programs/bestimageenchancement/. (Accessed 5 May 2009)
  • Phoenix Society for Burn Survivors. Available at http://www.phoenix-society.org/programs/schoolreentry/ (accessed 5 June 2009)
  • Pruzinsky T. Body image change and reconstructive surgery for acquired disfigurement. Body image: Handbook of theory, research and practice, TF Cash, T Pruzinsky. Guilford Publications, New York 2002
  • Pruzinsky T. Enhancing quality of life in medical populations: A vision for body image assessment and rehabilitation as standards of care. Body Image 2004; 1(1)71–81
  • Pruzinsky T, Gilyard C, Fauerbach JA (March, 2008) Continuum of psychosocial care for burn survivors with body image/appearance-related concerns. Presentation at the Fetzer Institute, Kalamazoo, MI. Establishing Psychosocial Rehabilitation as a Standard of Care: The Phoenix Society-Fetzer Institute Conference on Disseminating and Evaluating Programs to Promote the Highest Levels of Psychosocial Growth for Burn Survivors. 2008
  • Pruzinsky, T. & Cash, T.F. (2002). Understanding body images: Historical and contemporary perspectives. In: T.F. Cash and T. Pruzinsky, Editors, Body image: A handbook of theory, research, and clinical practice, Guilford Press, New York (2002), pp. 3–12.
  • Robert R, Meyer W, Bishop S, Rosenberg L, Murphy L, Blakeney P. Disfiguring burn scars and adolescent self-esteem. Burns 1999; 25(7)581–585
  • Robinson E, Rumsey N, Partridge J. An evaluation of the impact of social skills training for facially disfigured people. British Journal of Plastic Surgery 1996; 49(5)281–289
  • Robinson E. Psychological research on visible differences in adults. Visibly different: Coping with disfigurement, R Lansdown, N Rumsey, E Bradbury, T Carr, J Partridge. Butterworth Heinemann, Oxford 1997
  • Root S, Kent G, Al-Abadie MSK. The relationship between disease severity, disability and psychological distress in patients undergoing PUVA treatment for psoriasis. Dermatology 1994; 189(3)234–237
  • Rose M, Blakeney P. Pediatric burn injury. Psychological aspects of reconstructive and cosmetic plastic surgery: Clinical, empirical and ethical perspectives, D Sarwer, T Pruzinsky, T Cash, RM Goldwyn, JA Persing, LA Whitaker. Lippincott, Williams and Wilkins, Philadelphia 2005
  • Rosenberg M, Blakeney P, Robert R, Thomas C, Holzer C, III, Meyer W, III. Quality of life of young adults who survived pediatric burns. Journal of Burn Care Research 2006; 27(6)773–778
  • Rumsey N, Bull R, Gallahan D. A preliminary study of the potential of social skills for improving the quality of social interaction for the facially disfigured. Social Behaviour 1986; 1: 143–145
  • Rumsey N, Harcourt D. The psychology of appearance. Open University Press, Milton Keynes 2005
  • Taal L, Faber AW. Traumatic stress and maladjustment among adult burn survivors 1 to 2 years post burn: Part I: The interview data. Burns 1998; 24: 399–405
  • Thombs BD, Haines JM, Bresnick MG, Magyar-Russell G, Fauerbach JA, Spence RJ. Depression in burn reconstruction patients: Symptom prevalence and association with body image dissatisfaction and physical function. General Hospital Psychiatry 2007; 29(1)14–20
  • Thombs BD, Notes LD, Lawrence JW, Magyar-Russell G, Bresnick MG, Fauerbach JA. From survival to socialization: A longitudinal study of body image in survivors of severe burn injury. Journal of Psychosomatic Research 2008; 64: 205–212
  • Thompson A, Kent G. Adjusting to disfigurement: Processes involved in dealing with being visibly different. Clinical Psychology Review 2001; 21(5)663–682
  • Tudahl LA, Blades BC, Munster AM. Sexual satisfaction in burn patients. Journal of Burn Care & Rehabilitation 1987; 8(4)292–293
  • Winzelberg AJ, Abascal L, Taylor CB. Psychoeducational approaches to the prevention and change of negative body image. Body image: A handbook of theory, research and clinical practice, TF Cash, T Pruzinsky. Guilford, New York 2002

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