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Research Papers

Development and structural validation of a shortened version of the Participation Scale

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Pages 1596-1607 | Received 10 Aug 2011, Accepted 01 Jan 2012, Published online: 29 Feb 2012

References

  • World Health Organisation. International Classification of Functioning, Disability and Health (ICF). Geneva, Switzerland: WHO; 2001.
  • Dijkers MP. Issues in the conceptualization and measurement of participation: an overview. Arch Phys Med Rehabil 2010;91:S5–16.
  • Dijkers MP, Whiteneck G, El-Jaroudi R. Measures of social outcomes in disability research. Arch Phys Med Rehabil 2000;81:S63–S80.
  • van der Zee CH, Priesterbach AR, van der Dussen L, Kap A, Schepers VP, Visser-Meily JM, Post MW. Reproducibility of three self-report participation measures: The ICF Measure of Participation and Activities Screener, the Participation Scale, and the Utrecht Scale for Evaluation of Rehabilitation-Participation. J Rehabil Med 2010;42:752–757.
  • Bedell GM. Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabilitation 2004;19:191–205.
  • Cardol M, de Haan RJ, van den Bos GA, de Jong BA, de Groot IJ. The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA). Clin Rehabil 1999;13:411–419.
  • Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI, Parkes J, et al. Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study. BMJ 2009;338:b1458.
  • Noreau L, Fougeyrollas P, Vincent C. The LIFE-H: Assessment of the quality of social participation. Technol Disabil 2002;14:113–118.
  • Noreau L, Lepage C, Boissiere L, Picard R, Fougeyrollas P, Mathieu J, Desmarais G, Nadeau L. Measuring participation in children with disabilities using the Assessment of Life Habits. Dev Med Child Neurol 2007;49:666–671.
  • Rosenberg L, Jarus T, Bart O. Development and initial validation of the Children Participation Questionnaire (CPQ). Disabil Rehabil 2010;32:1633–1644.
  • Noonan VK, Kopec JA, Noreau L, Singer J, Chan A, Mâsse LC, Dvorak MF. Comparing the content of participation instruments using the international classification of functioning, disability and health. Health Qual Life Outcomes 2009;7:93.
  • van Brakel WH, Anderson AM, Mutatkar RK, Bakirtzief Z, Nicholls PG, Raju MS, Das-Pattanayak RK. The Participation Scale: measuring a key concept in public health. Disabil Rehabil 2006;28:193–203.
  • Ebenso B, Fashona A, Ayuba M, Idah M, Adeyemi G, S-Fada S. Impact of socio-economic rehabilitation on leprosy stigma in Northern Nigeria: findings of a retrospective study. Asia Pac Disabil Rehabil J 2007;18:98–119.
  • Rensen C, Bandyopadhyay S, Gopal PK, Van Brakel WH. Measuring leprosy-related stigma - a pilot study to validate a toolkit of instruments. Disabil Rehabil 2011;33:711–719.
  • Stevelink SA, van Brakel WH, Augustine V. Stigma and social participation in Southern India: differences and commonalities among persons affected by leprosy and persons living with HIV/AIDS. Psychol Health Med 2011;16:695–707.
  • vander Zee CH, Priesterbach AR, van derDussen L, Kap A, Schepers VPM, Visser-Meily JMA, Post MW et al. Reproducibility of three self-report participation measures: the ICF measure of participation and activities screener, the participation scale, and the utrecht scale for evaluation of rehabilitation-participation. J Rehabil Med 2010;42:752–757.
  • World Health Organization. Enhanced Global Strategy for Further Reducing the Disease Burden due to Leprosy (plan period: 2011–2015). New Delhi: WHO Regional Office for South-East Asia; 2009.
  • Floyd FJ, Widaman KF. Factor analysis in the development and refinement of clinical assessment instruments. Psychol Assess 1995;7:286–299.
  • de Vet HC, Adèr HJ, Terwee CB, Pouwer F. Are factor analytical techniques used appropriately in the validation of health status questionnaires? A systematic review on the quality of factor analysis of the SF-36. Qual Life Res 2005;14:1203–18; dicussion 1219.
  • Costello AB, Osborne JW. Best practices in exploratory factor analysis: four recommendations for getting the most from your analysis. Pract Assess Res Eval 2005;10. Available at: http://pareonline.net/getvn.asp?v=10&n=7
  • StatSoft. Electronic Statistics Textbook. 2011. Available at: http://www.statsoft.com/textbook/Accessed on June 2011.
  • Nunnally J. Psychometric theory. New York: McGraw-Hill; 1978.
  • Hu LT, Bentler PM. Cut-off criteria for fit indexes in covariance estructure analysis: conventional criteria versus new alternatives. Struct Equat Model 1999;6:1–55.
  • Schreiber JB, Nora A, Stage FK, Barlow EA, King J. Reporting structural equation modeling and confirmatory factor analysis results: A review. J Educ Res 2006;996:323–337.
