Caring for a daughter with intellectual disabilities in managing menstruation: A mother's perspective

References

• Ahern, E. M. (1975). The power and pollution of Chinese women. In Wolf M. & Witke R. (Eds.), Women in Chinese society (pp. 193–214). Stanford, CA: Stanford University Press.
   Google Scholar
• Anderson, D. J. (2002). Health, age, and gender: How do women with intellectual disabilities fare? Journal of Gerontological Social Work, 38, 137–160. doi:10.1300/J083v38n01_02
   Google Scholar
• Atkinson, E., Bennett, M. J., Dudley, J., Grover, S., Matthews, K., Moore, P.,… Walters, T. (2003). Consensus statement: Menstrual and contraceptive management in women with an intellectual disability. Australian and New Zealand Journal of Obstetrics and Gynaecology, 43, 109–110. doi:10.1046/j.0004-8666.2003.00046.x
   PubMed Web of Science ®Google Scholar
• Aunos, M., & Feldman, M. A. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 285–296. doi:10.1046/j.1468-3148.2002.00135.x
   Web of Science ®Google Scholar
• Brady, S. M. (2001). Sterilization of girls and women with intellectual disabilities: Past and present justifications. Violence Against Women, 7, 432–461. doi:10.1177/10778010122182541
   Web of Science ®Google Scholar
• Buckley, T., & Gottlieb, A. (1988). A critical appraisal of theories of menstrual symbolism. In Buckley T. & Gottlieb A. (Eds.), Blood magic: The anthropology of menstruation (pp. 3–50). Berkeley, CA: University of California Press.
   Google Scholar
• Carlson, G., & Wilson, J. (1994). Menstrual management: The mother's perspective. Mental Handicap Research, 7, 51–63. doi:10.1111/j.1468-3148.1994.tb00116.x
   Google Scholar
• Carlson, G., & Wilson, J. (1996). Menstrual management and women who have intellectual disabilities: Service providers and decision-making. Journal of Intellectual & Developmental Disability, 21, 39–57. doi:10.1080/13668259600033031
   Web of Science ®Google Scholar
• Cheng, J.-F., Lu, Z.-Y. J., Su, Y.-C., Chiang, L.-C., & Wang, R.-Y. (2008). A traditional Chinese herbal medicine used to treat dysmenorrhoea among Taiwanese women. Journal of Clinical Nursing, 17, 2588–2595. doi:10.1111/j.1365-2702.2008.02382.x
   PubMed Web of Science ®Google Scholar
• Cheng, P., & Tang, C. S. (1995). Coping and psychological distress of Chinese parents of children with Down's syndrome. Mental Retardation, 33, 10–20.
   PubMedGoogle Scholar
• Chiou, M. H., & Wang, H. H. (2004). The relationship between dysmenorrhea and menstrual attitudes among female students in vocational nursing schools. Journal of Nursing, 51, 45–52. [in Chinese]
   Google Scholar
• Chou, Y.-C., Fu, L.-Y., Lin, L.-C., & Lee, Y.-C. (2011). Predictors of subjective and objective caregiving burden in older female caregivers of adults with intellectual disabilities. International Psychogeriatrics, 23, 562–572. doi:10.1017/S1041610210001225
   PubMed Web of Science ®Google Scholar
• Chou, Y.-C., Lu, Z.-Y. J., Wang, F. T. Y., Lan, C.-F., & Lin, L.-C. (2008). Meanings and experiences of menstruation: Perceptions of institutionalized women with an intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21, 575–584. doi:10.1111/j.1468-3148.2008.00430.x
   Web of Science ®Google Scholar
• Chou, Y.-C., Lu, Z.-Y. J., Pu, C.-Y., & Lan, C.-F. (2008). Predictors of female worker attitudes towards menstruation and the provision of help to institutionalized women with intellectual disabilities in Taiwan. Social Science & Medicine, 67, 540–545. doi:10.1016/j.socscimed.2008.04.018
   PubMed Web of Science ®Google Scholar
• Chou, Y.-C., Lu, Z.-Y. J., & Pu, C.-Y. (2009). Prevalence and severity of menstrual symptoms among institutionalised women with an intellectual disability. Journal of Intellectual & Developmental Disability, 34, 36–44. doi:10.1080/13668250802688322
   PubMed Web of Science ®Google Scholar
• Chu, C. M.-Y. (1980). Menstrual beliefs and practices of Chinese women. Journal of the Folklore Institute, 17, 38–55. doi:10.2307/3814221
   Web of Science ®Google Scholar
• Dizon, C. D., Allen, L. M., & Ornstein, M. P. (2005). Menstrual and contraceptive issues among young women with developmental delay: A retrospective review of cases at the hospital for sick children, Toronto. Journal of Pediatric & Adolescent Gynecology, 18, 157–162. doi:10.1016/j.jpag.2005.03.002
   PubMedGoogle Scholar
• Fitzgerald, M. H. (1990). The interplay of culture and symptoms: Menstrual symptoms among Samoans. Medical Anthropology, 12, 145–167. doi:10.1080/01459740.1990.9966019
   PubMedGoogle Scholar
• Furth, C., & Chen, S.-Y. (1992). Chinese medicine and the anthropology of menstruation in contemporary Taiwan. Medical Anthropology Quarterly, 6, 27–48. doi:10.1525/maq.1992.6.1.02a00030
   Web of Science ®Google Scholar
• Grover, S. R. (2002). Menstrual and contraceptive management in women with an intellectual disability. The Medical Journal of Australia, 176, 108–110.
