Stress in families of children with disability: A review of risk and resistance factors

References

• Antonovsky A. Unravelling the Mystery of Health: How People Manage Stress and Stay Well. Jossey-Bass Publishers, San Francisco 1987
   Google Scholar
• Baldwin S. The Costs of Caring. Families with Disabled Children. Routledge & Kegan Paul, London 1985
   Google Scholar
• Baldwin S., Glendinning C. Children with disabilities and their families. Disability in Britain, A. Walker, P. Townsend. Martin Robertson, Oxford 1981
   Google Scholar
• Baxter C. Professional services as support: Perceptions of parents. Australia and New Zealand Journal of Developmental Disabilities 1987; 13: 243–253
   Google Scholar
• Blackard M. K., Barsch E. T. Parents' and professionals' perceptions of the handicapped child's impact on the family. TASH Journal 1982; 7: 62–70
   Google Scholar
• Bolger N. Coping as a personality process: A prospective study. Journal of Personality and Social Psychology 1990; 59: 525–537
   PubMed Web of Science ®Google Scholar
• Bolger N., Schilling E. A. Personality and the problems of everyday life: The role of neuroticism in exposure and reactivity to daily stressors. Journal of Personality 1991; 59: 355–386
   PubMed Web of Science ®Google Scholar
• Brown G. W., Bhrolchain M. N., Harris T. Social class and psychiatric disturbance among women in an urban population. Sociology 1975; 9: 225–254
   Google Scholar
• Byrne E. A., Cunningham C. C. The effects of mentally handicapped children on families: A conceptual review. Journal of Child Psychology and Psychiatry 1985; 26: 847–864
   PubMed Web of Science ®Google Scholar
• Byrne E. A., Cunningham C. C., Sloper P. Families and their Children with Down's Syndrome: One Feature in Common. Routledge & Kegan Paul, London 1988
   Google Scholar
• Cohen F. Coping. Behavioural Health: A Handbook of Health Enhancement and Disease Prevention, J. D. Matarazzo, S. M. Weiss, J. A. Herd, N. E. Miller. John Wiley, New York 1984
   Google Scholar
• Department of Education and Science. Special Educational Needs: Report of the Committee of Enquiry into the Education of Handicapped Children and Young People. HMSO, London 1978, The Warnock Report
   Google Scholar
• Department of Health and Social Security. Fit for the Future: Court Committee Report on Child Health Services. HMSO, London 1976
   Google Scholar
• Folkman S. Personal control and stress and coping processes: A theoretical analysis. Journal of Personality and Social Psychology 1984; 46: 839–852
   PubMed Web of Science ®Google Scholar
• Folkman S., Lazarus R. S. An analysis of coping in a middle-aged community sample. Journal of Health and Social Behavior 1980; 21: 219–239
   PubMed Web of Science ®Google Scholar
• Folkman S., Lazarus R. S. If it changes it must be a process: A study of emotion and coping during three stages of a college examination. Journal of Personality and Social Psychology 1985; 48: 150–170
   PubMed Web of Science ®Google Scholar
• Folkman S., Lazarus R. S., Dunkel-Schetter C., DeLongis A., Gruen R. The dynamics of a stressful encounter: Cognitive appraisal, coping and encounter outcomes. Journal of Personality and Social Psychology 1986a; 50: 992–1003
   PubMed Web of Science ®Google Scholar
• Folkman S., Lazarus R. S., Gruen R. J., DeLongis A. Appraisal, coping, health status and psychological symptoms. Journal of Personality and Social Psychology 1986b; 50: 571–579
   PubMed Web of Science ®Google Scholar
• Frey K. S., Greenberg N. T., Fewell R. Stress and coping among parents of handicapped children: A multidimensional approach. American Journal of Mental Retardation 1989; 94: 240–249
   PubMedGoogle Scholar
• Gourash N. Help seeking: A review of the literature. American Journal of Community Psychology 1978; 6: 413–423
   PubMed Web of Science ®Google Scholar
• Hatton C., Knussen C., Sloper P., Turner S. The stability of ways of coping over time in parents of children with Down's syndrome, (in preparation)
   Google Scholar
• Judson S., Burden R. Towards a tailored measure of parental attitudes: An approach to the evaluation of one aspect of intervention projects with parents of handicapped children. Child: Care, Health and Development 1980; 6: 47–55
   PubMed Web of Science ®Google Scholar
• Knussen C., Sloper P., Cunningham C. C., Turner S. The use of the Ways of Coping (Revised) questionnaire with parents of children with Down's syndrome. Psychological Medicine
   Google Scholar
• Kolin I. S., Schenzer A. L., New B., Garfield M. Studies of the school age child with meningomyelocele: Social and emotional adaptations. Journal of Pediatrics 1971; 78: 1013–1019
   PubMed Web of Science ®Google Scholar
• Korn S. J., Chess S., Fernandez P. The impact of children's physical handicaps on marital quality and family interaction. Child Influences on Menial and Family Interaction: A Life Span Perspective, R. M. Lerner, G. B. Spanier. Academic Press, New York 1978
   Google Scholar
