Diverging perspectives on children’s rehabilitation services: a mixed-methods study

References

• Bamm EL, Rosenbaum P. Family-centered theory: origins, development, barriers, and supports to implementation in rehabilitation medicine. Arch Phys Med Rehabil 2008;89: 1618–24.
   PubMed Web of Science ®Google Scholar
• Dempsey I, Keen D. A review of processes and outcomes in family-centered services for children with a disability. Topics for. Early Childhood Special Education 2008;28: 42–52.
   Web of Science ®Google Scholar
• An M, Palisano RJ. Family-professional collaboration in pediatric rehabilitation: a practice model. Disabil Rehabil 2014;36:434–40.
   PubMed Web of Science ®Google Scholar
• King G, Chiarello L. Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice. J Child Neurol 2014; 29: 1046–54.
   PubMed Web of Science ®Google Scholar
• Darrah J, Wiart L, Magill-Evans J, Ray L, Andersen J. Are family-centred principles, functional goal setting and transition planning evident in therapy services for children with cerebral palsy? Child Care Health Dev 2012;38:41–7.
   PubMed Web of Science ®Google Scholar
• Gibson BE, Darrah J, Cameron D, Hashemi G, Kingsnorth S, Lepage C, et al. Revisiting therapy assumptions in children’s rehabilitation: clinical and research implications. Disabil Rehabil 2009;31:1446–53.
   PubMed Web of Science ®Google Scholar
• Ahl LE, Johansson E, Granat T, Carlberg EB. Functional therapy for children with cerebral palsy: an ecological approach. Dev Med Child Neurol 2005;47:613–19.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Gorter JW. The F words in childhood disability: I swear this is the way we should think!. Child Care Health Dev 2012;38:457–63.
   PubMed Web of Science ®Google Scholar
• World Health Organization. The International Classification of Functioning, Disability and Health, Children and Youth Version: ICF-CY. Geneva: WHO; 2006.
   Google Scholar
• Bronfenbrenner U. The Ecology of Human Development: Experiments by Nature and Design. Cambridge: Harvard university press; 1979.
   Google Scholar
• World Health Organization. World Report on Disability. 2011.
   Google Scholar
• Ngui EM, Flores G. Satisfaction with care and ease of using health care services among parents of children with special health care needs: the roles of race/ethnicity, insurance, language, and adequacy of family-centered care. Pediatrics 2006;117:1184–96.
   PubMed Web of Science ®Google Scholar
• Dunst CJ, Trivette CM, Hamby DW. Meta-analysis of family-centered helpgiving practices research. Ment Retard Dev Disabil Res Rev 2007;13:370–8.
   PubMedGoogle Scholar
• King S, Rosenbaum P, King G. The Measure of Processes of Care: MPOC: A Means to Assess Family-Centred Behaviours of Health Care Providers. Kanada: CanChild, Centre for childhood disability research; 1995.
   Google Scholar
• King S, King G, Rosenbaum P. Evaluating health service delivery to children with chronic conditions and their families: development of a refined Measure of Processes of Care (MPOC-20). Children’s Health Care 2004;33:35–57.
   Web of Science ®Google Scholar
• Woodside JM, Rosenbaum PL, King SM, King GA. Family-centered service: developing and validating a self-assessment tool for pediatric service providers. Children’s Health Care 2001;30:237–52.
   Web of Science ®Google Scholar
• Siebes RC, Maassen GH, Wijnroks L, Ketelaar M, van Schie PE, Gorter JW, et al. Quality of paediatric rehabilitation from the parent perspective: validation of the short Measure of Processes of Care (MPOC-20) in the Netherlands. Clin Rehabil 2007;21:62–72.
   PubMed Web of Science ®Google Scholar
• Granat T, Lagander B, Börjesson MC. Parental participation in the habilitation process-evaluation from a user perspective. Child Care Health Dev 2002;28:459–68.
   PubMed Web of Science ®Google Scholar
• Jeglinsky I, Autti‐Rämö I, Brogren Carlberg E. Two sides of the mirror: parents’ and service providers’ view on the family-centredness of care for children with cerebral palsy. Child Care Health Dev 2012; 38:79–86.
   PubMed Web of Science ®Google Scholar
• Raghavendra P, Murchland S, Bentley M, Wake-Dyster W, Lyons T. Parents’ and service providers’ perceptions of family-centred practice in a community-based, paediatric disability service in Australia. Child Care Health Dev 2007;33:586–92.
   PubMed Web of Science ®Google Scholar
• Cunningham BJ, Rosenbaum PL. Measure of Processes of Care: a review of 20 years of research. Dev Med Child Neurol 2014;56:445–52.
   PubMed Web of Science ®Google Scholar
• Øien I, Fallang B, Østensjø S. Goal-setting in paediatric rehabilitation: Perceptions of parents and professionals. Child Care Health Dev 2010;36:558–65.
   PubMed Web of Science ®Google Scholar
• Creswell JW. Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. 3rd ed. California: Sage Publications; 2009.
   Google Scholar
• Kiresuk TJ, Sherman RE. Goal attainment scaling: A general method for evaluating comprehensive community mental health programs. Community Ment Health J 1968;4:443–53.
