Client-centred ADL intervention after stroke: Significant others’ experiences

References

• National guidelines for stroke care. National Board of Health and Welfare. 2011. Available from http://www.socialstyrelsen.se/nationellariktlinjerforstrokesjukvard. Last accessed 7 March 2013.
   Google Scholar
• Socialstyrelsen. Life situation two year after stroke. 2004. www.socialstyrelsen.se.
   Google Scholar
• Rigby H, Gubitz G, Phillips S. A systematic review of caregiver burden following a stroke. Int J Stroke 2009;4:285–92.
   PubMed Web of Science ®Google Scholar
• Rochette A, Desrosiers J, Bravo G, St-Cyr Tribble D, Bourget A. Changes in participation level after spouse´s first stroke and relationship to burden and depressive symptoms. Cerebrovasc Dis 2007;24:255–60.
   PubMed Web of Science ®Google Scholar
• Bergström A, Eriksson G, von Koch L, Tham K. Combined life satisfaction of persons with stroke and their caregivers: Associations with caregiver burden and the impact of stroke. Health Quality Life Outcomes 2011;9:1–10.
   PubMed Web of Science ®Google Scholar
• Carlsson G, Forsberg-Wärleby G, Möller A, Blomstrand C. Comparison of life satisfaction within couples one year after a partner´s stroke. J Rehabil Med 2007;39:219–24.
   PubMed Web of Science ®Google Scholar
• Greenwood N, Mackenzie A, Cloud G, Wilson N. Loss of autonomy, control and independence when caring: A qualitative study of informal carers of stroke survivors in the first three months after discharge. Disabil Rehabil 2010;32:125–33.
   PubMed Web of Science ®Google Scholar
• Quinn K, Murray C, Malone C. Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: A meta-synthesis of qualitative research. Disabil Rehabil 2014;36:185–98.
   PubMed Web of Science ®Google Scholar
• Poulin M, Brown S, Ubel P, Smith D, Jankovic A, Langa K. Does a helping hand mean a heavy heart? Helping behaviour and wellbeing among spouse caregivers. Psychol Aging 2010;25:108–17.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International Classification of functioning, disability and health (ICF). Geneva, Switzerland: Author; 2001. p 229.
   Google Scholar
• Eriksson G, Tham K, Borg J. Occupational gaps in everyday life one to four years after acquired brain injury. J Rehabil Med 2006;00:1–7.
   Google Scholar
• Law M. Participation in the occupations of everyday life. Am J Occup Ther 2002;56:640–9.
   PubMed Web of Science ®Google Scholar
• Kristensen H, Persson D, Nygren C, Boll M, Matzen P. Evaluation of evidence within occupational therapy in stroke rehabilitation. Scand J Occup Ther 2011;18:11–25.
   PubMed Web of Science ®Google Scholar
• Docteur E, Coulter A. Patient-centeredness in Sweden’s health system: An external assessment in six steps for progress. Stockholm, Sweden: Swedish Agency for Health and Care Services Analysis; 2012.
   Google Scholar
• American Occupational Therapy Association. Occupational therapy practice framework: Domain and process. Am J Occup Ther 2002;56:609–39.
   PubMed Web of Science ®Google Scholar
• Rogers CR. Client-centred therapy. Boston: Houghton Mifflin; 1951.
   Google Scholar
• Law S, Baptist S, Mills J. Client-centred practice: What does it mean and does it make a difference? CJOT 1995;62:250–7.
   Google Scholar
• Tham K, Borell L, Gustavsson A. The discovery of disability: A phenomenological study of unilateral neglect. Am J Occup Ther 2000;4:398–406.
   Google Scholar
• Guidetti S, Asaba E, Tham K. The lived experience of recapturing self-care. Am J Occup Ther 2007;61:303–10.
   PubMed Web of Science ®Google Scholar
• Erikson A, Karlsson G, Borell L, Tham K. The lived experience of memory impairment in daily occupation after acquired brain injury. OTJR: Occupation. Particip Health 2007;27:84–94.
   Web of Science ®Google Scholar
• Ellis G, Mant J, Langhorne P, Dennis M, Winner S. Stroke liaison workers for stroke patients and carers: An individual patient data meta-analysis. Cochrane Database Syst Rev 2010. 5):CD005066.
