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Research Paper

Assessment of breast cancer disability: agreement between expert assessment and patient reports

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Pages 798-808 | Received 06 Oct 2015, Accepted 01 Mar 2016, Published online: 21 Apr 2016

References

  • Hayes SC, Johansson K, Stout NL, et al. Upper-body morbidity after breast cancer. Incidence and evidence for evaluation, prevention, and management within a prospective surveillance model of care. Cancer. 2012;118:2237–2249.
  • Kärki A, Simonen R, Mälkiä E, et al. Impairments, activity limitations and participation restriction 6 and 12 months after breast cancer operation. J Rehabil Med. 2005;37:180–188.
  • Mandelblatt J, Armetta C, Yabroff KR, et al. Descriptive review of the literature on breast cancer outcomes: 1990 through 2000. J Natl Cancer Inst Monogr. 2004;33:8–44.
  • Hayes SC, Rye S, Battistutta D, et al. Upper-body morbidity following breast cancer treatment is common, may persist longer-term and adversely influences quality of life. Health Qual Life Outcomes. 2010;8:92.
  • Montazeri A. Health-related quality of life in breast cancer patients: a bibliographic review of the literature from 1974 to 2007. J Exp Clin Cancer Res. 2008;27:32–31.
  • Ness KK, Wall MM, Oakes JM, et al. Physical performance limitations and participation restrictions among cancer survivors: a population-based study. Ann Epidemiol. 2006;16:197–205.
  • Giardini A, Pisoni C, Giorgi I, et al. ICF, quality of life, and depression in breast cancer: perceived disability in disease-free women 6 months after mastectomy. Support Care Cancer. 2013;21:2453–2460.
  • World Health Organization. Whoqol User Manual: Programme on Mental Health. World Health Organization; 1998.
  • Food and Drug Administration. Guidance for industry on patient-reported outcomes measures: use in medical product development to support labeling claims. Federal Registration. 2009;74:65132–65133.
  • Velentgas P, Dreyer NA, Wu AW. Outcome definition and measurement. Developing a protocol for observational comparative effectiveness research, A user's guide. Agency for Healthcare Research and Quality (US). 2013;Chapter 6:71–92.
  • Kuspinar A, Mayo NE. Do generic utility measures capture what is important to the quality of life of people with multiple sclerosis. Health Qual Life Outcomes. 2013;11:71–80.
  • Calvert M, Blazeby J, Altman DG, et al. Reporting of patient-reported outcomes in randomized trials. The CONSORT PRO extension patient reported outcomes in randomized trials. JAMA. 2013;309:814–822.
  • Quinten C, Maringwa J, Gotay CC, et al. Patient self-reports of symptoms and clinician ratings as predictors of overall cancer survival. J Natl Cancer Inst. 2011;103:1851–1858.
  • Basch E, Bennett A, Pietanza MC. Use of patient-reported outcomes to improve the predictive accuracy of clinician-reported adverse events. J Natl Cancer Inst. 2011;103:1808–1810.
  • Basch E, Jia X, Heller G, et al. Adverse symptom event reporting by patients vs clinicians: relationships with clinical outcomes. J Natl Cancer Inst. 2009;101:1624–1632.
  • Fromme EK, Eilers KM, Mori M, et al. How accurate is clinician reporting of chemotherapy adverse effects? A comparison with patient-reported symptoms from the quality-of-life questionnaire C30. J Clin Oncol. 2004;22:3485–3490.
  • World Confederation for Physical Therapy. The International Classification of Functioning, Disability and Health. 2013. Available from: www.wcpt.org/icf.
  • Stucki G International classification of functioning, disability and health (ICF): a promising framework and classification for rehabilitation medicine. Am J Phys Med Rehabil. 2005;84:733–740.
  • Bickenbach J, Cieza A, Rauch A, et al. ICF core sets: manual for clinical practice for the ICF research branch, in cooperation with the WHO collaborating centre for the family of international classifications in Germany (DIMDI). Göttingen, Germany: Hogrefe Publishing; 2012.
