Advanced search
Publication Cover
Disability and Rehabilitation Volume 38, 2016 - Issue 5
Submit an article Journal homepage
508
Views
9
CrossRef citations to date
0
Altmetric
Rehabilitation in Practice

Bridging the gap: the role of Physiatrists in caring for adults with cerebral palsy

Caitlin CassidyDepartment of Physical Medicine and Rehabilitation, Western University, London, ON, Canada, ;Parkwood Institute, St Joseph’s Health Care London, London, ON, Canada, and Correspondence[email protected]
,
Nerissa CampbellLawson Health Research Institute, St Joseph’s Health Care London, London, ON, Canada
,
Mona MadadyLawson Health Research Institute, St Joseph’s Health Care London, London, ON, Canada
&
Michael PayneDepartment of Physical Medicine and Rehabilitation, Western University, London, ON, Canada, ;Parkwood Institute, St Joseph’s Health Care London, London, ON, Canada, and
Pages 493-498 | Received 05 Aug 2014, Accepted 20 Apr 2015, Published online: 13 May 2015

References

  • Shevell M, Dagenais L, Oskoui M. The epidemiology of cerebral palsy: new perspectives from a Canadian registry. Semin Pediatr Neurol 2012;20:60–4
  • Young NL, Gilbert TK, McCormick A, et al. Youth and young adults with cerebral palsy: their use of physician and hospital services. Arch Phys Med Rehabil 2007;88:696–702
  • Strauss D, Brooks J, Rosenbloom L, Shavelle R. Life expectancy in cerebral palsy: an update. Dev Med Child Neurol 2008;50:487–93
  • Rapp CE, Margarita M. The adult with cerebral palsy. Arch Fam Med 2000;9:466–72
  • Hutton JL, Cooke T, Pharoah POD. Life expectancy in children with cerebral palsy. BMJ 1994;309:431–5
  • MacCharles T. [Internet]. Services for children and youth with special needs in Ontario, and their families: opportunities for improving their experiences and outcomes. Advice to Minister Piruzza, Minister of Children and Youth Services from the Honourable Tracy MacCharles, Minister of Consumer Services, former Parliamentary Assistant to the Minister of Children and Youth Services. Ontario: Ministry of Children and Youth Services; 2013. Available from: http://www.children.gov.on.ca/htdocs/English/documents/topics/specialneeds/PAreport.pdf [last accessed 13 Nov 2013]
  • Binks JA, Barden WS, Burke TA, Young NL. What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 2007;88:1064–73
  • Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics 2005;115:112–20
  • Reiss J, Gibson R. Health care transition: destinations unknown. Pediatrics 2002;110:1307–14
  • Lariviere-Bastien D, Bell E, Majnemer A, et al. Perspectives of young adults with cerebral palsy on transitioning from pediatric to adult healthcare systems. Semin Pediatr Neurol 2013;20:154–9
  • Klingbeil H, Baer H, Wilson PE. Aging with a disability. Arch Phys Med Rehabil 2004;85:S68–73
  • Lotstein DS, Inkelas M, Hays RD, et al. Access to care for youth with special health care needs in the transition to adulthood. J Adolesc Health 2008;43:23–9
  • Krakovsky G, Martz Huth M, Lin L, Levin RS. Functional changes in children, adolescents, and young adults with cerebral palsy. Res Dev Disabil 2007;28:331–40
  • Andersson C, Mattsson E. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol 2001;43:76–82
  • Opheim A, Jahnsen R, Olsson E, Stanghelle JK. Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Dev Med Child Neurol 2009;51:381–8
  • Bottos M, Feliciangeli A, Sciuto L, et al. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 2001;43:516–28
  • Liptak GS. Health and well being of adults with cerebral palsy. Curr Opin Neurol 2008;21:136–42
  • Young NL, Steele C, Fehlings D, et al. Use of health care among adults with chronic and complex physical disabilities of childhood. Disabil Rehabil 2005;27:1455–60
  • Stevenson CJ, Pharoah POD, Stevenson R. Cerebral palsy – the transition from youth to adulthood. Dev Med Child Neurol 1997;39:336–42
  • Pinzon J, Kaufman M. Canadian paediatric society position statement: transition to adult care for youth with special health care needs. Paediatr Child Health 2007;12:785–8
  • Oskoui M. Growing up with cerebral palsy: contemporary challenges of healthcare transition. Can J Neurol Sci 2012;39:23–5
  • Oskoui M, Wolfson C. Current practice and views of neurologists on the transition from pediatric to adult health care. J Child Neurol 2012;27:1553–8
  • Watson R, Parr JR, Joyce C, et al. Models of transitional care for young people with complex health needs: a scoping review. Child Care Health Dev 2011;37:780–91
  • AAPM&R. [Internet]. What is a physiatrist? American Academy of Physical Medicine and Rehabilitation. Available from: http://www.aapmr.org/patients/aboutpmr/Pages/physiatrist.aspx [last accessed 7 Jan 2014]
  • Canadian Medical Association. [Internet]. Physical medicine and rehabilitation profile. 2013. Available from: https://www.cma.ca/Assets/assets-library/document/en/advocacy/Physical-Med-Rehab-e.pdf [last accessed 8 Apr 2015]
  • Beatty PW, Hagglund KJ, Neri MT, et al. Access to healthcare services among people with chronic or disabling conditions: patterns and predictors. Arch Phys Med Rehabil 2003;84:1417–25
  • O’Connell B, Bailey S, Pearce J. Straddling the pathway from paediatrician to mainstream health care: transition issues experienced in disability care. Aust J Rural Health 2003;11:57–63

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.