ICF-based functional components and contextual factors as correlates of perceived quality of life for youth with chronic conditions

References

• King G, Tucker MA, Baldwin P, et al. A Life Needs Model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities. Phys Occup Ther Pediatr 2002;22:53–77
   PubMedGoogle Scholar
• Livingston M, Rosenbaum P, Russell D. Quality of life among adolescents with cerebral palsy: what does the literature tell us? Dev Med Child Neurol 2007;49:225–31
   PubMed Web of Science ®Google Scholar
• Fayed N, Kraus de Camargo O, Kerr E, et al. Generic patient-reported outcomes in child health research: a review of conceptual content using World Health Organization definitions. Dev Med Child Neurol 2012;54:1085–95
   PubMed Web of Science ®Google Scholar
• World Health Organization. International Classification of Functioning, Disability and Health. Geneva, Switzerland: World Health Organization; 2001
   Google Scholar
• World Health Organization Quality of Life Group. The World Health Organization Quality of Life Assessment (WHO-QOL): development and general psychometric qualities. Soc Sci Med 1998;46:1569–85
   PubMed Web of Science ®Google Scholar
• Fogle L, Huebner E, Laughlin J, Ferrans C. Development of a conceptual model of quality of life. Schol Inquiry Nurs Prac 1996;10:293–304
   PubMedGoogle Scholar
• Moons P, Werner B, De Geest S. Critique on the conceptualization of quality of life: a review and evaluation of different conceptual approaches. Int J Nurs Stud 2006;43:891–901
   PubMed Web of Science ®Google Scholar
• Zhan L. Quality of life: conceptual and measurement issues. J Adv Nurs 1992;17:795–800
   PubMed Web of Science ®Google Scholar
• World Health Organization Regional Office of Europe. Joint meeting of experts on targets and indicators for health and well-being in health 2020. Copenhagen, Denmark: World Health Organization Regional Office of Europe; 2013
   Google Scholar
• McDougall J, Wright V, Schmidt J, et al. Applying the ICF framework to study changes in quality-of-life for youth with chronic conditions. Dev Neurorehab 2011;14:41–53
   PubMed Web of Science ®Google Scholar
• McDougall J, Wright V, Rosenbaum P. The ICF model of functioning and disability: incorporating quality of life and human development. Dev Neurorehab 2010;13:204–11
   PubMed Web of Science ®Google Scholar
• Yeung P, Towers A. An exploratory study examining the relationships between the personal, environmental and activity participation variables and quality of life among young adults with disabilities. Disabil Rehabil 2014;36:63–73
   Google Scholar
• Rosenbaum P. Children’s quality of life: separating the person from the disorder. Arch Dis Child 2008;93:100–1
   PubMed Web of Science ®Google Scholar
• Fernandes L, Mendes A, Teixeira C. A review essay on the measurement of child well-being. Social Indic Res 2012;106:239–57
   Web of Science ®Google Scholar
• Felce D, Perry J. Quality of life: the scope of the term and its breadth of measurement. In: Brown RI, ed. Quality of life for people with disabilities. 2nd ed. London: Stanley Thornes (Publishers) Ltd.; 1997:56–71
   Google Scholar
• Schalock R. Reconsidering the conceptualization and measurement of quality of life. In: Schalock RL, ed. Quality of life: Vol. 1. Conceptualization and measurement. Washington, DC: American Association on Mental Retardation; 1996:123–39
   Google Scholar
• Huebner E, Gilman R, Suldo S. Assessing quality of life in children and youth. In: Smith S, Handler L, eds. The clinical assessment of children and adolescents: a practitioner’s handbook. Mahwah (NJ): Lawrence Erlbaum Publishers; 2007:349–66
   Google Scholar
• Proctor C, Linley P, Maltby J. Youth life satisfaction: a review of the literature. J Happiness Stud 2009;10:583–630
   Web of Science ®Google Scholar
• Gilman R, Huebner S. A review of life satisfaction research with children and adolescents. School Psychol Quart 2003;8:192–205
   Web of Science ®Google Scholar
• Edwards T, Patrick D, Topolski T. Quality of life of adolescents with perceived disabilities. J Pediatri Psychol 2003;28:233–41
   PubMed Web of Science ®Google Scholar
• Barf H, Post M, Verhoef M, et al. Life satisfaction of young adults with spina bifida. Dev Med Child Neurol 2007;48:458–65
   Google Scholar
• Patrick D, Kinne S, Engleberg R, Pearlman R. Functional status and perceived quality of life in adults with and without chronic conditions. J Clin Epidemiol 2000;53:779–85
   PubMed Web of Science ®Google Scholar
• Schalock R, Bonham G, Marchand C. Consumer-based quality of life assessment: a path model of perceived satisfaction. Eva Program Plann 2000;23:77–87
   Web of Science ®Google Scholar
• Stuifbergen A, Seraphine A, Roberts G. An explanatory model of health promotion and quality of life in chronic disabling conditions. Nurs Res 2000;49:122–9
   PubMed Web of Science ®Google Scholar
• Bijleveld C, van der Kamp L, Mooijaart A, et al. Longitudinal data analysis: designs, models, and methods. London: Sage Publications; 1998
