References
- Stewart GJ, Dwyer JM, Goulston KJ. The Greater Metropolitan Clinical Taskforce: an Australian model for clinician governance. Med J Aust 2006;184:597–598.
- Steinbeck KS, Brodie L, Towns SJ. Transition in chronic illness – who is going where? J Paediatr Child Health 2008;44: 478–482.
- Mitchell LE, Adzick NS, Melchionne J, Pasquariello PS, Sutton LN, Whitehead AS. Spina bifida. Lancet 2004;364: 1885–1895.
- Friedman D, Holmbeck GN, DeLucia C, Jandasek B, Zebracki K. Trajectories of autonomy development across the adolescent transition in children with spina bifida. Rehabil Psychol 2009;54:16–27.
- Rowe, Dale E, Jadhav, Avinash L. Care of the adolescent with spina bifida. Pediatr Clin North Am 2008;55:1359–1374.
- Blum RW, Resnick M, Nelson R, St Germaine A. Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics 1991;88:280–285.
- Sawin KJ, Bellin MH, Roux G, Buran CF, Brei TJ. The experience of self-management in adolescent women with spina bifida. Rehabil Nurs 2009;34:26–38.
- Roebroeck ME, Jahnsen R, Carona C, Kent RM, Chamberlain MA. Adult outcomes and lifespan issues for people with childhood-onset physical disability. Dev Med Child Neurol 2009;51:670–678.
- Dicianno BE, Bellin MH, Zabel AT. Spina bifida and mobility in the transition years. Am J Phys Med Rehabil 2009;88:1002–1006.
- Mukherjee S. Transition to adulthood in spina bifida: changing roles and expectations. Sci World J 2007;7: 1890–1895.
- Greater Metropolitan Clinical Taskforce. Final Report on Illawarra Transition Project. Internet. 2008. Electronic Citation. www.health.nsw.gov.au/gmct/transition/illawarra_project_ report_pdf.asp. Last accessed 5 May 2010.
- Greater Metropolitan Clinical Taskforce. Transition Care Workforce Project Report. Internet. 2008. Electronic Citation. www.health.nsw.gov.au/gmct/transition/transition. Last accessed 5 May 2010.
- www.aihw.gov.au/childyouth/childyouthhealth/index.cfm. Last accessed 5 May 2010.
- Greater Metropolitan Clinical Taskforce. Transition Resources for Professionals. Internet. 2005. Electronic Citation. www.health.nsw.gov.au/gmct/transition/resources_prof.asp. Last accessed 14 February 2011.
- Sawyer S, Collins N, Bryan D, Brown D, Hope M and Bowes G. Young people with spina bifida; transfer from paediatric to adult health care. J Paediatr Child Health 1998;34:414–417.
- Binks JA, Barden WS, Burke TA, Young NL. What do we really know about the transition to adult-centred health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 2007;88:1064–1073.
- Young NL, Barden WS, Mills WA, Burke TA, Law M, Boydell K. Transition to adult-oriented health care: perspectives of youth and adults with complex physical disabilities. Phys Occup Ther Pediatr 2009;29:345–361.
- Antle BJ, Montgomery G, Stapleford C. The many layers of social support: capturing the voices of young people with spina bifida and their parents. Health Soc Work 2009;34:97–106.
- Dennis M, Jewell D, Drake J, Misakyan T, Spiegler B, Hetherington R, Gentili F, Barnes M. Prospective, declarative, and nondeclarative memory in young adults with spina bifida. J Int Neuropsychol Soc 2007;13:312–323.
- Ruck J, Dahan-Oliel N. Adolescence and young adulthood in spina bifida: self report on care received and readiness for the future. Top Spinal Cord Inj Rehabil 2010;16:26–37.
- Holmes-Walker DJ, Llewellyn AC, Farrell K. A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15–25 years. Diabetic Med 2007;24:764–769.
- Yeung E, Kay J, Roosevelt GE, Brandon M, Yetman AT. Lapse of care as a predictor for morbidity in adults with congenital heart disease. Int J Cardiol 2008; 125:62–65.
- Battersby M. Health reform through coordinated care: SA Health Plus. BMJ 2005;330:662–665.
- SHUT OUT: The Experience of People with Disabilities and their Families in Australia; National Disability Strategy Consultation Report prepared by the National People with Disabilities and Carer Council. Internet. 2009. Electronic Citation. http://www.fahcsia.gov.au/sa/disability/pubs/policy/community__ consult/Pages/default.aspx. Last accessed 31 May 2010.