  • Law M. Participation in the occupations of everyday life. Am J Occup Ther 2002;56:640–649.
  • Herdman M, Fox-Rushby J, Badia X. ‘Equivalence’ and the translation and adaptation of health-related quality of life questionnaires. Qual Life Res 1997;6:237–247.
  • Nardi SM, Paschoal VD, Zanetta DM. Social participation of people affected by leprosy after discontinuation of multidrug therapy. Lepr Rev 2011;82:55–64.
  • Pichaimuthu R, Ramaswamy P, Bikash K, Joseph R. A measurement of the stigma among vitiligo and psoriasis patients in India. Indian J Dermatol Venereol Leprol 2011;77:300–306.
  • Werneke U, Goldberg DP, Yalcin I, Ustün BT. The stability of the factor structure of the General Health Questionnaire. Psychol Med 2000;30:823–829.
  • Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey manual and interpretation guide. Boston, MA: The Health Institute; 1993.
  • Ware JE Jr, Kosinski M, Gandek B, Aaronson NK, Apolone G, Bech P, Brazier J, et al. The factor structure of the SF-36 Health Survey in 10 countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998;51:1159–1165.
  • Keller SD, Ware JE Jr, Bentler PM, Aaronson NK, Alonso J, Apolone G, Bjorner JB, et al. Use of structural equation modeling to test the construct validity of the SF-36 Health Survey in ten countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998;51:1179–1188.
  • Raczek AE, Ware JE, Bjorner JB, Gandek B, Haley SM, Aaronson NK, Apolone G, et al. Comparison of Rasch and summated rating scales constructed from SF-36 physical functioning items in seven countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998;51:1203–1214.
  • Slim FJ, van Schie CH, Keukenkamp R, Faber WR, Nollet F. Effects of impairments on activities and participation in people affected by leprosy in The Netherlands. J Rehabil Med 2010;42:536–543.
  • Boku N, Lockwood DN, Balagon MV, Pardillo FE, Maghanoy AA, Mallari IB, Cross H. Impacts of the diagnosis of leprosy and of visible impairments amongst people affected by leprosy in Cebu, the Philippines. Lepr Rev 2010;81:111–120.
  • Brown M, Dijkers MP, Gordon WA, Ashman T, Charatz H, Cheng Z. Participation objective, participation subjective: a measure of participation combining outsider and insider perspectives. J Head Trauma Rehabil 2004;19:459–481.
  • Gandek B, Sinclair SJ, Jette AM, Ware JE Jr. Development and initial psychometric evaluation of the participation measure for post-acute care (PM-PAC). Am J Phys Med Rehabil 2007;86:57–71.
  • Noonan VK, Kopec JA, Noreau L, Singer J, Dvorak MF. A review of participation instruments based on the International Classification of Functioning, Disability and Health. Disabil Rehabil 2009;31: 1883–1901.
  • Magasi S, Post MW. A comparative review of contemporary participation measures’ psychometric properties and content coverage. Arch Phys Med Rehabil 2010;91:S17–S28.
  • Noonan VK, Kopec JA, Noreau L, Singer J, Chan A, Masse LC, Dvorak MF, et al. Comparing the content of participation instruments using the International Classification of Functioning, Disability and Health. Health Qual Life Outcomes 2009;13:7.
  • Noreau L, Desrosiers J, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C. Measuring social participation: reliability of the LIFE-H in older adults with disabilities. Disabil Rehabil 2004; 26:346–352.
  • Noreau L, Lepage C, Boissiere L, Picard R, Fougeyrollas P, Mathieu J, Desmarais G, et al. Measuring participation in children with disabilities using the assessment of life habits. Dev Med Child Neurol 2007;49:666–671.
  • Stevelink SAM, Terwee CB, Banstola N, van Brakel WH. Testing the psychometric properties of the Participation Scale in Eastern Nepal. Quality of life research. first published online 22-01-2012. Doi 10.1007/s11136-012-0116-8.
  • Van der Zee CH, Kap A, Ramabaran Mishre R, Schouten EJ, Post MW. Responsiveness of four participation measures to change during and after outpatient rehabilitation. J Rehabil Med. 2011;43:1003–1009.
  • van Veen N, Hemo DA, Bowers RL, Pahan D, Negrini JF, Velema JP, Richardus JH. Evaluation of activity limitation and social participation, and the effects or reconstructive surgery in people with disability due to leprosy: a prospective cohort study. Disabil Rehabil 2011;33:667–674.
  • Netherlands Leprosy Relief. Rapid Disability Appraisal Survey in Six VDCs of Morang District in Nepal: A study done by the Netherlands Leprosy Relief 2009.
  • Sihombing B, Wilder-Smith A, Djarir H, Beise K, Kusumawardhani L, Yulihane R, Kurniasari, Muhammad Kasim HM, Kadek I, Kesumaningsih, van Brakel WH. Disability in people affected by leprosy: the role of impairment, activity, social participation, stigma and discrimination. In press.

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