Comparing the priorities of parents and young people with cerebral palsy

References

• King GA, Cathers T, Polgar JM, MacKinnon E, Havens L. Success in life for older adolescents with cerebral palsy. Qual Health Res 2000;10:734–749.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol 2007;109 (Suppl.):8–141.
   Google Scholar
• Dekovic M, Noom MJ, Meeus W. Expectations regarding development during adolescence: parental and adolescent perceptions. J Youth Adolesc 1997;26:253–272.
   Web of Science ®Google Scholar
• McGavin H. Planning rehabilitation: a comparison of issues for parents and adolescents. Phys Occup Ther Pediatr 1998;18:69–82.
   Google Scholar
• Rutter M. Institute of psychiatry department of child and adolescent psychiatry. Psychol Med 1976;6:505–516.
   PubMed Web of Science ®Google Scholar
• Steinberg L. We know some things: parent-adolescent relationships in retrospect and prospect. J Res Adolesc 2001;11:1–19.
   Web of Science ®Google Scholar
• Redmond R, Parrish M. Variables influencing physiotherapy adherence among young adults with cerebral palsy. Qualitative Health Res 2008;18:1501–1510.
   PubMed Web of Science ®Google Scholar
• Stewart D. Evidence to support a positive transition into adulthood for youth with disabilities (Editorial). Phys Occup Ther Pediatr 2006;26:1–4.
   PubMedGoogle Scholar
• Christie D, Viner R. ABC of adolescence: adolescent development … first in a series of 12 articles. Brit Med J 2005;330:301–304.
   PubMed Web of Science ®Google Scholar
• Havighurst RJ. Developmental tasks and education. New York: McKay Co.; 1972.
   Google Scholar
• Hanna SE, Rosenbaum PL, Bartlett DJ, Palisano RJ, Walter SD, Avery L, Russell DJ. Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years. Dev Med Child Neurol 2009;51:295–302.
   PubMed Web of Science ®Google Scholar
• International Classification of Functioning, Disability and Health. Children and youth version. Geneva, Switzerland: World Health Organization; 2007.
   Google Scholar
• Stucki G. International classification of functioning, disability and health (ICF). Am J Phys Med Rehabil 2005;84:733–740.
   PubMed Web of Science ®Google Scholar
• McDougall J, Wright V. The ICF-CY and Goal Attainment Scaling: benefits of their combined use for pediatric practice. Disabil Rehabil 2009;31:1362–1372.
   PubMed Web of Science ®Google Scholar
• Cote JE. Sociological perspectives on identity formation: the culture-identity link and identity capital. J Adolesc 1996;19:417–428.
   PubMed Web of Science ®Google Scholar
• Holmbeck GN, Johnson SZ, Wills KE, McKernon W, Rose B, Erklin S, Kemper T. Observed and perceived parental overprotection in relation to psychosocial adjustment in preadolescents with a physical disability: the mediational role of behavioral autonomy. J Consult Clin Psych 2002;70:96–110.
   PubMed Web of Science ®Google Scholar
• Inglehart R. Culture shift in advanced industrial society. New Jersey: Princeton University Press; 1990.
   Google Scholar
• Manuel JC, Balkrishnan R, Camacho F, Smith BP, Koman LA. Factors associated with self-esteem in preadolescents and adolescents with cerebral palsy. J Adolesc Health 2003;32:456–458.
   PubMed Web of Science ®Google Scholar
• Adamson L. Self-image, adolescence, and disability. Am J Occup Ther 2003;57:578–81.
   PubMed Web of Science ®Google Scholar
• Faculty of Nursing UoA, Canada. The Social Support Research Program. http://www.ssrp.ualberta.ca/. Last accessed 17 December 2008.
   Google Scholar
• Stevens SE, Steele CA, Jutai JW, Kalnins IV, Bortolussi JA, Biggar WD. Adolescents with physical disabilities: some psychosocial aspects of health. J Adolesc Health 1996;19:157–164.
   PubMed Web of Science ®Google Scholar
• Magill-Evans J, Galambos N, Darrah J, Nickerson C. Predictors of employment for young adults with developmental motor disabilities. Work 2008;31:433–442.
   PubMedGoogle Scholar
• Antle BJ, Mills W, Steele C, Kalnins I, Rossen B. An exploratory study of parents' approaches to health promotion in families of adolescents with physical disabilities. Child: Care Health Dev 2008;34:185–193.
   PubMed Web of Science ®Google Scholar
• King G, Petrenchik T, Law M, Hurley P. The enjoyment of formal and informal recreation and leisure activities: a comparison of school-aged children with and without physical disabilities. Int J Disabil Dev Educ 2009;56:109–130.
   Web of Science ®Google Scholar
• Sloper P, Lightfoot J. Involving disabled and chronically ill children and young people in health service development. Child Care Health Dev 2003;29:15–20.
   PubMed Web of Science ®Google Scholar
• Law M, Stewart D. Test retest reliability of the COPM with children. Unpublished manuscript. McMaster University School of Rehabilitation Science; 1996.
   Google Scholar
• Law M, Baptiste S, McColl M, Opzoomer A, Polatajko H, Pollack N. The Canadian Occupational performance Measure: an outcome measure for occupational therapy. Can J Occup Ther 1990;57:82–87.
   PubMedGoogle Scholar
• Law M, Baptiste S, McColl M, Carswell A, Polatajko H, Pollock N. Canadian occupational performance measure (COPM) manual. CAOT Publications ACE; 1998.
   Google Scholar
• McColl MA, Paterson M, Davies D, Doubt L, Law M. Validity and community utility of the Canadian Occupational Performance Measure. Can J Occup Ther 2000;67:22–30.
   PubMedGoogle Scholar
• Chiarello L, Palisano R, Maggs J, Orlin M, Almasri N, Kang L-J, Chang H-J. Family priorities for activities and participation of children and youth with cerebral palsy. Phys Ther 2010;90:1254–1264.
   PubMed Web of Science ®Google Scholar
• Maher CA, Williams MT, Olds T, Lane AE. Physical and sedentary activity in adolescents with cerebral palsy. Dev Med Child Neurol 2007;49:450–7.
   PubMed Web of Science ®Google Scholar
• Haga M. Physical fitness in children with movement difficulties. Physiotherapy 2008;94:253–259.
   Web of Science ®Google Scholar
• Klapwijk A. The multiple benefits of sports for the disabled. Int Disabil Stud 1987;9:87–89.
   PubMedGoogle Scholar
• Kolb S, Hanley-Maxwell C. Critical social skills for adolescents with high incidence disabilities: parental perspectives. Exceptional Children 2003;69:163–179.
   Web of Science ®Google Scholar
• Wright J, MacDonald D, Groom L. Physical activity and young people: beyond participation. Sport Educ Soc 2003;8:17–33.
   Web of Science ®Google Scholar
• Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 1997;39:214–223.
   PubMed Web of Science ®Google Scholar
• Cheshire A, Barlow JH, Powell LA. The psychosocial well-being of parents of children with cerebral palsy: a comparison study. Disabil Rehabil 2010;32:1673–1677.
   PubMed Web of Science ®Google Scholar
• Dunn N, Shields N, Taylor NF, Dodd KJ. Comparing the self concept of children with cerebral palsy to the perceptions of their parents. Disabil Rehabil 2009;31:387–393.
   PubMed Web of Science ®Google Scholar