“I refer to them as my colleagues”: the experience of mutual recognition of self, identity and empowerment in multiple sclerosis

References

• Compston A, Coles A. Multiple sclerosis. Lancet 2008;372:1502–17
   PubMed Web of Science ®Google Scholar
• Nortvedt MW, Riise T, Frugard J, et al. Prevalence of bladder, bowel and sexual problems among multiple sclerosis patients two to five years after diagnosis. Multiple Sclerosis 2007;13:106–12
   PubMed Web of Science ®Google Scholar
• Figved N, Klevan G, Myhr KM, et al. Neuropsychiatric symptoms in patients with multiple sclerosis. Acta Psychiatrica Scandinavica 2005;112:463–8
   PubMed Web of Science ®Google Scholar
• Grytten N, Maseide P. ‘What is expressed is not always what is felt’: coping with stigma and the embodiment of perceived illegitimacy of multiple sclerosis. Chronic Illness 2005;1:231–43
   PubMedGoogle Scholar
• Malcomson KS, Dunwoody L, Lowe-Strong AS. Psychosocial interventions in people with multiple sclerosis: a review. J Neurol 2007;254:1–13
   PubMed Web of Science ®Google Scholar
• Satinovic M. Remodeling the course of life: moving on in a changed life. Glaserian grounded theory in nursing research: trusting emergence. New York: Springer; 2009:183–94
   Google Scholar
• Lode K, Bru E, Klevan G, et al. Coping with multiple sclerosis: a 5-year follow-up study. Acta Neurologica Scandinavica 2010;122:336–42
   PubMed Web of Science ®Google Scholar
• Vick A. The embodied experience of episodic disability among women with multiple sclerosis. Disabil Soc 2013;28:176–89
   Google Scholar
• Devlin R, Pothier D. Introduction: towards a critical theory of dis-citizenship. In: Pothier D, Devlin R, eds. Critical disability theory: essays in philosophy, politics, policy, and law. Vancouver, Toronto: UBCPress; 2006:1–20
   Google Scholar
• Goffman E. Stigma: notes on the management of spoiled identity. Englewood Cliffs (NJ): Prentice-Hall; 1989
   Google Scholar
• Grytten N, Maseide P. ‘When I am together with them I feel more ill’. The stigma of multiple sclerosis experienced in social relationships. Chronic Illness 2006;2:195–208
   PubMedGoogle Scholar
• Thesen J. Being a psychiatric patient in the community--reclassified as the stigmatized “other”. Scandinavian J Publ Health 2001;29:248–55
   PubMed Web of Science ®Google Scholar
• Fisher P, Owen J. Empowering interventions in health and social care: recognition through ‘ecologies of practice’. Soc Sci Med (1982) 2008;67:2063–71
   PubMed Web of Science ®Google Scholar
• Honneth A. The struggle for recognition: the moral grammar of social conflicts. Cambridge: Polity Press; 1995
   Google Scholar
• Corrigan PW, Larson JE, Rusch N. Self-stigma and the “why try” effect: impact on life goals and evidence-based practices. World Psychiatry 2009;8:75–81
   PubMed Web of Science ®Google Scholar
• Bracht NF. Health promotion at the community level: new advances. Thousand Oaks (CA): Sage Publications; 1999
   Google Scholar
• Uner S, Turan S. The construct validity and reliability of the Turkish version of Spreitzer's psychological empowerment scale. BMC Publ Health 2010;10:117
   PubMed Web of Science ®Google Scholar
• Pines EW, Rauschhuber ML, Norgan GH, et al. Stress resiliency, psychological empowerment and conflict management styles among baccalaureate nursing students. J Adv Nurs 2012;68:1482–93
   PubMed Web of Science ®Google Scholar
• Rusch N, Angermeyer MC, Corrigan PW. Mental illness stigma: concepts, consequences, and initiatives to reduce stigma. Eur Psychiatry 2005;20:529–39
   PubMed Web of Science ®Google Scholar
• Chronister JA, Johnson EK, Berven NL. Measuring social support in rehabilitation. Disabil Rehabil 2006;28:75–84
   PubMed Web of Science ®Google Scholar
• Simmons RD. Life issues in multiple sclerosis. Nat Rev Neurol 2010;6:603–10
   PubMed Web of Science ®Google Scholar
• Block P, Vanner EA, Keys CB, et al. Project shake-it-up: using health promotion, capacity building and a disability studies framework to increase self efficacy. Disabil Rehabil 2010;32:741–54
   PubMed Web of Science ®Google Scholar
• Twomey F, Robinson K. Pilot study of participating in a fatigue management programme for clients with multiple sclerosis. Disabil Rehabil 2010;32:791–800
   PubMed Web of Science ®Google Scholar
• Phillips LJ, Stuifbergen AK. The relevance of depressive symptoms and social support to disability in women with multiple sclerosis or fibromyalgia. Int J Rehabil Res 2010;33:142–50
   PubMed Web of Science ®Google Scholar
• Natterlund B, Ahlstrom G. Experience of social support in rehabilitation: a phenomenological study. J Adv Nurs 1999;30:1332–40
   PubMed Web of Science ®Google Scholar
• Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet 2001;358:483–8
   PubMed Web of Science ®Google Scholar
• Kevern J, Webb C. Focus groups as a tool for critical social research in nurse education. Nurse Educ Today 2001;21:323–33
   PubMed Web of Science ®Google Scholar
• Smedal T, Myhr KM, Aarseth JH, et al. The influence of warm versus cold climate on the effect of physiotherapy in multiple sclerosis. Acta Neurologica Scandinavica 2011;124:45–52
   PubMed Web of Science ®Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004;24:105–12
   PubMed Web of Science ®Google Scholar
• Goffman E. The presentation of self in everyday life. Garden City (NY): Doubleday; 1959
   Google Scholar
• Krokavcova M, van Dijk JP, Nagyova I, et al. Social support as a predictor of perceived health status in patients with multiple sclerosis. Patient Educ Counsel 2008;73:159–65
   PubMed Web of Science ®Google Scholar
• Hwang JE, Cvitanovich DC, Doroski EK, Vajarakitipongse JG. Correlations between quality of life and adaptation factors among people with multiple sclerosis. Am J Occup Ther 2011;65:661–9
   PubMed Web of Science ®Google Scholar
• Fisher P. Wellbeing and empowerment: the importance of recognition. Sociol Health Illness 2008;30:583–98
   PubMed Web of Science ®Google Scholar