Evaluation of change in fatigue, self-efficacy and health-related quality of life, after a group educational intervention programme for persons with neuromuscular diseases or multiple sclerosis: a pilot study

References

• Dobkin BH. Fatigue versus activity-dependent fatigability in patients with central or peripheral motor impairments. Neurorehabil Neural Repair 2008;22:105.
   PubMed Web of Science ®Google Scholar
• Chaudhuri A, Behan PO. Fatigue in neurological disorders. Lancet 2004;363:978–988.
   PubMed Web of Science ®Google Scholar
• Van Engelen BG, Kalkman JS, Schillings ML, Van Der Werf SP, Bleijenberg G, Zwarts MJ. Fatigue in neuromuscular disease. Ned Tijdschr Geneeskd 2004;148:1336–1341.
   PubMedGoogle Scholar
• Leocani L, Colombo B, Comi G. Physiopathology of fatigue in multiple sclerosis. Neurol Sci 2008;29:241–243.
   PubMed Web of Science ®Google Scholar
• Kalkman JS, Schillings ML, van der Werf SP, Padberg GW, Zwarts MJ, van Engelen BGM, Bleijenberg G. Experienced fatigue in facioscapulohumeral dystrophy, myotonic dystrophy, and HMSN-I. J Neurol Neurosurg Psychiatry 2005;76:1406–1409.
   PubMed Web of Science ®Google Scholar
• Bol Y, Duits AA, Hupperts RMM, Vlaeyen JWS, Verhey FRJ. The psychology of fatigue in patients with multiple sclerosis: a review. J Psychosom Res 2009;66:3–11.
   PubMed Web of Science ®Google Scholar
• Kos D, Kerckhofs E, Nagels G, D'hooghe MB, Ilsbroukx S. Origin of fatigue in multiple sclerosis: review of the literature. Neurorehabil Neural Repair 2008;22:91–100.
   PubMed Web of Science ®Google Scholar
• Skerrett TN, Moss-Morris R. Fatigue and social impairment in multiple sclerosis: the role of patients' cognitive and behavioral responses to their symptoms. J Psychosom Res 2006;61:587–593.
   PubMed Web of Science ®Google Scholar
• Trojan DA, Arnold D, Collet JP, Shapiro S, Bar-Or A, Robinson A, Le Cruguel JP, Ducruet T, Narayanan S, Arcelin K, Wong AN, Tartaglia MC, Lapierre Y, Caramanos Z, Da Costa D. Fatigue in multiple sclerosis: association with disease-related, behavioural and psychosocial factors. Mult Scler 2007;13:985–995.
   PubMed Web of Science ®Google Scholar
• Rimmer JH, Chen MD, McCubbin JA, Drum C, Peterson J. Exercise intervention research on persons with disabilities: what we know and where we need to go. Am J Phys Med Rehabil 2010;89:249–263.
   PubMed Web of Science ®Google Scholar
• Cramp F, Daniel J. Exercise for the management of cancer-related fatigue in adults. Cochrane Database Syst Rev 2008;(2):CD006145.
   Google Scholar
• Oncu J, Durmaz B, Karapolat H. Short-term effects of aerobic exercise on functional capacity, fatigue, and quality of life in patients with post-polio syndrome. Clin Rehabil 2009;23:155–163.
   PubMed Web of Science ®Google Scholar
• Gallien P, Nicolas B, Robineau S, Pétrilli S, Houedakor J, Durufle A. Physical training and multiple sclerosis. Ann Readapt Med Phys 2007;50:373–376.
   PubMedGoogle Scholar
• Barsevick AM, Newhall T, Brown S. Management of cancer-related fatigue. Clin J Oncol Nur 2008;12:21–25.
   PubMed Web of Science ®Google Scholar
• Riemsma RP, Taal E, Rasker JJ. Group education for patients with rheumatoid arthritis and their partners. Arthritis Rheum 2003;49:556–566.
   PubMed Web of Science ®Google Scholar
• Mathiowetz VG, Matuska KM, Murphy ME. Efficacy of an energy conservation course for persons with multiple sclerosis. Arch Phys Med Rehabil 2001;82:449–456.
   PubMed Web of Science ®Google Scholar
• Mathiowetz VG, Finlayson ML, Matuska KM, Chen HY, Luo P. Randomized controlled trail of an energy conservation course for persons with multiple sclerosis. Mult Scler 2005;11:592–601.
   PubMed Web of Science ®Google Scholar
• Van der Kooi EL, Lindeman E, Riphagen I. Strength training and aerobic exercise training for muscle disease (review). Cochrane Database Syst Rev 2005;(25):CD003907.
   Google Scholar
• Cup EH, Pieterse AJ, Ten Broek-Pastoor JM, Munneke M, van Engelen BG, Hendricks HT, van der Wilt GJ, Oostendorp RA. Exercise therapy and other types of physical therapy for patients with neuromuscular diseases: a systematic review. Arch Phys Med Rehabil 2007;88:1452–1464.
   PubMed Web of Science ®Google Scholar
• Packer Tl, Brink N, Sauriol A. Managing fatigue: a six-week course for energy conservation. Tuscon, AZ: Therapy Skill Builders; 1995.
   Google Scholar
• Mathiowetz VG, Matuska KM, Finlayson ML, Luo P, Chen HY. One-year follow-up to a randomized controlled trial of an energy conservation course for persons with multiple sclerosis. Int J Rehabil Res 2007;30:305–313.
   PubMed Web of Science ®Google Scholar
• Krupp BL, Pollina DA. Mechanisms and management of fatigue in progressive neurological disordes. Curr Opin Neurol 1996;9:456–460.
   PubMed Web of Science ®Google Scholar
• Krupp LB, LaRocca NG, Muir-Nash J, Steinberg AD. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol 1989;46:1121–1123.
   PubMed Web of Science ®Google Scholar
• Whitehead L. The measurement of fatigue in chronic illness: a systematic review of unidimensional and multidimensional fatigue measures. J Pain Symp Manag 2009;37:107–128.
   PubMed Web of Science ®Google Scholar
• Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992;30:473–483.
   PubMed Web of Science ®Google Scholar
• Boyer F, Morrone I, Laffont I, Dizien O, Etienne JC, Novella JL. Health related quality of life in people with hereditary neuromuscular diseases: an investigation of test–retest agreement with comparison between two generic questionnaires, the Nottingham health profile and the short form-36 items. Neuromusc Disord 2006;16:99–106.
   PubMed Web of Science ®Google Scholar
• Bosscher RJ, Smit JH, Kempen GIJM. Algemene competentieverwachtingen bij ouderen. Nederlands Tijdschrift voor de Psychologie 1997;52:239–248.
   Google Scholar
• Sherer M, Maddux JE, Mercandante B, Prentice-Dunn S, Jacobs B, Rogers RW. The self- efficacy scale: construction and validation. Psychol Rep 1982;51:663–671.
   Web of Science ®Google Scholar
• Bosscher RJ, Baardman I. Het meten van gepercipieerde competentie bij psychiatrische patienten. Bewegen en Hulpverlening 1989;6:312–322.
   Google Scholar