Exercise maintenance: COPD patients' perception and perspectives on elements of success in sustaining long-term exercise

REFERENCES

• Antonovsky A 1979 Health, Stress and Coping. San Francisco, Jossey-Bass
   Google Scholar
• Antonovsky A 1987 Unraveling the mystery of health: How people manage stress and stay well. San Francisco, Jossey-Bass
   Google Scholar
• Arnold E, Bruton A, Ellis-Hill C 2006 Adherence to pulmonary rehabilitation: A qualitative study. Respiratory Medicine 100: 1716–1723
   PubMed Web of Science ®Google Scholar
• Bandura A 1977 Self-Efficacy: Toward a unifying theory of behavioral change. Psychological Review 84: 191–215
   PubMed Web of Science ®Google Scholar
• Bandura A 1997 The anatomy of stages of change. American Journal of Health Promotion 12: 8–10
   PubMed Web of Science ®Google Scholar
• Bastiaenen CHG, de Bie RA, Wolters PMJC, Vlaeyen JWS, Leffers P, Stelma F, Bastiaanssen JM, Essed GGM, van den Brandt PA 2006 Effectiveness of a tailor-made intervention for pregnancy-related pelvic girdle and/or low back pain after delivery: Short-term results of a randomized clinical trial BMC Musculoskeletal Disorders 7: 19
   Google Scholar
• Bickford LS, Hodgkin JE, McInturff SL 1995 National pulmonary rehabilitation survey. Update. Journal of Cardiopulmonary Rehabilitation 15: 406–411
   PubMedGoogle Scholar
• Bourbeau J 2008 Patient adherence in COPD. Thorax 63: 831–838
   PubMed Web of Science ®Google Scholar
• Bourbeau J 2010 Making pulmonary rehabilitation a success in COPD. Swiss Medical Weekly 140: 13067
   PubMed Web of Science ®Google Scholar
• Brooks D, Krip B, Mangovsky-Alzamora S, Goldstein RS 2002 The effect of postrehabilitation programmes among individuals with chronic obstructive pulmonary disease. European Respiratory Journal 20: 20–29
   PubMed Web of Science ®Google Scholar
• Brooks D, Sottana R, Bell B, Hanna M, Laframboise L, Selvanayagarajah S, Goldstein R 2007 Characterization of pulmonary rehabilitation programs in Canada in 2005. Canadian Respiratory Journal 14: 87–92
   PubMed Web of Science ®Google Scholar
• Bulley C, Donaghy M, Howden S, Salisbury L, Whiteford S, Mackay E 2009 A prospective qualitative exploration of views about attending pulmonary rehabilitation. Physiotherapy Research International 14: 181–192
   PubMedGoogle Scholar
• Cockram J, Cecins N, Jenkins S 2006 Maintaining exercise capacity and quality of life following pulmonary rehabilitation. Respirology 11: 98–104
   PubMed Web of Science ®Google Scholar
• Cooper AF, Jackson G, Weinman J, Horne R 2005 A qualitative study investigating patients' beliefs about cardiac rehabilitation. Clinical Rehabilitation 19: 87–96
   PubMed Web of Science ®Google Scholar
• Corbin J, Strauss A 2008 Basics of qualitative research: Techniques and procedures for developing grounded theory. Los Angeles, Sage
   Google Scholar
• Cote CG, Celli BR 2005 Pulmonary rehabilitation and the BODE index in COPD. European Respiratory Journal 26: 630–636
   PubMed Web of Science ®Google Scholar
• Creswell JW 2009 Research design: Qualitative, quantitative, and mixed methods approaches. Los Angeles, Sage
   Google Scholar
• Dahlberg K, Dahlberg H, Nyström M 2008 Reflective lifeworld research. Lund, Studentlitteratur
   Google Scholar
• Davis AH 2007 Exercise adherence in patients with chronic obstructive pulmonary disease: An exploration of motivation and goals. Rehabilitation Nursing 32: 104–110
   PubMed Web of Science ®Google Scholar
• Denn D 2008 Patient experiences of pulmonary rehabilitation. Nursing Times 104: 32–33
   Google Scholar
• Fischer MJ, Scharloo M, Abbink JJ, Nies AT, Rudolphus A, Snoei L, Weinman JA, Kaptein AA 2007 Participation and drop-out in pulmonary rehabilitation: A qualitative analysis of the patient's perspective. Clinical Rehabilitation 21: 212–221
