Development of the participation and environment measure for children and youth: conceptual basis

References

• World Health Organization. International classification of functioning, disability and health. Geneva, Switzerland: WHO; 2001.
   Google Scholar
• Law M. Participation in the occupations of everyday life. Am J Occup Ther 2002;56:640–649.
   PubMed Web of Science ®Google Scholar
• Colver A. A shared framework and language for childhood disability. Dev Med Child Neurol 2005;47:780–784.
   PubMed Web of Science ®Google Scholar
• Hemmingsson H, Jonsson H. An occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health–some critical remarks. Am J Occup Ther 2005;59:569–576.
   PubMed Web of Science ®Google Scholar
• Ueda S, Okawa Y. The subjective dimension of functioning and disability: What is it and what is it for? Disabil Rehabil 2003;25:596–601.
   PubMed Web of Science ®Google Scholar
• Whiteneck G, Dijkers MP. Difficult to measure constructs: Conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil 2009;90:S22–S35.
   PubMed Web of Science ®Google Scholar
• Coster W, Khetani MA. Measuring participation of children with disabilities: Issues and challenges. Disabil Rehabil 2008;30:639–648.
   PubMed Web of Science ®Google Scholar
• Forsyth R, Jarvis S. Participation in childhood. Child Care Health Dev 2002;28:277–279.
   PubMed Web of Science ®Google Scholar
• McConachie H, Colver AF, Forsyth RJ, Jarvis SN, Parkinson KN. Participation of disabled children: How should it be characterised and measured? Disabil Rehabil 2006;28:1157–1164.
   PubMed Web of Science ®Google Scholar
• Wade DT, Halligan P. New wine in old bottles: The WHO ICF as an explanatory model of human behaviour. Clin Rehabil 2003;17:349–354.
   PubMed Web of Science ®Google Scholar
• Sakzewski L, Boyd R, Ziviani J. Clinimetric properties of participation measures for 5- to 13-year-old children with cerebral palsy: A systematic review. Dev Med Child Neurol 2007;49:232–240.
   PubMed Web of Science ®Google Scholar
• Morris C, Kurinczuk JJ, Fitzpatrick R. Child or family assessed measures of activity performance and participation for children with cerebral palsy: A structured review. Child Care Health Dev 2005;31:397–407.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of functioning, disability and health− Children and Youth Version. Geneva, Switzerland: WHO; 2008.
   Google Scholar
• King G, Law M, King S, Hurley P, Rosenbaum P, Hanna S, Kertoy M, Young N. Children’s Assessment of Participation and Enjoyment (CAPE) and Preferences for Activities of Children. San Antonio, TX: PsychCorp; 2004.
   Google Scholar
• Bedell GM. Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabilitation 2004;19:191–205.
   PubMed Web of Science ®Google Scholar
• Coster WJ, Deeney T, Haltiwanger J, Haley SM. School Function Assessment. San Antonio, TX: PsychCorp; 1998.
   Google Scholar
• Hammal D, Jarvis SN, Colver AF. Participation of children with cerebral palsy is influenced by where they live. Dev Med Child Neurol 2004;46:292–298.
   PubMed Web of Science ®Google Scholar
• Law M, Petrenchik T, King G, Hurley P. Perceived environmental barriers to recreational, community, and school participation for children and youth with physical disabilities. Arch Phys Med Rehabil 2007;88:1636–1642.
   PubMed Web of Science ®Google Scholar
• Mihaylov SI, Jarvis SN, Colver AF, Beresford B. Identification and description of environmental factors that influence participation of children with cerebral palsy. Dev Med Child Neurol 2004;46:299–304.
   PubMed Web of Science ®Google Scholar
• Khetani MA, Bedell GM, Coster WJ, Cousins M, Law M. Physical, social, and attitudinal factors. In: Majnemer A. editor. Measures for children with developmental disabilities: Framed by the ICF-CY. (In Press).
   Google Scholar
• McManus V, Michelsen SI, Parkinson K, Colver A, Beckung E, Pez O, Caravale B. Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment. Child Care Health Dev 2006;32:185–192.
   PubMed Web of Science ®Google Scholar
• Forsyth R, Colver A, Alvanides S, Woolley M, Lowe M. Participation of young severely disabled children is influenced by their intrinsic impairments and environment. Dev Med Child Neurol 2007;49:345–349.
   PubMed Web of Science ®Google Scholar
• Law M, Haight M, Milroy B, Williams D, Stewart D, Rosenbaum P. Environmental factors affecting the occupations of children with physical disabilities. J Occup Sci 1999;6:102–111.
