488
Views
12
CrossRef citations to date
0
Altmetric
Research Papers

Employment experiences among adolescents and young adults with cystic fibrosis

, &
Pages 922-926 | Accepted 01 Aug 2010, Published online: 22 Sep 2011

References

  • Elborn S. The management of young adults with cystic fibrosis: ‘genes, jeans and genies’. Disabil Rehabil 1998;20:217–225.
  • Rowe SM, Miller S, Sorscher EJ. Cystic fibrosis. New Engl J Med 2005;352:1992–2001.
  • Foundation CF. Cystic Fibrosis Foundation Patient Registry Annual Data Report 2008. Bethesda, Maryland: Cystic Fibrosis Foundation; 2009.
  • Yankaskas JR, Marshall BC, Sufian B, Simon RH, Rodman D. Cystic fibrosis adult care: consensus conference report. Chest 2004;125:1S–39S.
  • Sawicki GS, Sellers DE, Robinson WM. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros 2009;8:91–96.
  • Gillen M, Lallas D, Brown C, Yelin E, Blanc P. Work disability in adults with cystic fibrosis. Am J Respir Crit Care Med 1995;152:153–156.
  • Hogg M, Braithwaite M, Bailey M, Kotsimbos T, Wilson JW. Work disability in adults with cystic fibrosis and its relationship to quality of life. J Cyst Fibros 2007;6:223–227.
  • Burker EJ, Sedway J, Carone S. Psychological and educational factors: better predictors of work status than FEV1 in adults with cystic fibrosis. Pediatr Pulmonol 2004;38:413–418.
  • Havermans T, Colpaert K, Vanharen L, Dupont LJ. Health related quality of life in cystic fibrosis: to work or not to work? J Cyst Fibros 2009;8:218–223.
  • Nasr SZ, Welsch CC. Disability and quality of life in cystic fibrosis from early age to adulthood. J Adolesc Health 1996;19:381–383.
  • Konstan MW, Morgan WJ, Butler SM, Pasta DJ, Craib ML, Silva SJ, Stokes DC, Wohl ME, Wagener JS, Regelmann WE, Scientific Advisory Group and the Investigators and Coordinators of the Epidemiologic Study of Cystic Fibrosis. Johnson CA, Risk factors for rate of decline in forced expiratory volume in one second in children and adolescents with cystic fibrosis. J Pediatr 2007;151:134–139, 139 e131.
  • Sawicki GS, Sellers DE, McGuffie K, Robinson W. Adults with cystic fibrosis report important and unmet needs for disease information. J Cyst Fibros 2007;6:411–416.
  • Widerman E. Knowledge, interests and educational needs of adults diagnosed with cystic fibrosis after age 18. J Cyst Fibros 2003;2:97–104.
  • Abbott J, Havermans T, Hart A. Adherence to the medical regimen: clinical implications of new findings. Curr Opin Pulmonary Med, 2009 Aug 6. [Epub ahead of print].
  • Arias Llorente RP, Bousono Garcia C, Diaz Martin JJ. Treatment compliance in children and adults with cystic fibrosis. J Cyst Fibros 2008;7:359–367.
  • Modi AC, Quittner AL. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way? J Pediatric Psychol 2006;31:846–858.
  • Brumfield K, Lansbury G. Experiences of adolescents with cystic fibrosis during their transition from paediatric to adult health care: a qualitative study of young Australian adults. Disabil Rehabil 2004;26:223–234.
  • Conway SP. Transition from paediatric to adult-orientated care for adolescents with cystic fibrosis. Disabil Rehabil 1998;20:209–216.
  • Tuchman LK, Schwartz LA, Sawicki GS, Britto MT. Cystic fibrosis and transition to adult medical care. Pediatrics 2010;125:566–573.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.