   PubMed Web of Science ®Google Scholar
• Stefánsdóttir S., Egilson, Er markmiðinu náð? Útkoma íhlutunar í endurhæfingu barna metin með Goal Attainment Scaling aðferðinni (Have we reached our goals? Intervention outcomes assessed with the Goal Attainment Scaling). Iðjuþjálfinn 2012;1:12–17.
   Google Scholar
• Arnadottir U, Egilson ST. Evaluation of therapy services with the Measure of Processes of Care (MPOC-20): The perspectives of Icelandic parents of children with physical disability. J Child Health Care 2012;16:62–74.
   PubMed Web of Science ®Google Scholar
• Vidarsdottir GS, Vilbergsdottir LD, Stefansdottir PS. Fjölskyldumiðuð þjónusta á Æfingastöðinni: mat fagfólks sem þar starfar (Family centred service at Æfingastöðin: Professional’s view). Unpublished BS-thesis. University of Akureyri 2010.
   Google Scholar
• Bogdan RC, Biklen SK. Qualitative Research for Education. 4th ed. Boston: Allyn & Bacon; 2003.
   Google Scholar
• Dyke P, Buttigieg P, Blackmore AM, Ghose A. Use of the Measure of Process of Care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child Care Health Dev 2006;32:167–76.
   PubMed Web of Science ®Google Scholar
• Saleh M, Almasri N. Use of the Measure of Processes of Care (MPOC‐20) to evaluate health service delivery for children with cerebral palsy and their families in Jordan: validation of Arabic‐translated version (AR‐MPOC‐20). Child Care Health Dev 2014;40:680–8.
   PubMed Web of Science ®Google Scholar
• Bjerre I, Larsson M, Franzon AM, Nilsson M, Strömberg G, Westbom L. Measure of Processes of Care (MPOC) applied to measure parent’s perception of the habilitation process in Sweden. Child Care Health Dev 2004;30:123–30.
   PubMed Web of Science ®Google Scholar
• McConachie H, Logan S. Validation of the measure of processes of care for use when there is no Child Development Centre. Child Care Health Dev 2003;29:35–45.
   PubMed Web of Science ®Google Scholar
• Egilson ST. Parent perspectives of therapy services for their children with physical disabilities. Scand J Caring Sci 2011;25:277–84.
   PubMed Web of Science ®Google Scholar
• Jeglinsky I, Brogren Carlberg E, Autti-Rämö I. How are actual needs recognized in the content and goals of written rehabilitation plans? Disabil Rehabil 2014;6:441–51.
   Web of Science ®Google Scholar
• Cooney BF. Exploring perspectives on transition of youth with disabilities: Voices of young adults, parents, and professionals. Ment Retard 2002;40:425–35.
   PubMedGoogle Scholar
• Antle B, Mills W, Steele C, Kalnins I, Rossen B. An exploratory study of parents’ approaches to health promotion in families of adolescents with physical disabilities. Child Care Health Dev 2008;34:185–93.
   PubMed Web of Science ®Google Scholar
• Saloojee GM, Rosenbaum PR, Westaway MS, Stewart AV. Development of a measure of family-centred care for resource-poor South African settings: the experience of using a modified version of the MPOC-20. Child Care Health Dev 2009;35:23–32.
   PubMed Web of Science ®Google Scholar
• Stewart D. Evidence to support a positive transition into adulthood for youth with disabilities. Phys Occup Ther Pediatr 2006;26:1–4.
   PubMedGoogle Scholar
• Hammell KW. Rethinking rehabilitations assumptions: Challenging „thinking-as-usual “and envisioning a relevant future. In McPherson K, Gibson EG, Leplege A, editors. Rethinking Rehabilitation: Theory and Practice. London: CRC Press; 2015. P 45–67.
   Google Scholar
• Gupta J, Taff SD. The illusion of client-centred practice. Scand J Occup Ther 2015;22:1–8.
   PubMed Web of Science ®Google Scholar
• Law M, Hanna S, King G, Hurley P, King S, Kertoy M, et al. Factors affecting family-centred service delivery for children with disabilities. Child Care Health Dev 2003;29:357–66.
   PubMed Web of Science ®Google Scholar
• Siebes RC, Wijnroks L, Ketelaar M, van Schie PEM, Vermeer A, Gorter JW. One-year stability of the Measure of Processes of Care. Child Care Health Dev 2007;33:604–10.
   PubMed Web of Science ®Google Scholar
• Sumsion T, Smyth G. Barriers to client-centredness and their resolution. Can J Occup Ther 2000;67:15–21.
   PubMedGoogle Scholar
• MacKean GL, Thurston WE, Scott CM. Bridging the divide between families and health professionals’ perspectives on family-centred care. Health Expectations 2005;8:74–85.
   PubMed Web of Science ®Google Scholar
• Franck L, Callery P. Re-thinking family-centred care across the continuum of children’s healthcare. Child Care Health Dev 2004;30:265–77.
   PubMed Web of Science ®Google Scholar
• Hammell KW. Client-centred practice in occupational therapy: critical reflections. Scand J Occup Ther 2013;20:174–81.
   PubMed Web of Science ®Google Scholar
• Egilson ST. User perspectives on support services to disabled children and their families. In Traustadóttir R, Ytterhus B, Egilson ST, Berg B, editors. Childhood and Disability in the Nordic Countries: Being, Becoming, Belonging. Basingstoke: Palgrave; 2015. P 231–46.
   Google Scholar