Qualities of life design measures with chronic illness or disability

References

• Melin-Johansson C, Odling G, Axelsson B, Danielson E. The meaning of quality of life: narrations by patients with incurable cancer in palliative home care. Palliat Support Care 2008;6:231–238.
   PubMedGoogle Scholar
• World Health Organization [WHO]. The international classification of functioning, disability and health [ICF]. Geneva: World Health Organization; 2001.
   Google Scholar
• Uswatte G, Schultheis M. Real and virtual tools for objectively measuring function during everyday activities. In: Mpofu E, Oakland T, editors. Rehabilitation and health assessment: Applying ICF guidelines. New York: Springer; 2011. pp 121–140.
   Google Scholar
• Sanford J, Carrie B. Measuring the physical environment. In: Mpofu E, Oakland T, editors. Rehabilitation and health assessment: Applying ICF guidelines. New York: Springer; 2011. pp 207–228.
   Google Scholar
• Magasi S, Hammel J, Heinemann A, Whiteneck G, Bogner J. Participation: a comparative analysis of multiple rehabilitation stakeholders’ perspectives. J Rehabil Med 2009;41:936–944.
   PubMed Web of Science ®Google Scholar
• Campbell C, Ungar M. Constructing a life that works: Part 2: an approach to practice. The Career Development Quarterly 2004;53:28–40.
   Web of Science ®Google Scholar
• Guichard J. Life-long self-construction. Int J Educ Vocat Guidance 2005;5:111–124.
   Google Scholar
• Mpofu E. Life design measures: Applying ICF framework concepts. Think before you measure symposium, 2011 June 29-30; Sydney, Australia [cited 2011 Dec]. Sydney: The University of Sydney; 2011. Available from: http://sydney.edu.au/health_sciences/health_systems_global_populations/think_before_you_measure/speakers.shtml
   Google Scholar
• Mpofu E, et al. Person-centered assessment in rehabilitation and health care. ,Bishop M, Rumrill P, Torrielo P, editors. New trends in rehabilitation practices. New York: Springer; (In Press).
   Google Scholar
• Orbell S, Johnston M, Rowley D, Davey P, Espley A. Self-efficacy and goal importance in the prediction of physical disability in people following hospitalization: a prospective study. Br J Health Psychol 2001;6:25–40.
   PubMed Web of Science ®Google Scholar
• Turner-Stokes L, Williams H, Johnson J. Goal attainment scaling: does it provide added value as a person-centred measure for evaluation of outcome in neurorehabilitation following acquired brain injury? J Rehabil Med 2009;41:528–535.
   PubMed Web of Science ®Google Scholar
• Macy M, Rush FR. Life care planning evaluation. In: Mpofu E, Oakland T, editors. Rehabilitation and health assessment: Applying ICF guidelines. New York: Springer; 2011. pp 297–312.
   Google Scholar
• Schornagel JH. Comparison of patient and proxy EORTC QLQ-C30 ratings in assessing the quality of life of cancer patients. J Clin Epidemiol 1998;51:617–631.
   PubMed Web of Science ®Google Scholar
• Laugsand E, Sprangers MAG, Bjordal K, Skorpen F, Kaasa S, Klepstad P. Health care providers underestimate symptom intensities of cancer patients: a multicenter European study. Health Qual Life Outcomes 2010;8(1):104. http://www.hqlo.com/content/8/1/104.
   PubMed Web of Science ®Google Scholar
• McCabe C, Begley C, Collier S, McCann S. Methodological issues related to assessing and measuring quality of life in patients with cancer: implications for patient care. Eur J Cancer Care (Engl) 2008;17:56–64.
   PubMed Web of Science ®Google Scholar
• Westerman MJ, Hak T, Sprangers MA, Groen HJ, van der Wal G, The AM. Listen to their answers! Response behaviour in the measurement of physical and role functioning. Qual Life Res 2008;17:549–558.
   PubMed Web of Science ®Google Scholar
• O’Day B, Wilson J, Killeen M, Ficke R. Consumer outcomes of centers for independent living. J Vocat Rehabil 2004;20:83–89.
   Google Scholar
• Waghorn G, Chant D, King R. Work-related subjective experiences, work-related self-efficacy, and career learning among people with psychiatric disabilities. Am J Psychiatr Rehabil 2007;10(4):275–301.
   Google Scholar
• Mpofu E, Bishop M. Value change and adjustment to disability: implications for rehabilitation education and practice. Rehabil Educ 2006;20:141–161.
   Google Scholar
• Bishop M, Frain MP, Tschopp MK. Self-management, perceived control, and subjective quality of life in multiple sclerosis: an exploratory study. Rehabil Counsel Bull 2008;52(1):46–56.
   Web of Science ®Google Scholar
• Sanford JA. Assessing universal design in the physical environment. In: Mpofu E, Oakland T, editors. Rehabilitation and health assessment: Applying ICF guidelines. New York: Springer; 2011. pp 255–278.
   Google Scholar
• O’Boyle CA, Brone J, Hickey A, McGee HM. Schedule for evaluation of individual quality of life [SEIQoL]: A direct weighting procedure for quality of life domains. Administration manual. Dublin, Ireland: Department of Psychology, Royal College of Surgeons; 1995.
   Google Scholar
• Ruta DA, Garratt AM, Leng M, Russell IT, MacDonald LM. A new approach to the measurement of quality of life. The Patient-Generated Index. Med Care 1994;32:1109–1126.
   PubMed Web of Science ®Google Scholar
• Mpofu E, Oakland T. Assessment of value change in adults with acquired disabilities. In: Hersen M, editor. Clinician’s handbook of adult behavioral assessment. New York: Elsevier Press; 2006. pp 601–630.
   Google Scholar
• Rapkin BD, Schwartz CE. Toward a theoretical model of quality-of-life appraisal: implications of findings from studies of response shift. Health Qual Life Outcomes 2004;2:14.
   PubMedGoogle Scholar
• Schwartz CE, Sprangers MA. Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc Sci Med 1999;48:1531–1548.
   PubMed Web of Science ®Google Scholar