Family members’ needs and experiences of driving disruption due to health conditions or ageing

References

• Gardezi F, Wilson KG, Man-Son-Hing M, et al. Qualitative research on older drivers. Clin Gerontol 2006;30:5–22
   Google Scholar
• Australian Bureau of Statistics. Motor vehicle census; 2013. Available from: http://www.ausstats.abs.gov.au/Ausstats/subscriber.nsf/0/268932501A477446CA257BB00011A2FF/$File/93090_31%20jan%202013.pdf [last accessed 3 Jan 2014]
   Google Scholar
• Buys L, Snow S, van Megen K, Miller E. Transportation behaviours of older adults: an investigation into car dependency in urban Australia. Australas J Ageing 2012;31:181–6
   PubMed Web of Science ®Google Scholar
• Finestone HM, Guo M, O'Hara P, et al. Driving and reintegration into the community in patients after stroke. PM&R 2010;2:497–503
   Web of Science ®Google Scholar
• Rapport LJ, Bryer RC, Hanks RA. Driving and community integration after traumatic brain injury. Arch Phys Med Rehabil 2008;89:922–30
   PubMed Web of Science ®Google Scholar
• Whitehead BJ, Howie L, Lovell RK. Older people's experience of driver licence cancellation: a phenomenological study. Aust Occup Ther J 2006;53:173–80
   Google Scholar
• Austroads. Assessing fitness to drive. 4th ed. Sydney, Australia: Austroads; 2012 . Available from: https://doi.org/https://www.onlinepublications.austroads.com.au/items/AP-G56-13 [last accessed 3 Jan 2014]
   Google Scholar
• Bivona U, D'Ippolito M, Giustini M, et al. Return to driving after severe traumatic brain injury: increased risk of traffic accidents and personal responsibility. J Head Trauma Rehabil 2012;27:210–15
   PubMed Web of Science ®Google Scholar
• Kowalski K, Love J, Tuokko H, et al. The influence of cognitive impairment with no dementia on driving restriction and cessation in older adults. Accident Anal Prev 2012;49:308–15
   PubMed Web of Science ®Google Scholar
• Rapport LJ, Hanks RA, Bryer RC. Barriers to driving and community integration after traumatic brain injury. J Head Trauma Rehabil 2006;21:34–44
   PubMed Web of Science ®Google Scholar
• Mezuk B, Rebok GW. Social integration and social support among older adults following driving cessation. J Gerontol 2008;63B:S298–303
   Google Scholar
• Liddle J, Gustafsson L, Bartlett H, McKenna K. Time use, role participation and life satisfaction of older people: impact of driving status. Aust Occup Ther J 2012;59:384–92
   PubMed Web of Science ®Google Scholar
• Ragland DR, Satariano WA, MacLeod KE. Driving cessation and increased depressive symptoms. J Gerontol 2005;60A:399–40
   Google Scholar
• Turner BJ, Ownsworth T, Cornwell P, Fleming J. Reengagement in meaningful occupations during the transition from hospital to home for people with acquired brain injury and their family caregivers. Am J Occup Ther 2009;63:609–20
   PubMed Web of Science ®Google Scholar
• Liddle J, Fleming J, McKenna K, et al. Adjustment to loss of the driving role following traumatic brain injury: a qualitative exploration with key stakeholders. Aust Occup Ther J 2012;59:79–88
   PubMed Web of Science ®Google Scholar
• Marottoli RA, Mendes CF, Glass TA, et al. Driving cessation and increased depressive symptoms: prospective evidence from the New Haven EPESE. J Am Geriatr Soc 1997;45:202–6
   PubMed Web of Science ®Google Scholar
• Talley RC, Crews JE. Framing the public health of caregiving. Am J Public Health 2007;97:224–8
   PubMed Web of Science ®Google Scholar
• Backstrom B, Sundin K. The meaning of being a middle-aged close relative of a person who has suffered a stroke, 1 month after discharge from a rehabilitation clinic. Nurs Inquiry 2007;14:243–54
   PubMed Web of Science ®Google Scholar
• Jumisko E, Lexell J, Söderberg S. Living with moderate or severe traumatic brain injury: the meaning of family members' experiences. J Family Nurs 2007;13:353–69
   PubMed Web of Science ®Google Scholar
• Moghimi C. Issues in caregiving: the role of occupational therapy in caregiver training. Top Geriatr Rehabil 2007;23:269–79
   Web of Science ®Google Scholar
• Turner BJ, Fleming J, Parry J, et al. Caregivers of adults with traumatic brain injury: the emotional impact of transition from hospital to home. Brain Impairment 2010;11:281–92
   Web of Science ®Google Scholar