   Google Scholar
• Legg LA, Quinn TJ, Mahmood F, Weir CJ, Tierny J, Stott DJ. Non pharmological interventions for caregivers of stroke survivors. Cochrane Database Syst Rev 2011: 10;CD008179.
   Google Scholar
• Forster A, Brown L, Smith J, House A, Knapp P, Wright JJ, et al. Information provision for stroke patients and their caregivers. Cochrane Database Syst Rev 2012. 11:CD001919.
   Google Scholar
• Ekstam L, Tham K, Borell L. Couples approaches to changes in everyday life during the first year after stroke. Scand J Occup Ther 2011;18:49–58.
   PubMed Web of Science ®Google Scholar
• Cardol M, Jong B, Ward C. On autonomy and participation in rehabilitation. Disabil Rehabil 2002;24:970–4.
   PubMed Web of Science ®Google Scholar
• Lawlor MC, Mattingly C. Family perspectives on occupation, health, and disability. In Schell BA, Gillen G, Scaffa ME, editors. Willard & Spackman’s occupational therapy. 12th edition. Philadelphia, PA: Lippincott Williams & Wilkins; 2014. p 150–62.
   Google Scholar
• Bertilsson A, Ranner M, von Koch L, Eriksson G, Johansson U, Ytterberg C, et al. A client-centred ADL intervention: Three-month follow-up of a randomized controlled trial. Scand J Occup Ther 2014;21:377–91.
   PubMed Web of Science ®Google Scholar
• Guidetti S, Asaba E, Tham K. Meaning of context in recapturing self-care after stroke or spinal cord injury. Am J Occup Ther 2009;63:323–32.
   PubMed Web of Science ®Google Scholar
• Eriksson G, Tham K. The meaning of occupational gaps in the first year after stroke OTJR: Occupation. Participation Health 2010;30:184–92.
   Web of Science ®Google Scholar
• Merleau-Ponty M. Phenomenology of perception. London: Routledge; 2002.
   Google Scholar
• Charmaz K. Constructing grounded theory: A practical guide through qualitative analysis. London: Sage Publications; 2006.
   Google Scholar
• Glaser B, Strauss A. The discovery of grounded theory: Strategies for qualitative researchers. New York: Aldine de Gruyter; 1967.
   Google Scholar
• Kielhofner G. A Model of human occupation: Theory and application. 4th edition. Baltimore: Lippincott Williams & Wilkins; 2008.
   Google Scholar
• Bergström A, Eriksson G, Asaba E, Eriksson A, Tham K. Complex negotiations: The lived experience of enacting agency after a stroke. Scand J Occup Ther 2015;22:43–53.
   PubMed Web of Science ®Google Scholar
• Forsberg-Wärleby G, Möller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil 2004;18:430–7.
   PubMed Web of Science ®Google Scholar
• Cast A, Burke P. A theory of self-esteem*. Soc Forces 2002;80:1041–68.
   Web of Science ®Google Scholar
• Bäckström B, Sundin K. The experience of being a middle-aged close relative of a person who has suffered a stroke, 1 year after discharge from a rehabilitation clinic: a quality study. Int J Nurs Stud 2009;49:1475–84.
   Google Scholar
• Miettinen R. The concept of experiental learning and John Dewey´s theory of reflective thought and action. Int J Lifelong Educ 2000;19:54–72.
   Google Scholar
• Erikson A, Park M, Tham K. Belonging: A qualitative, longitudinal study of what matters for persons after stroke during one year of rehabilitation. J Rehabil Med 2010;42:831–8.
   PubMed Web of Science ®Google Scholar
• Sarason I, Sarason B. Social support: Mapping the construct. J Soc Pers Relationships 2009;26:113–20.
   Web of Science ®Google Scholar
• Cameron J, Cheung A, Streiner D, Coyete P, Stewert D. Stroke survivors behavioural and psychologic symptoms are associated with informal caregivers experiences of depression. Arch Phys Med Rehabil 2006;87:177–83.
   PubMed Web of Science ®Google Scholar
• Kvale S. The qualitative research interview. Sweden: Studentlitteratur Lund; 1997.
   Google Scholar