Understanding significant others’ experience of aphasia and rehabilitation following stroke

References

• Heart and Stroke Foundation of Canada; Statistics. Available from: http://www.heartandstroke.com/site/c.ikIQLcMWJtE/b.3483991/k.34A8/Statistics.htm [last accessed 16 Feb 2013]
   Google Scholar
• Barskova T, Wilz G. Interdependence of stroke survivors’ recovery and their relatives’ attitudes and health: a contribution to investigating the causal effects. Disabil Rehabil 2007;29:1481–91
   PubMed Web of Science ®Google Scholar
• Pellerin C, Rochette A, Racine E. Social participation of relatives post-stroke: the role of rehabilitation and related ethical issues. Disabil Rehabil 2011;33:1055–64
   PubMed Web of Science ®Google Scholar
• Bakas T, Kroenke K, Plue LD, et al. Outcomes among family caregivers of aphasic versus nonaphasic stroke survivors. Rehabil Nurs 2006;31:33–42
   PubMed Web of Science ®Google Scholar
• Lindsay MP, Gubitz G, Bayley M, et al. Canadian Best Practice Recommendations for Stroke Care (Update 2010). On behalf of the Canadian Stroke Strategy Best Practices and Standards Writing Group. Ottawa, Ontario, Canada: Canadian Stroke Network; 2010
   Google Scholar
• Johansson MB, Carlsson M, Sonnander K. Working with families of persons with aphasia: a survey of Swedish speech and language pathologists. Disabil Rehabil 2011;33:51–62
   PubMed Web of Science ®Google Scholar
• Denman A. Determining the needs of spouses caring for aphasic partners. Disabil Rehabil 1998;20:411–23
   PubMed Web of Science ®Google Scholar
• Le Dorze G, Signori F-H. Needs, barriers and facilitators experienced by spouses of people with aphasia. Disabil Rehabil 2010;32:1073–87
   PubMed Web of Science ®Google Scholar
• Michallet B, Le Dorze G, Tétreault S. The needs of spouses caring for severely aphasic persons. Aphasiology 2001;15:731–47
   Web of Science ®Google Scholar
• Howe T, Davidson B, Worrall L, et al. ‘You needed to rehab…families as well’: family members’ own goals for aphasia rehabilitation. Int J Lang Commun Disord 2012;47:511–21
   PubMed Web of Science ®Google Scholar
• Hersh, D. How do people with aphasia view their discharge from therapy. Aphasiology 2009;23:331–50
   Web of Science ®Google Scholar
• Johansson MB, Carlsson M, Östberg P, Sonnander K. Communication changes and SLP services according to significant others of persons with aphasia. Aphasiology 2012;26:1005–28
   Web of Science ®Google Scholar
• Manders E, Mariën A, Janssen V. Informing and supporting partners and children of persons with aphasia: a comparison of supply and demand. Logoped Phoniatr Vocol 2011;36:139–44
   PubMed Web of Science ®Google Scholar
• Pak-Hin Kong A. Family members’ report on speech-language pathology and community services for persons with aphasia in Hong Kong. Disabil Rehabil 2011;33:2633–45
   PubMed Web of Science ®Google Scholar
• Paul NA, Sanders GF. Applying an ecological framework to education needs of communication partners of individuals with aphasia. Aphasiology 2010;24:1095–112
   Web of Science ®Google Scholar
• Nätterlund BS. Being a close relative of a person with aphasia. Scand J Occup Ther 2010;17:18–28
   PubMed Web of Science ®Google Scholar
• Strauss A, Corbin J. Basics of qualitative research: techniques and procedures for developing grounded theory. 2nd ed. Thousand Oaks (CA): Sage; 1998
   Google Scholar
• Hallé M-C, Duhamel F, Le Dorze G. The daughter-mother relationship in the presence of aphasia: how daughters view changes over the first year poststroke. Qual Health Res 2011;21:549–62
   PubMed Web of Science ®Google Scholar
• Hallé M-C, Le Dorze G. A grounded theory of caregiving based on the experience of the daughter of a woman with aphasia. In: Ball MJ, Muller N, Nelson R, eds. The handbook of qualitative research in communication disorders. New York (NY): Psychology Press; 2013:271--82
   Google Scholar
• QSR International Pty Ltd. NVivo qualitative data analysis software; Version 9; 2010
   Google Scholar
• Burman ME. Family caregiver expectations and management of the stroke trajectory. Rehabil Nurs 2001;26:94–9
   PubMedGoogle Scholar
• Greenwood N, Mackenzie A. Informal caring of stroke survivors: meta-ethnographic review of qualitative literature. Maturitas 2010;66:268–76
   PubMed Web of Science ®Google Scholar
• Secrest J. Transformation of the relationship: the experience of primary support persons of stroke survivors. Rehabil Nurs 2000;25:93–9
   Google Scholar
• Brashler R. Ethics, family caregivers, and stroke. Top Stroke Rehabil 2006;13:11–17
   PubMed Web of Science ®Google Scholar
• Cameron JI, Naglie G, Silver FL, Gignac, AM. Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework. Disabil Rehabil 2013;35:314–24
   Web of Science ®Google Scholar
• Lawrence M, Kinn S. Needs, priorities, and desired rehabilitation outcomes of family members of young adults who have had a stroke: findings from a phenomenological study. Disabil Rehabil 2013;35:586--95
   Google Scholar
• White CL, Mayo N, Hanley JA, Wood-Dauphinee S. Evolution of the caregiving experience in the initial 2 years following stroke. Res Nurs Health 2003;26:177–89
   PubMed Web of Science ®Google Scholar
• Kagan A. Revealing the competence of aphasic adults through conversation: a challenge to health professionals. Top Stroke Rehabil 1995;2:15–28
   PubMedGoogle Scholar
• Duhamel F. Les interventions systémiques en soins infirmiers auprès de la famille [Family systems interventions in nursing]. In: Duhamel F, ed. La santé et la famille: une approche systémique en soins infirmiers [Health and family: a systemic approach to nursing]. 2nd ed. Montreal (Canada): Gaetan Morin; 2007:63–86
   Google Scholar
• Visser-Meily A, Post M, Gorter JW, et al. Rehabilitation of stroke patients needs a family-centered approach. Disabil Rehabil 2006;28:1557–61
   PubMed Web of Science ®Google Scholar
• Dickey L, Kagan A, Lindsay MP, et al. Incidence and profile of inpatient stroke-induced aphasia in Ontario, Canada. Arch Phys Med Rehabil 2010;91:196–202
   PubMed Web of Science ®Google Scholar