• Chumbler NR, Rittman M, VanPuymbroeck M, et al. The sense of coherence, burden, and depressive symptoms in informal caregivers during the first month after stroke. Int J Geriatr Psychiat 2004;19:944–53
   PubMed Web of Science ®Google Scholar
• Braine ME. The experience of living with a family member with challenging behavior post acquired brain injury. J Neurosci Nurs 2011;43:156–64
   PubMed Web of Science ®Google Scholar
• Nalder E, Fleming J, Cornwell P, Foster M. Linked lives: the experiences of family caregivers during the transition from hospital to home following traumatic brain injury. Brain Impairment 2012;13:108–22
   Web of Science ®Google Scholar
• Gaugler JE. The longitudinal ramifications of stroke caregiving: a systematic review. Rehabil Psychol 2010;55:108–25
   PubMed Web of Science ®Google Scholar
• Livingston LA, Kennedy RE, Marwitz JH, et al. Predictors of family caregivers' life satisfaction after traumatic brain injury at one and two years post-injury: a longitudinal multi-center investigation. NeuroRehabilitation 2010;27:73–81
   PubMed Web of Science ®Google Scholar
• Truzzi A, Valente L, Ulstein I, et al. Burnout in familial caregivers of patients with dementia. Rev Bras Psiquiatr 2012;34:405–12
   PubMed Web of Science ®Google Scholar
• Weiss P, Hadas-Lidor N, Sachs D. Family caregivers' participation in recovery: communicating cognition based on dynamic cognitive intervention. In: Katz N, ed. Cognition, occupation, and participation across the life span. 3rd ed. Bethesda (MD): The American Occupational Therapy Association, Inc.; 2011:71–92
   Google Scholar
• Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 1990;30:583–94
   PubMed Web of Science ®Google Scholar
• Aberg A, Sidenwall B, Hepworth M, et al. Continuity of self in later life: perceptions of informal caregivers. Qual Health Res 2004;14:792–895
   PubMed Web of Science ®Google Scholar
• Elder GHJ, Giele JZ. The craft of life course research. New York: Guilford Publications; 2009
   Google Scholar
• Macmillan R, Copher R. Families in the life course: interdependency of roles, role configurations, and pathways. J Marriage Fam 2005;67:858–79
   Web of Science ®Google Scholar
• Lefebvre H, Levert M-J. The close relatives of people who have had a traumatic brain injury and their special needs. Brain Inj 2012;26:1084–97
   PubMed Web of Science ®Google Scholar
• Elliott TR, Shewchuk RM, Richards JS. Family caregiver social problem-solving abilities and adjustment during the inital year of the caregiving role. J Couns Psychol 2001;48:223–32
   Web of Science ®Google Scholar
• Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Social Res Meth 2005;8:19–32
   Google Scholar
• Colquhoun HL, Letts LJ, Law MC, et al. A scoping review of the use of theory in studies of knowledge translation. Can J Occup Ther 2010;77:270–9
   PubMed Web of Science ®Google Scholar
• Grant MJ, Booth A. A typology of reviews: an analysis of 14 review types and associated methodologies. Health Inform Libraries J 2009;26:91–108
   PubMed Web of Science ®Google Scholar
• McKinstry C, Brown T, Gustafsson L. Scoping reviews in occupational therapy: the what, why, and how to. Aust Occup Ther J 2014;61:58–66
   PubMed Web of Science ®Google Scholar
• Patton MQ. Qualitative research & evaluation methods. Thousand Oaks (CA): Sage Publications; 2002
   Google Scholar
• Lezak MD. Brain damage is a family affair. J Clin Exp Neuropsyc 1988;10:111–23
   PubMed Web of Science ®Google Scholar
• Adler G, Rottunda S, Kuskowski M. Dementia and driving: perceptions and changing habits. Clin Gerontol 1999;20:23–34
   Google Scholar
• Johnson JE. Older rural adults and the decision to stop driving: the influence of family and friends. J Commun Health Nurs 1998;15:205–16
   PubMedGoogle Scholar
• Rees J, Bayer A, Phillips G. Assessment and management of the dementing driver. J Mental Health 1995;4:165–76
   Google Scholar
• Connell CM, Harmon A, Janevic MR, Kostyniuk LP. Older adults’ driving reduction and cessation: perspectives of adult children. J Appl Gerontol 2013;32:975–96
   PubMed Web of Science ®Google Scholar
• Hebert K, Martin-Cook K, Svetlik DA, Weiner MF. Caregiver decision making and driving – what we say versus what we do. Clin Gerontol 2002;26:17–29