   Google Scholar
• Bastiaansen D, Koot HM, Ferdinand RF, Verhulst FC. Quality of life in children with psychiatric disorders: Self-, parent, and clinician report. J Am Acad Child Adolesc Psychiatry 2004;43:221–230.
   PubMed Web of Science ®Google Scholar
• Blanchard LT, Gurka MJ, Blackman JA. Emotional, developmental, and behavioral health of American children and their families: A report from the 2003 National Survey of Children’s Health. Pediatrics 2006;117:e1202–e1212.
   PubMed Web of Science ®Google Scholar
• Sawyer MG, Whaites L, Rey JM, Hazell PL, Graetz BW, Baghurst P. Health-related quality of life of children and adolescents with mental disorders. J Am Acad Child Adolesc Psychiatry 2002;41:530–537.
   PubMed Web of Science ®Google Scholar
• Varni JW, Burwinkle TM. The PedsQL as a patient-reported outcome in children and adolescents with Attention-Deficit/Hyperactivity Disorder: A population-based study. Health Qual Life Outcomes 2006;4:26.
   PubMed Web of Science ®Google Scholar
• Bedell GM, Khetani MA, Coster W, Cousins M, Law M. Community, social, and civic life. In Majnemer A, editor. Measures for children with developmental disabilities: Framed by the ICF-CY. (In Press).
   Google Scholar
• Coster W, Bedell G, Law M, Khetani MA, Teplicky R, Liljenquist K, Gleason K, Kao Y-C. Psychometric evaluation of the Participation and Environment Measure for Children and Youth (PEM-CY). Developmental Medicine & Child Neurology. (In Press).
   Web of Science ®Google Scholar
• Heah T, Case T, McGuire B, Law M. Successful participation: The lived experience among children with disabilities. Can J Occup Ther 2007;74:38–47.
   PubMedGoogle Scholar
• Kintner EK. Development and preliminary evaluation of the participation in life activities scale for children and adolescents with asthma: An instrument development study. Health Qual Life Outcomes 2008;6:37.
   PubMed Web of Science ®Google Scholar
• Mandich AD, Polatajko HJ, Rodger S. Rites of passage: Understanding participation of children with developmental coordination disorder. Hum Mov Sci 2003;22:583–595.
   PubMed Web of Science ®Google Scholar
• Bedell G, Khetani MA, Cousins M, Coster W, Law, M. Parent perspectives to inform development of measures of children’s participation and environment. Arch Phys Med Rehabil 2011;92:765–773.
   PubMed Web of Science ®Google Scholar
• Brown M, Dijkers MP, Gordon WA, Ashman T, Charatz H, Cheng Z. Participation objective, participation subjective: A measure of participation combining outsider and insider perspectives. J Head Trauma Rehabil 2004;19:459–481.
   PubMed Web of Science ®Google Scholar
• Lepage C, Noreau L, Bernard PM, Fougeyrollas P. Profile of handicap situations in children with cerebral palsy. Scand J Rehabil Med 1998;30:263–272.
   PubMedGoogle Scholar
• Michelsen SI, Flachs EM, Uldall P, Eriksen EL, McManus V, Parkes J, Parkinson KN, et al. Frequency of participation of 8-12-year-old children with cerebral palsy: A multi-centre cross-sectional European study. Eur J Paediatr Neurol 2009;13:165–177.
   PubMed Web of Science ®Google Scholar
• Jette AM, Haley SM, Coster WJ, Kooyoomjian JT, Levenson S, Heeren T, Ashba J. Late life function and disability instrument: I. Development and evaluation of the disability component. J Gerontol A Biol Sci Med Sci 2002;57:M209–M216.
   PubMed Web of Science ®Google Scholar
• Gandek B, Sinclair SJ, Jette AM, Ware JE Jr. Development and initial psychometric evaluation of the participation measure for post-acute care (PM-PAC). Am J Phys Med Rehabil 2007;86:57–71.
   PubMed Web of Science ®Google Scholar
• Maton KI, Schellenbach CJ, Leadbeater BJ, Solarz AL, editors. Investing in children, youth, families, and communities: Strengths-based research and policy. Washington, DC: American Psychological Association; 2004.
   Google Scholar
• Jette AM, Tao W, Haley SM. Blending activity and participation sub-domains of the ICF. Disabil Rehabil 2007;29:1742–1750.
   PubMed Web of Science ®Google Scholar