   PubMed Web of Science ®Google Scholar
• Gadamer HG 2004 Truth and method, 2nd ed. Weinsheimer. J, Marshall. D. G (trans.). London, New York Continuum
   Google Scholar
• Garrod R, Bestall J 2001 Pulmonary rehabilitation: A physiological and psychological perspective. Critical Reviews in Physical and Rehabilitation Medicine 13: 265–281
   Google Scholar
• Garrod R, Marshall J, Barley E, Jones PW 2006 Predictors of success and failure in pulmonary rehabilitation. European Respiratory Journal 27: 788–794
   PubMed Web of Science ®Google Scholar
• Giæver P 2002 Lungesykdommer. Oslo, Universitetsforlaget
   Google Scholar
• Giorgi A 1985 Sketch of phenomenological method. In: Giorgi. A (ed) Phenomenology and psychological research, p 8–22. Pittsburgh, Duquesne University Press
   Google Scholar
• Global Initiative for Chronic Obstructive Lung Disease 2009 GOLD Report, Global strategy for the diagnosis, management and prevention of COPD, http://www.goldcopd.org/
   Google Scholar
• Güell MR, de Lucas P, Gáldiz JB, Montemayor T, Rodríguez González-Moro JM, Gorostiza A, Ortega F, Bellón JM, Guyatt G 2008 Home vs hospital-based pulmonary rehabilitation for patients with chronic obstructive pulmonary disease: A Spanish multicenter trial. Archivos De Bronconeumología 44: 512–518
   PubMed Web of Science ®Google Scholar
• Haas F, Salazar-Schicchi J, Axen R 1993 Desensitization to dyspnea in chronic obstructive pulmonary disease. In: Casaburi. R, Petty. T. L (eds) Principles and practice of pulmonary rehabilitation, p 241–251. Philadelphia, W.B. Saunders
   Google Scholar
• Heisler M 2006. Building peer support programs to manage chronic disease: Seven models for success. Oakland, CA, California, Health Care Foundation
   Google Scholar
• Horne R 2003 Treatment perceptions and selfregulation. In Cameron. L. D, Leventhal. H (eds) The self regulation of health and illness behaviour, p 138–153. London, Routledge
   Google Scholar
• Jones RCM, Hyland ME, Hanney K, Erwin J 2004 A qualitative study of compliance with medication and lifestyle modification in chronic obstructive pulmonary disease (COPD). Primary Care Respiratory Journal 13: 149–154
   PubMedGoogle Scholar
• Kaptein AA, Scharloo M, Fischer MJ, Snoei L, Cameron LD, Sont JK, Rabe KF, Weinman J 2008 Illness perceptions and COPD: An emerging field for COPD patient management. Journal of Asthma 45: 625–629
   PubMed Web of Science ®Google Scholar
• Kaptein AA, Scharloo M, Fischer MJ, Snoei L, Hughes BM, Weinman J, Kaplan RM, Rabe KF 2009 50 Years of psychological research on patients with COPD—Road to ruin or highway to heaven? Respiratory Medicine 103: 3–11
   PubMed Web of Science ®Google Scholar
• Kvale S 1996 Interviews. An introduction to qualitative reasearch interviewing. Thousand Oaks, CA, Sage
   Google Scholar
• Lacasse Y, Goldstein R, Lasserson TJ, Martin S 2006. Pulmonary rehabilitation for chronic obstructive pulmonary disease, Cochrane Database of Systematic Reviews 4: pCD003793
   Google Scholar
• Lacasse Y, Maltais F, Goldstein RS 2004 Pulmonary rehabilitation: An integral part of the long-term management of COPD. Swiss Medical Weekly 134: 601–605
   PubMed Web of Science ®Google Scholar
• Lewis R, Cramp F 2010 Facilitators and barriers to exercise maintenance in chronic obstructive pulmonary disease: Patient views. Physiotherapy Ireland 31: 19–24
   Google Scholar
• Lincoln YS, Guba EG 1985 Naturalistic Inquiry. Beverly Hills, CA, Sage
   Google Scholar
• Malterud K 2003 Kvalitative metoder i medisinsk forskning. En innføring. (2.utg). Oslo, Universitetsforlaget
   Google Scholar