   Google Scholar
• Stein R, Jessop D. Relationship between health status and psychological adjustment among children with chronic conditions. Pediatrics 1985;73:169–74
   Web of Science ®Google Scholar
• Huebner E. Initial development of the Student’s Life Satisfaction Scale. School Psychol Int 1991;12:231–40
   Google Scholar
• Proctor C, Linley P, Maltby J. Youth life satisfaction measures: a review. J Posit Psychol 2009;4:128–44
   Web of Science ®Google Scholar
• McDougall J, Wright V, Nichols M, Miller L. Assessing the psychometric properties of both a global and a domain-specific perceived quality of life measure when used with youth who have chronic conditions. Soc Indic Res 2013;114:1243–57
   Google Scholar
• Chong J, Mackey A, Broadbent E, Stott S. Children’s perceptions of their cerebral palsy and their impact on life satisfaction. Disabil Rehabil 2012;34:2053–60
   PubMed Web of Science ®Google Scholar
• Funk III B, Huebner S, Valois R. Reliability and validity of a brief life satisfaction scale with a high school sample. J Happiness Stud 2006;7:41–54
   Google Scholar
• Bedell G. Further validation of the Child and Adolescent Scale of Participation (CASP). Dev Neurorehab 2009;12:342–51
   PubMed Web of Science ®Google Scholar
• Goodman R. The strengths and difficulties questionnaire: a research note. J Child Psychol and Psychiatr 1997;35:1483–94
   Web of Science ®Google Scholar
• La Greca A, Stone W. Social anxiety scale for children – revised: factor structure and concurrent validity. J Clin Child Psychol 1993;22:17–27
   Web of Science ®Google Scholar
• Wehmeyer M, Kelchner K. The Arc’s Self-Determination Scale: adolescent version. Arlington (TX): The Arc of the United States; 1995
   Google Scholar
• Seidlitz L, Abernathy A, Duberstein P, et al. Development of the Spirituality Index. J Sci Study Relig 2002;41:439–53
   Web of Science ®Google Scholar
• World Health Organization. The Health Behavior of School Aged Children Survey; 2005/2006. Geneva, Switzerland: World Health Organization; 2006
   Google Scholar
• Statistics Canada. National Longitudinal Survey of Children and Youth: Survey instruments for 1994–95. Cat. No. 95-01. Ottawa, ON: Statistics Canada/Human Resources Development Canada; 1998
   Google Scholar
• Dubow E, Ullman D. Assessing social support in elementary school children: the survey of children’s support. J Clin Child Psychol 1989;18:52–64
   Web of Science ®Google Scholar
• Bedell G. Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabil 2004;19:191–205
   PubMed Web of Science ®Google Scholar
• Koren P, DeChillio N, Frieson B. Measuring empowerment in families whose children have emotional disabilities: a brief questionnaire. Rehabil Psychol 1992;37:305–21
   Web of Science ®Google Scholar
• McDougall J, Tsonis T. Quality of life in survivors of childhood cancer: a systematic review of the literature (2001–2008). Support Care Cancer 2009;17:1231–46
   PubMed Web of Science ®Google Scholar
• Dormann C, Elith J, Bacher S, et al. Collinearity: a review of methods to deal with it and a simulation study evaluating their performance. Ecography 2012;35:1–20
   Web of Science ®Google Scholar
• Muthén L, Muthén B. Mplus user’s guide. 6th ed. Los Angeles (CA): Muthén & Muthén; 2010
   Google Scholar
• Breau L. A new reminder that pain hurts. Dev Med Child Neurol 2011;53:971–8
   PubMed Web of Science ®Google Scholar
• Baxter P. Comorbidities of cerebral palsy need more emphasis – especially pain. Dev Med Child Neurol 2013;55:396
   Google Scholar
• Colver A. Why are children with cerebral palsy more likely to have emotional problems and behavioural difficulties? Dev Med Child Neurol 2010;52:980–7
   PubMed Web of Science ®Google Scholar
• Petrenchik T, King G, Batorowicz B. Children and youth with disabilities: enhancing mental health through positive experiences of doing and belonging. In: Bazyk S, ed. Mental health promotion, prevention, and intervention in children and youth: a guiding framework for occupational therapy. Bethesda (MD): The American Occupational Therapy Association; 2011:189–205
   Google Scholar
• Baldwin P, McDougall J, Evans J. An exploration of spirituality, spiritual beliefs and paediatric rehabilitation. Spirit Heath Int 2008;9:249–62
   Google Scholar
• Rosenbaum P. Family and quality of life: key elements in intervention in children with cerebral palsy. Dev Med Child Neurol 2011;53:68–70
   PubMed Web of Science ®Google Scholar
• McDougall J, Wright V. The ICF-CY and Goal Attainment Scaling: the benefits of their combined use in pediatric rehabilitation practice. Disabil Rehabil 2009;3:1362–72
   Web of Science ®Google Scholar
• Korenblum C, Vandermorris A, Thompson G, Kaufman M. It is time to make the grade: Reaching Canadian youth through school-based health centres. Paediatr Child Health 2013;13:235–6
   Google Scholar
• Rosenbaum P. The randomized controlled trial: an excellent design, but can it address the big questions in neurodisability? Dev Med Child Neurol 2010;52:111
   PubMed Web of Science ®Google Scholar