• Lazarus R. S. Stress and coping as factors in health and illness. Psychosocial Aspects of Cancer, J. Cohen, J. W. Cullen, L. R. Martin. Raven Press, New York 1982
   Google Scholar
• Lazarus R. S. Theory-based stress measurement. Psychological Inquiry 1990; 1: 3–13
   Google Scholar
• Lazarus R. S., Folkman S. Stress, Appraisal and Coping. Springer, New York 1984
   Google Scholar
• Lin N., Woelfel M. W., Light S. C. The buffering effect of social support subsequent to an important life event. Journal of Health and Social Behavior 1985; 26: 247–263
   PubMed Web of Science ®Google Scholar
• Newson E. Parents as a resource in diagnosis and assessment. Early Management of Handicapping Disorders, T. E. Oppé, P. Woodford, London 1976, IRMMH Review of Research and Practice No. 19
   Google Scholar
• O'Hagan F. J., Sandys E. J.A., Swanson W. I. Educational provision, parental expectation and disability. Child: Care, Health and Development 1984; 10: 31–38
   PubMed Web of Science ®Google Scholar
• Philp M., Duckworth D. Children with Disabilities and their Families: A Review of Research. NFER-Nelson, Windsor 1982
   Google Scholar
• Pot Mees C. The Psychosocial Effects of Bone Marrow Transplantation in Children. Eburon Publishers, Netherlands 1989
   Google Scholar
• Quine L., Pahl J. First diagnosis of severe mental handicap: Characteristics of unsatisfactory encounters between doctors and parents. Social Science and Medicine 1986; 22: 53–62
   PubMed Web of Science ®Google Scholar
• Quine L., Pahl J. Stress and coping in families caring for a child with severe mental handicap: A longitudinal study. University of Kent at Canterbury, Institute of Social and Applied Psychology. 1989
   Google Scholar
• Quine L., Pahl J. Stress and coping in mothers caring for a child with severe learning difficulties: A test of Lazarus' transactional model of coping. Journal of Community and Applied Social Psychology 1991; 1: 57–70
   Web of Science ®Google Scholar
• Rutter M., Tizard J., Whitmore K. Education, health and behaviour. Longman, London 1970
   Google Scholar
• Sloper P., Cunningham C. C., Knussen C., Turner S. A study of the process of adaptation in a cohort of children with Down's syndrome and their families. University of Manchester, Hester Adrian Research Centre. 1988, Final Report to the DHSS
   Google Scholar
• Sloper P., Knussen C., Turner S., Cunningham C. C. Factors related to stress and satisfaction with life in families of children with Down's syndrome. Journal of Child Psychology and Psychiatry 1991; 32: 655–676
   PubMed Web of Science ®Google Scholar
• Sloper P., Turner S. Parental and professional views of the needs of families with a child with severe physical disability. Counselling Psychology Quarterly 1991a; 4: 323–330
   Google Scholar
• Sloper P., Turner S. Risk and resistance factors in the adaptation of parents of children with severe physical disability. Journal of Child Psychology and Psychiatry
   Web of Science ®Google Scholar
• Sloper P., Turner S. Adaptation and helpseeking strategies in families of children with physical disabilities. University of Manchester, Hester Adrian Research Centre. 1991b, Final Report to the Department of Health
   Google Scholar
• Urey J. R., Viar V. Use of mental health support services among families of children with disabilities: Discrepant views of parents and paediatricians. Mental Handicap Research 1990; 3: 81–88
   Google Scholar
• Veit C. T., Ware J. G., Jnr. The structure of psychological wellbeing in general populations. Journal of Consulting and Clinical Psychology 1983; 51: 730–742
   PubMed Web of Science ®Google Scholar
• Vitaliano P. P., Russo J., Carr J. E., Maiuro R. D., Becker J. The Ways of Coping Checklist: Revision and psychometric properties. Multivariate Behavioral Research 1985; 20: 3–26
   PubMed Web of Science ®Google Scholar
• Vitaliano P. P., Maiuro R. D., Russo J., Becker J. Raw versus relative scores in the assessment of coping strategies. Journal of Behavioral Medicine 1987; 10: 1–18
   PubMed Web of Science ®Google Scholar
• Walker L. S., Ortiz-Valdes J. A., Newbrough J. R. The role of maternal employment and depression in the psychological adjustment of chronically ill, mentally retarded and well children. Journal of Pediatric Psychology 1989; 14: 357–370
   PubMed Web of Science ®Google Scholar
• Wallander J. L., Varni J. W., Babani L., DeHaan C. B., Wilcox K. T., Banis H. T. The social environment and the adaptation of mothers of physically handicapped children. Journal of Pediatric Psychology 1989; 14: 371–387
   PubMed Web of Science ®Google Scholar
• Wallander J. L., Pitt L. C., Mellins C. A. Child functional independence and maternal psychosocial stress as risk factors threatening adaptation in mothers of physically or sensorially handicapped children. Journal of Consulting and Clinical Psychology 1990; 58: 818–824
   PubMed Web of Science ®Google Scholar
• Zeitlin S., Rosenblatt W. P., Williamson G. G. Family Stress: A coping model for intervention. B.C. Journal of Special Education 1986; 10: 231–242
   Google Scholar