   Google Scholar
• Adler G, Rottunda S, Rasmussen K, Kuskowski M. Caregivers dependent upon drivers with dementia. J Clin Geropsychol 2000;6:83–90
   Google Scholar
• D'Ambrosio LA, Coughlin JF, Mohyde M, et al. Caregiver communications and the transition from driver to passenger among people with dementia. Top Geriatr Rehabil 2009;25:33–42
   Web of Science ®Google Scholar
• Byszewski AM, Molnar FJ, Aminzadeh F. The impact of disclosure of unfitness to drive in persons with newly diagnosed dementia: patient and caregiver perspectives. Clin Gerontol 2010;33:152–63
   Web of Science ®Google Scholar
• Seiler S, Schmidt H, Lechner A, et al. Driving cessation and dementia: results of the Prospective Registry on Dementia in Austria (PRODEM). PLoS ONE 2012;7:e52710
   PubMed Web of Science ®Google Scholar
• Taylor BD, Tripodes S. The effects of driving cessation on the elderly with dementia and their caregivers. Accident Anal Prev 2001;33:519–28
   PubMed Web of Science ®Google Scholar
• Jett K, Tappen RM, Rosselli M. Imposed versus involved: different strategies to effect driving cessation in cognitively impaired older adults. Geriatr Nurs 2005;26:111–16
   PubMed Web of Science ®Google Scholar
• Croston J, Meuser TM, Berg-Weger M, et al. Driving retirement in older adults with dementia. Top Geriatr Rehabil 2009;25:154–62
   PubMed Web of Science ®Google Scholar
• Mason A, Wilkinson H. Whose hands are on the wheel? Experiences of giving up driving. J Dementia Care 2001;9:33–6
   Google Scholar
• Liddle J, Turpin M, Carlson G, McKenna K. The needs and experiences related to driving cessation for older people. Br J Occup Ther 2008;71:379–88
   Google Scholar
• Ralston LS, Bell SL, Mote JK, et al. Giving up the car keys. Phys Occup Ther Geriatr 2001;19:59–70
   Google Scholar
• Kim J, Pekmezaris R, Nouryan C, et al. Octogenarian and nonagenarian drivers: should we take away their keys? J Am Geriatr Soc 2011;59:S60
   Web of Science ®Google Scholar
• Majid M, Arif N, Akerman M, et al. Driving habits of seniors over 80 and the perceptions of their relatives: when and how should they stop? J Am Geriatr Soc 2012;60:S239
   Web of Science ®Google Scholar
• Kostyniuk LP, Connell CM, Robling DK. Driving reduction and cessation: transitioning to not driving Ann Arbor University of Michigan Transportation Research Institute; 2009. Report nr M-CASTL 2009-02
   Google Scholar
• Sterns H, Sterns R, Aizeberg R, Anapole J. Family and friends concerned about an older driver. Washington: Office of Research and Traffic Records; 2001. Report nr DOT HS 809 307
   Google Scholar
• Griffen JA, Rapport LJ, Bryer RC, Scott CA. Driving status and community integration after stroke. Top Stroke Rehabil 2009;16:212–21
   PubMed Web of Science ®Google Scholar
• Liddle J, Fleming J, McKenna K, et al. Driving and driving cessation after traumatic brain injury: processes and key times of need. Disabil Rehabil 2011;33:2574–86
   PubMed Web of Science ®Google Scholar
• Adler G. Driving decision-making in older adults with dementia. Dementia 2010;9:45–60
   Google Scholar
• Liddle J, Bennett S, Allen S, et al. The stages of driving cessation for people with dementia: needs and challenges. Int Psychogeriatr 2013;25:2033–46
   PubMed Web of Science ®Google Scholar
• Perkinson MA, Berg-Weger ML, Carr DB, et al. Driving and dementia of the Alzheimer type: beliefs and cessation strategies among stakeholders. Gerontologist 2005;45:676–85
   PubMed Web of Science ®Google Scholar
• Mizuno Y, Arai A, Arai Y. Determination of driving cessation for older adults with dementia in Japan. Int J Geriatr Psychiatry 2008;23:987–9
   PubMed Web of Science ®Google Scholar
• Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980;20:649–55
   PubMed Web of Science ®Google Scholar
• Gustafsson L, Liddle J, Liang P, et al. A driving cessation program to identify and improve transport and lifestyle issues of older retired and retiring drivers. Int Psychogeriatr 2012;24:794–802
   PubMed Web of Science ®Google Scholar
• Novack TA, Labbe D, Grote M, et al. Return to driving within 5 years of moderate–severe traumatic brain injury. Brain Inj 2010;24:464–71
   PubMed Web of Science ®Google Scholar