• Marshall SJ, Biddle SJ 2001 The transtheoretical model of behavior change: A meta-analysis of applications to physical activity and exercise. Annals of Behavioral Medicine 23: 229–246
   PubMed Web of Science ®Google Scholar
• Monninkhof E, van der Aa M, van der Valk P, van der Palen J, Zielhuis G, Koning K, Pieterse M 2004 A qualitative evaluation of a comprehensive self-management programme for COPD patients: Effectiveness from the patients' perspective. Patient Education and Counseling 55: 177–184
   PubMed Web of Science ®Google Scholar
• Morgan D 1997 Focus groups as qualitative research, 2nd ed. Thousand Oaks, CA, Sage Publications
   Google Scholar
• Nici L, Donner C, Wouters E, Zuwallack R, Ambrosino N, Bourbeau J, Carone M, Celli B, Engelen M, Fahy B, Garvey C, Goldstein R, Gosselink R, Lareau S, MacIntyre N, Maltais F, Morgan M, O'Donnell D, Prefault C, Reardon J, Rochester C, Schols A, Singh S, Troosters T 2006 American Thoracic Society/European Respiratory Society statement on pulmonary rehabilitation. American Journal of Respiratory and Critical Care Medicine 173: 1390–1413
   PubMed Web of Science ®Google Scholar
• Nici L, Raskin J, Rochester CL, Bourbeau JC, Carlin BW, Casaburi R, Celli BR, Cote C, Crouch RH, Diez-Morales LF, Donner CF, Fahy BF, Garvey C, Goldstein R, Lane-Reticker A, Lareau SC, Make B, Maltais F, McCormick J, Morgan MDL, Ries A, Troosters T, ZuWallack R 2009 Pulmonary rehabilitation: What we know and what we need to know. Journal of Cardiopulmonary Rehabilitation and Prevention 29: 141–151
   PubMed Web of Science ®Google Scholar
• Norwegian Ministry of Health and Care Services 2006 National strategy for COPD/Nasjonal strategi for KOLS-området 2006–2011, http://www.regjeringen.no/Upload/kilde/hod/rap/2006/0041/ddd/pdfv/299286-nasjonal_strategi_for_kols_24-11-06_forord.pdf
   Google Scholar
• O'Neill B, McKevitt A, Rafferty S, Bradley JM, Johnston D, Bradbury I, McMahon J 2007 A comparison of twice-versus once-weekly supervision during pulmonary rehabilitation in chronic obstructive pulmonary disease. Archives of Physical Medicine and Rehabilitation 88: 167–172
   PubMed Web of Science ®Google Scholar
• Prescott P, Børtveit T 2004 Helse og adferdsendring. Oslo, Gyldendal Norsk Forlag A/S
   Google Scholar
• Prochaska JO, DiClemente CC 1982 Transtheoretical therapy: Toward a more integrative model of change. Psychotherapy: Theory, Research and Practice 19: 276–287
   Web of Science ®Google Scholar
• Prochaska JO, DiClemente CC, Norcross JC 1992 In search of how people change: Applications to addictive behaviors. American Psychologist 47: 1102–1114
   PubMed Web of Science ®Google Scholar
• Puente-Maestu L, Sánz ML, Sánz P, Cubillo JM, Mayol J, Casaburi R 2000 Comparison of effects of supervised versus self-monitored training programmes in patients with chronic obstructive pulmonary disease. European Respiratory Journal 15: 517–525
   PubMed Web of Science ®Google Scholar
• Puhan MA, Schünemann HJ, Buesching G, vanOort E, Spaar A, Frey M 2008 COPD patients' ability to follow exercise influences short-term outcomes of rehabilitation. European Respiratory Journal 31: 304–310
   PubMed Web of Science ®Google Scholar
• Ries AL, Kaplan RM, Myers R, Prewitt LM 2003 Maintenance after pulmonary rehabilitation in chronic lung disease: A randomized trial. American Journal of Respiratory and Critical Care Medicine 167: 880–888
   PubMed Web of Science ®Google Scholar
• Rodgers S, Dyas J, Molyneux AWP, Ward MJ, Revill SM 2007 Evaluation of the information needs of patients with chronic obstructive pulmonary disease following pulmonary rehabilitation: A focus group study. Chronic Respiratory Disease 4: 195–203