   PubMed Web of Science ®Google Scholar
• Jewell, P. (2007). Policy as ethics: Sterilisation of girls with intellectual disability. Policy & Society, 26, 49–64. doi:10.1016/S1449-4035(07)70115-7
   Google Scholar
• Kyrkou, M. (2005). Health issues and quality of life in women with intellectual disability. Journal of Intellectual Disability Research, 49, 770–772. doi:10.1111/j.1365-2788.2005.00749.x
   PubMed Web of Science ®Google Scholar
• Lawton, M. P., & Brody, E. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist, 9, 179–186. doi:10.1093/geront/9.3_Part_1.179
   PubMed Web of Science ®Google Scholar
• Lin, L.-P., Lin, P.-Y., Hsu, S.-W., Loh, C.-H., Lin, J.-D., & Lai, C.-I., … Lin, F.-G. (2011). Caregiver awareness of reproductive health issues for women with intellectual disabilities. BMC Public Health, 11(59). Retrieved from http://www.biomedcentral.com/1471-2458/11/59
   Google Scholar
• Lu, J. Z. (2000). Experiences of menstruation among Taiwanese women: Observation and notes of awareness group of Taiwan social menstruation. Women Electric Newsletter, 68. Retrieved March 16, 2009, from http://forum.yam.org.tw/bongchhi/old/light/light66-2.htm
   Google Scholar
• Lu, Z.-Y. J. (2001). The relationship between menstrual attitudes and menstrual symptoms among Taiwanese women. Journal of Advanced Nursing, 33, 621–628. doi:10.1046/j.1365-2648.2001.01705.x
   PubMed Web of Science ®Google Scholar
• Lunsky, Y., Straiko, A., & Armstrong, S. (2003). Women be healthy: Evaluation of a women's health curriculum for women with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 16, 247–253. doi:10.1046/j.1468-3148.2003.00160.x
   Web of Science ®Google Scholar
• Mahoney, F. I., & Barthel, D. W. (1965). Functional evaluation: The Barthel index. Maryland State Medical Journal, 14, 61–65.
   PubMedGoogle Scholar
• Mason, L., & Cunningham, C. (2008). An exploration of issues around menstruation for women with Down syndrome and their carers. Journal of Applied Research in Intellectual Disabilities, 21, 257–267. doi:10.1111/j.1468-3148.2007.00406.x
   Web of Science ®Google Scholar
• McGrother, C. W., Bhaumik, S., Thorp, C. F., Watson, J. M., & Taub, N. A. (2002). Prevalence, morbidity and service need among South Asian and White adults with intellectual disability in Leicestershire, UK. Journal of Intellectual Disability Research, 46, 299–309. doi:10.1046/j.1365-2788.2002.00391.x
   PubMed Web of Science ®Google Scholar
• O'Hara, J., & Martin, H. (2003). Parents with learning disabilities: A study of gender and cultural perspectives in East London. British Journal of Learning Disabilities, 31, 18–24. doi:10.1046/j.1468-3156.2003.00197.x
   Google Scholar
• Rodgers, J., & Lipscombe, J. (2005). The nature and extent of help given to women with intellectual disabilities to manage menstruation. Journal of Intellectual & Developmental Disability, 30, 45–52. doi:10.1080/13668250500033094
   Web of Science ®Google Scholar
• Saltonstall, B. (2007). Mothers raising daughters with cognitive delay: Reflections on menarche & menstruation. Retrieved July 21, 2009, from https://tspace.library.utoronto.ca/bitstream/1807/9752/1/Saltonstall.pdf
   Google Scholar
• Shah, R. (1992). The silent minority: Children with disabilities in Asian families. London, UK: National Children's Bureau.
   Google Scholar
• Strauss, A. L., & Corbin, J. M. (1998). Basics of qualitative research techniques and procedures for developing grounded theory (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• United Nations. (2006). Convention on the Rights of Persons with Disabilities and Optional Protocol. Retrieved April 20, 2010, from http://www.un.org/disabilities/documents/convention/convoptprot-e.pdf
   Google Scholar
• van Schrojenstein Lantman-de Valk, H. M. J., Rook, F., & Maaskant, M. A. (2011). The use of contraception by women with intellectual disabilities. Journal of Intellectual Disability Research, 55, 434–440.
   PubMed Web of Science ®Google Scholar
• Walsh, P. N. (2003). Life members: Women with intellectual disabilities and aging. Journal of Gerontological Social Work, 38, 121–136. doi:10.1300/J083v38n01_01
   Google Scholar
• Walsh, P. N., Heller, T., Schupf, N., & van Schrojenstein Lantman-de Valk, H. (2001). Healthy ageing—Adults with intellectual disabilities: Women's health and related issues. Journal of Applied Research in Intellectual Disabilities, 14, 195–217. doi:10.1046/j.1468-3148.2001.00070.x
   Google Scholar
• Wong, M. W. (2009). Chinese culture and psychological disorder. Retrieved March 16, 2009, from http://www.christianmentalhealth.com/doc/pps/chinese.culture.psy.pps
   Google Scholar
• Yen, C. F., & Lin, J. D. (2009). Exploration of menstrual experiences: Perspective of the women with intellectual disabilities and their carers. Disability Studies, 7, 156–181. [in Chinese]
   Google Scholar
• Yu, M.-Y., Zhu, X.-I., Li, J.-Y., Oakley, D., & Reame, N. E. (1996). Perimenstrual symptoms among Chinese women in an urban area of China. Health Care for Women International, 17, 161–172. doi:10.1080/07399339609516230
   PubMedGoogle Scholar
• Zacharin, M., Savasi, I., & Grover, S. (2010). The impact of menstruation in adolescents with disabilities related to cerebral palsy. Archives of Disease in Childhood, 95, 526–530. doi:10.1136/adc.2009.174680
   PubMed Web of Science ®Google Scholar