The activities and participation categories of the ICF Core Sets for multiple sclerosis from the patient perspective

References

• Compston A, Coles A. Multiple sclerosis. Lancet 2008;372:1502–1517.
   PubMed Web of Science ®Google Scholar
• Gottberg K, Einarsson U, Ytterberg C, de Pedro Cuesta J, Fredrikson S, von Koch L, Widén Holmqvist L. Health-related quality of life in a population-based sample of people with multiple sclerosis in Stockholm County. Mult Scler 2006;12:605–612.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO; 2001.
   Google Scholar
• Stucki G, Ewert T, Cieza A. Value and application of the ICF in rehabilitation medicine. Disabil Rehabil 2002;24:932–938.
   PubMed Web of Science ®Google Scholar
• Cieza A, Ewert T, Ustün TB, Chatterji S, Kostanjsek N, Stucki G. Development of ICF Core Sets for patients with chronic conditions. J Rehabil Med 2004; Suppl 44: 9–11.
   PubMed Web of Science ®Google Scholar
• Coenen M, Cieza A, Freeman J, Khan F, Miller D, Weise A, Kesselring J; Members of the Consensus Conference. The development of ICF Core Sets for multiple sclerosis: results of the International Consensus Conference. J Neurol 2011;258:1477–1488.
   PubMed Web of Science ®Google Scholar
• Coenen M, Basedow-Rajwich B, König N, Kesselring J, Cieza A. Functioning and disability in multiple sclerosis from the patient perspective. Chronic Illn 2011;7:291–310.
   PubMedGoogle Scholar
• Holper L, Coenen M, Weise A, Stucki G, Cieza A, Kesselring J. Characterization of functioning in multiple sclerosis using the ICF. J Neurol 2010;257:103–113.
   PubMed Web of Science ®Google Scholar
• Polman CH, Reingold SC, Edan G, Filippi M, Hartung HP, Kappos L, Lublin FD, et al. Diagnostic criteria for multiple sclerosis: 2005 revisions to the “McDonald Criteria”. Ann Neurol 2005;58:840–846.
   PubMed Web of Science ®Google Scholar
• Folstein MF, Folstein SE, McHugh PR. “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975;12:189–198.
   PubMed Web of Science ®Google Scholar
• Beck A, Steer R, Brown G. BDI-II Beck Depression Inventory. 2nd ed. San Antonio, TX, USA: Harcourt Brace & Company; 1996.
   Google Scholar
• Kurtzke JF. Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology 1983;33:1444–1452.
   PubMed Web of Science ®Google Scholar
• Mahoney FI, Barthel DW. Functional evaluation: the barthel index. Md State Med J 1965;14:61–65.
   PubMedGoogle Scholar
• Law M, Baptiste S, Carswell A, McColl MA, Polatajko H, Pollock N. The Canadian Occupational Performance Measure. 4 rd ed. Ottawa, ON: CAOT Publications ACE; 2005.
   Google Scholar
• Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S, Ustün TB, Stucki G. Linking health-status measurements to the international classification of functioning, disability and health. J Rehabil Med 2002;34:205–210.
   PubMed Web of Science ®Google Scholar
• Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustün B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005;37:212–218.
   PubMed Web of Science ®Google Scholar
• Badley EM. Enhancing the conceptual clarity of the activity and participation components of the International Classification of Functioning, Disability, and Health. Soc Sci Med 2008;66:2335–2345.
   PubMed Web of Science ®Google Scholar
• Jette AM, Tao W, Haley SM. Blending activity and participation sub-domains of the ICF. Disabil Rehabil 2007;29:1742–1750.
   PubMed Web of Science ®Google Scholar
• Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil 2009;90:S22–S35.
   PubMed Web of Science ®Google Scholar
• Khan F, Pallant JF. Use of the International Classification of Functioning, Disability and Health (ICF) to identify preliminary comprehensive and brief core sets for multiple sclerosis. Disabil Rehabil 2007;29:205–213.
   PubMed Web of Science ®Google Scholar
• Hammel J, Magasi S, Heinemann A, Whiteneck G, Bogner J, Rodriguez E. What does participation mean? An insider perspective from people with disabilities. Disabil Rehabil 2008;30:1445–1460.
   PubMed Web of Science ®Google Scholar
• Lexell EM, Iwarsson S, Lexell J. The complexity of daily occupations in multiple sclerosis. Scand J Occup Ther 2006;13:241–248.
   PubMedGoogle Scholar
• Law M. Participation in the occupations of everyday life. Am J Occup Ther 2002;56:640–649.
   PubMed Web of Science ®Google Scholar
• Leonardi M, Bickenbach J, Ustun TB, Kostanjsek N, Chatterji S; MHADIE Consortium. The definition of disability: what is in a name? Lancet 2006;368:1219–1221.
   PubMed Web of Science ®Google Scholar
• Grill E, Stucki G. Criteria for validating comprehensive ICF Core Sets and developing brief ICF Core Set versions. J Rehabil Med 2011;43:87–91.
   PubMed Web of Science ®Google Scholar
• Cohen J. A coefficient of agreement for nominal scales. Educ and Psychol Meas 1960;20:46.
   Google Scholar
• Stamm TA, Cieza A, Coenen M, Machold KP, Nell VP, Smolen JS, Stucki G. Validating the International Classification of Functioning, Disability and Health Comprehensive Core Set for Rheumatoid Arthritis from the patient perspective: a qualitative study. Arthritis Rheum 2005;53:431–439.
   PubMed Web of Science ®Google Scholar
• Coenen M, Cieza A, Stamm TA, Amann E, Kollerits B, Stucki G. Validation of the International Classification of Functioning, Disability and Health (ICF) Core Set for rheumatoid arthritis from the patient perspective using focus groups. Arthritis Res Ther 2006;8:R84.
   PubMed Web of Science ®Google Scholar
• Hieblinger R, Coenen M, Stucki G, Winkelmann A, Cieza A. Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients. Arthritis Res Ther 2009;11:R67.
   PubMed Web of Science ®Google Scholar