• Coco K, Tossavainen K, Jaaskelainen JE, Turunen H. Support for traumatic brain injury patients' family members in neurosurgical nursing: a systematic review. J Neurosci Nurs 2011;43:337–48
   PubMed Web of Science ®Google Scholar
• Duggleby W, Holtslander L, Kylma J, et al. Metasynthesis of the hope experience of family caregivers of persons with chronic illness. Qual Health Res 2010;20:148–58
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Rapport LJ, Marwitz JH, et al. Caregivers' well-being after traumatic brain injury: a multicenter prospective investigation. Arch Phys Med Rehabil 2009;90:939–46
   PubMed Web of Science ®Google Scholar
• Schonberger M, Ponsford J, Olver J, Ponsford M. A longitudinal study of family functioning after TBI and relatives' emotional status. Neuropsychol Rehabil 2010;20:813–29
   PubMed Web of Science ®Google Scholar
• Engstrom A, Soderberg S. Transition as experienced by close relatives of people with traumatic brain injury. J Neurosci Nurs 2011;43:253–60
   PubMed Web of Science ®Google Scholar
• Funk LM. Prioritizing parental autonomy: adult children's accounts of feeling responsible and supporting aging parents. J Aging Stud 2010;24:57–64
   Web of Science ®Google Scholar
• Wittenberg E, Saada A, Prosser L. How illness affects family members: a qualitative interview survey. Patient – Patient-Centered Outcomes Res 2013;6:257–68
   Web of Science ®Google Scholar
• Adler G, Rottunda S. Older adults' perspectives on driving cessation. J Aging Stud 2006;20:227–35
   Web of Science ®Google Scholar
• Lundqvist A, Alinder J. Driving after brain injury: self-awareness and coping at the tactical level of control. Brain Inj 2007;21:1109–17
   PubMed Web of Science ®Google Scholar
• Liddle J, Turpin M, McKenna K, et al. The experiences and needs of people who cease driving after stroke. Brain Impairment 2009;10:271–81
   Web of Science ®Google Scholar
• Kerschner HK. Transportation transitions and older adults. Top Geriatr Rehabil Top Geriatr Rehabil 2009;25:173–8
   Web of Science ®Google Scholar
• Connolly D, Dowd T. The impact of the different disabilities arising from head injury on the primary caregiver. Br J Occup Ther 2001;64:41–6
   Google Scholar
• Ponsford J, Olver J, Ponsford M, Nelms R. Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Inj 2003;17:453–68
   PubMed Web of Science ®Google Scholar
• Anderson MI, Simpson GK, Morey PJ. The impact of neurobehavioral impairment on family functioning and the psychological well-being of male versus female caregivers of relatives with severe traumatic brain injury: multigroup analysis. J Head Trauma Rehabil 2013;28:453–63
   PubMed Web of Science ®Google Scholar
• Turner BJ, Fleming JM, Ownsworth TL, Cornwell PL. The transition from hospital to home for individuals with acquired brain injury: a literature review and research recommendations. Disabil Rehabil 2008;30:1153–76
   PubMed Web of Science ®Google Scholar
• Kostyniuk LP, Molnar LJ, Eby DW. Safe mobility of older drivers: concerns expressed by adult children. Top Geriatr Rehabil 2009;25:24–32
   Web of Science ®Google Scholar
• Andren S, Elmstahl S. Family caregivers' subjective experiences of satisfaction in dementia care: aspects of burden, subjective health and sense of coherence. Scand J Caring Sci 2005;19:157–68
   PubMed Web of Science ®Google Scholar
• McCabe P, Lippert C, Weiser M, et al. Community reintegration following acquired brain injury. Brain Inj 2007;21:231–57
   PubMed Web of Science ®Google Scholar
• Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: a review of the literature. J Clin Nurs 2005;14:1004–12
   PubMed Web of Science ®Google Scholar
• Betz ME, Jones J, Petroff E, Schwartz R. “I wish we could normalize driving health:” a qualitative study of clinician discussions with older drivers. J Gen Intern Med 2013;28:1573–80
   PubMed Web of Science ®Google Scholar
• Adler G, Rottunda S. The driver with dementia: a survey of physician attitudes, knowledge, and practice. Am J Alzheimer's Dis Other Demen 2011;26:58–64
   PubMed Web of Science ®Google Scholar
• Marshall SC, Demmings EM, Woolnough A, et al. Determining fitness to drive in older persons: a survey of medical and surgical specialists. Canad Geriatr J 2012;15:101–19
   PubMedGoogle Scholar