  • Gilchrist LS, Galantino M, Wampler M, et al. A framework for assessment in oncology rehabilitation. Phys Ther. 2009;89:286–306.
  • Brach M, Cieza A, Stucki G, et al. ICF core sets for breast cancer. J Rehabil Med. 2004;121–127.
  • Mayo NE, Moriello C, Asano M, et al. The extent to which common health-related quality of life indices captures contructs beyond symptoms and function. Qual Life Res. 2011;20:621–627.
  • Üstün TB, Chatterji S, Kostanjsek N, et al. Developing the World Health Organization disability assessment schedule 2.0. Bull World Health Organ. 2010;88:815–823.
  • Letellier ME, Dawes D, Mayo N Content verification of the EORTC QLQ-C30/EORTC QLQ-BR23 with the international classification of functioning, disability and health. Qual Life Res. 2015;24:757–768.
  • Cieza A, Brockow T, Ewert T, et al. Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med. 2002;34:205–210.
  • Cieza A, Geyh S, Chatterji S, et al. ICF linking rules: an update based on lessons learned. J Rehabil Med. 2005;37:212–218.
  • Ware J, Gandek B Overview of the SF-36 health survey and the international quality of life assessment (IQOLA) project. J Clin Epidemiol. 1998;51:903–912.
  • McHorney CA, Ware JE, Raczek AE. The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care. 1993;31:247–263.
  • McHorney CA, Ware Jr, Lu R, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care. 1994;32:40–66.
  • Aaronson NK, Ahmedzai S, Bergman B, et al. The European organization for research and treatment of cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85:365–376.
  • Sprangers MAG, Groenvold M, Arraras JI, et al. The European organization for research and treatment of cancer breast cancer-specific quality-of-life questionnaire module: first results from a three-country field study. J Clin Oncol. 1996;14:2756–2768.
  • Federici S, Meloni F. WHODAS II: disability self-evaluation in the ICF conceptual frame. In: Stone JH, Blouin M, editors. International encyclopedia of rehabilitation. 2011; pp.1–22.
  • Pösl M, Cieza A, Stucki G. Psychometric properties of the WHODASII in rehabilitation patients. Qual Life Res. 2007;16:1521–1531.
  • The WHOQOL group. Measuring quality of life – The World Health Organization quality of life instruments (the WHOQOL-100 and the WHOQOL-Bref). 1997, 1–13.
  • Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;159–174.
  • Nascimento de Carvalho F, Bergmann A, Koifman RJ. Functionality in women with breast cancer: the use of International Classification of Functioning, Disability and Health (ICF) in clinical practice. J Phys Ther Sci. 2014;26:721–730.
  • Canadian Cancer Society. Canadian Cancer Statistics. Special topic: Skin cancer. Canadian Cancer Society, Statistics Canada, Public Health Agency of Canada, Provincial/Territorial Cancer Registries 2014. Canadian Cancer Society's Advisory Committee on Cancer Statistics. Toronto, ON: Canadian Cancer Society; 2014.
  • Rosenzveig A, Kuspinar A, Daskalopoulou SS, et al. Toward patient-centered care: a systematic review of how to ask questions that matter to patients. Medicine. 2014;93:e120.
  • Donner A. Sample size requirements for the comparison of two or more coefficients of inter-observer agreement. Stat Med. 1998;17:1157–1168.
  • Dabakuyo TS, Guillemin F, Conroy T, et al. Response shift effects on measuring post-operative quality of life among breast cancer patients: a multicenter cohort study. Qual Life Res. 2013;22:1–11.
  • Visser MR, Oort FJ, Lanschot JJ, et al. The role of recalibration response shift in explaining bodily pain in cancer patients undergoing invasive surgery: an empirical investigation of the Sprangers and Schwartz model. Psycho Oncol. 2013;22:515–522.
  • Glaessel A, Kirchberger I, Stucki G, et al. Does the comprehensive International Classification of Functioning, Disability and Health (ICF) core set for breast cancer capture the problems in functioning treated by physiotherapists in women with breast cancer? Physiotherapy. 2011;97:33–46.

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