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Harvard Review of Psychiatry Volume 19, 2011 - Issue 5
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CLINICAL CHALLENGEEditor: Emily R. Katz, MD

Managing Chronic Pain in a Young Adolescent Girl with Ehlers-Danlos Syndrome

Joceline A. BransonFrom the Disciplines of Paediatrics (Drs. Branson and Kozlowsksa) and Psychiatry (Dr. Kozlowska), University of Sydney Medical School; Departments of Paediatrics (Dr. Branson) and Psychological Medicine (Dr. Kozlowska), Children's Hospital at Westmead, Westmead, New South Wales, Australia; Harvard Medical School (Dr. Kaczynski); Department of Anesthesia, Perioperative, and Pain Medicine, Children's Hospital Boston, Boston, MA (Dr. Kaczynski); Department of Psychiatry and Human Behavior, Alpert Medical School of Brown University (Dr. Roesler); and Department of Psychiatry, Rhode Island Hospital, Providence, RI (Dr. Roesler).Correspondence[email protected]
, BMed, MRCPCH, MMedEd, FRACP,
Kasia KozlowskaFrom the Disciplines of Paediatrics (Drs. Branson and Kozlowsksa) and Psychiatry (Dr. Kozlowska), University of Sydney Medical School; Departments of Paediatrics (Dr. Branson) and Psychological Medicine (Dr. Kozlowska), Children's Hospital at Westmead, Westmead, New South Wales, Australia; Harvard Medical School (Dr. Kaczynski); Department of Anesthesia, Perioperative, and Pain Medicine, Children's Hospital Boston, Boston, MA (Dr. Kaczynski); Department of Psychiatry and Human Behavior, Alpert Medical School of Brown University (Dr. Roesler); and Department of Psychiatry, Rhode Island Hospital, Providence, RI (Dr. Roesler).
, MBBS, FRANZCP,
Karen J. KaczynskiFrom the Disciplines of Paediatrics (Drs. Branson and Kozlowsksa) and Psychiatry (Dr. Kozlowska), University of Sydney Medical School; Departments of Paediatrics (Dr. Branson) and Psychological Medicine (Dr. Kozlowska), Children's Hospital at Westmead, Westmead, New South Wales, Australia; Harvard Medical School (Dr. Kaczynski); Department of Anesthesia, Perioperative, and Pain Medicine, Children's Hospital Boston, Boston, MA (Dr. Kaczynski); Department of Psychiatry and Human Behavior, Alpert Medical School of Brown University (Dr. Roesler); and Department of Psychiatry, Rhode Island Hospital, Providence, RI (Dr. Roesler).
, PhD &
Thomas A. RoeslerFrom the Disciplines of Paediatrics (Drs. Branson and Kozlowsksa) and Psychiatry (Dr. Kozlowska), University of Sydney Medical School; Departments of Paediatrics (Dr. Branson) and Psychological Medicine (Dr. Kozlowska), Children's Hospital at Westmead, Westmead, New South Wales, Australia; Harvard Medical School (Dr. Kaczynski); Department of Anesthesia, Perioperative, and Pain Medicine, Children's Hospital Boston, Boston, MA (Dr. Kaczynski); Department of Psychiatry and Human Behavior, Alpert Medical School of Brown University (Dr. Roesler); and Department of Psychiatry, Rhode Island Hospital, Providence, RI (Dr. Roesler).
, MD
Pages 259-270 | Published online: 15 Sep 2011

REFERENCES

  • Rombaut L, Malfait F, De Wandele I, Medication, surgery, and physiotherapy among patients with the hypermobility type of Ehlers-Danlos Syndrome. Arch Psych Med Rehabil 2011;92:1106–12.
  • Voermans NC, Knoop H, Bleijenberg G, van Engelen BG. Pain in Ehlers-Danlos syndrome is common, severe, and associated with functional impairment. J Pain Symptom Manage 2010;40:370–8.
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  • Kozlowska K. A conceptual model and practice framework for managing chronic pain in children and adolescents. Harv Rev Psychiatry 2008;16:136–50.
  • Christie D, Wilson C. CBT in paediatric and adolescent health settings: a review of practice-based evidence. Pediatr Rehabil 2005;8:241–7.
  • Varni J, Blount R, Waldron S, Smith A. Management of pain and distress. In: Roberts MC, ed. Handbook of pediatric psychology. 2nd ed. New York: Guilford, 1995:105–23.
  • Kleinman A, Eisenberg L, Good B. Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research. Ann Intern Med 1978;88:251–8.
  • Mauksch L, Roesler T. Expanding the context of the patient's explanatory model using circular questioning. Fam Syst Med 1990;8:3–13.

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