   PubMedGoogle Scholar
• Sabaté E 2003. Adherence to Long-term Therapies: Evidence for Action. In WHO-report (ed)
   Google Scholar
• Sarkisian C, Brown A, Norris C, Wintz R, Mangione C 2003 A systematic review of diabetes self-care interventions for older, African American or Latino adults. Diabetes Educator 28: 467–479
   Google Scholar
• Sivaraman Nair KP 2003 Life goals: The concept and its relevance to rehabilitation. Clinical Rehabilitation 17: 192–202
   PubMed Web of Science ®Google Scholar
• Spencer L, Adams TB, Malone S, Roy L, Yost E 2006 Applying the transtheoretical model to exercise: A systematic and comprehensive review of the literature. Health Promotion Practice 7: 428–443
   PubMedGoogle Scholar
• Spruit MA, Troosters T, Trappenburg JCA, Decramer M, Gosselink R 2004 Exercise training during rehabilitation of patients with COPD: A current perspective. Patient Education and Counseling 52: 243–248
   PubMed Web of Science ®Google Scholar
• Sullum J, Clark MM, King TK 2000 Predictors of exercise relapse in a college population. Journal of American College Health 48: 175–180
   PubMed Web of Science ®Google Scholar
• Troosters T, Gosselink R, Janssens W, Decramer M 2010 Exercise training and pulmonary rehabilitation: New insights and remaining challenges. European Respiratory Review 19: 24–29
   PubMedGoogle Scholar
• UK Department of Health 2001 The expert patient: A new approach to chronic disease management for the 21st. century, http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAnd Guidance/DH_4006801
   Google Scholar
• Vallet G, Ahmaïdi S, Serres I, Fabre C, Bourgouin D, Desplan J, Varray A, Préfaut C 1997 Comparison of two training programmes in chronic airway limitation patients: Standardized versus individualized protocols. European Respiratory Journal 10: 114–122
   PubMed Web of Science ®Google Scholar
• Verbeek J, Sengers MJ, Riemens L, Haafkens J 2004 Patient expectations of treatment for back pain: A systematic review of qualitative and quantitative studies. Spine 29: 2309–2318
   PubMed Web of Science ®Google Scholar
• Vermeire E, Hearnshaw H, Van Royen P, Denekens J 2001 Patient adherence to treatment: Three decades of research. A comprehensive review. Journal of Clinical Pharmacy and Therapeutics 26: 331–342
   PubMed Web of Science ®Google Scholar
• Vieira DSR, Maltais F, Bourbeau J 2010 Home-based pulmonary rehabilitation in chronic obstructive pulmonary disease patients. Current Opinion in Pulmonary Medicine 16: 134–143
   PubMed Web of Science ®Google Scholar
• Vogiatzis I, Williamson AF, Miles J, Taylor IK 1999 Physiological response to moderate exercise workloads in a pulmonary rehabilitation program in patients with varying degrees of airflow obstruction. Chest 116: 1200–1207
   PubMed Web of Science ®Google Scholar
• Walseth LT, Malterud K 2004 Salutogenesis and empowerment in the perspective of general practice. Tidsskrift For Den Norske Lægeforening 124: 65–66
   PubMedGoogle Scholar
• WHO 2009 Chronic Respiratory Diseases-Burden, www.who.int/respiratory/copd/burden/en/
   Google Scholar
• Wilson JS, O'Neill B, Reilly J, MacMahon J, Bradley JM 2007 Education in pulmonary rehabilitation: The patient's perspective. Archives of Physical Medicine and Rehabilitation 88: 1704–1709
   PubMed Web of Science ®Google Scholar
• Woodard CM, Berry MJ 2001 Enhancing adherence to prescribed exercise: Structured behavioral interventions in clinical exercise programs. Journal of Cardiopulmonary Rehabilitation 21: 201–209
   Google Scholar
• Yohannes AM, Connolly MJ 2004 Pulmonary rehabilitation programmes in the UK: A national representative survey. Clinical Rehabilitation 18: 444–449
   PubMed Web of Science ®Google Scholar