728
Views
17
CrossRef citations to date
0
Altmetric
Research Papers

Involvement in volunteering: an exploration of the personal experience of people with aphasia

, &
Pages 1805-1821 | Accepted 01 Dec 2010, Published online: 23 Sep 2011

References

  • Kagan A. Revealing the competence of aphasic adults through conversation: a challenge to health professionals. Top Stroke Rehabil 1995;2:15–18.
  • Dalemans R, Wade D, van den Heuvel W, de Witte L. A description of social participation in working-age persons with aphasia: a review of the literature. Aphasiology 2008;22:1071–1091.
  • Kagan A. Functional is not enough: training conversation partners for aphasic adults. Aphasia treatment: world perspectives. In: Holland AL, Forbes MM, editors. California: Singular; 1993. 199–225.
  • Lock S, Wilkinson R, Bryan K, Maxim J, Edmundson A, Bruce C, Moir D. Supporting Partners of People with Aphasia in Relationships and Conversation (SPPARC). Int J Lang Commun Disord 2001;36:25–30.
  • Lyon J, Cariski D, Keisler L, Rosenbek J, Levine R, Kumpula J, Ryff C, Coyne S, Blanc M. Communication partners: enhancing participation in life and communication for adults with aphaisa in natural settings. Aphasiology 1997;11:693–708.
  • Parr S. Psychosocial aspects of aphasia: whose perspectives? Folia Phoniat Logopaed 2001;53:266–288.
  • LeDorze G, Brassard C. A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology 1995;9:239–255.
  • Parr S. Living with severe aphasia: tracking social exclusion. Aphasiology 2007;21:98–123.
  • Byng S, Farrelly S, Fitzgerald L, Parr S, Ross S. Having a Say; promoting the participation of people with communication impairments in health care decision making. Patient and Public Involvement in Health: The evidence of policy implementation. In: Farrell C, editor. London: Department of Health; 2004. p 54.
  • Simmons-Mackie N, Kagan A, O'Neill Christie C, Huijbregts M, McEwen S, Willems J. Communicative access and decision making for people with aphasia: implementing sustainable healthcare systems change. Aphasiology 2007;21: 39–66.
  • Cruice M, Worrall L, Hickson L. Quantifying aphasic people's social lives in the context of non-aphasic peers. Aphasiology 2006;20:1210–1225.
  • Caporali A, Basso A. A survey of long-term outcome of aphasia and of chances of gainful employment. Aphasiology 2003;17:815–834.
  • Parr S, Byng S, Gilpin S. Talking about aphasia: living with the loss of language after stroke. Buckingham: Open University Press; 1997. p 160.
  • Hinckley JJ. Vocational and social outcomes of adults with chronic aphasia. J Commun Disord 2002;35:543–560.
  • Black-Schaffer RM, Osberg JS. Return to work after stroke: development of a predictive model. Arch Phys Med Rehabil 1990;71:285–290.
  • Cruice M, Worrall L, Hickson L, Murison R. Finding a focus for quality of life with aphasia: social and emotional health and psychological well-being. Aphasiology 2003;17: 333–353.
  • Hilari K, Northcott S. Social support in people with chronic aphasia. Aphasiology 2006;20:17–36.
  • Simmons-Mackie N, Code C, Armstrong E, Steigler L, Elman R. What is aphasia? Results of an international survey. Aphasiology 2002;16:837–848.
  • UPIAS. Fundamental Principles of Disability. London: Union of Physically Impaired Against Segregation; 1997.
  • World Health Organisation. International Classification of Functioning, Disability and Health. Geneva: WHO; 2001.
  • Swain J, French S, Barnes C, Thomas C. Disabling barriers – enabling environments. In: Swain S, French S, Barnes C, Thomas C, , editors. 2nd edLondon: Sage; 2004.
  • Pound C, Hewitt A. Communication barriers: building access and identity. Disabling barriers – enabling environments. In: Swain SF, Barnes C, Thomas C, editors. London: Sage; 2004. pp 161–168.
  • Hewitt A, Byng S. From doing to being: from participation to engagement. Aphasia inside out. In: Parr JS, Duchan CP, editors. Buckingham, UK: Open University Press; 2003. pp 51–65.
  • Code C, Eales C, Pearl G, Conan M, Cowin K, Hicken J. Supported self-help groups for aphasic people, The sciences of aphasia: from therapy to theory. In: Papathanasiou R, De Bleser I, editors. London: Pergamon; 2003. pp 187–200.
  • Young AM, Pearl G, Bowen A. Challenges in maximising recruitment to a RCT through working with a service user group, in 12th International Aphasia Rehabilitation Conference. Sheffield, UK: 2006.
  • Cruice M. Issues of access and inclusion with aphasia. Aphasiology 2007;21:3–8.
  • Thomas J. Doing critical ethnography. London: Sage; 1993.
  • Simmons-Mackie N, Damico JS. Qualitative methods in aphasia research – ethnography. Aphasiology 1999;13:681–687.
  • Kitzinger J. Qualitative research: introducing focus groups. Br Med J 1995;311:299–302.
  • Luck AM, Rose ML. Interviewing people with aphasia: insights into method adjustments from a pilot study. Aphasiology 2007;21:208–224.
  • Miles MB, Huberman M. Qualitative data analysis: an expanded sourcebook 2nd edLondon: Thousand Oaks; 1994.
  • Pound C, Parr S, Lyndsay J, Woolf C. Beyond aphasia: therapies for living with communication disability. Oxon: Winslow Press; 2000. p 304.
  • Elman RJ, Bernstein-Ellis E. The efficacy of group communication treatment in adults with chronic aphasia. J Speech Lang Hear Res 1999;42:411–419.
  • Stroke Association. Internet. 2010. Electronic Citation. www. stroke.org.uk . Last accessed January 2010.
  • Hewitt A, Byng S. From doing to being: from participation to engagement. Aphasia inside out: reflections on communication disability. In: Parr S, editor. Berkshire: Open University Press; 2003. pp 51–64.
  • Jordan K, Kaiser W. Aphasia – a social approach. London: Chapman and Hall; 1996.
  • Byng S, Pound C, Parr S. Living with aphasia: frameworks for therapy interventions. Acquired neurological communication disorders: a clinical perspective. In: Papathanasiou I, editor. London: Whurr: 2000. pp 49–75.
  • WRVS. Internet. 2010. Electronic Citation. www.wrvs.org.uk. Last accessed January 2010.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.