Youth Speak: increasing engagement of young people in mental health research

References

• Boote J. (2011). Patient and public involvement in health and social care research: A bibliography. NIHR Research Design Service for Yorkshire and the Humber. Available from: http://www.clahrc-ndl.nihr.ac.uk/clahrc-ndl-nihr/documents/ppi/08-boote-2011-ppi-bibliography.pdf [last accessed 16 Jun 2014]
   Google Scholar
• Booth T, Booth W. (1996). Sounds of silence: Narrative research with inarticulate subjects. Disabil Soc, 11, 55–69
   Web of Science ®Google Scholar
• Byas A, Hills D, Meech C, et al. (2002). Co-researching consumer experiences of child and adolescent mental health services: Reflections and implications. Fam Syst Health, 20, 75–89
   Google Scholar
• Children and Young People’s Health Outcomes Forum. (2012). Children and young people’s health outcomes strategy: Report of the Children and Young People’s Health Outcomes Forum, London: Department of Health. Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/216852/CYP-report.pdf [last accessed 16 Jun 2014]
   Google Scholar
• Consumers Health Forum of Australia. (2012). Revised statement on consumer participation in health and medical research: Report from the National Consumer Workshop. Available from https://www.chf.org.au/pdfs/rep/rep-revised-research-statement-workshop-dec12.pdf [last accessed 16 Jun 2014]
   Google Scholar
• Crawford MJ, Robotham D, Thana L, et al. (2011). Selecting outcome measures in mental health: the views of service users. J Mental Health, 20, 336–46
   PubMed Web of Science ®Google Scholar
• Ennis L, Wykes T. (2013). Impact of patient involvement in mental health research: longitudinal study. Br J Psychiatry, 203, 381–6
   PubMed Web of Science ®Google Scholar
• Hamilton SF, Hamilton MA, Pittman K. (2004). Principles for youth development. In Hamilton SF, Hamilton MA, eds. The youth development handbook: Coming of age in American communities. Thousand Oaks: Sage Publications, Inc., 3–22
   Google Scholar
• Hart RA. (2008). Stepping back from ‘the ladder’: Reflections on a model of participatory work with children. In: Reid A, Bruun Jensen B, Nikel J, Simovska V (Eds). Participation and learning. Amsterdam: Springer, 19–31
   Google Scholar
• Hayes H, Buckland S, Tarpey M. (2012). Briefing notes for researchers: Involving the public in NHS, public health and social care research. Eastleigh: INVOLVE
   Google Scholar
• Jivanjee P, Kruzich JM, Gordon LJ. (2009). The age of uncertainty: Parent perspectives on the transitions of young people with mental health difficulties to adulthood. J Child Fam Stud, 18, 435–46
   Web of Science ®Google Scholar
• Jones A. (2004). Involving children and young people as researchers: Issues, ethics and practice. In: Fraser S, Lewis V, Ding S, et al., eds. Doing research with children and young people. London: Open University/Sage, 113–30
   Google Scholar
• Kellett M. (2010). Small shoes, big steps! Empowering children as active researchers. Am J Commun Psychol, 46, 195–203
   PubMed Web of Science ®Google Scholar
• McLaughlin H. (2006). Involving young service users as co-researchers: Possibilities, benefits and costs. Br J Social Work, 36, 1395–410
   Web of Science ®Google Scholar
• Minogue V, Boness J, Brown A, Girdlestone J. (2005). The impact of service user involvement in research. Int J Health Care Qual Assur, 18, 103–12
   Google Scholar
• Mulvaney-Day NE, Rappaport N, Alegría M, Codianne LM. (2006). Developing systems interventions in a school setting: An application of community-based participatory research for mental health. Ethnic Dis, 16, S107--S117
   PubMed Web of Science ®Google Scholar
• NIHR CRN. (2014). Young Person’s Mental health Advisory Group. Available from http://www.crn.nihr.ac.uk/news/young-persons-mental-health-advisory-group/?h=21 [last accessed 15 January 2015]
   Google Scholar
• Patterson S, Trite J, Weaver T. (2014). Activity and views of service users involved in mental health research: UK survey. Br J Psychiatry, 205, 68–75
   PubMed Web of Science ®Google Scholar
• Poland BD, Tupker E, Breland K. (2002). Involving street youth in peer harm reduction education. Rev Can Santé Publique, 93, 344–8
   PubMed Web of Science ®Google Scholar
• Pullmann MD. (2009). Participatory research in systems of care for children’s mental health. Am J Commun Psychol, 44, 43–53
   PubMed Web of Science ®Google Scholar
• Rose D, Fleischman P, Wykes T. (2008). What are mental health service users' priorities for research in the UK? J Mental Health, 17, 520–30
   Web of Science ®Google Scholar
• Rose D, Leese M, Oliver D, et al. (2011). A comparison of participant information elicited by service user and non-service user researchers. Psychiatr Serv, 62, 210–13
   PubMed Web of Science ®Google Scholar
• Schimmelmann BG, Schultze-Lutter F. (2012). Early detection and intervention of psychosis in children and adolescents: Urgent need for studies. Eur Child Adolesc Psychiatry, 21, 239–41. doi: 10.1007/s00787-012-0271-z
   Google Scholar
• Staley K. (2009). Exploring impact: Public involvement in NHS, public health and social care research. Eastleigh: INVOLVE
   Google Scholar
• Stein BD, Kataoka S, Jaycox LH, et al. (2002). Theoretical basis and program design of a school-based mental health intervention for traumatized immigrant children: A collaborative research partnership. J Behav Health Serv Res, 29, 318–26
   PubMed Web of Science ®Google Scholar
• Stewart R, Liabo K. (2012). Involvement in research without compromising research quality. J Health Serv Res Policy, 17, 248–51
   PubMed Web of Science ®Google Scholar
• Tait L, Lester H. (2005). Encouraging user involvement in mental health services. Adv Psychiatr Treat, 11, 168–75
   Google Scholar
• Tarpey M. (2011). Public involvement in research applications to the national research ethics service. Eastleigh: INVOLVE
   Google Scholar
• Thornicroft G, Rose D, Huxley P, et al. (2002). What are the research priorities of mental health service users? J Mental Health, 11, 1–3
   Google Scholar
• UNICEF. (1989). Convention on the rights of the child. Available from http://www.refworld.org/docid/3ae6b38f0.html [last accessed 16 Jun 2014]
   Google Scholar
• Walker DM, Pandya-Wood R. (2013). Can research development bursaries for patient and public involvement have a positive impact on grant applications? A UK-based, small-scale service evaluation. Health Expectations. doi: 10.1111/hex.12127
   Google Scholar